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Jennifer (South Bend, In, United States) on 07/10/2012

I am 37 years old and recently diagnosed with PBC. Otherwise I am in good health. I am taking the one prescribed medication and I am responding well. It is in stage 1. I am still tired at times (more then I should be) but other then that feel ok. Does anyone have this and have any suggestions since they say "you can't get rid of this"?
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Replied By Lalita (Delhi, India) on 08/26/2012

Hi, My husband who is 56 years old is a type 2 diabetic with hypothyrodism and has been recently diagonised with Liver Cirohsis ---which is in an intial stage. He is a non alcoholic and non smoker and a vegetarian. He is otherwise very active and shows no symptoms. On routine tests of LFT, CBC and KFT we found that the CBC showed low platelets and LFT showed increased Billirubin and increased Alkaline phohsphatase.. On an ultrasound we found enlargement in spleen and hence continued the investigations to know the cause of Spleno megaly and increased AFT... Although it has been established that he has Cirohsis of Liver the score of which is 5% currently the cause of Cirohsis is still under diagnosis and should be known by this week end... For the past ten days he has been on a low salt diet and only raw vegetable juices and boiled veges for food along with home made cottage cheese - ( 100 gm ) per day and sprouts and yoghurt..... And of course no spices at all except cumin seed powder on yoghurt and a little turmeric on veges while coooking... Wanted to know more from you if you can help on the different diets that could be given and also the quantity of juice that can be consumed each time of the day. Your comment above is a great source of encouragement... And hence looking forward for help and advise... Thank you and God Bless! Lalita
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Replied By Tina (Houston, Usa) on 08/26/2012

Lalita, Please look into pranic healing. Since you are in India, you can google and find many healers who specialize in this form of healing which will help him resolve his issues. Good luck, T
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Replied By Timh (Louisville, Ky, Usa) on 08/27/2012

Lalita, you seem to be doing good diet so far. Much more will be needed. Here are some web links that will help.

http://www.youtube.com/watch?v=vt251o0y05I

http://www.liversupport.com/

http://www.liverdoctor.com/

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Replied By Paul (Indianapolis, In) on 09/19/2012

Your doctor should give you urso. As a dietary supplement, you might want to try curcumin or milk thistle. I live in IN as well, and my wife has PBC. Take care.
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Replied By Saundra (Minnesota) on 06/02/2016

Hi, I have PBC (primary biliary cirrhosis) and my hormone doctor wants me to take progesterone. I already have cirrhosis so my liver is not functioning like a normal persons and so I am wondering if anyone has taken progesterone with PBC. My labs are all normal after starting URSO about six years ago but I don't know how much of my liver is functioning, still. My hepatologist tells me everything is fine based on my liver enzymes but I know they reflect my current state and in no way reveal anything about damage that has already occurred.

So, I am wondering if it is safe to take progesterone in a low dose cream and also would like to know if alpha lopeic acid is safe on a cirrhotic liver.

Thanks!

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Replied By Vicky (New South Wales) on 02/12/2024

Anna's wild yam cream... look it up. That is THE cream. Contains no progesterone yet makes your body create its own progesterone. Does amazing things. Bought from Australia. If you want to help yourself further you could look into BIO IDENTICAL hormone replacement therapy. NEVER the doctor-advised HRT(hormone replacement therapy) NO. The BIO-IDENTICAL hormone replacement to balance all the hormones and sickness seem to slip a way and health is often restored.

Replied By Timh (Ky) on 06/04/2016

Saundra: I have used any one of the natural derived hormone supplements like Pregnenalone or DHEA for over two decades and with fatty liver as well as chronic active viral hep with only good effects. From what I know on Progesterone is also mostly or only benefits as concerns women. Only dangers or warnings I am aware of is the synthetic equivalent prescription estrogen. So if your doc is encouraging you to use the Yam derived progesterone this is a bonus as you can have regular checkups to determine the effects.

As for your liver, ALA is one of several nutrients with big benefits. The best approach is "broad spectrum" product that contains synergistic nutrients or herbs that have best overall healing outcomes. The website Liversupport.com has good basic info pages on most liver conditions and they sell specially designed products that have proven good results. Here is the link for your perusal:

http://www.liversupport.com/

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Replied By Saundra (Minnesota) on 11/06/2016

Tim,

What liver disease and what stage of liver disease are you? With PBC, the liver has a difficult time clearing hormones from the body so that is my one concern as I am stage 4 cirrhosis. No one knows exactly how much function I have left so I'm not into compromising an unknown at this point.

I appreciate your input, but am not convinced it's okay for me, yet, considering where I am at.

Saundra

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Replied By Timh (Ky) on 11/08/2016

Saundra: I have not had the convenience of being properly diagnosed by the medical profession, but I eventually figured out that my symptoms were exactly as described for PBC. I tried eating cooked beef or chicken liver and got much better until I took a Hep-C vaccine and came down with chronic active viral hep which has been going on for more than 2 decades.

You are correct in a sick liver unable to properly metabolize hormones so supplementing any would not likely help. I would encourage you to transfer your treatment modality from pharmaceutical based to natural which is very much the best option for recovery rather than accepting that there is no cure and you will never get better. The Liver is a remarkably regenerative organ and it takes about 90 days to grow a new one. There are several multi-herb & nutrient products on liversupport.com that are designed specifically for certain liver diseases. Pick a product that best suits PBC and also either supplement Raw Liver Tablets or eat cooked chicken or beef Liver regularly. A good herbal product for the liver should contain Milk Thistle, Artichoke, Turmeric, and Dandelion. Choline or Methionine may be needed to help burn fat. An anti-inflammatory diet will help much as inflammation prevents the replication of healthy cells and results in cirrhotic ones.

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Replied By Janet (Brooklyn, New York ) on 12/21/2016

I was dx with aih at 57 yrs old. Always battling with my weight. I had nash that became stage 3 and 4 cirrohosis. Was not put on the proper meds at first. I have been on cellcept, for over 5 yrs and the dr said I would have to be on it for the rest of my life. My thing is that every time I have asked about taking other therapies or vitamins they don't encourage it only milk thistle which I don't take. I do get scanned every year, and blood tests every 3 months to check my liver enzymes. I had my last martini right before I became ill, I really do miss drinking but now being 62 I don't go out as much as I used to. As a result of taking prednisone I became diabetic and have high blood pressue. Anyone have any suggestions or does anyone take this medication. Thanks
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Replied By Laurie (Connecticut) on 09/22/2017

Is The paelo diet recommended for primary biliary cirrhosis?
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