Yes, it is totally annoying. You never get used to it. My muscles are twitching as I am typing this. I've been to every doctor imaginable and I've tried every pill to include magnesium, potassium, and any other pill that people claim will MAKE IT STOP! But I still got it.
I definitely think it's a neuro thing because when I wake up or when my brain wakes up I immediately have a muscle jump somewhere.
Just last night I had a dream; it was funny so I smiled. Still dreaming, when I stopped smiling the muscles around my mouth started twitching so much that (while looking at myself in the dream) it looked like I was in a wind tunnel and I could not fix my mouth to speak. I woke up and from what I swore I could here my lips moving from my gums. It was wierd. I went back to sleep but I wish it could have been caught on tape.
My muscles have been twitching everyday, somewhere on my body for 33 years. Sometime for a second, sometimes for days. There is no cure but it won't kill you; it will only irritate the hell out of you.
Sorry to be the bearer of bad news.....
Replied By Bfsbitch (Salt Lake City, UT) on 04/06/2014
Hello fellow BFS sufferers. This disease is annoying. I will testify to that. I mean you're talking to a friend and your leg is going whabam and sometimes it's in my eyelid or even my stomach this worm skin feeling nerve twitch. Well concentrating on it won't help. I've found Carbamazepine, actually the newer, safer Oxcarbamazepine which don't require blood tests and is a anti-seizure drug had some effectiveness in eliminating my eyelid twitch. It did nothing for my stomach and leg twitch. Occasionally even my whole face will seize. What helps: being a scientist yourself figuring what works: sleep, magnesium, epsom salts, no wheat.Replied By Mary (Arcadia, Ca) on 04/08/2014
Can you help me? My older brother's hand shakes so much. He doesn't know what to do, does the vitamin/medication you take that works for seizures help him? Can I find it organic too?Replied By Carolyn (Woodstock) on 03/26/2016
I have had this 14 years and 8 doctors (including a neurologist) could never give it a name. Fibro, mental, restless leg, etc. Pills for all but none truly help. Lidocaine 5% patches will relieve symptoms but about 4 to 5 hours but they cost $8 a patch. I have to cut them up to afford them. Salonpas help but not as long or as well. Lidocaine 5% cream helps but messy. Like a thick Vaseline salve. I have them in my neck, shoulders, sides, legs, and feet but the VERY WORST is in my groin. Can't stand up to even walk. I have discovered that when I have even minor surgery that requires me to be put to sleep, I have a few days sabbatical. Have tried all the herbal's, vitamins, and RLS drugs. Gabapentin is out. Doesn't work. Have even tried the Lidocaine 5% prophylactic but the cramps just pop up somewhere else. I just need 5 to 6 hours of uninterrupted sleep. The lack of sleep increases the stress which increases the BFS. Oh...have tried flexeril, Zanaflex, Meraplex, Requip and TENS unit. All with no relief. Haven't tried the Salonpas spray but am going to try this week. Anyone have any other suggestions?