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Zanytranscriber (Port Townsend, Wa, Usa) on 05/25/2012
5 out of 5 stars

I found this website when looking for info about neuropathy. My husband has had two back surgeries and has suffered with neuropathy ever since, especially his right leg. Most of the time, it feels like it is waking up from being asleep with things that feel like sparkles ALL THE TIME, but sometimes he gets something like electrical shocks that zip down his leg. We got alpha lipoic acid 100 mg and acetyl L-carnitine 500 mg at a local store. He started first with just the ALA one tablet and felt relief the second day. After a few days with just the ALA, we added the acetyl L-carnitine. He is able to sleep at night, and even if he has been really active and his leg is doing really badly, it doesn't take as long for the shocks to go away. He has been able to stop taking Neurontin, Methocarbamol, Xanax, etc and is much more active. We tell everyone about this combination, even our chiropractor and MD. We also tell them about the website. Thanks so much.

Replied By Zanytranscriber (Port Townsend, Wa, Usa) on 05/27/2012

My husband is taking 250 mg of the alpha lipoic acid once a day and the same for the acetyl L-carnitine 500 mg, once a day. If he is having more "sparkles", he will take another of the ALA 250 mg.

Replied By Laura (Erie, Co) on 07/29/2012

For 2 years, I was dealing with the pain, shooting sensations, fatigue, electronic vibrations, etc. When my third neurologist said peripheral neuropathy, I found this site, and immediatly began treatment. Because 35% of people with peripheral neuropathy are gluten intolerant, I decided to give this a shot, since diabetes has been ruled out. I have also gone dairy-free, as I've always been a little sensitive to dairy.

After 3 weeks, I already feel so much better, I have stopped taking gabapentin for the pain! There is still a little pain, but the shooting stabbing sensations are gone, and the feeling of restless leg syndrome is gone too.

Here is my daily regimine, specifically:

6:00 am 1000 mg acetyl-L-carnitine
6:30 am breakfast (gluten free, dairy free), 100 mg R-lipoic acid, vit D supplement, fish oil supplement.
10:00 am 1000 acetyl-L-carnitine, empty stomach
12:00 pm 1 fish oil supplement, lunch (gluten free, dairy free)
2:00 pm 1000 acetyl-L-carnitine
5:00 pm dinner (gluten free, dairy free), 1 fish oil supplement, 1 apple cider vinegar
9:30 pm 200 mg R-lipoic acid, 1 B complex supplement.

This is a lot, and I wouldn't do this for more than a few months, but it is amazing how much better I feel in just a few weeks. I will follow up in January 2013, with the final results. I hope with positive news that a complete recovery has been made.

Replied By Joseph (Stockton, CA) on 08/11/2021
Hi Laura, just read your posting of several years ago. 1st. Gabapentine did they sell it back then? To me I would never take due to how dangerous the side effects are. Did you suffer Side Effects at all? How long did you take? Did it really help your pain? Is there an R-Lipoic Acid? Thank you, I too love this site, however, I have lots of priorities so I can't view for hours, but would love to because I pass on info to others that need it.

If I can be of assistance with anything pls contact me. Joseph

Replied By Alana (Aurora, Co) on 11/19/2012

Hi Laura - thanks for the great info. I'm so glad your neuropathy has resolved and congrats on finding the cause! I had a sudden onset of neuropathy in my legs in 2005, which has since spread to my hands. Doctors believe the cause is either autoimmune or a spinal cord cyst. I'm interested to try your approach, but also fearful of giving up beloved gluten, dairy, etcetera and having it not work. So, my question is, how long were you doing the gf thing before you noticed a difference? Even though I've tested negative for gluten sensitivity, I've gone off of it for periods up to 2 weeks without any difference. Thanks in advance for any info!

Replied By Deb Adams (Fl) on 11/18/2020
Have severe b6 toxicity just from a multi-vitamin, caused neuropathy etc. Get off b6 and see if you improve.

Replied By Lily (Kelowna, BC, Canada) on 01/26/2013

I also went gluten free and after 2 weeks am no longer taking the supplements. Ocassionally in the late evenings there is a bit of tingling but it has only been 2 weeks. I am very strict about reading labels etc. And I eat a lot of fresh fruit and veggies, pumpkin seeds, sunflower seeds and make myself some awesome smoothies. I have dehydrated lots of apple so I have healthy snacks. It is a very healthy diet. Here in Canada I buy 1 loaf of Udi's glutin free bread each week it is good bread.... In the freezer section and I bake some muffin. Good luck to all & good eating. Let's eat healthy & heal our bodies.

Replied By Tlkleen (Halifax, Nova Scotia) on 02/10/2013

My husband has a rare disease called Tangiers. It causes neuropathy mainly in his limbs, but has lost feeling all over. He suffers from alot of pain. He is getting ALA treatment from his naturopath. They are starting a new treatment that involves a new natural med that will be administered before the ALA to help the body absorbe it. They say he will notice a difference with in 30 days. Fingers crossed!

Replied By Cheryl G (Groves, Texas, United States) on 03/09/2013

Tikeen from Halfax: My husband has neuropathy pretty severe, I'm interested to hear how the treatment goes with ur husband. Wishing ya'll best of luck!! Pls let me know how it goes! XOXOXO

Replied By Steve (Las Vegas, Nv Nevada) on 03/09/2013

My brother has had some success relieving neuropathy in his fingers and toes using a low level laser therapy pen. There is lots of research on low level laser therapy for neuropathy you can read as well: http://www.healinglightseminars.com/laser-research-library/neuropathy-2/

Steve

Replied By Pay It Forward (PNW) on 06/26/2023
Thanks. Red light therapy maybe a lesser known but effective treatment, without having to take another pill. Ordered a unit today. Will be doing this daily and will come back in 30 days to report my spouses response to this.

Replied By Lily (Kelowna, BC) on 04/07/2013

I added an ADRENAL Gland support and with the gluten free I now have dropped the supplements except for B-12 injection and take fish oil -2 tbsp. A day and I have almost total relief. Thanks to everyone who has posted. I hope everyone finds relief like I have.

Replied By Diane (Framingham, Ma) on 06/14/2013

For Laura from Erie, CO: I read your post for Peripheral Neuropathy on 7/29/2012 and would like to know how you're doing as I am starting out with your protocol. Want to know if you added anything. Thanks Much and blessings

Replied By Denise (Portland, Maine) on 06/15/2013

I would like to know how your husband is doing with his neuropathy? You mentioned a new treatment with a naturopath. Is it working out? Very interested as I am also in a great deal of pain with neuropathy. I've been to 2 neurologists and all they can/will do is give me drugs. I tries neurontin but it didn't do anything for my pain and made me very confused and unable to carry on a conversation. Thank you.

Replied By Stormy (Nj) on 02/08/2014

I'm writing about a man named Walter Last. He has published a book called 'Heal Yourself The Natural Way'. I purchased his books. They come a series of three for the complete book.

I asked him about my Peripheral Neuropathy in my feet. His reply was; 'This is usually due to poor blood circulation. Most useful will be the ascorbate/MSM, see Chapter 3 of Towards Radiant Health and http://www.the-heal-yourself-series.com/index.html with Vitamin C and MSM; also see Hypercoagulation in Chapter 6 of Towards Radiant Health, and finally often have a warm foot bath with the addition of a handful of magnesium chloride and 3 tsp of sodium bicarbonate. Then very slowly and spaced out add 2 tsp of citric acid crystals. The aim is to let most of the developing CO2 bubbles dissolve in the water rather than letting them pop.

I haven't tried it yet, but am working on buying a bulk container of MSM and Vitamin C.

The other man I emailed to was Tony Pantalleresco, a man who says about himself, 'I'm just a guy who knows some stuff'. Tony replied to my problem with the following remedy; serrpeptase 10-20 mgs, msm 1000 mgs, B1 100 mgs, dose 5 times a day, I am taking this remedy presently. I have been taking these for the past 3 weeks and have noticed the bottom of my feet with less leathery, numbness than previously.

Good luck to all, and thanks for reading my attempts at dealing with neuropathy.

Replied By Jim Spencer (Medford, Oregon) on 11/17/2015

I like the idea about using Carnitine for neuropathy. But, I think you should try taking virgin plant oils rather than a fish oil supplement. Eating fish, including sardines is a good way to get fish oil. Fish oil capsules have a highly refined/distilled derivative of omegas. They might actually result in negative health problems-including cardiovascular problems such as high blood pressure and arrhythmias. Cold pressed Hemp oil is a perfect blend of 3-6-9 and GLA, plus all amino acids and protein. Read Dr. Rowens"The PEO Solution" for the in-depth research on the subject.

Replied By Rosea (Michigan ) on 01/25/2017

Liz,

How long did it take for the alpha lipoic acid to work? Also how much did you take a day?

Replied By Rich (San Jose) on 08/02/2017

Each person has a different reaction when taking meds or supplements.

at best trial and error.

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