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Colleen (Calgary, Alberta, Canada) on 11/15/2009
4 out of 5 stars

I wanted to write in to give my long story to all of the people who are suffering with Perioral Dermatitis (POD) - I know I pored over these entries and was willing to try anything to get rid of / improve this rash. This board was a beacon of hope for me, and I'd like to pass on what I've learned, and what has worked for me with POD.

I'm 35 and live in Calgary, where the water is fluorinated (BOO!).

I suddenly became afflicted with perioral dermatitis in June of this year, a couple of days after receiving a tetanus shot.

Yes, I believe that is the cause; no, I can't prove it and have found no corroboration online. Anyone else get an immunization or vaccine just prior to this?

I had a very sore stomach for a couple of days after the shot, and then started getting an "acne-like" rash around the sides of my mouth and chin. I didn't think too much of it - I get the odd pimple in that area once in awhile.

I didn't notice any particular food related ebb and flow of symptoms, aside from some alcohols. No problem with spicy food or exercise either.

But this didn't go away, and it got worse and spread. These were blisters, not pimples (filled with clear fluid). I tried all my usual skin "cures" - primarily coconut oil, which is generally what I use on my skin and it's *usually* brilliant. But that only seemed to make the bumps worse! And a bit tender.
I tried castor oil - same thing. Bio-Oil - same.
I finally tried some of the cortisone cream my doc had prescribed for a different rash (on my shoulder - TOTALLY different beast), and that worked great... for a while. Then, like everyone else, I had the rebound, and the decreasing efficacy, and the spreading. Finally, I read that the cortisone can make it much worse (if I'd only known!).

I searched the 'Net, and self-diagnosed based on several write-ups of POD - I was not willing to go to the doc and end up on several months of antibiotics! There had to be something natural... And then I found Earth Clinic!

Now, the POD was on my eyelids, under my eyes, forehead, sides of the nose and around my mouth. When I stopped the cortisone, it was raw and painful and really unsightly and I was completely beside myself.

I tried whatever I could get my hands on that people were recommending here, with varying levels of success. My bathroom counter is covered with the many items I've bought trying to solve this!

My findings for the things I tried here:

Zinc Oxide cream - found that it relieved the rawness a bit, but the blisters proliferated and the redness did not subside. Might be partially due to other ingredients. I could not find one that didn't have either castor oil, petrolatum or other oils. ANY oil (except Tea Tree Oil) = FAIL. At least for me.

Vitamin E Oil - this was nice and soothing after using Tea Tree Oil or Apple Cider Vinegar, but - ANY OIL (except Tea Tree Oil)= FAIL. It would soothe the redness and rawness, but then I'd start over again with more blisters. Overall, I gave up on it for this condition.

Aloe vera gel (topical) - also stings. Helps the spots to feel better once the burning stops, but makes everything feel very tight and dry - need an emollient afterward, but at the time couldn't find anything. Helpful, but didn't cure anything.

Acidophillus - I've been taking acidophillus on a regular basis for years. I upped the dosage, but I didn't feel that this had any effect on my face.

Tea Tree Oil (TTO) - stings like crazy, but I could cope with that. It really helped by drying out the blisters. Definitely helped, but still never made it go away. Overall drying effect, so it didn't seem to contribute to new blisters, but it may since I couldn't seem to stop the blisters/dry & flaky cycle.

Apple Cider Vinegar (ACV) -helped the most - stings, and very drying, but reduced the redness down to small spots.

I found TTO and ACV in tandem to be the most helpful in toning down the overall redness (after the initial burn, that is). I would alternate days using ACV and TTO as a "toner", using a small amount of a 20% Urea cream afterward (to combat the flaking and tightness - this was the ONLY thing that helped in that area without creating more blisters).

That got me into a more manageable cycle, BUT still the redness and flaking skin persisted. If I knocked off the ACV & TTO, the blisters would come back.

I decided to revisit some earlier advice from my acupuncturist. He said (back when this all started) that the area around the mouth (where it first showed up) is related to the intestines in Chinese Medicine. I'd tried elimination diets (dairy, meat, grains) throughout the summer and fall to no avail, and no appreciable effect.

So - my new strategy. I did 3 things simultaneously:

2 days ago:
I bought a huge jug of organic Aloe Vera juice (for drinking).
I took 4-5 oz twice a day (mixed with orange juice because it tastes better) to start with, along with some acidophillus (at the same time - the aloe helps with absorption as well as healing intestinal troubles).
I stopped the topical treatments of ACV and TTO, and now I just use a tiny amount of straight calendula cream (from a tube; not mixed in a lotion, but be careful - it's a bit oily!) mixed with 20% Urea cream to help with the dry/tight feeling.

I also finally found a really good, natural and fluoride and SLS free toothpaste at my health food store with Neem, TTO, activated oxygen and other good stuff.

It has been 2 days, and I've had the most dramatic change in the POD!

Literally, the redness is about 95% gone (in 2 days!), and the blisters are flaking off with clear, new skin underneath. A couple of the more severe areas are still a bit tender, but less red, and they're very like healing blemishes now. I can't even see it around my eyes anymore!

So - after all that, I'm recommending that all of you treat your tummy! Even if you don't think you have a problem, Aloe Vera Juice certainly can't hurt!
The acidophillus alone didn't do anything for me, which really isn't all that surprising if (as I surmise) I have a malabsorption problem (do you?), which prevents many things taken internally from working; prevents nutrient absorption, etc.

I'm not certain if it is one part of this latest regimen, or the whole thing together, but FINALLY I am getting some "love", and finally seeing some very promising results.

I'm going to keep going with 4-5 oz x 2/day of aloe juice (I bought a gallon of it for about $30; in Canada, that is), and I'll let you know how things go!

As an aside, I'm starting to think now that there are maybe 2 (or more) different kinds of POD - seems one can be "mite"/ topical parasite/ bacteria related, and one seems to be more connected with the stomach and intestines, based on the fact that there seem to be such wide ranging results for different people.
Any other thoughts or hypotheses on this?
Best of luck to everyone!
Namaste!
Colleen

REPLY         

Replied By Colleen (Calgary, Ab, Canada) on 12/12/2009

UPDATED RESULTS

Hello again!
Well, it's about 4 weeks since I started to take aloe vera juice (internally) and I am VERY happy to report that my perioral dermatitis is completely, 100% gone!

My skin has never been better! YAY! I'm absolutely thrilled, and I've had the best "side effects" from this addition to my regimen...

I've kept up with my protocol of ~4 oz organic aloe vera juice twice daily (mixed with juice and water) - but seem to do best if it is taken away from meals (one hour before or after seems to be fine).

I have also maintained using a fluoride-free toothpaste, and I've recently started mixing a bit of my regular organic skin cream (with oils in it!) with the 20% urea cream and had super-wicked results - no recurrence of blisters at all!

In addition to the restoration of radiant skin, I am having a lot less issues with my digestion, and have been feeling better overall. I've struggled in the past few years with chronic fatigue /fibromyalgia-type issues, sensitivity and irritability (er... grumpiness) and these issues are all improving steadily - colour me surprised!

I'm re-investigating the possibility of celiac disease causing a lot of these problems, but that's going to take some time to determine.

In any case, it appears that my POD stemmed from intestinal problems (malabsorption most likely), and the aloe vera juice is treating it very nicely! And it doesn't burn or scar your skin in the process!

It's worth a shot if you suffer from POD, folks! Unless you're allergic, I don't think it can hurt...

Namaste!
Colleen

REPLY         

Replied By Mielle (New York, Ny) on 03/03/2011

Hi Colleen,
What a brilliant association you made! Yes, I also received a tetanus shot back in the mid-80's because of a motorbike accident. A few weeks later I noticed the PD on my chin. It was relatively mild and it came and went annually (nothing serious) and eventually it went away. A year ago, I received another tetanus shot and this year BAM! I have a big, red, blob that seems to be spreading around my chin and below nose. I too understand (from an Eastern perspective) that this is associated with the intestines. Regarding different causes of PD, I was thinking same, since different therapies work for different people. Thank you, from my heart :) for sharing your experience and thoughts! I will try the aloe-vera treatment. Currently, I'm only drinking a little of it with coconut water but will go for the gallon tomorrow.

Namaste! :)

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Replied By Sophie's Mom (Brighton, Michigan, Usa) on 07/09/2011

So here's my story. I got a pimple in the corner of my mouth so I used my topical clindamycin solution on it. A week or so later I developed a dry patch of skin, it didn't itch or hurt, just was very flaky. That lasted for a couple of months despite using aquaphor on it several times a day. 6 months later I was developing little fluid filled bumps that would break open and then leave a yellow/orange crust on my skin. The area expanded and then a little further out I got a very dry patch of skin, this time no flaking. I started using hydrocortisone on the area with the bumps and it would keep it under control but it never completely went away. After dealing with this for a year and a half, I finally got in to see a dermatologist who diagnosed perioral dermatitis. He put me on clindamycin solution, oral erythromycin (3 week course). I was pregnant at the time so I could not use the Protopic (tacrolimus) ointment he wanted to prescribe. After 4 months of using the clindamycin twice a day the symptoms were gone and I just needed to put a little aquaphor on the corner near my mouth and was able to stop the clindamycin. About 3 months after delivering my baby, the bumps started coming back in the same spot. I started using the clindamycin again but it seemed to get worse and even started spreading around the bottom of my lip to the other corner. I went back in to see the dermatologist who thought it was contact dermatitis this time. He recommended topical steroids, oral antibiotics, and topical tacrolimus. I was still breastfeeding so these medications were scary to me and I didn't .

So here's what I did. I switched toothpastes to a non-fluoridated one. I bought the organic Apple Cider vinegar (my local grocery chain had it - Meijer - for like $4). I tried drinking 1 oz (shot glass) straight but it was so acidic it hurt my teeth (I have severe tooth sensitivity). Even watered down I couldn't take it. So then I put it directly on the affected skin and all around my mouth. It burned like crazy but did seem to take away the bumps, however I still had very noticeable redness and dry flakiness. I put yogurt on the skin after the acv. I started taking acidophilus supplements as well. After a week of doing this, I stopped the yogurt. I then started putting a diaper rash cream on the area (MotherLove diaper rash and nipple cream - $9.00 online but costs $9. 00 for shipping. I got it for $12.00 from my local lactation consultant). It started to get significantly better, almost looking normal. However, after a few weeks it was still red and my lips started to become very flaky. I almost resorted to giving up breastfeeding to take the recommended medications because I have to work and it was so embarassing. Then I started putting the Apple Cider Vinegar on my face again but this time also dabbing it on my lips and the mucosa just inside my lips (pull the bottom lip down to expose the inside and swab Apple Cider Vinegar there and on the inside of the top lip). I use Vannicream moisturizer on my skin and vaseline (dermatologist said not to use aquaphor because it has lanolin and it can be irritating) on my lips and MY SYMPTOMS ARE COMPLETELY RESOLVED. No bumps, no redness, no dry flakiness.

My heart goes out to you, this is an extremely irritating and embarassing condition. Hope this helps.

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