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Elizabeth (Nashville, TN) on 07/21/2009
5 out of 5 stars

I said I would update my IC post if I found other remedies that work and I daresay I have found something....Turmeric. I had to take a whole bottle of turmeric pills in order to start seeing a difference BUT it was totally worth it. I'm afraid to jinx it but here it goes...I am virtually pain free...no constant urethra pain and no awful urgency to pee. I do notice that if I don't drink my 8 glasses of water a day I may get a little discomfort but all I have to do is drink more water and take my turmeric and I'm good! I take anywhere between 4-6 pills a day (500 mg each). I hope and pray that I continue to stay sympton free. I was reading a report on this disease and doctors are comparing the pain (at its worst) to cancer pain. They are right. I thought I would go crazy with pain at times. It is just so darn uncomfortable (considering where the pain is located) and my pain would not let up (until I used some of the remedies from my last post). These remedies helped but did not get rid of the pain for this long a period of time. I LOVE this site!!! Thank you so much to everyone that posts their experiences on here. It helps more than you could ever imagine.
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Replied By Julie (San Diego, California) on 04/20/2010

Elizabeth, that's awesome you found something to rid your pain! Has the turmeric continued to give you relief?
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Replied By Elizabeth (Nashville, Tn) on 09/23/2010

Julie- I still take turmeric every day as a precaution (it doesn't hurt it's good for you too). I think I found a link between my vaginal issues of yeast/bv and my IC. Once I started treating the YI/BV with home remedies my IC symptoms decreased alot. I've noticed when my lady parts are happy, my IC pain is practically non-existent. Woo-hoo! Also, I use Uva Ursi as a urinary cleanser after sex and a couple times a month. This seems to help also.
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Replied By Yezenia (Chandler, Az) on 11/12/2010

Elizabeth, I am so happy to know that you have found relief from IC with Turmeric. I am going to try this one. Also, I wanted to know what home remedies you have tried for your BV/IC because as many other women on here I am on a cycle of IC, then yeast infection, then BV over and over again. It has been the worst pain/experience of my life. Thank you for sharing what works for you.
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Replied By Elizabeth (Nashville, Tn) on 11/12/2010

Yezenia- I've had to do alot of experimenting with my YI/BV/IC issues. I can honestly say that most of the time I am pain free. I believe I've had and still have systemic candida from overuse of antibiotics and cortisteroid medications for my asmtha. It doesn't help that my immune system has never been very strong either. I've experienced alot of improvement with my YI/BV issues by using boric acid suppositories that I make at home. I did alot of internet research before I finally took the plunge. It's a personal decision.. You have to weigh the pros and cons. I use the boric acid after I have sex and after my period to correct the alkaline ph these instances cause. Also, I will use an empty veggie capsule filled with jojoba oil and one or two drops of oregano oil to fight any active infection (in conjuction with the boric acid). I find this one-two punch approach really knocks out the infection quickly. I also find that drinking aloe juice, the distilled kind, really helps with repairing the bladder lining. I try to drink it at night right before bed so it can hang out in the bladder for awhile.
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Replied By Barbara B (Lakeland, Fl Usa) on 12/30/2010

I was thrilled to find this site and spent several hours reading about IC. It is so refreshing to be able to communicate with others who are experiencing what I am experiencing. I don't believe I have IC, but I believe I have the precursors to it. I sailed through four bladder surgeries, but the fifth, a year ago, traumatized my bladder and turned my life upside-down. Although I do not have the intense pain of IC, I do have painful urination, I do have daily episodes of acute inflammation and spasms and have to follow a low acidic diet to maintain control. I now have a potty chair next to my bed so that I avoid most night-time accidents. I adjust the leg length to tip the front forward a bit, which allows me to empty my bladder more quickly and completely. With the chair nearby and a draw on my bed, I also am able to avoid wearing protection at night, which helps helps with UTIs. The potty chair is also raised, which is much more comfortable than using a lower commode.

I am very eager to try the boric acid, turmeric, coconut oil, oregano oil, and marshmallow root. During flair-ups, tiny amounts of baking soda are moderately successful but I will increase my dosage. While I am going to try the apple- cider vinegar, I am cautious. I know that vinegars are very acidic in nature and and bother me tremendously, so I will introduce ACV VERY slowly. I had tried taking large amounts of cold-press aloe vera juice with not much success, but I will try the distilled concentrate to see if that has more benefit. Potassium citrate would tear me up (citric acid. ) and DSMO causes a strong and very unusual body odor, so I'll save that one for last. I have IB with diarrhea as well as OB, which are related, and the generic little green anti-diarrheal pills help tremedously with both conditions. If anyone knows something cheap and natural which would replace these, please let me know. I take probiotics.

I make my own low-acid coffee by mixing equal parts coffee (decaf is STRONGLY recommended for IC patients) and cold purified/distilled water, and storing it in a dark container in cool dark place or 18 hours. I then filter out the grounds to make a coffee concentrate that can be stored in the frig for up to a month. To make coffee, rule of thumb is 12 oz hot water to 2 tablespoons of the coffee concentrate, but adjust for personal taste.

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Replied By Tom (Regina, Sk) on 12/30/2010

Barbara:
Did you ever try d-mannose, the sugar in such as blueberries and cranberries that is determined as the real healing substance in those products?

http://www.tahomaclinic.com/mannose.shtml

D-mannose is a naturally occurring simple sugar, closely related (in chemical terms, a "stereoisomer") to glucose. Small amounts of D-mannose are metabolized by our bodies; more than small amounts are excreted promptly into the urine. But how can even large quantities of a simple natural sugar do anything at all to cure over 90% of all bladder and urinary tract infections?

The answer is found in the interaction between D-mannose and the bacterium found in over 90% of all bladder infections, Escherichia coli ("E. Coli"). [No, that's not the infamous E. Coli mutant associated with unsanitary food processing that's hospitalized and killed people. It's the normal E. coli found as part of the "normal microflora" in every intestinal tract.

But even normal E. Coli don't belong in the bladder and urinary tract; in these areas it multiplies and becomes an undesirable infection. But why doesn't the normal downflow of urine from the kidneys through the ureters into the bladder and thence beyond simply carry the E. Coli right along with it? What allows the E. Coli to "stick" to the inner walls of the bladder and even work their way upward (like "Spiderman") in some cases reaching as far as the kidneys?

Mannose found as a supplement in a bottle is not one of the cheaper nutraceuticals, because of course there is only a tiny percent by weight of it in a pound of blueberries. But compared to the miseries of a UTI, it would amount to nothing if it works! Example of bottles of mannose here in BING Images:
http://www.bing.com/images/search?q=d-mannose&go=&form=QBLH&scope=images&filt=all

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Replied By Barb B (Lakeland, Fl Usa) on 01/03/2011

Thanks for the feedback, Tom. I did try a big jar of the D-Mannose. I've used it in the past with great success, but not this time. I took antibiotics almost continually for 10 months and every time I got off them, the infection was back the next day. I took the anitibiotics, the probiotics and the D-Mannose, plus AZO or other OTC, but the infection was relentless. Xylitol was the only thing that kept it at bay. It still keeps it at bay but it doesn't get rid of the infection. I would have tried the D-Mannose with the Xylitol along with the antibiotic and probiotics, but my funds are very limited.
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Replied By Elizabeth (Nashville, Tn) on 01/03/2011

Barb- Try taking Uva Ursi with a little pinch of baking soda in your water. The alkalinity of the BS lets the uva ursi do its thing. I love the stuff.
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Replied By Barb (Lakeland, Fl Usa) on 02/24/2011

I recently had a urinalysis with culture and the e'coli is still present. The doctor wants to put me back on a med that created terrible joint pain for me, then put me on a maintainance antibiotic. I don't want to go there! This time I am going to treat everything including the IBS-D aggressively. A big bottle of D'Mannose, along with UviUrsi, Mashmello, Digest Advantage (for the IBS-D, )probiotics, Activea, ( more probiotics) Coconut Oil. My doctor may not appreciate me but I'll go down and get the second urinalysis she ordered to test for cure, so I will know if it working. If not, then I'll have to do the antibiotics.

Thanks to everyone for the input.

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Replied By Alexandra (Miami, Fl) on 04/12/2011

As Chrerieh said I started using equal parts apple cider vinegar and hydrogen peroxide as a douche twic a day, I have been using it since yesterday and I already feel better!!
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Replied By Kristen (San Diego, Ca) on 05/21/2011

Hello.

I was just diagnosed with IC a couple days before my 30th birthday. I grew up with Bladder infections/UTI's, and was very upset to find out I had this chronic condition.

My pain was at a 10 all week long. I couldn't get out of bed, but to urinate. When I would urinate I would have to bite on a towel, the pain was so horrendous. I've been on a strong Opiate pain killer for the past two days, just so I can take a break from the agony.

I've been researching natural cures and started taking: Prelief (8 a day) and a Wild Pollen Suppliment that is suppose to help build up the bladder walls.

My friend is Indian, and I remember her telling me that her husband disolves Turmeric root into hot milk and drinks it every night.

So, last night I decided to not take my pain medication (took my last pill at 5pm and they last about 6 hours, max) and give the Tumeric an honest try.

I took one large root, and grinded it down to a powder in my coffee grinder. Warmed organic 2% milk just to the point of a boil, then mixed in the Turmeric powder, and drank it over 20 minutes.

I did not wake up once to urinate during the night (even on the pain meds I would get up every 3 hours). I woke up naturally at 6am, and I had no physical pain. I could get out of bed and stand up straight. When I went to urinate, I had a small amount of discomfort at the very end. NOTHING compared to what I've been going through.

Just the day before, when my pain meds would be wearing off, and I would urinate, the pain was worse than this morning, after the Turmeric, with no medication.

I hope and pray this continues to give me relief, and I hope it gives others relief. This has been the most miserable 2 weeks of my life.

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Replied By Shampoo (Los Angeles, California) on 06/07/2012

UPDATE::: Ok guys, the vitamin C cure DID not work, as the cream of tarter in a few inches of water, DID NOT WORK EITHER. Baking soda didnt work, and I got sick and could have possibly poisoned myself, (i just read about the dangers of taking too much baking soda online) UGH....

I was beginning to despair, so NOW, Im feeling great, and for the last week or so Ive been taking massive doses of Echinacea, (4 4oomg pills 4 times thruout the day) but altho I was feeling better, it wasnt really nipping my problem in the bud, as I was beginning to have excrutiating pain at night, and by now I starting to feel fully convinced I have the dread, interstitial cystitus!!!

Guys, D MANNOSE!!! I have tried D mannose TWICE before in the past and it seemed to do nothing for me. It was like drinking sugar water, it seemed to be the most rediculous cure ever!!!!! However, after tireless internet google research, all these women were swearing by it, (even saying things like, 9 out of 10 women are cured by D mannose, and I have interstitial incurable bladder disease and this cured me) so I decided to give it another go.

I tried a really cheap brand of D mannose before, and some women claimed that it DOES make a difference to go with a high quality more expensive brand, and that not all d mannose are created equal, I guess, so I spent about $25. 00 for a little jar.

It says on the jar to take a teaspoon every 4 hours, (like 4 times a day) and double for a raging case, (like mine) I took a teaspoon and a half every 2 hours like SEVERAL times a day, and by the third day, I really almost feel normal again, I feel great. I ordered another jar, I really think its working!! Its pricey but worth it.

I suppose the d mannose receptors attract e coli to them and then they attach off the wall and get flushed out of the bladder. Ive also read the d mannose can do this to sperm! So be careful ladies, if your trying to conceive, I read d mannose might interfere with pregnancy. They are even trying to patten a contraceptive using d mannose, lol! I was thinking of using d mannose as a preventative, as many women have had success doing that, but since I want to have a baby... I'll have to try something else when I dont have an infection. Im gonna try a brand of herbal cranberry supplement sold on amazon. One women claims after intercourse she takes 2 pills and a full glass of water and she hasnt had an infection in 10 years.

Im going to continue the d mannose for another week after my symptoms have fully gone. A teaspoon three times a day. Good luck ladies, and I will report back with my progress!!

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Replied By Shampoo (Los Angeles, Ca) on 06/07/2012

I dont think Boric Acid will help, as thats mainly used for vaginal infections, and it is considered a poison. Ive heard good things about all the other herbs tho. Ive also heard Goji berries incorporated in the diet can be good.

BY the way, the Turmeric is awesome for me. I cap my own and I take about 3 capsules, three times a day, and MSM powder as well, I take about 2 capsules three times a day.

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Replied By Cindy (Las Vegas, Nv.) on 06/21/2012

This is my first time on EC. Same story, Bladder infections... Antibiotic regements, result IC. Have never been oficially diagnosed, but symptoms the same only less severe than most. I am 68 yrs young, in good health except for this. My urgency is only once through the night and for my age that's not bad. My main issue is the pressure and burning after urinating. I started taking SEPIA (Homeopathic) which helped considerably. I now added a Cell Salt #1 (calc. Fluor. 6x), also Homeopathic, more cost effective 500 pellets for around $12.00 at Whole Foods. When I have the burning or pressure I take 4 pellets under my tongue, within 15 min. the discomfort has passed. I don't know why, but it does help. Cinnimon is also on my regimen, about 4 to 6 a day. I can only hope this may help someone. Thank you all for adding your voice to this wonderful website.
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Replied By Danielle (Ireland ) on 01/26/2016

Hi ladies, my first ever post on something like this. I've been in pain for 11 months. I've seen a urologist and put on an antibiotic for 6 months. Emotionally I'm up and and down but after reads posts on IC suffers I'm determined to find a solution. I've started taking turmeric please god it works! Also MSM gel is great for IC! Would love to be better again, your health is your wealth!! Best of luck to you all Danielle
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Replied By Nancy (Missouri) on 02/14/2018

I have had a uti for 2 weeks on a pain level 10 so does turmeric work
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