Elizabeth (Nashville, TN) on 07/21/2009
Replied By Julie (San Diego, California) on 04/20/2010
Replied By Elizabeth (Nashville, Tn) on 09/23/2010
Replied By Yezenia (Chandler, Az) on 11/12/2010
Replied By Elizabeth (Nashville, Tn) on 11/12/2010
Replied By Barbara B (Lakeland, Fl Usa) on 12/30/2010
I am very eager to try the boric acid, turmeric, coconut oil, oregano oil, and marshmallow root. During flair-ups, tiny amounts of baking soda are moderately successful but I will increase my dosage. While I am going to try the apple- cider vinegar, I am cautious. I know that vinegars are very acidic in nature and and bother me tremendously, so I will introduce ACV VERY slowly. I had tried taking large amounts of cold-press aloe vera juice with not much success, but I will try the distilled concentrate to see if that has more benefit. Potassium citrate would tear me up (citric acid. ) and DSMO causes a strong and very unusual body odor, so I'll save that one for last. I have IB with diarrhea as well as OB, which are related, and the generic little green anti-diarrheal pills help tremedously with both conditions. If anyone knows something cheap and natural which would replace these, please let me know. I take probiotics.
I make my own low-acid coffee by mixing equal parts coffee (decaf is STRONGLY recommended for IC patients) and cold purified/distilled water, and storing it in a dark container in cool dark place or 18 hours. I then filter out the grounds to make a coffee concentrate that can be stored in the frig for up to a month. To make coffee, rule of thumb is 12 oz hot water to 2 tablespoons of the coffee concentrate, but adjust for personal taste.
Replied By Tom (Regina, Sk) on 12/30/2010
Did you ever try d-mannose, the sugar in such as blueberries and cranberries that is determined as the real healing substance in those products?
D-mannose is a naturally occurring simple sugar, closely related (in chemical terms, a "stereoisomer") to glucose. Small amounts of D-mannose are metabolized by our bodies; more than small amounts are excreted promptly into the urine. But how can even large quantities of a simple natural sugar do anything at all to cure over 90% of all bladder and urinary tract infections?
The answer is found in the interaction between D-mannose and the bacterium found in over 90% of all bladder infections, Escherichia coli ("E. Coli"). [No, that's not the infamous E. Coli mutant associated with unsanitary food processing that's hospitalized and killed people. It's the normal E. coli found as part of the "normal microflora" in every intestinal tract.
But even normal E. Coli don't belong in the bladder and urinary tract; in these areas it multiplies and becomes an undesirable infection. But why doesn't the normal downflow of urine from the kidneys through the ureters into the bladder and thence beyond simply carry the E. Coli right along with it? What allows the E. Coli to "stick" to the inner walls of the bladder and even work their way upward (like "Spiderman") in some cases reaching as far as the kidneys?
Mannose found as a supplement in a bottle is not one of the cheaper nutraceuticals, because of course there is only a tiny percent by weight of it in a pound of blueberries. But compared to the miseries of a UTI, it would amount to nothing if it works! Example of bottles of mannose here in BING Images:
Replied By Barb B (Lakeland, Fl Usa) on 01/03/2011
Replied By Elizabeth (Nashville, Tn) on 01/03/2011
Replied By Barb (Lakeland, Fl Usa) on 02/24/2011
Thanks to everyone for the input.
Replied By Alexandra (Miami, Fl) on 04/12/2011
Replied By Kristen (San Diego, Ca) on 05/21/2011
I was just diagnosed with IC a couple days before my 30th birthday. I grew up with Bladder infections/UTI's, and was very upset to find out I had this chronic condition.
My pain was at a 10 all week long. I couldn't get out of bed, but to urinate. When I would urinate I would have to bite on a towel, the pain was so horrendous. I've been on a strong Opiate pain killer for the past two days, just so I can take a break from the agony.
I've been researching natural cures and started taking: Prelief (8 a day) and a Wild Pollen Suppliment that is suppose to help build up the bladder walls.
My friend is Indian, and I remember her telling me that her husband disolves Turmeric root into hot milk and drinks it every night.
So, last night I decided to not take my pain medication (took my last pill at 5pm and they last about 6 hours, max) and give the Tumeric an honest try.
I took one large root, and grinded it down to a powder in my coffee grinder. Warmed organic 2% milk just to the point of a boil, then mixed in the Turmeric powder, and drank it over 20 minutes.
I did not wake up once to urinate during the night (even on the pain meds I would get up every 3 hours). I woke up naturally at 6am, and I had no physical pain. I could get out of bed and stand up straight. When I went to urinate, I had a small amount of discomfort at the very end. NOTHING compared to what I've been going through.
Just the day before, when my pain meds would be wearing off, and I would urinate, the pain was worse than this morning, after the Turmeric, with no medication.
I hope and pray this continues to give me relief, and I hope it gives others relief. This has been the most miserable 2 weeks of my life.
Replied By Shampoo (Los Angeles, California) on 06/07/2012
I was beginning to despair, so NOW, Im feeling great, and for the last week or so Ive been taking massive doses of Echinacea, (4 4oomg pills 4 times thruout the day) but altho I was feeling better, it wasnt really nipping my problem in the bud, as I was beginning to have excrutiating pain at night, and by now I starting to feel fully convinced I have the dread, interstitial cystitus!!!
Guys, D MANNOSE!!! I have tried D mannose TWICE before in the past and it seemed to do nothing for me. It was like drinking sugar water, it seemed to be the most rediculous cure ever!!!!! However, after tireless internet google research, all these women were swearing by it, (even saying things like, 9 out of 10 women are cured by D mannose, and I have interstitial incurable bladder disease and this cured me) so I decided to give it another go.
I tried a really cheap brand of D mannose before, and some women claimed that it DOES make a difference to go with a high quality more expensive brand, and that not all d mannose are created equal, I guess, so I spent about $25. 00 for a little jar.
It says on the jar to take a teaspoon every 4 hours, (like 4 times a day) and double for a raging case, (like mine) I took a teaspoon and a half every 2 hours like SEVERAL times a day, and by the third day, I really almost feel normal again, I feel great. I ordered another jar, I really think its working!! Its pricey but worth it.
I suppose the d mannose receptors attract e coli to them and then they attach off the wall and get flushed out of the bladder. Ive also read the d mannose can do this to sperm! So be careful ladies, if your trying to conceive, I read d mannose might interfere with pregnancy. They are even trying to patten a contraceptive using d mannose, lol! I was thinking of using d mannose as a preventative, as many women have had success doing that, but since I want to have a baby... I'll have to try something else when I dont have an infection. Im gonna try a brand of herbal cranberry supplement sold on amazon. One women claims after intercourse she takes 2 pills and a full glass of water and she hasnt had an infection in 10 years.
Im going to continue the d mannose for another week after my symptoms have fully gone. A teaspoon three times a day. Good luck ladies, and I will report back with my progress!!
Replied By Shampoo (Los Angeles, Ca) on 06/07/2012
BY the way, the Turmeric is awesome for me. I cap my own and I take about 3 capsules, three times a day, and MSM powder as well, I take about 2 capsules three times a day.
Replied By Cindy (Las Vegas, Nv.) on 06/21/2012
Replied By Danielle (Ireland ) on 01/26/2016
Replied By Nancy (Missouri) on 02/14/2018