Replied By Wossta (Jackson, MS) on 05/24/2009
Hi, i have been dealing with HS since I was nine years old, I am now 33. I have went to doctors after doctors, and I have had my sweat glands removed from my left arm pit and my left breast in which I have not had an outbreak in those areas since, but the cyst, boils, or legions have gotten worse in the right breast and arm pit and there now coming in my buttock area. I think my case is the worse because I have dealt with the disease for 24 years, and did not have a clue about what I had until about five years ago, and I have tried everything under the sun. After my surgery the doctor told me to use dail soap (antibacterial only) and hibiclens which is an antiseptic/antimicrobial skin cleanser that you can purchase from Walgreens. It cuts down of the spread of bateria in the infected area. I can honestly say prayer and hibiclens has made it more managable for me. Another helpful hint is when using hibiclens the order is not noticable.Replied By Contessa (Jackson, Ms) on 08/07/2009
My question is for Wossta from Jackson, MS. I have your same exact problem but I have yet to find the right doctor here in Jackson. I have had HS since I was about 11yrs. old although it was no diagnosed until I was 21! Now over the past 5 yrs. my condition has gotten so much worse that I have lost my ability to function in my everyday life. Please email me the names of any doctors that you have been to that were able to help you. Also, any medicines that have had a positive effect on your condition. I need any and all help from anyone. Doctors seem to minimize the effect this has on my life and the server pain I experience daily with no relief. Just one abscess after the next all in different areas.Replied By Btw (Seattle, Wa) on 09/02/2009
I have used the crystal before and it works great, however there are two forms I have come across one in a more classic shape and the other in a ball, I recomend the actuall deorderant and not the ball as the ball can become rigid and very painfull to inflamed skin.Replied By Atlanta Girl (Atlanta, Georgia) on 02/06/2010
I've had Hidradenitis Suppurativa most of my life. However, I have NEVER had body odor, even though I do NOT use deoderant. When I had my sweat glands under my arms removed as a teenager, I began using baby powder to absorb the sweat and it worked very well. Now I use a body powder that you can get at any drugstore and I have no problem with body odor even though I go to the gym and workout.
EC: Warning!
From: http://en.wikipedia.org/wiki/Talc
Several studies have established preliminary links between talc and pulmonary issues,[6] lung cancer,[7][8] skin cancer and ovarian cancer.[9] This is a major concern considering talc's widespread commercial and household use. In 1993, a US National Toxicology Program report found that cosmetic grade talc caused tumours in rats (animal testing) forced to inhale talc for 6 hours a day, five days a week over at least 113 weeks, even though it contained no asbestos-like fibres.[7] Scientists have been aware of the toxicity of talc since the late 1960s, and in 1971 researchers found particles of talc embedded in 75% of the ovarian tumors studied.[10] However, the U.S. Food and Drug Administration (FDA) considers non-asbestiform talc, that is, talc which does not contain potentially carcinogenic asbestiform amphibole fibers, to be generally recognized as safe (GRAS) for use in cosmetics. [11]
Replied By J (St Thomas, Ontario) on 04/19/2010
Please describe the surgery. My new Dr has booked it and I am so freaked out, no clue how long I will be off work, I've been off a total of 4 weeks now.Replied By Jmbd (East Greenwich, Rhode Island) on 09/29/2010
To: Cherie from Brocton, MA
Hello, I was so glad I found your post; you live very close to me. I live in Rhode Island and I also suffer from the emotional and psychical symptoms of HS. I have been to countless doctors and bounced from one specialist to the next as my symptoms just keep getting worst. I would be very thankful for any information you would be willing to share with me regarding your personal struggles and medical experiences with this condition: diagnosis, doctors, medicines you have tried and if the weather affects your HS? I wish you the best.Replied By Bee (Tampa, Fl) on 07/12/2017
Just a tip. Powdering the area does help significantly but most powders contain talc, which is highly carcinogenic. So I bought a bag of rice powder from the grocery store. Works just as well and it's 100% natural!