Close

You must be logged in to love this post! Please sign in:

Close

You must be logged in to follow this post! Please sign in:

Ineke Leer (Walker, MN) on 04/10/2009

Hi: My name is Ineke, I found out I had Lupus 4 weeks ago. I am on predisone and hydroxychoroquine. What a combo.....The predisone only works if taken in doses of 30 mg a day or higher. Its not the drug for me to be on. Can't sleep through the night and it makes me very edgy. Anyway I started taking Olive Leaf extract 2 capsules twice daily, msm 2000 mg twice daily, probiotic enzyme two tablets a day, purce bovine colostrum from first milking, and I had adjusted my diet, I do notice that sugar.....bad......refined carbs, bad.....so far it hasn't made a difference, buts its only been 5 days since I started the natural supplements,, but, I am hopeful for results.

Any advise is welcomed.
Ineke

REPLY         

Replied By Mona (Ny, Us) on 04/24/2011

I caught an infection from trying on pants in a store that someone had before and now I have the disease. I find that if you try homeopathy, there was clearly no other choice after trying traditional medicine. I also find that with homeopathic medicine, nothing happens at first until 6mo-1 yr. later and then it finally works. Problem is with that though, if you don't know what you're doing and you're just testing alternative therapies, you can waste a long time on the wrong alternative medicine.
REPLY         

Replied By Theola Williams (Gainesville, Florida) on 05/06/2011

My name is Theola, from Gainesville, FL. I have been dx with Lupus for two years, and it has been a real long journey. I have been drinking hot sage tea which helps with my inflamation and joint pain. I hate taking steroids bc it makes me eat like a run away slave and gain weight. I'm starting to take more vitamins, and its really helping. Im thanking god im still here. Bless all!!!
REPLY   2      

Replied By Marie (Houston, Tx) on 07/07/2011

Can someone please help me? I have been dealing with a skin burning problem for over 10 years when exposed to UV computer screens, TVs, lighting in stores, regular light, and sun. It's feels like a burn/inflammation. I think it might be connected to lupus as I had the rash 10 years ago. The rash never came back but the burning is relentless. I've tried fish oil, turmeric, acv, eating only veggies, vit e (which helps a little), cinnamon, and so so many other things to no avail. I work at a computer for 8 hours so I can't escape the burn. My whole life revolves around avoiding any kind of light, cooking in the dark, going blind b/c I have to turn down my computer screen so dark so I don't burn. Has anyone heard of this? Is there a cure? I'll try anything!
REPLY   1      

Replied By Rush (Usa) on 07/07/2011

you haven't been around any giant hogweed have you? Contact can make your skin still sensitive and burn in light even years later

http://www.youtube.com/watch?v=KaV2jwNT0MQ

REPLY         

Replied By Mmsg (Somewhere, Europe) on 07/08/2011

have you tried evo (coconut oil)?
REPLY         

Replied By William (Mn) on 09/24/2015

If it were me, I would try tomato paste mixed with olive oil. Google that and see what you think.
REPLY         

Replied By Constance (Michigan) on 04/17/2017

Look into Electromagnetic Frequency poisoning.....happens with smart meters on your house and other electronics......computer routers, smart cell phones, digital home phones, etc.
REPLY         

Replied By Brian (Usa) on 04/24/2017

Sounds like porphyria.
REPLY