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Shell17 (Victoria, Australia) on 12/27/2022
5 out of 5 stars

My experience with LDN... after being diagnosed with MS in 2018 (symptoms of neuropathy, fatigue, bladder problems, lack of balance, gait problems). I was put on Tysabri and had no improvement in symptoms. I developed a brain tumor in 2020 and had that removed - whether it was that drug, nobody knows.

I subsequently went on LDN in 2021 and this year (2022) the tests from my neurologist showed that I have improvements in all of my nerve tests and no new symptoms. Of course he tries to sell me new pharmaceuticals at every visit but I say no and continue with the LDN.

It must be filled at a compounding pharmacy and it costs $105 for 100 capsules in Victoria, Australia - I take 1 x 5mg tablet daily.

I found this website helpful - https://ldnresearchtrust.org/what-is-low-dose-naltrexone-ldn

It may not be a cure, but I have experienced zero side effects and the regular MS drugs have a massive list of side issues.

REPLY   3      

Replied By Rialc (Ireland) on 10/07/2023

Hi

My partner has MS for a long time, his walking is deteriorating. He is taking Ampyra. I wonder if LDN would be a benefit for him.

We are living in Ireland but I don't know where to get LDN. Has anyone bought LDN in Ireland or Europe?

REPLY   2      

Replied By Art (California) on 10/09/2023

Rialc,

The following article suggests that LDN could be useful for maintaining several aspects of health in MS in some people while not in others because studies have varied in terms of improvement to MS :

https://www.verywellhealth.com/naltrexone-for-ms-2440888

Here is a relevant quote from the article :

' A review of LDN research published in 2018 noted several beneficial outcomes from peer-reviewed studies using the drug to treat MS, including:

Safe and well-tolerated
  • Significantly reduced spasticity
  • Significant benefits for mental health
  • Improvement in quality of life
  • Reduced fatigue
  • Use as a single therapy resulted in stable disease state

However, not all results have been positive or consistent. The review cited:

  • One study showing LDN treatment resulted in no significant differences in quality of life, which conflicts with a later study
  • One study reporting side effects of insomnia and nightmares in a minority of cases
  • A survey that found treatment with LDN didn't reduce the amount of disease-modifying therapies people were prescribed '

Given the mixed studies for LDN and MS and then taking into consideration the very good safety profile of LDN, it certainly seems worthy of consideration.

Art

Replied By Susan D. (MI) on 11/20/2023

I concur w/U! I saw a chart a # of yrs ago noting mgs best for each autoimmune disorder. MS 3.5 mg//more is not best or necessary. Sue

Replied By Susan Duby (MI USA) on 11/20/2023

Do research. search LOW DOSE NALTREXONE IRELAND. Great info through successful docs who support/prescribe LDN

Replied By Susan D. (MI) on 11/20/2023

LDN for my celiac helps great deal. I had read + saw a chart showing 3.5 mg max for MS patients helps majority MS prescribers best. May want to check that info. 🦃🇺🇸✝️
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