Replied By Amber (Ft. Myers, Fl) on 02/10/2009
We first sought a neurologist who said my husband wasn't in bad enough shape for any treatment at all. Then we found a Chiropractor who has additional training as a Natural Doctor. Understand the state of Fl doesn't offer a Natural Doctor's license anymore, so look for acupuncturists, chiropractors, etc. Anyway. My husband undergoes weekly neck adjustments and electro stimulation as well as takes supplements 3x per day of Ligaplex, Relax All and adreneloin. This is not a cure, however it has lessened the frequency, severity and pain associated with the shakesReplied By Lina (Tucson, Az) on 11/13/2010
I was just diagnosed with cervical dystonia which I have had since I can remember. I am now on Soma medication because I am not comfortable with the idea of Botox injections. My Soma medication is a muscle relaxer that makes me feel tired all the time but I have never slept better in all my life. However, I feel that it is too strong for me. If anyone has any suggestions I would really appreciate it.Replied By Ginger (Chandler, Az) on 09/21/2011
Hi, Go to stclinic.com. This is a website that brought me hope. Hope it helps you.Replied By Paul (Clearwater, Kansas) on 11/16/2011
I will second Ginger's claim about stclinic.com. THey offer a totally natural plan that has brought me great relief as I travel the rocky road toward recovery from STReplied By Ccd (Bentveld, Noord-holland, Netherlands) on 04/30/2012
Hi, I can also confirm that the method of stclinic.com works. After 5 months following the method, my neck has started to straighten out quite well. However, my ST is not gone. Therefore I will travel to South Korea to a clinic that treats ST patients by balancing the temporomandibular joints. According to Dr. Lee, the method yields permanent results.Replied By Craig (Houston, Texas) on 01/25/2013
I would not be so quick to discount botox... I've suffered with severe torticollis for about 8 years, and without my regular botox treatments, I would be permanently disfigured by now (I've seen the poor folks who spent years of their lives untreated, and it isn't pleasant). Botox isn't perfect, but it is the best remedy that medical doctors have come up with so far, and I highly recommend you try the injections for your daughter before her disease causes irreversible harm.Replied By Fletcher246 (Atl, Georgia, United States) on 02/12/2014
I had the botox last year and it did not help relax the area but did make it extremely hard to raise my chin up. I was very hopeful for botox but it has not been a compatible working option for me. I had surgery when I was 6 years old but my mother and I do not speak often and she can not recall what the details are... she also never took me to rehab for full and extended recovery.. I believe that is why for 30 something years I have had pain with ST, my right ear pulls down and my chin points up and to the left. Over the years I noticed through pictures that my face grew slightly less symmetrical which is likely due to the ST always pulling.. I have shoulder and hip trouble too.. I have been on pain and muscle relaxers but they are temporary fixes and like many other the muscle relaxers helped some but mostly just made me tired & I am a mother of 4 children so I have to be fully functioning... I find warm heat and stretching helpful and when I can afford regular chiropractic visits they are also very, very helpful..there are days when I can't drive because the pulling or stiffness is so strong... Has anyone out there heard about brain stimulation for ST? I am going to visit the stclinic. Also, has anyone heard if inversion tables help?
Happy to find a place to chat with others like me!!
Replied By Rachel (Warm Springs, Ga) on 05/16/2014
myIndy husband has suffered from ST for 4 years now. He has tried everything the so called Drs have suggested. Nothing worked, including Botox. He sought the help of a fantastic Chiropractor named Dr Stephen Cooper in Phenix City, AL. He performs a 3 day outpatient procedure called Manipulation Under Anesthesia (MUA). It isn't a permanent cure, but he goes from being practically bedridden from pain and the need to walk with a cane due to constant falls to functioning normal with very little to no pain. The first time he had the procedure he was good for 9 months and then the 2nd for 1 1/2 years. Hope that helPs. He is going to the magnesium oil and see if that helps.