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Cindy (Kansas, USA) on 11/21/2008

Fluoride remedy? I'm wondering if anyone has tried diatomaceous earth for fibromyalgia? I stumbled upon some references to its ability to capture and bind fluoride and its use as a water filter. I consume food grade DE occassionally but I don't suffer from fibromyalgia. I'm not suggesting it but I'd like to know if anyone has tried it for this particular problem.
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Replied By Pamela (Houston, Texas) on 11/22/2008

I have suffered with fibromyalgia for years. And I have takens lots of Diatomaceous Earth. The DE works great for parasites but does nothing to relieve or get rid of fibromyalgia. I also know several others with fibromyalgia who used DE with no relieve. Thanks for sharing your thoughts and keep up the good the good work.
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Replied By Laura (Asheville, Nc) on 09/14/2011

I have fibromyalgia and have been taking Diatomaceouls Earth for almost 2 weeks. It is definitly doing something positive for me. First I noticed a huge change in my foot problem that has plagued me for 4 years. I have woke up stiff, but that is different too. I don't know how to describe it except that the stiffness is not to the bone and all encompasing as before. I am so hopeful that I may continue to improve. If it is possible different factors contribute to Fibro for different people, I guess different results could be experienced from individuals also. My experience would lead me to suggest, try it and see how your body responds if you suffer any joint or fibro pain. Good luck to you all!
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Replied By Ali (Atlanta, Ga) on 12/13/2011

I've heard this works well for a lot of other stuff too.
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Replied By Xearkel (Memphis, Tn) on 01/12/2014

I have shown huge improvements with Diatomaceous Earth and avoiding wheat/gluten. If I avoid Wheat and take my DE at least a couple of times per week I am actually pain free and full of energy! I would not have believed it but it is really like a miracle. I din't think that the pain would ever improve much less go away completely. Doctors were just giving me pain management options but no real options for a cure. I had to find my own.
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Replied By Prioris (Fl) on 01/12/2014

The biggest problem in addressing fibromyalgia is that FMS doesn't have any unique symptom. The diagnostic tests are very subjective and crude. We may be talking about more than one group under that umbrella name.

Here is what one site says about fms

"The painful tissues involved are not accompanied by tissue inflammation."

Now the contradiction is that ...

"Costochondritis (a type of chest pain) is common in people with fibromyalgia."

The fms label has tried to separate the two when costochondritis is really part of the disease. this never made any sense.

Also FMS is associated with many other health conditions

Other Conditions/Illnesses Often Associated with Fibromyalgia

  • Cancer
  • Carpel tunnel syndrome
  • Diabetes or hypoglycemia
  • Gulf War syndrome
  • HIV/AIDS
  • Heavy metal toxicity
  • Hidden food allergies
  • Hypothyroidism or (occasionally) Hyperthyroidism
  • Irritable bladder or Irritable bowel syndrome
  • Lyme disease
  • Menstrual cramps and PMS
  • Mouth lesions/Canker sores
  • Multiple Sclerosis
  • Myofascial Pain Syndrome
  • Osteoarthritis or Rheumatoid arthritis
  • Raynaudâ€TMs phenomenon
  • Seasonal affective disorderSystemic lupuS
  • Temperomandibular jaw pain (TMJ)
  • Yeast, parasites and/or other intestinal infections
  • Chronic Fatigue Syndrome

So one person talking about fibromyalgia may not necesssarily be the same physical sensations and symptoms as someone else feels. This greatly complicates finding a cure.

I think fibromyalgia involves one or more infections. the DE and gluten free may have addressed that but what subgroup is unknown. They really need to break down the groups into sub groups but I don't see that happening for a long time. I think it makes a lot of studies on FMS invalid since multiple conditions are thrown under one label. it makes it harder for someone with fms to find a cure. I think anyone who has FMS must think of the disease in a bigger box in their mind.

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Replied By Prioris (Fl) on 01/12/2014

The biggest problem in addressing fibromyalgia is that FMS doesn't have any unique symptom. The diagnostic tests are very subjective and crude. We may be talking about more than one group under that umbrella name.

Here is what one site says about fms

"The painful tissues involved are not accompanied by tissue inflammation."

Now the contradiction is that ...

"Costochondritis (a type of chest pain) is common in people with fibromyalgia."

The fms label has tried to separate the two when costochondritis is really part of the disease. this never made any sense.

Also FMS is associated with many other health conditions

Other Conditions/Illnesses Often Associated with Fibromyalgia

  • Cancer
  • Carpel tunnel syndrome
  • Diabetes or hypoglycemia
  • Gulf War syndrome
  • HIV/AIDS
  • Heavy metal toxicity
  • Hidden food allergies
  • Hypothyroidism or (occasionally) Hyperthyroidism
  • Irritable bladder or Irritable bowel syndrome
  • Lyme disease
  • Menstrual cramps and PMS
  • Mouth lesions/Canker sores
  • Multiple Sclerosis
  • Myofascial Pain Syndrome
  • Osteoarthritis or Rheumatoid arthritis
  • Raynaud's phenomenon
  • Seasonal affective disorderSystemic lupuS
  • Temperomandibular jaw pain (TMJ)
  • Yeast, parasites and/or other intestinal infections
  • Chronic Fatigue Syndrome

So one person talking about fibromyalgia may not necesssarily be the same physical sensations and symptoms as someone else feels. This greatly complicates finding a cure.

I think fibromyalgia involves one or more infections. the DE and gluten free may have addressed that but what subgroup is unknown. They really need to break down the groups into sub groups but I don't see that happening for a long time. I think it makes a lot of studies on FMS invalid since multiple conditions are thrown under one label. it makes it harder for someone with fms to find a cure. I think anyone who has FMS must think of the disease in a bigger box in their mind.

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Replied By Prioris (Fl) on 01/13/2014

Just to clarify. I think the supposed pure form of Fibromyalgia where no inflammation is present may involve a non-infection so more likely to be easily addressed.

People who post cures or remedies need to say whether they have inflammation or not along with better description of their Fibromyalgia when posting cures. Also if pure form, describe the muscle pain.

This will maybe allow people to determine if remedy is relevant to them. Looking at fms questionaire results, that tells me most have the infectious variety.

There have been studies of prevalence among Amish regarding Fibromyalgia and it exists but I do not think it is the infectious variety. Inflammatory diseases in the amish community seem to be rare. They are generally healthy. They rarely have autism like 1 in 15000. There are a few amish who did stupidly get vaccines so some of them have a chance of develop these chronic diseases.

I think vaccines play a major role in the inflammatory kind of fms as as root cause.

Fluoride has been named as playing a role also by some. It's hard to separate the vaccines and fluoride. If Fluoride was the primary cause then the cure would seem to be easy - remove fluoride with borax etc from the body and see if it works. Fluoride could be an exacerbating factor.

Looking at the cure pages I observe that there is a low cure rate for fms. Oil pulling seem to be the most successful at 2. I think fms is a secondary condition for many people so if they address some of the primary cause they will get better. also I think many other cures were of the non inflammatory type of fms.

So people need to clarify their fms when posting cures

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