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Heather (Cincinnati, Oh) on 02/13/2017
5 out of 5 stars

I find LDN therapy for MS interesting. I have been on 2 mga twice a day everyday as it's in combination with my pain med. I actually notice more pain within 45 mins of taking it. I was diagnosed at 16 and I am now 32 so being so young and independent I sought out less acceptable ways of dealing with effects of MS. (i.e.) cocaine, which actually worked, I had no symptoms, amongst other dumb street drugs that numbed the depression and helped me block what was going on with my body.

Long story short when I wised up I found that the crap the docs gave me was making me worse so I sought out natural alternatives and I have felt much better without the injections and percocet and zoloft etc. I happened upon this H2O2 therapy and am going to try it along with all my supplements. The biggest thing through it all that I want to try and eliminate is the pain I experience so hopefully this helps and I can get rid of pain meds even with LDN altogether

REPLY   4      

Replied By Rsw (Oh) on 02/17/2017

Hi Heather,

I have been taking LDN for more than six years for autoimmune problems. When you take the LDN, it will block your opiates and opiate receptors for four to six hours, which may be why you experience an increase in pain after taking it. It is during the next 18 a 20 hours that LDN will make your body think it is in short supply of these, and it will make more of both. This is usually where the healing is found, especially with MS. If you take LDN more than once in any 24 hours, the blockade will begin again and interrupt the healing time. May I suggest you try taking 3 mg. LDN once a day, and see how it goes? You could then experiment with 4.5 mg. once a day, but if you experience any muscle cramping at 4.5 mg, which sometimes happens at this dose with MS, then go back to 3 mg once a day. I hope you have joined the Yahoo LDN Group with over 13,000 members who take LDN, about half for MS. They can give you their personal experiences and guide you with what has worked out best. Wishing you relief from your pain soon. Best wishes!

REPLY   7      

Replied By Rsw (O! For This Reason.) on 02/17/2017

Hi Heather,

I forgot to mention that if you are taking opiate based pain medicine, the LDN will block it, which also may be why you feel more pain after taking the LDN. This has the potential of throwing a person who is dependent on the opiate pain meds into a dangerous withdrawal. The ONLY thing that LDN should NOT be taken with is opiate based drugs, for this reason. Some people take pain medicine (Tremadol - sp?)in the morning, and LDN at night, 12 hours apart, and this seems to work for them. I would join the LDN Yahoo Group to get specific information about this from people who use it this way. LDN seems to work better for people with MS when they take it at night, between 10PM and 2AM.

REPLY   5      

Replied By Jb (Tx) on 08/06/2018

When taking LDN, you work up from a dosage of 2 mg to 4.5 mg. If you feel dizzy, nauseous, or get headaches at 4.5mg, try taking your dosage back down to 3 or 3.5mg. You've arrived at your correct dosage when you feel good again. Very small people or those with poor liver function can't handle 4.5mg. Many people do well on 3mg.
REPLY   7      

Replied By Rsw (Oh) on 08/06/2018

3mg. of LDN is often recommended for those with MS due to spasticity problems in some at 4.5 mg. If muscle cramping or spasms occurs at 4.5mg/day, reduce your dose to 3mg/day and see if you feel better. You will still reap the benefits of LDN.
REPLY   4