K (Florida) on 06/03/2016

He has been having great results with a combination of a strict gluten-free diet, no sugar, and supplements.

We did our own hair toxicology test from test country labs. His results showed he had 3 heavy metals in his system and also a deficiency of iodine and potassium. He is now using a feeding tube formula called, 'Liquid Hope' made of organic food. We have been doing green juices, ingesting 8 oz of coconut oil per day, msm powder, vit c water (bought powder form), and added filters to all our water sources.

Please test for heavy metals and test for proper liver function.

One friend has stopped his ALS symptoms by adhering to a strict sugar-free, gluten free diet and detoxing his system. We are seeing results as well.

My father was diagnosed by Mayo who promoted the Deanna Protocol..no significant changes or slowing of the disease. It seemed like a profit maker as anywhere the Deanna Protocol name was, it was followed by a trademark symbol. Our doctor had no clue what half of the supplements were and there was way too much creatine involved. Most of the DP supplements were synthetic.

Some naturopathic drs have been able to provide liver flush type treatments.

Please test for toxicity and liver function. If doctors won't do it, tests are easily purchased on amazon or directly from the website.

We had instructions and did ours at home. Don't wait for these experimental tests...because half of the people are given a placebo. It's such a waste. Diet and exercise. Keep moving and never give up!!!

Surround yourselves with supportive people, not victim-minded ill people who have already given up mentally.

Replied By Gigi (California) on 03/07/2017

How is your father doing? When was he diagnosed with Bulbar onset? Did you do the hair toxicology test when he was first diagnosed? I'm caring for someone who was just diagnosed.

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Replied By roro2527 (Paris) on 01/01/2022

Hi K,

Thank you for your story which gives me a hope, cause doctors only prescribe Riluzole knowing that it doesn't cure the disease but hurting badly the liver.

I hope you feel better now.

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Replied By Charles (CA) on 02/07/2022

I make a liposomal formula at home using bulk supplements, and a powerful sonic cleaner.

I cured my cold using this.

1. Blend

• 7 teaspoons Vitamin C powder,
• 2.5 teaspoons zinc gluconate ppwder,
• 3/4 teaspoon vitamin D3 powder,
• 12 tablespoons sunflower lecithin powder,
• 4 cups distilled water.

2. Blend for 4 minute in a high speed blender.

3. Pour mixture into a 1000 ml pyrex beaker

4. Suspend beaker in a sonic cleaner with these specifications which you can buy on Amazon: (I made a wooden jig to suspend the beaker without touching any metal) VEVOR Commercial Ultrasonic Cleaner 6L Professional Ultrasonic Cleaner 40kHz with Digital Timer&Heater 110V Excellent Cleaning Machine for Watch Instruments Industrial Parts Excellent Cleaner Solution

5. Add cold tap water to the sonic cleaner almost all the way up to the top of the beaker and turn on the cleaner.

6. The sonic energy will go from the water into the beaker and from the beaker into the mixture. I buzzed the mixture for a couple of hours, changing the water once to keep the water in the tank cold.

7. I drank one tablespoon of the mixture every hour for four hours. After that, since the cold was much better, I drank one tablspoon full about 4 times per day.

OK, I'm not sure this will work for ALS, but it sure kills the cold virus. This could be one part of a more advanced ALS regimine.

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