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John (Suffolk, England) on 11/25/2015
5 out of 5 stars

Hello again!

Have to report that I'm much better. My drawing is pretty much back to form with only a minor twitch in the arm and base of thumb occasionally. Small improvements every day. I have been gluten free for two weeks and I also take Magnesium L-Threonate - two Source Naturals capsules @ 667mg - and two capsules of Theanine @100mg in the morning with a glass of spring water and a quarter spoon of Methylsufonylmethane (MSM). A multi-nutrient for my skin at midday - will provide details of this nutrient if needed, but I was taking this for a long time with no effect on the tremors whatever - and in the late afternoon I take two Nutrasleep again from Source Naturals. very positive about the result.

Will update, if or if not the result is consistent.

Replied By Sissys (Coral Springs, Fl) on 12/10/2015

Please can you give the name of the combo med? Thank you

Replied By John (Suffolk, England) on 12/11/2015

Hello Sissys:

If you are referring to the 'combo' med used by Soazburrolady's husband, then she is referring to Theanine Serene.

I, myself have found equally satisfying results from using Theanine capsules, Nutrasleep and Magnesium Threonate. taking two Theanine at 100mg and one of Magtein at 667mg and two Nutrasleep and a further Magtein late afternoon/early evening. basically I found the alternative because I wasn't sure if I wanted to take the Magnolia Officianalis in the Theanine Serene which contains the Relora.

However, here's a possible in case you feel the same way. there have been reports I've read of side effects associated with the Relora by some people who have tried it. However not all have had the reported problems.

Replied By Roma (Minnesota) on 01/01/2016

Hello, I really enjoy reading all the encouraging posts on this site. I started the Theanine capsules, Nutrasleep and Magnesium Threonate regimen 1 week ago and am perplexed on why they've been stimulating my ET condition instead of calming my nerves and provide no relief. Also, my eyes have started twitching throughout the day. The tremors are in my dominant left hand (I can no longer write/eat with it) along with a bobbing head.

After I take the Theanine Serene with Relora (1 tablet) or the Magtein (1 capsule), I become more jittery and fatigue. The Nutrasleep (1 tablet) helps me sleep soundly but has had no effect on tremors during day. All supplements are from Source Naturals.

I'm a gluten & lactose free eater, take no prescription drugs, coffee, or artificial sweetners. I'm taking iodine for my thyroid, along with a multi-vitamin, calcium, and vitamins D3 & B12. I'm perplexed as to why Theanine, Magtein, or Nutrasleep has had an opposite effect on my nervous system. Any suggestions or feedback would be greatly appreciated.

Replied By John (Suffolk, England) on 01/03/2016

I am extremely saddened that this has not worked for you. I am aware of Thyroid problems within my own family, unfortunately no awareness of where they are. I take it that it is hyperthyroidism of which you speak? I note from one who claims to be an expert that Vitamin C deficiency can encourage more of the thyroid hormone. I must note that I have only read this and from one source. Of course, unlike many mammals, we cannot biosynthesize this ourselves and usually within the body's functions, most everything we do requires it in the equation one way or another and among the vitamins it is also the most easily lost in storing, preparation and even digestion, then having an extremely short life in the body and being water soluble also easily lost in the urine. Unfortunately it seems that causes of tremors are of a multitude, but C is the most common deficiency along with magnesium, selenium and nutritional sulphur (MSM). However care must be taken regarding supplementation and MSM can increase the effect of various things like alcohol and possibly other things, thinking if you are taking medication so if you go that particular route, research and ask your doctor. I am not on medication and can say that, for my own problems, MSM has done me good. There are no guarantees as you must be well aware that it will likewise for you. I really hope you can find you answers soon. For the meantime, I take it that you will discontinue the mag, the threonate and the nutrasleep. Go easy and I wish you all the luck in the world in finding a remedy that suits you.

Replied By Roma (Osseo, Mn) on 01/06/2016

Hi John, thanks for your reply. I'm actually being treated for a hypothyroid but not on any meds. I have continued taking Magtein and have experienced minute improvements. Perhaps over time they will increase. I'm also going to try the L-Theanine capsules (minus Gaba and Relora).

Question....when did you start seeing promising improvements and how long have you been dealing with ET's.

Replied By John (Suffolk, England) on 01/08/2016

Hello Roma:

Apologies for the delay. Let me first say, that I had always suffered from nervous problems and wasn't aware of any family history of ETs, so that what I thought was merely shaking to my anxiety, was probably the start if the tremors. Considering that I am fifty three now, I would say that the problem had been steadily building during the last decade. I can certainly say I did not have them in 1999 when I did my last painting. The strain of one to one caring did me no good whatsoever, going on far too long for my own good and led to a complete physical and mental breakdown. It is because of this that I cannot be more accurate. I'm sorry. However, no supplement did me any good until I started on MSM. That I can say was a turning point. Two tablets of 500mg made a subtle, though immediate overnight improvement. Enough for me to take notice! I was also on the track of other means of supplementation to control or eliminate the tremors and various ideas as to what to aim for.

I would say that, after starting the regimen that I am on now, subtle benefits took a week, building to a revelatory improvement inside three weeks. At two months, I see a twitch in the nerves which happens occasionally, but not with such regularity as to upset my drawing. I still have a difficulty with cursive writing but that is a very chronic problem and probably because I have avoiding it for many years, so that will be the last to settle, if at all. Sorry to be so long winded, but I thought it best to be, as opposed to giving non informative sound bytes. I hope that you find a significant difference very soon. All my very best wishes.

Replied By Roma (Minnesota) on 01/10/2016

John, just wanted to post that I'm finding gradual relief from the Magtein and Theanine capsules. I'm still experimenting with dosage levels but head bobbing and hand tremor are decreasing. Hoping progress continues towards noticeable improvements. Thanks for the posts, feedback, and helpful information. All the best!

Replied By John (Suffolk, England) on 01/11/2016

That is extremely wonderful news! I feel that, when I operate a mouse, my fingers want to twitch still; and the nerves do a little, but the drawing feels smoother than it has done in years. I maintain the dosage at Magtein 667mg x 2, one in the morning and one in the evening; and two Theanine, two capsules @ 100mg in the morning.

I have dropped the Nutrasleep for a short while, just to see if the improvement maintains - the valerian was giving me a thick headed feeling, and since I don't suffer from headaches at all, I've put it to a side effect from that. Will try the Nutrasleep again perhaps as an experiment for a few days shortly. Again, wonderful news, upon which I hope you find continual improvement.

Replied By John (Suffolk, England) on 02/01/2016

Right. I have to say that, after removing the Nutrasleep for a few weeks, and dropped the Theanine as well - time not tracked, but estimating a fortnight - the fingers have started to twitch again. Have continued with the Magnesium Threonate, but it seems that alone does not do it. Will return to my original dosages. Had a problem with costs and thought that I would see if the mag would do the trick by itself. Apparently not in my case. It does seem that a continued supply of it all puts the tremor into submission. With a return to full supplementation, hopefully it will all work peaceably again.

Replied By Romaine (Minnesota) on 02/01/2016

Hi John, like you, I've dropped the Theanine and Nutra Sleep as well and have continued with the Magtein (48mg 2x's a day). I've continued to notice a slight improvement as long as I take the Mag. My ultimate goal is to be able to write legibly again.

Replied By John (Suffolk, England) on 02/02/2016

Interesting. I will go back to my original for a spell to regain the improvement, and if that works, try again with an increase to the full 3 capsules of Magtein. Of course it may all just point to subtle, yet important differences in the reasons behind the individual tremors. If only we were born with an individually tailored manual. Of course we are, but only our bodies can read it and they think that tremors are normal everyday operation. The fact that it's something we don't want is new information to them and frankly why don't we want them? Here am I, applying sentience to a 'selfish' gene!

Replied By Soazburrolady (Southern Az) on 02/02/2016

Hi John. I agree that the combination of supplements that relieve tremor are really costly. You could try Aceytl-L-Carnitine in place of the theanine. I just purchased them (500mg) for 12 cents apiece. My husband continues to take the whole "shebang" every day, but has not had any return of symptoms. We also both take several other supplements to keep us upright and taking sustenance! It is quite expensive, but better than the alternative - I think!

Replied By John (Suffolk, England) on 05/07/2016

I have found that I can get away with little supplementation at present. I have been on a minimalist diet, mostly raw and have not had wheat based products for, at least, four or five months. Hands have remained quite steady and did not return to full supplementation.

Events. My mother passed away two months ago and an extensive period of stress lifted as I had had to take care of her, initiating a long period of years of self neglect, before she was finally persuaded to go into care. I do occasionally have a session of biting my lip when I am eating and the nerves twitch under the skin of my hand - more noticeably the right - but events having taken the turn they have, it is as if years - of the tremor - have been removed. Having said all this, I will keep the Magtein and the Theanine and the Nutrasleep on standby. Drawing stable, still have not mustered courage for painting or inking yet. I don't think cursive writing is going to be something that I will ever master, but I may tentatively try it. My brain refuses to link the technicality of writing with imparting information to a page at speed using such a device as a pen although writing, lettering style, with a pencil seems to work adequately - adequately enough for a fellow artist to remark that I have "beautiful writing" and a councillor I have been seeing to remark upon it. They see scattered sentences. If I had to produce a page at length they may see different results. I still avoid attempting that. The worst I get is filling in the forms that I have had to. Bureaucracy always stresses me out.

Replied By Steven (Long Beach, Ny Usa) on 06/23/2016

John: I am a concert-level pianist as well as a church organist/pianist and high school music teacher. Music is my passion as well as my profession! I am 63 but my wife is 20 years younger and we have 2 small boys ages 9 & 5. I am right hand dominant and have had increasingly severe tremors on that side (hand, arm, leg and foot) for approx. 2 years now. It is really affecting my writing, drinking, eating and of course, my keyboard playing! Our very livelihood is threatened.

Has your regime continued to help you? Do you feel tired during the day as a result of your regime?

Replied By Mama To Many (Tennessee) on 06/23/2016

Dear Steven,

My daughter studies piano and organ, so your post struck a chord (sorry, can't help that pun) with me. From watching her, I know that it is painful to not be able to play the instrument you love as you like (and you need it for your livelihood as well! )

Have you tried any magnesium supplementation yet? Also, have you eliminated all artificial sweeteners yet (and MSG, another neurotoxin.)

I am very hopeful that natural remedies will cure you of this and allow you to continue with your music for pleasure and for your work.

~Mama to Many~

Replied By John (Suffolk, England) on 06/24/2016

If I take the combination, as I have posted, then, yes, there is a difference and a noticeable deterioration if I stop. Unfortunately for me, I am now on Employment Support (?) Allowance, which means that I now find it difficult to afford to take the supplements regularly. They want me to find work and my best means to that is by working from home at illustration - other options for very good reasons are limited in the extreme - however, by the very meagreness of the allowance, even that is going to prove more difficult. Personally, I think that they wish me to decrease the surplus population. The combination, personally, does not make me feel tired. The Nutrasleep, I take before bed anyway, for the GABA, but some nights, as always, I remain awake and some I fall asleep. I am however taking a maintenance dose for the tremor as opposed to a sleep aid. I don't feel drowsy the next day. One has to note that your tremor sounds worse at the outset of treatment than my own, concomitantly of course, your results, and I sincerely hope they should be positive, may be longer in coming. My very best of wishes. I do understand the importance for your soul's sake of continuing that which you love and the destruction of spirit that tremors can have. Please take care and I hope it works.

Replied By Soazburrolady (Arizona) on 06/24/2016

John, so sorry to hear of your new difficulties. I just thought I might add a note of encouragement to all of you suffering from ET. My husband has been continously on the same supplements since before my first post - and continues tremor free. We are truly thankful. It is, without a doubt expensive, but works, and he has had no ill effects. I will say that the remedy worked fairly quickly (within a few weeks he noted improvement). So, it is possible that other causes of tremor will not respond as well. We have been too chicken to discontinue to see what might happen! My best to you all.

Replied By John (Suffolk) on 04/27/2023
Hi Soazburrolady:

Just wondered whether you're still around and how is everything?

Myself, I'm still on-and-off with the Magtein and the Theanine because I've only just recently stabilized income. Yes, it's taken that long! I'm able to concentrate more on trying to regain some of my health - and, good grief! It's been a struggle to get everything to settle down and cooperate. I had to move 110 years worth of family history to a new property - I say 'new', it's 1930s, but that's a hundred years newer than the old one! Profited financially for the move fortunately and now we'll have to see if the health benefits. Of course, the tremor came back. Will have to see if sustained concentration on REMOVING IT for good - you should be able to 'hear' the frustration - will bear results. I hope that you have all survived the plague. For crying out loud, as if we don't have enough to put up with, the viruses have to upgrade their attack! I'll come back to this page in a bit, just to see if you've been able to respond. All the best!

Replied By John (Suffolk, England) on 06/25/2016

Of course, what's the alternative offered by the orthodoxy? Beta blockers.

Replied By Steven (Long Beach, New York, Usa) on 06/28/2016

John: There may be hope for all ET sufferers outside of all the costly supplements and/or beta blockers, etc. There is a new device still in experimental stages coming to the market. They will not give me a "freebee" which they are now offering to those willing to be be guinea pigs. The reason that I do not qualify to be a guinea pig is that I do not live near London where they are (I am in the USA). But you, John, are in the UK, hence you may qualify. The device is called the Gyroglove. Check it out, It looks unique, and is something you simply wear on your affected wrist. By September, the experiment will end, and it will come to market for $600. I may purchase it then. I just pray that I do not have Parkinsons. My older brother has Parkinsons and his daughter (my niece) has ET and treats it successfully with Propanolol.

Steve

Replied By John (Suffolk, England) on 05/11/2017

Have just managed to purchase some more of the theanine. Hopefully, now, I can return to the full supplementation that worked before and I can re-establish twitchless fingers. DWP seem too stupid to realize that reducing payments DOES NOT HELP but actually hinders recovery or alleviation of troublesome symptoms and that such things need constant maintenance. They need to know why I haven't found work in my chosen field and seem oblivious to cause and effect in such matters. The tremor needs to be sorted out first! Common sense would seem to indicate that alone. How ludicrous can you get?

Replied By Pamg (South Dakota, Usa) on 07/31/2017

John,

I noticed you mentioned the use of MSM in an early post -I'm wondering if you're STILL taking it or not. I am 61 years young and my tremors are increasing. I already take ALA but not with L-carnitine (will switch to a product that combines both) and taking Magtein as well - tried taking it later in the day and my sleep was horrible! So will continue to take it first thing in the morning.

Replied By John (Suffolk, England) on 08/01/2017

Pamg. Sorry; I am not aware of ALA. You may be aware that MSM - methylsulfonylmethane - is a nutritional sulphur and maybe you should check with a physician to make sure. MSM is said to increase respiration in the body's cells to allow the better passage of nutrients in and waste out.

This increased efficiency sounds as though, although my information is theoretical without further checks, that if it facilitates the absorbtion of ANY 'nutrients', it may also increase also the efficacy of any medications you may be on. If that is the case, it may be wise to double check. A lady on YouTube states that she took MSM and then went for a night out, drinking her usual tolerance level, but ending up being carted to hospital blind drunk and stayed that way for another day. My advice would be wary until the necessary questions have been answered. That said, I do take MSM on a regular basis, a sensible balanced diet and avoid alcohol.

Also the other supplements I stated. I had Carnitine some years ago and had considered taking it again, but seem to have got away without as far as tremors are concerned. I am not under any doctor's medication, so none of those interactions are my concern, however, not knowing any further as to your regimen, reiterate caution until your research is complete.

Replied By Soazburrolady (Southern Az) on 08/01/2017

Hi Pamg,

I noticed your post to John and just wanted to add that that it is Acetyl-L-Carnitine and not L-Carnitine that my husband has been using. Not sure of the exact chemical difference, but I know that the Aceytl-L-Carnitine is apparently able to cross the blood/brain barrier (as is magtein), and that is the key to its effectiveness. Those supplements - plus the Theanine Serene, continue to work for him (thankfully). Indeed, they are expensive, but the alternative stinks too! All the best.

Replied By Roma (Osseo, Mn) on 08/01/2017

Acetyl-L-Carnitine develops a high level of energy which would aggravate ES symptoms. Are you sure this is the correct name of supplement?

Replied By Soazburrolady (Southern Az) on 08/02/2017
Hi Roma,

Yes, it is Acetyl-L-Carnitine. He's been using it now about 3 years - along with the other supplements I mentioned. All the best to you.

Replied By John (Suffolk, England) on 08/17/2017

Interesting to read that Acetyl-L-Carnitine, or ALCAR, "improves the neural network by strengthening nerves and signal receptors": Quote from site, 'Braintropic' on the subject.

and that it also improves memory and learning function. Could explain the mass of writing I undertook and completed whilst on the supplement in 2006! That was well before the tremors took hold and I have not had Acetyl-L-Carnitine as a regular supplement since. Hmm. Will investigate further. Thanks for the boost in that direction. That's why these discussions are so valuable.

Replied By John (Suffolk, England) on 07/27/2018

Have been trying sourdough bread for a while, as well as the supplements. It's been difficult. Although some control of my hands has returned, the tendency towards tremor has remained. 'Normal' use of hands, no real problem, but, if I try anything delicate, like drawing, writing, painting, the tremor persists. I have been unable to make as regular use of the Magtein, etc, as I would like. This is simply because there is no recognition that the tremor is a problem to be taken that seriously by the DWP. Basically, it appears, if you run out, then you run out. Why aren't you getting work? Because I don't want to tell clients I can handle work in the field of illustration, when, obviously I can't complete a project because of the tremor. Your hands aren't shaking. ( demonstrates) Oh, they are shaking! At this point, I am tempted to start swearing. All I can do is build up a back supply until the damn things get under control.

This second attempt at complete control is that harder and probably because of the break in supplementation. I hope your husband still has maintained control. Recently diagnosed as Aspergers. My assessor has said that, obviously, because of the Aspergers' trait of the need of structure, my art being the structure of my life, it is vital to my mental health that it be reestablished. He has written to my doctor to that effect. However, I know full well that the option to be offered on the NHS would be Beta-blockers! Certainly not supplements.

Replied By John S. (Suffolk, England) on 09/27/2018

Hi Soazburrolady:

Just a quick update. The hands, although the strength, pre-tremors, has not returned yet, probably through lack of normal use, the control has mostly returned. I have not tried brush drawing again yet, however, I am able to complete pencil sketches, which is something I have not been able to accomplish in a long while.

All I can say is many, many heartfelt thanks for your posts on the maintenance regimen, which, has paid off, for myself, for the second, and now third time. That seems to be the clincher! Although I am now taking the Acetyl-L-Carnitine as part of a broader multi-supplement, with Arginine, etc, ( Good Guru's Memory and Focus ) with the Theanine Serene with Relora and Magnesium Threonate, the first and latter supplied by British companies, the latter being Phoenix, my initial tryouts with the Source Naturals recommendation were equally successful. Being UK based informed my decision, it being helpful that only one of the supplements be imported. Hopefully I can now continue taking these and nothing else stupid will happen to prevent me taking up my career again!

Replied By Soazburrolady (Az) on 04/30/2023

Hi John,

So lovely to hear from you! I haven't posted in a few years (personal reasons), but "lurk" here occasionally. Just couldn't ignore your message.

My husband continues tremor free with the use of the Theanine Serene, magtein, and sporadically, acetyl L carnitine. He has accumulated other health issues, but that's a story for a different day.
Moving is such a stressor, I'm not surprised you may have some increase in symptoms.

Hopefully, a new financial position will allow for consistent use of the supplements that are so essential (no pun intended).
As an aside, there is something comforting about living in older abodes. I lived in a 200 year old house in my earlier life - lots of history, and noises!

Again, all the best to you. Cheers!

Replied By John S. (Suffolk) on 05/30/2023
To Soazburrolady.

Hi again. I am saddened to hear of your husband's increasing difficulties. Very worrying. I looked to contact you in case you had heard of sucrosomial magnesium? The first I heard about it is today. First thing I shall do is see if it is reliable whilst I am on an extended self-recharge! So, of course, lots of research, sitting in my library and dosing up on both info and music from my collection that I've not heard in a very long time. It really has taken a long time to get things into places in the 'new' house. At the old one, my friends, the renovators had to call in the archeologists to have a dig around and uncovered some medieval residents.

Tremors are somewhat of a nuisance, but they still haven't got worse. I'm on Benfotiamine, an occasional dose of ALA, Vitamin D3 and K2 and lipospheric C. along with Magtein. I am wondering if the sucrosomial may be more effective. It's a question of research and observation. Seeing what ticks and what doesn't. Thankfully I can isolate and do quiet observations, something I could never do when I was a carer. I didn't realize just how much stress I was under until I was released from it all. It's a killer and I just wish that it was more publicly known how much general physical health is drastically deteriorated by it, especially the vital organs. I suppose I am actually quite lucky to get through it alive! I'll call back in a while to see if you've got back to me. Many thanks for your original posts on the subject of tremors. I sincerely hope and wish well for your husband.

John.

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