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John (Perth, Western Australia) on 11/01/2015
4 out of 5 stars

Trigeminal Neuralgia: I too suffer from this horrible complaint. I am on Lyrica 125 mg twice a day to help. My worse time is from midnight until 7am.

HOWEVER!!! I find that if after having early morning shocks every 5 minutes, I go for an hour's walk, I then get maybe 2 strikes after which I am totally pain free, so much so I can play a round of golf! The pain will then return later in the day once I cease to walk /exercise despite medication!! So if you want relief during the day try going for a 20min walk

Try it. You have nothing to lose!! Good Luck

REPLY   5      

Replied By Joe E. (Bay Shore, Ny) on 01/30/2016

John, give this a try, it enables me to sleep through the night. It is an inexpensive Multi Use Ice Bag ( available @ CVS, where I bought mine $12.99 )
I'd suggest " lining it " w/ a plastic produce bag to extend the life and stop any leaking, fill it halfway ( approximately ) then refrigerate.

The Cold Temp will lessen any Blood Vessel inflammation causing contact on Nerve that generates Pain.

I came across this article studying the effects of vitamin B12 and it's effect on Myelin Sheath surrounding damaged nerve and nerve fibers. You name it I've tried it, Lyrica ( nasty side effects ) stopped, Dilantin ( taking it for 41 years Partial Complex Epilepsy therapy ) short half life's recurring sporadic nerve pain, Capzasin, Tricalm , Lidoderm / Lidocaine topical Patches ( poor adhesion ) Calamine, Eucerin skin calming cream, I'm certain I missed others.

Turns out the Vitamin B12 had an obvious effect and that I will know for certain by tomorrow and even more so in 72 hours .

INFLAMMATION causes COMPRESSION / cool compress works for me .
Upper Branch V5 Trigeminal Nerve / Fibers

REPLY   4      

Replied By Betty (Pennsylvania) on 03/18/2016

I find, when an attack is starting, that if I take a brisk walk or even 10 to 15 jumping jacks, or running in place the pain subsides for quite awhile. It comes back again but the physical activity definitely stops attack temporarily. Does this have something to do with blood flow? I wonder.

Replied By Selina Bishop (Canada) on 01/04/2017

John, you may find that spreading the Lyrica out over the course of the day will give you more consistent relief. I was on 75 mg twice a day, and by spreading the same amount to 50 mg three times a day (same total dosage), I now last better at night.

I am also seeing a physiotherapist who is trained in myofascial release. This has also help greatly.

REPLY   1