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Mala (Florida, US) on 08/02/2014
5 out of 5 stars

My son was diagnosed with Eosinophilic Esophagitis at the age of 18 mths, and his GE told me the count of 52 and 33 was the highest he'd ever seen. He referred us to an allergist and the battery of test showed that he was allergic to most things under the sun! With diet elimination and steroids his EE count was doing ok but I wanted him off steroids cause he's on a lot of meds for other things. Then one day someone who I trusted told me that they had had cancer stopped taking doctor's medicine and started taking ginger and turmeric pills. So I thought about it and decided that since my son never had any pain, I'll stop giving him steroids put him on these tablets and scope him within the year. I got the results of his scope yesterday and with the combination of a GF diet and these pills his count was 5!

I should mention that my husband is a physician who clearly does not believe in alternate medicine, but EE is an inflammatory disease and ginger and turmeric are anti inflammatory!

Replied By Margaret (New York, US) on 08/12/2014

Mala, My five year old son was diagnosed with Eosinophilic Esophagitis two years ago. He also has a mountain of allergies. I had to take him off of the steroids a year ago due to severe behavior issues. Can you please tell me what kind of ginger and turmeric pills you gave your son?

Replied By Mala (Florida, US) on 09/04/2014

Hi Margaret,

I got them from online at Puritan Pride. I have him on 800mg of turmeric and 550 mg ginger once a day.

Replied By Eleonora (Riverview, Florida) on 08/30/2016
Hi Mala! I would like more information about the treatment that you did with your child to treat eoe. My son is 6 now but he's been diagnose with it since 18 month. He is better with the diet, but doctor insist in keep treating him with steroids which we are trying to avoid. Thank you

Replied By Sarah (New York, US) on 09/23/2014

Mala, My cousin's 2 yr old son has a very severe case of Eosinophilic Esophagitis. Neither acid reflux nor diet nor steroids is working. The boy is in the hospital every other week. Drs are suggesting removing most of his esophagus!! I am familiar with natural medicine but he is not. How did you manage (timeline, pace, etc) the transition from western to natural medicine?

Replied By Mama To Many (Tennessee) on 09/24/2014

Dear Sarah,

I am not Mala. Hopefully she will see this post and be able to share advice with you.

I am assuming you have read over the posts on this website about EE. I thought Ed, Timh, and Mt all had good ideas. We have used nettles and turmeric for small children with good success.

I don't think I have seen on the EE page anything about kefir, but I would encourage that if possible. Milk kefir is really amazing and healing. If dairy is not tolerated, there is always coconut milk kefir or water kefir.

I am hopeful that your cousin will be able to find a solution for her child. Having to remove the esophagus would be absolutely dreadful.

Please keep us posted.

~Mama to Many~

Replied By Sarah (New York, Ny) on 10/01/2014

Oops - sorry about that! I did read those. I also forwarded the blog to my cousin so he can familiarize himself with naturopathic medicine and hear/see what people who are using it to contend with EE are experiencing and suggesting.

Simultaneously, I reached out to an ayurvedic practitioner, who suggested contacting KH Khalsa, a master healer in naturopath modalities (in either Oregon or Washington state) for treatment since the case is so severe. Khalsa does on location and also tele-treatment. He has many years experience and credentials are strong. Anyone familiar?

Replied By Jenn7701 (New Orleans) on 12/17/2015

How did you get your 18 month old son to take ginger & turmeric pills my 20 month old son can't swallow pills. What kind of dosage did you give your 18 month old? Thanks.

Replied By Mama To Many (Tennessee) on 12/17/2015

Dear Jen,

I have given toddlers turmeric without giving them capsules. If I need to get a little one to take turmeric, I mix it with some honey (not for children under a year), yogurt, or apple sauce. I don't mix the dose into a large amount of anything in case they don't like it. If it doesn't taste the best, at least it is over with in one spoonful and then they can chase it with something else. You may find it works differently for your child and that is fine.

A capsule of something is about 1/5 of a teaspoon. For my toddlers I would give 1/16th teaspoon each of ginger and turmeric mixed with something, yogurt or whatever, for a dose. If that didn't accomplish what I wanted, I would try 1/8 teaspoon of each as a dose.

With turmeric, always make sure child stays hydrated and is still having normal bowel movements. Some find it to be constipating.

~Mama to Many~

Replied By Dana (Palmer, Michigan) on 08/17/2016

Do you think it would help if I applied it topically?

Replied By Carrie (Arizona) on 08/28/2016

My daughter is 17 and had Eosinophilic Esophogitis. She was diagnosed at 1.5 yrs. She has had a Mickey g-tube since 1.5 rs old. She's also been on canned medical food for yrs. I recently started blending her fresh foods for her via g-tube. I'm using a homemade vegetable broth that consists of carrots, celery, onion, garlic & ginger. I use a crock pot for about 7 hrs.

I have also looked into Ayurveda. There are 3 spices that they recommend for dietary issues. There are cumin, coriander, fennel, cardamom & ginger. I added 1/4 tsp of each spice, except for ginger which I used fresh. Once the broth is done I use it as a base for her homemade smoothie supplements. In those I use raw & unfiltered honey, hemp powder, ground quinoa, ground flaxseed, ground lentils, super greens powder & hemp milk. She seems to be doing very well but we are due for another upper endoscopy soon. We'll see!

Replied By Jami (Missouri) on 12/08/2016

I have a 5 year old daughter that is looking at being diagnosed with eosinophilic esophogitis. They are wanting to "try" PPI's and another endoscopy to officially diagnose her, but I am trying to stay away from that. Based on her last endoscopy her doctor is willing to try Budesonide to try and bring her some relief, but I of course would prefer to avoid that if possible too. I would love to hear any update on how things have continued for other kids after trying alternatives to the medications!

Replied By Hp (San Diego) on 12/12/2016

5 year old with EE and multiple allergies. Diagnosed at 18 months. We do steroids for 4-6 months and then stop it for next 18 months, and start again for few months as inflammation slowly comes back. This way we try to minimize steroids intake. We do turmeric honey as well, but not sure if it is actually working or not. Turmeric for sure not fully fixing it as inflammation comes back. But possibly delaying the comeback, as Endoscopy images after 18 months of no steroids dont look bad, but EE count is +ve, needing steroids again for few months. This way I don't blindly rely on natural stuff and also don't blindly give him steroids. Just balancing act, I guess.

Replied By Michele (East Earl Pa) on 04/05/2017

Can you tell me what pills exactly you used? Searching for alternatives for my 4 year old.

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