I wondering from Ted if there another way to reduce the tumor? Also if i can combine cesium chloride+Vit.B complex+ Vit.C+Vit.E and baking soda solution at a same time?Will there be side effect? Thanks...
Replied By Ynnis (Fayetteville, Nc) on 09/29/2011
If you really want a good dose of Vitamin C, there is nothing better than to pick the younger shoots of pine tree needles, and brew them with your favorite tea or alone. Take as many as you like. Those needles have more Viatmin C than any other source of Vitamin C. The tea will taste lemony... And good!!! Instead of sugar, add honey and cinnamon. You cannot drink anything more healthier than that!!!Replied By Carly (Seattle, Wa - Usa) on 09/30/2011
A word of caution on evergreens.... Please be careful to make sure it is a pine tree, as some varieties of evergreens are not meant for human consumption.
Also - whenever I do yard work trimming up my evergreen trees and shrubs I get raised red bumps on my arms where the plant material has brushed up against them, so I am pretty sure I have allergies to them. (I consider it an allergy prick test at home) ;) so I personally wouldn't drink Pine needle tea because of allergy concerns.
Just a couple of thoughts. :-)
Replied By Opo_tahu (Somerset, Ky) on 03/08/2013
We that have NF is also prone to have a vitamin D deficiency as well... I read this and had my levels checked and was low on D, All my B levels..
Kinda odd here we have a lower D level but yet the sun can cause these tumors to pop out??? Hmmmm
Replied By Louwrence (Rustenburg, North West, South Africa) on 03/09/2013
Hi Opo, Sun does not cause skin cancer, it is caused by what you put in your mouth like hydrogenated oils & only then the sun becomes a problem. The sun is your friend not your enemy, that is why it is worshiped, your whole life here on earth depends on the sun.Replied By Sarahshope (Michigan) on 04/20/2013
My daughter has NF1 and has had her left eye removed due to an optic glioma. She also has a brain stem glioma. She has one plexi on her shoulder which is being watched.
Vitamin D is very good. She takes 2000 mg, a day, plus curcumin and alpha lipoic acid. On her last MRI, April 10, 2013 the optic glioma on her good eye was gone!!!
This is a rare happening, but it does happen. I find a lot of negativity here. Being pro active and knowledgable about your own condition and seeking answers yourself is the best way to handle your problems with NF. Do NOT count on the medical community for all the answers. Research and research.......
Replied By Brenda (New Mexico, US) on 11/29/2014
Hello Sarahshope, I would love to talk to you about your daughters glioma. My daughter just got diagnosed with one at age 15... she has Neurofibromatosis type I, so far a mild case until this. I started the vit. D3 and the curcumin; what is alpha lipoid acid? I would love to contact you personally to discuss everything! I am researching like mad but get inundated with information. Also need advice on how to get teenager to take it seriously! Thanks so much.Replied By Nathalie (France , Bordeaux) on 12/29/2015
Hello
May be I have also NF but NF 2, could you please tell me concerning Alpha Lipoic Acid if you took natural (R ALA) or synthetic one (S ALA) and wich daily dose 600 mg, less or more and on wich duration ?
Many thanks in advance.
Replied By Alisa (Loveland, Co) on 04/27/2016
Hello, I have a 5 yr old daughter with NF1 and two optic nerve gliomas. I want to start her on curcumin (she's already on Vit D and Acetyl-L-Carnitine) but I can't seem to find dosage info anywhere. For those of you with kids taking it, what dosage do you give based on body weight?Replied By San (Omaha) on 11/29/2016
Can you tell me were can I find and what exact kind of vit d?