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Lola (South Florida ) on 03/12/2014
5 out of 5 stars

Aloe Vera, Vitamin B-12, Ginko Biloba, folic Acid, C complex for vitiligo

My daughter is 17 years old and she had white spots on her elbows that seemed to be getting larger so we went to a dermotogist and she said it appeared to be vitiligo. My daughter was devastated when we left because the doctor prescribed a steriod cream and said pretty much if this doesn't work there isn't much else we can do. We came home and I lived on the computer every night searching for something that would help. The steriod cream irritated her skin after 2 weeks so we had to stop. At that time I put together my own regime and I will say it has been 5 months now and her skin is almost fully repigmented. Of course it will probably take a few more months but at least there is significant progress. I even called the doctor to try and tell them I would like her to know what we are doing so maybe she could tell other patients but she never called us back. So as they say every man for himself...I do believe it is a lack of certain vitamin. from what I have read it will not be cured but as long as you keep a watch on your body you can catch the spots when they start to reappear and continue the vitamins. My daughter takes a liquid Aloe Vera, Vitamin B-12, Ginko Biloba, folic Acid, C complex. She also rubs the aloe Vera plant on the spots 1 -2 times a day. I have read about the coconut oil and the copper as well but have not tried it. We figured if these things are working don't change it. We live in South Florida and I do want to locate a doctor that is very familiar with Vitilio and get their input. We do plan to discountine vitamins once she is fully repigmented, but this is why I would like to talk to a doctor.

Replied By Kb (New York, US) on 06/04/2014

Can you tell me the amounts of vitamins your daughter was taking. How many a day ? Thanks

Replied By Jenni (Wisconsin) on 07/28/2014

Hello. I just came across ur blog and found it very interesting and informative. I was just diagnosed myself with vitiligo and very much believe in the all natural remidies and was wondering how ur daughter was doing currently. Thank u so much for ur story as it gave me hope that their is hope. I am a 33 year married woman with 3 kids so any help or reply would be so much appreciated!

Replied By Art (Usa) on 07/30/2014

In reply to Jenni from Wisconsin , According to the following study, it appears that vitamin D might be worth considering as part of an anti-vitiligo protocol.This was a very high dose study and should only be done under your doctors approval and supervision.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3897595/

Art

Replied By Lola (South Florida, US) on 10/16/2014

Update: We are still taking the vitamins, however we have discontinued the Ginko Biloba as of now. Around April or so the freckling had stopped. We still continued the vitamins including the G.B. In the summer we had visited a homeopath doctor. He had some blood tests run and there were several food intolerances and a high yeast in her body. We have done a gut and liver detox. She is on probiotics and gluten, diary free diet. She is showing signs of repigmentation. It is a slow process but at least it is a sign. One of her spots before stating the vitamin regime was maybe the size of a half dollar. It had gone down to an oval shape maybe 3/4 of an inch. It is now maybe 1/2 inch wide to maybe a little over an inch long. I do believe certain people do not absorb vitamins the way we think. I would also like to have her do a test on how her body absorbs vitamins. B12 is something alot of people don't absorb. She takes B-12 5000 mcg-sublingual, c-1000 complex, Folic Acid 800mcg and Aloe Vera water.

Replied By Indi (New Jersey, US) on 10/28/2014

what type of Dr. did you see to get the dosages for the vitamins?

Thanks so much for sharing your story.

Replied By Luz (Kent ) on 05/23/2015

Hi, my daughter developed white patches on her face. Doctor diagnosed her with vitiligo. I am exited to read that your daughters skin improved. The liquid aloe Vera, do you make it or you buy it?

Replied By Katie (Psl Florida) on 06/09/2015

Hi I also live in south florida and my daughter has vitiligo and I'm so sad for her can you please tell me which vitamins you use and the dosage. Thanks Katie

Replied By Lynn (San Diego, Ca) on 06/12/2015

Hi I know this is an old post but can you tell me if you're currently still using this remedy. My son's Dr doesn't have any insight to herbal treatments and my son has been using steroid creams and photo therapy for years. Looking for other options.

Replied By Becky (Sacramento, Ca) on 07/12/2015

Hi... I was just wondering how long it took your daughter to recover her pigmentation?

Replied By Jenny (Davie, Fl) on 08/16/2015

Curious if you ever found a good Dr. in south Florida?

Replied By Katie (South Florida) on 08/18/2015

I see quite a few people from South Florida here. I wonder if it's the water here or if its heat that's a trigger?

Replied By Shannon (South Florida) on 09/06/2015

I am also from south Florida and have vitiligo. Which homeopathic doctor are you seeing? I have hashimotos also which can be related to vitiligo. I am gluten free and that has helped a lot. I have read a lot about the importance of being gluten, dairy, sugar, soy free.

Replied By Rajiv Gupta (United Arab Emirates) on 11/10/2015

Hi Dear Lola, I know this is an old post but can you tell me if you're currently still using this remedy. My son's who is 08 years old has been diagnosed with vitiligo and the white mark is spreading quite rapidly. Also, If any parents are reading my post if they can suggest me some good and trusted remedy or doctor (Ayurvedic, as some said it will cure from root level) in India. Please advise and suggest. Thanks in advance.

Replied By Faye (Uk) on 05/16/2016

I just came back from my second app with a vitiligo specialist in London, he has now told me he is almost certain its vitiligo my baby boy (4months) is suffering with, he told me in his 23years of experience he has never seen it in a baby this age, which is why he can't be certain.

He has 3 patches, 1 on hes neck, groin and inside of hes elbow...

As you all will know I'm absolutely gutted, my mum has had vitiligo since she was 14 so I know what his life will mean...

Came across these posts and you have all given me hope. Please can you all give me your advice on trying to treat this, I came straight home from the hospital and smothered him in extra virgin natural coconut oil - I want to know more about people experiences with the aloe vera and almond??

Replied By Art (California ) on 05/17/2016

Faye (UK),

Here is a recent abstract (2016) as well as a link to the full study about the use of low dose aspirin as a potential treatment for vitiligo that you can discuss with your doctor. This is a human study that showed effectiveness in the test subjects.

Ted has previously mentioned that taking aspirin dissolved in water can help to offset the stomach issues that can occur in some people who use aspirin for extended periods and this also may be worth mentioning to your doctor if he thinks this may be a possible treatment for your baby. Obviously it would have to be a very low dose for a 4 month old or perhaps your doctor can have a topical aspirin cream compounded for your baby for direct application to the depigmented areas. In any case it won't hurt to discuss this study with your doctor.......even if for only future use when your baby is older. It's always nice to have a viable alternate plan!

This is the abstract below and below that is the link to the full study.

Art

..............................................................

J Cell Mol Med. 2016 Mar 10. doi: 10.1111/jcmm.12812. [Epub ahead of print]
Aspirin induces Nrf2-mediated transcriptional activation of haem oxygenase-1 in protection of human melanocytes from H2 O2 -induced oxidative stress.

Jian Z1, Tang L1, Yi X1, Liu B1, Zhang Q1, Zhu G1, Wang G1, Gao T1, Li C1.
Author information

Abstract

The removal of hydrogen peroxide (H2 O2 ) by antioxidants has been proven to be beneficial to patients with vitiligo. Aspirin (acetylsalicylic acid, ASA) has antioxidant activity and has great preventive and therapeutical effect in many oxidative stress-relevant diseases. Whether ASA can protect human melanocytes against oxidative stress needs to be further studied. Here, we investigated the potential protective effect and mechanisms of ASA against H2 O2 -induced oxidative injury in human melanocytes. Human melanocytes were pre-treated with different concentrations of ASA, followed by exposure to 1.0 mM H2 O2 . Cell apoptosis, intracellular reactive oxygen species (ROS) levels were evaluated by flow cytometry, and cell viability was determined by an Cell Counting Kit-8 assay. Total and phosphorylated NRF2 expression, NRF2 nuclear translocation and antioxidant response element (ARE) transcriptional activity were assayed with or without Nrf2-siRNA transfection to investigate the possible molecular mechanisms. Concomitant with an increase in viability, pre-treatment of 10-90 μmol/l ASA resulted in decreased rate of apoptotic cells, lactate dehydrogenase release and intracellular ROS levels in primary human melanocytes. Furthermore, we found ASA dramatically induced NRF2 nuclear translocation, enhanced ARE-luciferase activity, increased both p- NRF2 and total NRF2 levels, and induced the expression of haem oxygenase-1 (HO-1) in human melanocytes. In addition, knockdown of Nrf2 expression or pharmacological inhibition of HO-1 abrogated the protective action of ASA on melanocytes against H2 O2 -induced cytotoxicity and apoptosis. These results suggest that ASA protects human melanocytes against H2 O2 -induced oxidative stress via Nrf2-driven transcriptional activation of HO-1.

Full study link:

http://onlinelibrary.wiley.com/enhanced/doi/10.1111/jcmm.12812

Replied By Amy (Las Vegas, Nv) on 06/17/2016

Hi Lola, It's been more than a year since your post. How is your daughter's vitiligo now? Has she stopped taking medication? I'm curious as to the efficacy of the vitamin treatments. Thanks!

Replied By Anne (Nevada) on 08/30/2016

I would suggest that you make pure almond milk for your baby. Buy organic almonds, blanch them in boiling hot water for a minute to remove the brown outer skin. Put them in the Blender with Purified/Distilled water. Add 1/4 tsp PURE Almond Oil (Organic unrefined for cooking) in with the Almonds. 1/2 cup of almonds to a quart of water. Blend it on liquify, STRAIN IT THROUGH THE SMALLEST SIEVE/STRAINER OR A COFFEE STRAINER. POUR IT INTO A STERILE BOTTLE, REFRIGERATE. HEAT ALMOND MILK FOR BABY LIKE YOU WOULD HEAT REGULAR FORMULA.

I raised my son on Almond Milk and juices because he had over 250 Allergies. The doctors did not know what to do for him..I would not give him the Soy Formula after I found out that it is not good for little boy babies. My son is an adult over 30 and is HEALTHY, THANK OUR LORD IN HEAVEN.

THIS SHOULD DO THE JOB. Babies need the oil to keep from being constipated.

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Abstract