Maruska (Western Ny) on 09/17/2013
Replied By Sophia (Yorba Linda, Ca) on 06/15/2014
Sincerely, Sophia
Replied By Kathy (Oklahoma) on 10/20/2014
Replied By Lilacs (Toronto) on 10/29/2014
Replied By Eva (Hawaii) on 04/19/2015
Replied By Melabot (Okc Ok) on 11/14/2015
Replied By The Dubbokc (Oklahoma City, Ok) on 11/21/2015
Since your post was so recent I thought I would reach out & see if you'd like to speak through email? I literally have shut myself off from the world from sheer embarrassment from the lesions on my face. The toll this has taken on my life is unbelievable. I'm 34 & what little I had is gone, I'm sure you completely know where I'm coming from. Anyways I would love to just talk to someone here in Oklahoma or anywhere I'm certainly not picky if you'd like. Email me at kdubbn(at)gmail.com. I don't know how long you've had this or to the severity of yours but I identified with this in Nov 2013 & have just as many if not more questions now than ever...& no one to ask them to.
Anyways would like to chat with some others especially when it comes to actually healing the lesions that are on my face. I feel I try so many different things that even though at the moment I feel like something is working I honestly don't know which "cure" it is that is working but to scared to stop any of them cause I just want to at least not feel so mutilated when I look in the mirror every day. Ugh, now I'm tearing up.
Can I ask, do you or anyone reading this, have major digestive/GI issues from this? I don't know if it is directly from the Morgs or if it is something I've done to myself with all the various treatments I've tried, but it's yet another thing that is completely out of synch in my life, & I do mean completely screwed up. Also has anyone (& I realize this might be a stretch) ever been on Accutane? I randomly will read about this with others who have Morgs & I was just curious on anyone & their thoughts since at one time was pulled from the shelves for really screwing people up. I suffered some crazy side effects back then but not once I stopped taking it. Who knows, I mean honestly I have so many personal theories about this I make myself question my own sanity, daily at times.
Email me if you'd like. Would love to chat with someone about this hell we're in. Sorry for the long ass post. Good luck to everyone. Cheers---- The DubbOkc
"That's a bitch'n case of evil you've got there." –said a physician to his first Morgellons patient
Replied By Kelly (Pasadena, Ca) on 11/04/2018
Accutane is awful, it had my niece thinking of ways to kill her brothers and sisters and when she stopped the Accutane she had Obsessive Compulsive Disorder her hands bled she washed them so many times.
Replied By Sweetvenom13 (Sydney, Australia) on 11/30/2015
I have been wondering about the role of Retin A and roaccutane internal and topical medications too. Have a look for kandy griffin + morgellons is not a disease article which goes into great detail about nanotechnology and the role of micelles or nanoworms in medications and cosmetics which are mostly used by women in their late 30s, 40s and 50's - also the largest group represented in morgellons cases. I believe that morgellons is a multi-faceted systemic disease which attacks individual's weakest point so symptoms vary from person to person. I also believe what ted from Bangkok says about there being different strains of the genetically engineered 'silent super bug'. many cosmetics and anti ageing creams use bacteria, moulds, fungi or viruses to achieve various goals including the manufacture of 'synthetic DNA' or more accurately (I believe) RNA.
I do warn you though, if you really get into this topic it will change the way you perceive the world and how much er trust you should or should not give to pharmaceutical and cosmetic companies. Also when shopping for toiletries, cosmetics, hair dyes, moisturisers etc be prepared to have to take lists of chemicals and ingredients to avoid. A lot of these companies are quite sneaky with their labelling too, as some ingredients are known by different names in different countries or are listed under mysterious trademarked names which they have invented...to make them sound fabulously high tech (we read effective) and often to mask/hide the true chemical cocktail of ingredients under one proprietary name.
I would be interested to find out how many other morgellons sufferers do have a history of internal or topical retin A aka accutane, roaccutane etc
Kandy griffin is a nurse who has spent many years researching medical patents and nanotechnology...volunteering her information rather than trying to profiteer from it.
Good luck with your journey towards better health and please let me know what you think. All the best
Replied By Anon (Anon) on 12/01/2015
It could have come from my mother, because I used to lay across her bed when she was getting ready for work at her vanity, she had a bout with them as well, but they left her alone not to long after she had spots on her. She also was doing a colon cleanse, same as mine. I know lots of nurses have these things, so I believe that it is some kind of Bacterial infection or they live in your gut and get in the blood stream from leaky gut and exit the skin.
The problem is know one knows for sure what it is, so it is best to treat it as a Fungus, Bacterial, Parasite, Insect Vector, Virus. Also we need to dissolve any shells they may hide in whether they be plastic, calcium, or any other coating.
L-Lysine is one on the best anti viral along with Zinc. Borax and baking soda for fungus. Garlic and probiotics for bacterial. Orange oil to dissolve plastic, kill insect vectors, help kill of parasites. MSM to dissolve calcium shells. Treat external as well as internal. Some people highly recommend a zapper as well. Treat it for all of this and let me know how it works.
If they do come from the leaky gut, we may have to fix the leaky gut to prevent further breakouts. The colon cleanses I have read can sometime rubbed tiny holes in the gut ( From the sandpaper like fiber that they say scrubs your colon clean. Also candida can cause leaky gut, Fix the gut maybe fix the problem.
Replied By Diana (Toronto ) on 02/17/2017
Replied By Paula (Oklahoma) on 08/30/2017
Replied By Ssshhhh (Dallas Texas ) on 08/25/2022