Brandi (Griffin, Ga) on 03/25/2013
So after 6 months basically of pain shooting from my neck down my arms and out through my fingers, which kept me from being able to sleep anymore than an hour or two at the time as well, I get the first of my 2 surgeries the first week of October, I went back to work waiting tables 2 days later, doctor didn't want me to but I didn't have a choice, single mom = bills to pay. Two weeks after my right wrist was done I got the 12 stitches out of that wrist, and the next morning I was back on the operating table for my left wrist, and 2 days after the surgery I was back at work. It wasn't until December, seems like right before Christmas I was doing something and just all of a sudden noticed the feeling was finally starting to come back in my fingers. Before the surgery I was told that there was no guarantee the feeling would ever come back and that it usually took 6 months if you were gonna see signs of improvement. It had been 2 months and I could tell the feeling was starting to come back in the tips of my fingers, I just kept hoping that over more time I would regain all the feeling back in my fingers, and now 6 months later I can feel my fingers. Still muscle weakness in my left arm and wrist. Seems to keep getting worse. I'm actually wondering if I don't have some muscle atrophy going on.
However, I know I got wayyyyy off topic about Benign Fasciculation Syndrome. But the first time I recall the twitching was one a friend brought it up and asked me why I started jerking and twitching every night right before I went to sleep. That was around the end of November. And now every night when I lay down that's how I can tell I am about to drift off to sleep, my legs and arms start twitching and jerking. It was probably in January when I first looked up my symptoms because at the very least I knew it wasn't normal. And I came across this syndrome. I finally remembered to bring it up today when I saw the doctor about my next injections. She said I would have to get my PCP to order blood work and luckily I have an appointment already scheduled for in the morning for my regular monthly visit. So I will request full labs as well as nerve conduction studies and muscle biopsies if I can get them to do it. So maybe there will be an update to this post in the future as to the results of the tests.
Replied By Ejules (Woodbridge, Va, Us) on 03/28/2013