Hemochromatosis

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Genetic Component to Iron Overload

Connie (utah) on 12/05/2021
5 out of 5 stars

I don't have classic hemochromatosis, but there is some genetic component to my iron overload.

Researchers are finding more SNPs that induce increased iron uptake. It's essential and used to be more scarce. Now it's everywhere, and excessive. Many people still appear to be anemic, but not for lack of iron, it's actually iron dyshomeostasis.

My family history is : Mother died of cirrhosis, though she didn't drink much. Father, like Mother was hyperpigmented.

He was often ill and with stiff joints, with heart disease. Brother and Sister died from heart arrhythmia.

We all had fatigue except Mom.

I had an iron panel 6 yrs. ago, and iron overload was indicated. I've been wary of iron since the '80's, because I read it was a growth factor for cancer. I was surprised to see it elevated.

My good news is that iron regulation can help others, possibly, manage their own overload or anemia. The differences are that some substances regulate iron, and some chelate or lower uptake.

-Copper glycinate is my number one supplement for iron regulation. Most of what we know about it is that is enhances iron uptake, but it also regulates it, high or low.

I take a 2.5 mg. of copper glycinate daily. I've tried less, but feel worse.

Many Hemochromatosis sited and even researchers malign copper, stating that it only increases iron uptake, and is toxic. There are also researchers who've shown that copper enzymes will balance iron stores. It works for me.

-The B vitamins are involved with iron homeostasis. Their enzymes regulate it, as it will accumulate without them.

-Active vitamin A also regulates iron. It's necessary for ceruloplasmin formation, along with copper. Ceruloplasmin is an antimicrobial, antinflammatory, etc. protein that regulates iron.

-Lactoferrin is an iron binding protein that is involved with iron regulation, high or low. I take an apo-lactoferrin, without iron for its chelation properties. I take it off and on

-Zinc is essential, and has an antagonistic relationship to iron. Too much zinc can inhibit iron uptake. I take 5-7mgs. daily.

- Calcium inhibits iron uptake, both heme. and nonheme. if taken with iron foods and in higher quantities. Disturbed iron metabolism can in turn disturb calcium balance. I take calcium throughout the day for a total of 1,300 mgs., food and supps.

Coffee, Tea inhibit iron uptake. R- lipoic acid chelates iron. Wheatgrass has been shown to chelate iron. I don't know about cabbage, but I believe these folks. Curcumin in turmeric chelates iron.

I do better with a lower animal foods diet, but still have them.

REPLY   8      

Diatomaceous Earth for Hemochromatosis?

Anon (Anon) on 08/27/2020

I'm looking for the post regarding diatomaceous earth chelating iron if anyone knows where it is.

Hemochromatosis is a condition of iron overload that causes various health conditions including joint pain. If DE chelates iron it may explain why conditions such as joint pain may be relieved by DE. Someone with Hemochromatosis may try the DE and let us know if it is effective.

💙

REPLY   1      

IP-6 (Inositol Hexaphosphate) for Hemochromatosis

Nevadasmith (Pennsylvania) on 03/20/2018
5 out of 5 stars

IP6 lowers iron in 5 weeks

My wife's results for changes from February 12th, 2018 to March 19th, 2018...

  • % of Saturation dropped from 51% to 28% (45% drop)
  • Total Iron Binding Capacity remained at 317 mcg/dL
  • Total Serum Iron dropped from 162 mcg/dL to 88 mcg/dL (45.7% drop)
  • Ferritin dropped from 62 ng/mL to 53 ng/mL (14.5% drop)


My results for changes from February 12th, 2018 to March 19th, 2018...

  • % of Saturation dropped from 37% to 22% (40.5% drop)
  • Total Iron Binding Capacity dropped from 314 to 295 mcg/dL


PLEASE NOTE: WE HAVE NEVER DONE PHLEBOTOMY OR DONATED BLOOD.
What did we do?

For the past 4 weeks we each took 3 capsules of IP6 twice a day on an empty stomach, usually mid afternoon and again during the night when we get up to answer nature's call. We took 3 capsules instead of 2 because the supplements we have were beyond their expiration date (Nov 2014), so we thought they might have been lacking in potency. I guess, maybe not.

There is one other thing we have been doing but I have no way of knowing if it had any bearing on the results. We have been using an LED/near infrared light twice a day for 20 minutes over the area where our livers would be located. Whether this had any effect or not is undetermined. The light is a Redjuvenator #3

REPLY   7      



Raw Cabbage for Hemochromatosis

Larry (Alberta) on 01/24/2017
5 out of 5 stars

My hemochromatosis reading was 2500, ferritan level very high, was having weekly phelabotomies, slowly coming down. Started to eat raw cabbage for a month and level had dropped to 175, still on cabbage and hemo level down to 33, ferriten level where it should be. Feel great now, no more phelabotomies.
REPLY   19      

Wheat Grass and Oriental Medicine for Hemochromatosis

Padma (Denver, Co) on 12/24/2016
5 out of 5 stars

I was diagnosed with Hemochromatosis almost two years ago, and my ferreting levels were between 1500-2000 when I was first diagnosed. My MD was very concerned and ordered two phlebotomies per week for months until we began seeing the numbers go down. While I had been feeling run down prior to treatment, the blood draws were a disaster. I would be completely dysfunctional for 2-3 days following a blood draw, couldn't climb stairs, etc. And after several weeks, my ferreting numbers didn't move more than 50-100 points. Against my doctors (strong! ) orders, I stopped doing the blood draws.

After doing a LOT of research, I found that Wheat Grass is an iron chelator. So I began making a smoothie every morning with 1-2 scoops of organic Wheat Grass juice powder and a pea protein smoothie mix. And the numbers began coming down. Added to that, I began treatments 2-3 times a month with an acupuncturist who added two formulas she had discovered work well for this disorder... 1) Tao Hong Si Wu Tang and 2) Zuo Gui Wan. The wheatgrass plus the herbs... led to my numbers coming down over a 3-4 month period... to close to 300 (from 1800! ). And in the last six months, I have been in "normal" zone. And feel great!

And after lots of research, I disagree about no vit "C". Just don't take it within 3 hours of eating, so it doesn't add to the iron uptake from the food you eat. So I take mine before I go to bed, along with Magnesium and D3. Also take methyl B vitamins in the morning to support the liver.

REPLY   13      

Coffee Enemas for Hereditary Hemochromatosis

Jennie (Sarasota, Fl) on 11/20/2016
5 out of 5 stars

A late diagnosis of Hereditary Hemochromatosis left my liver, pancreas, heart, lungs and kidneys 'rusted' causing me to be extremely fatigued and in a lot of joint pain from too much iron being embedded in my bones and muscles. Coffee Enemas has enabled me to release the toxins and phlebotomies have helped my health go in a different direction (improvement). Dr. Max Gerson was a genius; thinking outside of the box. My husband has also begun his detoxification with fabulous results. Of course, all this has to be in conjunction with plant-based foods and juicing. Works for me!
REPLY   5      

Cabbage for Hemochromatosis

Paul (Ballycastle) on 10/10/2016
5 out of 5 stars

Hi - I have haemocromatosis for the past 6 years and I now take cooked cabbage on a regular basis and must say that my ferritin levels as I speak are around the 30 mark!!!!
REPLY   12      

Raw Cabbage for Hemochromatosis

Purplebutterfly (Usa) on 07/25/2016
5 out of 5 stars

Cabbage and Hemachromatosis:

Some of you may notice I posted a question about this over a month ago and did not receive any replies.

Anyway, I post this hoping that it will really help others.

I was diagnosed with Hemachromatosis (non-hereditary) due to too many blood transfusions....and the blood transfusions were given years ago due to a mis-diagnosis.

So to get to the point, yes....I decided to try the cabbage to see if it would work. I ate 1/2 to 1 cup of raw cabbage a day (mostly in a vegan sandwich, and I do not eat much cooked food). I stayed consistent each day though.

You be the judge. My ferritin level in 1 month went from ...2000 to .....1596 in 3 weeks. I kid you not, and thank goodness this is without any phlebotomies. The nurses could not get my veins anymore, so I will keep on going. The doctors are scratching their heads right about now...lol. So please try it and tell me. I hope you get results too. ;-)

Well wishes to you all.

REPLY   26      

Probiotics for Hemochromatosis

Dd (Phoenix, Az) on 08/28/2015

It can sometimes be a simple matter of adding a good Probiotic. Bacteria eats iron. It helps control iron levels in oceans. Sometimes iron is added to dead harbors and they team with life. I know people this has worked for where there have been transfusions coupled with antibiotic use and not much left that feeds on iron so the body stashes the iron is all.
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Infant with Iron Overload

Newborn (Chicago, Il, USA) on 06/20/2013

My granddaughter is only 5 days old. She was born Sat June the 15th. My granddaughter has a lot of things wrong with her, she had fluid on her spine, an enlarged liver and she had too be put on oxygen 100%. She did a lot of blood work on her and one thing they know for sure that she has a overload of iron in her system. They were able to treat the fluid around her spine and get her oxygen level down to 60 which is they said her oxygen level needs to be at 21 they are suspected that it may be hemochromatosis they did a mri and it didnt show really nothing so they did the biospy today and now waiting for those results. What do you think we are dealing with?
REPLY         

Ip6 for Iron Overload

Kathleen (Los Angeles, Ca) on 01/29/2013
5 out of 5 stars

I suffered from Hemochromatosis and have been having phlebotomies for almost 20 years. In the beginning I was having one pint depleted once a week. Then I got bad so quickly the started drawing two... Yes 2... Pints of blood a WEEK! This went on for over a year. Then once a week for several years.... Until I found ip6 [inositol hexophosphate]. Once I started taking it regularly, I didn't have to have a phlebotomy for 2 years! Not one treatment for two whole years! I stopped taking it for a while and recently started again. I'm having phlebotomies about 3x a year now and I'm happy and I thank God I'm alive! I hope this helps....
REPLY   13      

Ayurvedic Treatment for Hemochromatosis and Ferromagnetic Cancer Theory

Vadim (Washington, Usa) on 01/09/2013

Ayurvedic Treatment for Hemochromatosis and Ferromagnetic Cancer Theory.

The most effective treatment for hemochromatosis is to reduce iron in the body by phlebotomy (withdrawal of blood from the arm veins). The Ayurvedic treatment for hemochromatosis is aimed at removing the excess iron from the body, preventing excessive iron absorption, treating the symptoms and preventing complications. High iron absorption from the intestines is prevented using medicines like Kutaj-Parpati, Panchamrut-Parpati, Suvarna-Parpati, Sukshma-Triphala, Triphala (Three Fruits), Arogya-Vardhini, Bilva-Avaleha, Psyllium (Plantago Ovata), Gandharva-Haritaki, Kutki (Picrorrhiza Kurroa), Abhrak-Bhasma, Praval-Panchamrut and Trivang-Bhasma. Iron Conception (Ferromagnetic Cancer Theory): CANCER is the generic term used to describe a group of disorders caused by an uncontrolled multiplication of cells; any cancer should be interpreted as intracellular superpara-ferri-ferromagnetic infection; intracellular molecules FeO;Fe2O3;Fe3O4 are the main 'creators' of intracellular superpara-, ferri- and ferromagnetic nanoparticles; any cancer can attack patients with/without iron overload and patients with iron-deficiency anemia.

Cancer researchers can use Ayurvedic treatment for hemochromatosis as Ayurvedic treatment for cancer because any cancer is a subtle iron disease. http://www.medicalnewstoday.com/articles/166455.php ; https://www.earthclinic.com/cures/iron-overload.html ; Vadim Shapoval

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Blood Donation Seems to Improve Health

Suzy (Eugene, Or) on 12/01/2012

I do not want to open a can of worms here... Just wondering if anyone else has found relief from any problems by becoming a regular blood donor? I have been donating on a regular basis for more than 6 years. I have noticed a decline in the number of headaches I get. Also... I tend to run a little rich in iron in my blood so regular blood donation also keeps that in check. I do not have a lot of health problems- but I notice I feel more "Up" after donating. I realize many of the issues that people on this site would exclude them from blood donation, but among those who can and do what has your experience been?
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Genetics Can Cause Iron Overload

Catherine (Wellington, New Zealand ) on 07/14/2011

About iron and cancer.. The body's defence mechanism when pathogens, parasites or cancer cells are present is to withdraw iron from the blood and store it in ferritin molecules. This in turn shows up as low iron levels in the blood (anemia) Not to be alarmed, not all anemia is iron related, it can be brought on by low Vitamin B levels. When a blood test is required to measure iron in the blood it is a good safeguard to also have a serum ferritin check as well to measure how much iron is being stored!

Anyone of Celtic ancestry should have their ferritin levels checked in case they have the iron storage disease called hereditary hemochromatosis. This condition causes much misery and limited life span from such things as liver cancer, heart disease, stroke, diabetes2, arthritis and other health conditions. Males are affected sooner than females whose iron levels are reduced by their menses and childbirth. After menopause they soon catch up (which is why their rate for heart disease increases then). Statistics show that 0.5% to 1.5% of the population (depending on racial mix) can have the gene for this disorder. It runs in families and members who do not have the condition are likely carriers of the gene. We have all heard the stories of a man who died of cirhossis of the liver in spite of being an avowed tee-totaller, and the mourners at the funeral whispering how he must have been a secret drinker to have had such a disease!! Not so, poor man was a victim no doubt of hemochromatosis and the massive amount of iron stored in his liver.

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