I have been taking Acetyl-L-Carnetine for a couple years to combat my peripheral neuropathy. It has been recommended by a neurologist in New York. My feet are progressively doing worse but I don't know how much worse they would be without it. I also take Alpha Lypoic Acid. I take about 3000mg of Acetyl-L-Carnetine a day. I am looking for whatever works. I have the neuropathy through anti-hiv meds and possible from the virus itself.
Manhattan, New York
Granite Bay, Ca
In Germany the treatment for peripheral neuropathy is IV alpha lipoic Acid. It's even covered by insurance. Has anybody used this therapy with success? And if so what doesage in mg did you use. Thank you VM.
Have you tried Alpha Lipoic acid? It really works for me and not too expensive. I think the directions say two a day. I take three a day and NO PAIN!
Ten Mile, Tn
Peripheral Neuropathy: Better But Not Cured: If there is a cure? Just wanted to update with the latest from previous post. 3 months ago Rob and some others suggested Alpha Lipoic Acid. I have taken this for the last 3 months, and it has gotten much better! I started out with 1 100mg tablet, three times a day, and have had to add a 100mg tablet twice in 3 months, because the discomfort returns. But as soon as I up my dose, it goes away. I am currently taking 500mg a day. I guess I keep upping my dosage until I reach the maximum, then what? lol..
Have you tried ALPHA LIPOIC ACID? I read 3 YEAs from people who used that. Good luck.
Benfotiamine helped, but did not cure my Peripheral Neuropathy, which was due to knee replacement surgery where the nerves are traumatized. PN was bad after surgery and slowly improved (I took a large vitamin stack). After ~12 months learned about benfotiamine and tried it. A little better. Then I called the company and the founder (a scientist) answered and explained how sometimes large doses were necessary at least to start with, and that toxicity was almost impossible. 1800mg a day helped - to an extent, then leveled off. I now take Drs. Best Benfotiamine 300 1x and alpha lipoic acid 300 + benfotiamine 150 8x. My neurologist approves of these supplements.
BTW, I once used r-lipoic acid to cure my loss of taste (taste only, not smell) from taking an anti-fungal rx (never again). EENT specialist gave me prednisone which helped nothing but gave me road rage and fluid retention. Google led me to ALA and RLA studies. Cured in days. EENT doctor refused to even look at the published research articles. It was a pleasure to tell him "Your services are no longer required."
I was diagnosed with degenerative arthritis & Dr. tells me I also have peripheral neuropathy which has gotten progressively worse over last 2 yrs. Started as just a numb/tingling like feeling and increased to burning to finally shooting pains particularly in my left foot across top of foot. One can actually see the veins in my feet puff up... Only way I can describe. Doc has me on gabapentin 300 mg 3 times daily. He said I was "pretty much maxed out on this med" but has advised no changes.
I have 20 mule team Borax setting in my laundry room & have been reading for hours the pros and cons of this. Does anyone have any idea if this would help my feet. I want to take back control of my health as I don't feel the Dr. Is doing anything other than giving me a drug that treats the symptoms but does not heal. Thank you.
White Rock, Bc, Canada
Good Ole Usa
I have raynaud's syndrome where circulation is lost in my fingers and toes sometimes for a few minutes and sometimes for longer. the other day I had an episode with my pointer finger where it was white and cold from half my finger to the tip and I decided to try cayenne pepper. i mixed the cayenne pepper from my spice rack with some vco (any oil would probably have worked). my circulation started back quickly. This is the first time I have tried this. maybe it would help you as well....Be sure not to get it in your eyes and wash your hands good afterwards...because it will burn any cuts or sensitive areas you might have. I have also read that taking any type of blood pressure pills and/or mineral deficiencies cause neurapathies...
I have been using coconut oil on nerve pain due to diabetes, I also suffer from peripheral neruopathy in lower leg. Applying pure coconut oil has really made my skin smooth, it used to be blotchy, red and scaly. My doctor gave me couple of creams but that did not help at all, so I tried coconut oil and it has worked, it also helps me with burning in the sole of my foot, it does not go away but it certainly helps with burning. I prefer the oil instead of popping pills which do more harm than good.
Fluttering heart can be caused from hormonal imbalance , endocrinology issues, parasites , allergic reactions to food, ( I would stop wheat for sure ) pollen, plants, pets, hidden mold etc. oh yeah, tea bag, coffee bags or filters might have chemicals. This sent a friend to the ER; took? months to figure it out, vitamin deficiencies, viral bacterial infection. and just stress, caffeine or course hidden dental infections. I had PVC; the cardiologist gave me something Metrophale something I was so sick - migraine sick vomiting.? Ditched the cardiologist and found a great Chinese Medicine doctor First week of taking Chinese herbs I felt so much better , and then I also started taking organic virgin coconut oil harvested from FRESH coconuts. This is key so there are no mycotoxins. I now feel dramatically better.
I have peripheral neuropathy and my neurologist wants me to take an EMG test which is a nerve conduction study... Of course I am hesitant because I have had problems with most tests I have taken... Does anyone out there have any experience with this test?... He says he would stick a needle in the nerve and shoot electrical shots thorugh the nerve to see how far it transmits. It doesn't sound pleasant... Call me very cautious... I had a liver biopsy and walked bent over for 6 months and my enzymes went from normal to close to 300 each. He says this test will tell him if the problem is in the myelin sheath or the axion(sp?) Thank much.
Ft. Lauderdale, Fl.
Lewis Center, Ohio
I also would like whatever info on evening primrose oil as I have tried everything on this site and every other site for peripheral neuropathy... I have spent close to $10,000.00 on accupuncture, micro current therapy, IV alpha lipoic acid, vitamin C , etc. etc. and am worse! I have trouble walking up stairs and have terrible pain, hot needles, electric shocks, everywhere all day and night long...
Bill from Phillipines or anyone who knows... I have hep-c and peripheral neuroapthy which I believe was caused by the hep-c.. I read where most people are taking fish oil for P.N. Is Salmon oil just as good and what about the vitamin A I'll be injesting with the oil? I heard that it can be detrimental to my compromised liver... If I decide to take it, what dose whould I consume? Thanks for reading.
Hi Bill, Do you know if either cayenne or ginkgo will open arteries and help with peripheral neuropathy? I have burning, stabbing pains, cramps etc. etc. and don't want to make the situation worse with the wrong remedy. Thank you much.
San Fernando, Philippines
San Fernando, Philippines
I had such painful cramps in my feet and legs it would wake me up at night-I remembered I had magnesium oil and the gel--put some on the bottom and top of my feet and on my legs. Also started taking Boswellia/Turmeric combo and Magnesium Malate-drank a small glass of water with 1/2 tsp. baking soda---have no more cramps--my feet are warmer, less pain when I walk too. Now gave my old dog boswellia/turmeric---she's going up and down stairs with no problem. Hope this helps. Bonnie