Natural Remedies for MS

Dietary Changes, Supplements

1 User Review
5 star (1) 
  100%

Posted by Karen (Raleigh, Nc) on 02/12/2017
★★★★★

I have been following the Swank diet and Terry Wahls diet for about 6 months, and I feel that has helped diminish multiple sclerosis symptoms. Current research has pointed to problems with gut bacteria in ms patients, and lack of nutrients due to this digestive issue. I added a very tiny amount of iodine through kelp supplement, about 50 mcg daily, and felt blood flow to my feet and warm hands and feet, helping blood circulation. (have to be careful taking iodine due to thyroid) I started taking biotin 8 mg daily and that has improved my energy and strength. Also take multi vitamin, vitamin d3, b complex vitamin, magnesium malate and turmeric.

The 9 cups of leafy greens and colorful vegetables and fruits, along with no processed foods, gluten free, low saturated fats and low sugar, per the above diets has helped. I lost 13 lbs on the diet. I was diagnosed with secondary progressive multiple sclerosis previously. I can now drive, as the vertigo and nausea is gone, and my leg strength is better. I have not been to the hospital with breathing problems from "ms hug" since starting the diets. The pain is better. I am currently excited about the biotin, as my energy has improved since taking it. There was a recent study done on biotin which had good results, so neurologists are recommending it and vitamin d3 now. If you take vitamin d3, make sure you take a calcium citrate supplement and magnesium to balance electrolytes.

I drink low sodium V8 juice to get the potassium so it all balances out. I do low salt diet, sea salt only to get the other minerals. Salt was found to aggravate ms, and I found it to be true. I drink a lot of water too, since I believe dehydration was worsening ms. You need about 9 cups water a day for a woman, about 11 cups for a man. I set timer on my phone to remind me to drink glass of water.

Pinching skin on back of hand and raising 1 cm and releasing it, skin should snap back quickly. If skin sinks back slowly, you are dehydrated. I thought I was drinking enough water, but I wasn't! Also take a good probiotic supplement. I still have good and bad days, but the improvement is definitely there!


DMSO

1 User Review
5 star (1) 
  100%

Posted by Gerti (Gallspach) on 07/22/2017
★★★★★

DMSO gehőrt in jede Hausapotheke

Meine Krankheit MS musste viele Jahre mit der Schulmedizin mehr schlecht als recht zurecht kommen. Bis ich letzten Jahres von natűrlichen Mittel erfuhr. Mein Weg fűhrte mich zu DMSO. Seither ist dies mein tgl. Begleiter ( nehme 2-3 TL oral ein ).Ich fűhle mich seither schmerzfreier, vitaler...., außerdem wird es ebenso erfolgreich bei Insektenstichen, Verbrennungen usw.eingesetzt. Kann diese Erfahrung nur weitergeben.

--------------------------------------------------------

Google Translation from German:

DMSO belongs to every home pharmacy

My illness MS had to cope with the school medicine for many years more badly than right. Until last year I learned of natural resources. My way led me to DMSO. Since then this is my daily companion (take 2-3 Teaspoons orally). I feel since then painless, vital ...., besides, it is equally successful with insect bites, burns, etc. used. Can only pass this experience on.


Eliminate Artificial Sweeteners, Ldn

1 User Review
4 star (1) 
  100%

Posted by Chip (Playa Hermosa, Guanecaste, Costa Rica) on 03/18/2013
★★★★☆

Hello, I have Primary Progressive MS, and unlike most people I know what started it. I used to drink Aspartame sweetened diet soda. In 2004 I started to have significant neurological symptoms, numbness, severe word sluring, loss of muscle control and hot flashes in my left arm. I saw at least a dozen doctors and spent 4 days in the hospital, no one could figure it out. Then in May I went to a Chiropractor and he convinced me to give up Diet Coke, which I was drinking about a 6 pack a day. Immedieatly the symptoms started disappearing and within 2 weeks they were completly gone, except my right thumb and 2 adjacent fingers had some numbness, they felt like anything I touched was through cloth. A follwup MRI showed that I had lots of damage to my brain, and much of my cerebellum was gone (the nerves that control the fingers are in there). I continued to push for a real cause and in December I was diagnosed with MS by a doctor of neurology who was also a professor of Neurology at the University of Miami.

She said I had R&R MS, and I disagreed because I said that I never had a relapse or remission. In any case I did not take anything and seemed to be fine except for the numbness in my fingers. Then 5 years later I started to experience weakness in my right leg, which I attributed to Planta Fascitus which I had in my right foot. I went to a podiatrist and he fixed the foot, and I then went to a physical theripist to strengthen it, she said that the problem was neurological. I than went back to a neurogist and he proclaimed I had MS. Over the next 3 years I steadily declined, never having a relapse or a remission. I saw 3 more neurologists and they all said I had MS.

I tried the Wahles Diet, lots of supplements, the Swank Diet, and acupuncture, all to no avail. Then last week I got a prescription for Low Dose Naltrexon (LDN). I initially got my Doctor to write it for 4.5 mg, but the pharmacist at Skip's Pharmacy in Boca Raton told me to start with 1.5 mg, then after 30days up it to 3 then after 30 more days go to 4.5mg.

Although it has only been a few days already I do not get fatigued by midmorning and my right leg does not cramp up or shake a lot in the morning, like it was. My disease progresses slowly, but I am hopeful that it will now stablize.

I have now retired to Costa Rica, where I got a Doctor to write the prescription for LDN. Since I go back to Florida to visit frequently I hope to be able to keep up the LDN.

Replied by Rsw
(Uniontown, Oh)
03/18/2013

I'm glad to hear you are doing well on LDN. It should stop the progression of your disease. Please be aware that if the LDN is stopped for more than a couple of days, you can get the MS symptoms back again. You need it to moderate your immune system and keep the MS in check. By the way, I believe Skip's ships all over the world and prescriptions can be faxed to them. He has been a true leader in the LDN arena, and has donated many hours and work for it's use to help those with autoimmune diseases. I have no financial interest or affiliation with this pharmacy. Best wishes!


General Feedback

Posted by Mathura Bhatta (Khatima, Uttarakhand, INDIA) on 07/21/2009

I need of brochure and or other educational material on myelopathy and M.S. for a person in a remote village in India who does not have internet access. I will appreciate if you could put his name on your mailing list and send any info to him at:

[Information Removed]

Thanks!

EC: Dear Mathura Bhatta: You will likely get the best information on these subjects by searching on sites like wikipedia.com and medscape.com and then printing out this material for your friend!


Honey Bee Venom

2 User Reviews
5 star (2) 
  100%

Posted by Craig (Goodells, MI) on 01/12/2007
★★★★★

I have had MS for 10 years now. I take the beta seron shot every other day. Well I had a attack a few years back and the steroids did not help. Scared ....I decided to try from the vitamin store a jar honey that contains bee venom. It worked wonders for me i was completely healed within a week. I currently use 2 brands whichever is available at the time of my attack. 1. Actiflex Plus by Comvita....this one is harder to find www.comvita.com 2. Nectar Ease Distributed by henneybee thareapy 1-866-289-9233. I really believe they worked for me!

Replied by Pk
(Avon Lake, Oh)
12/07/2011
★★★★★

I have had success using Bee Venom Therapy for various ailments including: herniated disk, muscle strains in the lower back and shoulders, and it removed a wart that I had for over 5 years on my foot. I have witnessed many MS patients make drastic improvements with Bee Venom Therapy to the point that they got off of the drugs that only made them feel worse.

Many people use BVT for arthritis, carpal tunnel, low back issues, etc... (even Cancer).

Mother Nature has provided the solutions for our health issues.


Hydrogen Peroxide

3 User Reviews
5 star (3) 
  100%

Posted by Orshi (Exeter, Devon, England) on 01/21/2012

Hi all! I was diagnosed with MS 14 months ago, I had a rubbish year, needed steroid every 3-4 month, havent been able to work as I constatly have problem with fatigue, pins and needles and pretty bad numbness in my feet, bladder dysfunction, constipation, weakness and balance trouble, difficulty with walking, blurry sight with one eye and lots of other symptoms.

Steroid works but every time I get some, by the time I start to get back to normal, the problems slowly come back and I'm going down within two month again. It's very depressing. Now, I'm trying to be positive but right now I can't even walk again for ten minutes without sitting down for a rest. When I was diagnosed I was also told that I have EBV and they couldn't really tell 100% that my symptoms are caused by ms or EBV but most likely ms I guess.

I have been reading about Hydrogen Peroxide therapy for about two weeks and it gave me so much hope that I decided to try it. I am on 14 drops today now, climbing up to 25 and then do the whole protocol as it's in the books... I was wondering if anyone with the same problems has tried HP therapy? Please would you share your experiences with me, and maybe give me a little hope that I will get better one day. I am only 30 but I feel like my life stopped a year ago:-( I know I can't expect anything in a couple of weeks but I believe in this now so much that I tell myself every single day that this stuff will help me and I'm willing to do, even be patient for six months for results as long as I can walk, and after if I get better I am going to drink or inhale hp for the rest of my life.

Please give some good news here dear everyone or Ted! This site is great by the way!

I wish you all good health, and I'm looking forward to some answers. Also here's my email if anyone would share their experience with hp therapy in private orsika(at)hotmail.co.uk

Thank you!

Replied by Rsw
(Uniontown, Oh)
01/21/2012

I have some good news for you. Please look at this website, www.ldninfo.org. LDN is an inexpensive, FDA approved drug, which when taken in a very small dose can help with many autoimmune diseases, and is usually very effective in stopping progression of MS. Additionally, please join the Yahoo LDN group that has over 10,000 members, at least half of whom have MS. They will help you very willingly and with much understanding and experience. You are not alone and help is as close as your computer. Best wishes!

Replied by Bess
(Calgary, Alberta, Canada)
01/22/2012

Hi Orshi - I don't know about hydrogen peroxide for MS, but you may find the following TED video very interesting.

TEDxIowaCity - Dr. Terry Wahls - Minding Your Mitochondria

Dr. Terry Wahls learned how to properly fuel her body. Using the lessons she learned at the subcellular level, she used diet to cure her MS and get out of her wheelchair.

http://www.youtube.com/watch?v=KLjgBLwH3Wc

Hope there is some valuable information in it for you. Take care, Bess

Replied by Orshi
(Exeter, Devon, England)
01/22/2012

Thank you very much for your help and all the best!

Orshi

Replied by Laura
(Denver, Co)
02/01/2012

Hi Orshi, I have MS too, I have found oxygen therapy helpful. Hydrogen peroxide, and also Homozon. I did CCSVI treatment several times but while there were benefits they only last 6 months for me. I had it again and veins were open but symptoms came back. After lots of supplements, and continued progression, I tried stem cell therapy which stopped the progression and with exercise seems to be helping me get better. Went from wheelchair to walker outside the house. It's been 2 months.

Laura laura.laurapino[at]gmail[dot]com

Replied by Oscar
(Syracuse, New York)
02/01/2012

This is exciting news to me: stem cell therapy. Is it available in the USA at this time ? ...Oscar

Replied by Laura
(Denver, Co, Usa)
03/03/2012

Hi Oscar, Yes, I know of one place in the US http://www.stem-cell-rejuvenation.com/ the rest are out of the country. I went to Mexico.

Replied by Pete
(Vancouver, B.c.)
03/07/2014

Hi,

Just found this site and have been reading all the interesting posts.

My yoga instructor was telling us about Hydrogen Peroxide food grade and how it might be beneficial for people with MS, which I have had for 6/7 years now. Not sure if I can get LDN in Canada but will look into it.

Orshi, if you are still looking at this post every now and then, just wondering how you made out and if you have tried the LDN ??

I am 50 and also have extreme numbness in both legs/feet as well as bladder/bowel/eye problems as well as others.

Anyone in Canada purchasing the LDN? Thanks for any info. Best to everyone, Pete

Replied by Dave
(Fountain Inn, Sc)
03/08/2014

Pete, re your MS;

Also look into a substance that Dr Robert Adkins used as his number one go to for his MS patients that he would give to them in IV form, although the oral consumption I have seen is amazingly effective for the symptoms you describe; "Calcium AEP" and the "calcium" part is not the issue...it is the AEP part that is the miracle. You can google "Nutrition Review Calcium AEP" and find an amazing article on the 20 different things AEP can do to help the human body, To deal with leg symptoms, especially when stressed, up to eight tablets of AEP are needed.

Also, I have found Colloidal Silver to be effective in killing viral infections. It is theorized that MS has as a trigger a virus.

Replied by Mark
(Co)
03/26/2014
★★★★★

I am taking hydrogen peroxide for my MS and find it very beneficial. :)

Replied by Don
(Melbourne, Australia)
06/09/2020

Oxygenation of blood through any means seems to do the trick with many illnesses. Eg Jim Humbles chlorine dioxide, wim hof breathing method, it all makes sense to me, not withstanding issues with nutrition and over toxicity.


Hydrogen Peroxide
Posted by Rich (Niles, Trumbull) on 03/20/2008
★★★★★

I am trying HP added to distilled water to treat my wife who is disabled and unable walk. I am trying 35% hp in distilled water/6 drops per 6oz once per day. I would appreciate any recommendations. She seems to be more mentally alert and aware. Have been using for about a month and just recently increased from 3 to 6 drops.

Replied by Scott
(Clute, Texas)
02/09/2010

Increase the 35% food grade hydrogen perxoide from 6 drops once a day to 8 then 10; 12; 14; 18; 20 drops at least 3(three)times a day then level off at around 8 to 12 drops twice a day after a couple of weeks. This increase from once to three times a day will continue to over oxignate your body and keep any fungi or paracite dead or dormant since these parasites can't live in an over oxignated body.

I'm 69 years of age and live in Texas, USA.. Haven't found an ailment it won't cure if done daily.

Replied by Brian
(Barrie, Ontario, Canada)
02/09/2011

Scott from Texas is correct. H202 Hydrogen peroxide food grade is only oxygen, increased intake is absolutely harmless. (withing reason) I have done up to 15 drops at once 3 times a day ( always diluted in water). It also cleans out the bad bacteria in your digestive tract, which most practitioners agree is 80% of your immune system.

Replied by Sunnysky
(Texas, US)
12/25/2014

Best wishes to your wife. Where do I find the details on HP % and the number of drops, etc? I've seen this topic before, but it was actually my doctor who whispered/suggested I look into this, including ozone therapy, so will want to look that up, too, but for now I'm looking for info on the HP protocol. (MS for almost 25 minutes) Thanks!

Replied by Stacy
(MA)
08/01/2021

This hydrogen peroxide book might help. You can also look at the reviews on Amazon for food grade hydrogen peroxide and books on hydrogen peroxide. https://www.theoneminutemiracleinc.com/products/2014-true-power-of-hydrogen-peroxide-miracle-path-to-wellness-mary-wright-goes-beyond-one-minute-cure-paperback-2014


Hydrogen Peroxide
Posted by Rich (Niles, Trumbull) on 03/20/2008
★★★★★

I am trying HP added to distilled water to treat my wife who is disabled and unable walk. I am trying 35% hp in distilled water/6 drops per 6oz once per day. I would appreciate any recommendations. She seems to be more mentally alert and aware. Have been using for about a month and just recently increased from 3 to 6 drops.

Replied by Stacy
(MA)
08/01/2021

Look up food grade hydrogen peroxide reviews on Amazon. Do you know about the diets for multiple sclerosis? I don't know if your wife is already on a diet, but that would be helpful for her.

Replied by noel
(california)
06/28/2023

yes, try to find the book: HYDROGEN PEROXIDE

Medical Miracle

by William Campbell Douglass, MD

around page 104 there are stories of people curing MS by hydrogen peroxide IV therapy. Perhaps intravenous Vitamin C would work as well since it turns into h2o2 inside the body. good luck!


Inclined Bed Therapy

Posted by Stephanie (San Francisco, Ca) on 11/03/2013

MS (Multiple Sclerosis) Remedies Needed

Inclined Bed Therapy (IBT)

I would like to suggest people with MS look into Inclined Bed Therapy, which by definition, is the process of sleeping on a bed that is inclined by 4 to 6" at the head of the bed so that the entire body is sleeping on an angle(not just the head, or top half of the body, like with a pillow). The easiest way to do this is to put risers(square, plastic or wood blocks) under the two posts at the head of the bed.

Inclined Bed Therapy takes the pressure off the spine, allowing circulation into the brain stem, allowing new stem cells to develop. People with MS that have practiced IBT nightly for several months report MS symptoms going into remission. There are several websites dedicated to Inclined Bed Therapy and several testimonials, even one man that claims he can walk again due to IBT after only 6 months.

Some of the other reported benefits of IBT include sleeping better through the night, reduced back pain, reduced snoring, reduced sleep apnea and reduced acid reflux, reduced need to urinate in the middle of the night(due to gravity separating the heavy particles from the water particles forcing more water elimination through the lungs as oppose to the bladder). For testimonials regarding many other benefits to sleeping this way, refer to IBT listed here on earthclinic and other websites online, or refer to Andrew K. Fletcher, he is the original person trying to help get the word out. He claims that even the Egyptians, who were brilliant, knew to sleep this way!

If you do have MS, and decide to give IBT a try, please talk to your doctor first and report back your experience here to help others.


Low Dose Naltrexone (LDN)

13 User Reviews
5 star (11) 
  85%
4 star (1) 
  8%
(1) 
  8%

Posted by Shell17 (Victoria, Australia) on 12/27/2022
★★★★★

My experience with LDN... after being diagnosed with MS in 2018 (symptoms of neuropathy, fatigue, bladder problems, lack of balance, gait problems). I was put on Tysabri and had no improvement in symptoms. I developed a brain tumor in 2020 and had that removed - whether it was that drug, nobody knows.

I subsequently went on LDN in 2021 and this year (2022) the tests from my neurologist showed that I have improvements in all of my nerve tests and no new symptoms. Of course he tries to sell me new pharmaceuticals at every visit but I say no and continue with the LDN.

It must be filled at a compounding pharmacy and it costs $105 for 100 capsules in Victoria, Australia - I take 1 x 5mg tablet daily.

I found this website helpful - https://ldnresearchtrust.org/what-is-low-dose-naltrexone-ldn

It may not be a cure, but I have experienced zero side effects and the regular MS drugs have a massive list of side issues.

Replied by Rialc
(Ireland)
10/07/2023
8 posts

Hi

My partner has MS for a long time, his walking is deteriorating. He is taking Ampyra. I wonder if LDN would be a benefit for him.

We are living in Ireland but I don't know where to get LDN. Has anyone bought LDN in Ireland or Europe?

Art
(California)
10/09/2023
2126 posts

Rialc,

The following article suggests that LDN could be useful for maintaining several aspects of health in MS in some people while not in others because studies have varied in terms of improvement to MS :

https://www.verywellhealth.com/naltrexone-for-ms-2440888

Here is a relevant quote from the article :

' A review of LDN research published in 2018 noted several beneficial outcomes from peer-reviewed studies using the drug to treat MS, including:

Safe and well-tolerated
  • Significantly reduced spasticity
  • Significant benefits for mental health
  • Improvement in quality of life
  • Reduced fatigue
  • Use as a single therapy resulted in stable disease state

However, not all results have been positive or consistent. The review cited:

  • One study showing LDN treatment resulted in no significant differences in quality of life, which conflicts with a later study
  • One study reporting side effects of insomnia and nightmares in a minority of cases
  • A survey that found treatment with LDN didn't reduce the amount of disease-modifying therapies people were prescribed '

Given the mixed studies for LDN and MS and then taking into consideration the very good safety profile of LDN, it certainly seems worthy of consideration.

Art

Susan D.
(MI)
11/20/2023
★★★★★

I concur w/U! I saw a chart a # of yrs ago noting mgs best for each autoimmune disorder. MS 3.5 mg//more is not best or necessary. Sue

Susan Duby
(MI USA)
11/20/2023

Do research. search LOW DOSE NALTREXONE IRELAND. Great info through successful docs who support/prescribe LDN

Replied by Susan D.
(MI)
11/20/2023
★★★★★

LDN for my celiac helps great deal. I had read + saw a chart showing 3.5 mg max for MS patients helps majority MS prescribers best. May want to check that info. 🦃🇺🇸✝️


Low Dose Naltrexone (LDN)
Posted by Serena (Clover Sc) on 02/17/2014
★★★★★

This is to Ga_bass from Atlanta, Ga 05/01/2013 concerning friend that was diagnosed with MS. Please tell her to research low dose Naltrexone. It has stopped MS symptoms for many. Good luck and stay away from artificial sweeteners.


Low Dose Naltrexone (LDN)
Posted by Fred (South Africa) on 05/17/2013
★★★★☆

My wife was diagnosed with MS seven years ago. The Neurologist started treatment with Rebiff and ocasionally she had to go to hospital to receive a cortisone drip. She had constant headaces, fever and spasms after the injection. She was only allowed to use Panado as a pain killer. (Sometimes up to 8 every day) As time progressed and relapses ocurred the spasms headaces and body pains worsened to such an extent that she could barely walk. Speech and bladder controll was also severely affected. She was introduced to LDN little more than a year ago. We started with a daily dose of 2mg after 9 pm, and she is now on 4. 5mg per day. She has no more headaches, never had a spasm again and can walk short distances without any aid. Her speech and bladder controll also improved. Although the MS caused a lot of damage the LDN improved her quality of life to a great extent. Pity we did not know about LDN sooner


Low Dose Naltrexone (LDN)
Posted by Bev (San Francisco, California) on 07/21/2008
★★★★★

My husband (aged 46) was diagnosed with MS about four years ago. Instead of starting the toxic and very expensive traditional MS meds, we decided to get Googling and found LDN. He has an MRI once a year and for the past three and a half years his disease has not progressed. Many of his lesions have gone or are inactive. No new symptoms and no increased disability. He has been taking 4.5mg of LDN for the whole three and a half years so it doesnt take a rocket scientist to realise it`s the LDN keeping him healthy. I urge anyone with an autoimmune disease to investigate and try LDN. Cheap, safe and no nasty side effects. He`ll never take anything else! As a bonus, he has not had a single cold or sniffle the whole time!


Low Dose Naltrexone (LDN)
Posted by David (Poole, UK) on 09/03/2007
★★★★★

Low Dose Naltrexone is being used by people with MS (and other conditions) to stop the progress of the disease. Regrettably it does not seem to work for absolutely everyone and does not give much if any improvement with existing symptoms. It does however give one a chance to try other possible solutions knowing you will not get worse as time goes on.

Replied by Susan D.
(MI)
11/20/2023

My thought only is to change dosage if LDN not working. Also patience is important along with eliminating seeds, flours, nuts, rices, corn, dairy, fake sugar (or eliminating all sugar type substitutions) same with NO GF foodstuffs.


Low Dose Naltrexone (LDN)
Posted by Paul (NY, NY) on 09/15/2006
★★★★★

You have nothing written about LDN. I was on the floor drooling this new years day from a bad ms attack, i could not swallow, speak,stand,walk etc. I started LDN www.ldninfo.org and within a months time it reversed all my symtoms and after 8 months im now on my way to walking normal again. LDN works and has been the most effective drug I have ever taken for my MS, my MRI from 2002 had 11 lesions and my MRI from last month after being on LDN for 8 months had zero (0) lesions on the brain. email me for an article I wrote on LDN. email:[email protected] and paulnicholasonline.com

Replied by Pat
(London, England)
10/26/2008

I have a friend. he is 42 been ill for 2 years now. just released from 4 month stay in london hospital. he has been disagnosed with progressive ms. I have never heard of ldn. what is it. and where can he buy it. many thanks pat .x

EC: Low Dose Naltrexone.. http://www.ldninfo.org/

Replied by Dudley
(Virginia Beach, Va)
12/15/2009
★★★★★

Naltrexone is a cheap generic pharmaceutical approved by the U.S. Food and Drug Administration for treating drug and alcohol addiction. In very low doses, it is proving to be remarkably effective in treating multiple sclerosis--with minimal side effects and at a price anyone can afford.

For more information about Low Dose Naltrexone (LDN), visit

http://tinyurl.com/intro-to-ldn

The above site features links to LDN-related research, case histories, discussion groups, books, articles, and video clips.

Hristinad
(New York)
03/23/2016

Where can I buy LDN, or a doctor must prescribe it?

Replied by Rsw
(Oh)
03/24/2016
★★★★★

Hi Hristanad,

LDN is an inexpensive prescription drug in the US. It is gaining recognition among doctors and many will prescribe it. If, however, you can't get a prescription, you can buy it overseas, online. There are also several doctors in the US who will prescribe after a phone consultation. You can buy 50mg pills that can be diluted with 50ml of distilled water to make your own solution, where 1ml of solution equals 1mg of LDN. Measure the dose with a $1,5ml dropper, available at any drug store. Very easy to do. It will keep in your refrigerator for up to 90 days. The new updated, comprehensive book, "The LDN Book" by Linda Elsegood is available on Amazon. If you join the LDN Yahoo Group and ask how to get some, the members will give you details about where you can buy it. I'm not sure that I can post it here. If you look on the www.ldninfo.org site, it will give you a list of reliable compounders in the US to use if you get a prescription and the Yahoo LDN Group address. My doctor told me LDN would be very helpful for my autoimmune problems, and to try to get some because she wouldn't prescribe it off-label. I buy mine overseas for the past six years and have never had any problems, and about half of the 12,000 members also buy their own. I think you can google "buy LDN" and you will see some sights, but most buy from the one run by Ian, who also takes it himself and donates to the LDN community. It does not come from China. If you have any further questions, please join the Yahoo Group that is listed on the LDN site listed in this post, and you will be welcomed and your questions will be thoughtfully answered. By the way, for the Crohn's people here, there are several posts right now from experiences of member users, about the current research and Dudley(the moderator) has posted links to first-hand accounts from other Crohn's users, and many links to research and helpful information. LDN is completely non-toxic, taken by mouth, with no side effects except possible short lived sleep problems, and that can be remedied by taking it in the morning. It is helpful with many autoimmune diseases, including Crohn's, IBS, Hashimotos, RA, (many others listed on the LDN site)by modulating the immune system, not killing it, is extremely helpful for MS, and mitigates the damage to healthy cells in cancer treatment. Some have successfully used it with other supplements and/or allopathic or holistic treatments for cancer. Best wishes! You have nothing to lose and much to gain.

Replied by Deb
(Florida)
03/24/2016

LDN must be prescribed by a MD & comes from a compounding pharmacy. Around $20 a month. I think you should start low to see how you react 1 to 1.5 mg, then 3 mg, then 4.5 mg if it doesn't bother you. It makes me VERY dizzy, then nauseous. Good luck!

Replied by Tom
(Los Angeles, California)
03/24/2016

Hi,

I am also looking at LDN to treat my daughter diagnosed with Crohn's disease.

I have heard good things about LDN to treat gut issues.

Please share all the details about LDN if anyone has used it to cure their gut issues.

Thank you. Tom

Replied by Deb
(Florida)
03/24/2016

LDN must be prescribed by a MD & comes from a compounding pharmacy. Around $20 a month. I think you should start low to see how you react 1 to 1.5 mg, then 3 mg, then 4.5 mg if it doesn't bother you. It makes me VERY dizzy, then nauseous. Good luck!

Google Burt Brekson MD PHD.. Dr. Brekson sen uses LDN & IV Alpha Lipoic Acid for everything, cancer, MS. Start low 1 to 1.5 mg, then 3 mg, then 4.5 mg. call a compounding pharmacy ask if anyone in your area prescribes it, they'll know. It makes me very dizzy.

Replied by Rsw
(Oh)
03/24/2016

Hi Tom,

The moderator of the Yahoo LDN site has given me permission to post his page on Crohn's here. He is very generous with his knowledge and time. I think you will find it helpful. Best wishes.

https://sites.google.com/site/dudleyslowdosenaltrexonesites/treating-crohn-s-with-ldn

Replied by Rsw
(Oh)
03/25/2016

Dudley's page can be found about half way down this page that displays. There are also other LDN sites listed.

The one caveat I didn't mention on my current post that is important, is that LDN can be taken with ANY other drug, including steroids during flares, if necessary, but CANNOT BE TAKEN with OPIATE based drugs. They both compete for the same receptors and LDN will always win, which could throw an opiate user into an unexpected and potentially dangerous withdrawal. LDN will block the effect of an opiate. If surgery is anticipated where opiates will be used afterwards for pain, LDN should be discontinued a few days before the surgery or another kind of pain reliever needs to be used for a few days.

Replied by Heather
(Cincinnati, Oh)
02/13/2017

I find LDN therapy for MS interesting. I have been on 2 mga twice a day everyday as it's in combination with my pain med. I actually notice more pain within 45 mins of taking it. I was diagnosed at 16 and I am now 32 so being so young and independent I sought out less acceptable ways of dealing with effects of MS. (i.e.) cocaine, which actually worked, I had no symptoms, amongst other dumb street drugs that numbed the depression and helped me block what was going on with my body.

Long story short when I wised up I found that the crap the docs gave me was making me worse so I sought out natural alternatives and I have felt much better without the injections and percocet and zoloft etc. I happened upon this H2O2 therapy and am going to try it along with all my supplements. The biggest thing through it all that I want to try and eliminate is the pain I experience so hopefully this helps and I can get rid of pain meds even with LDN altogether

Replied by Rsw
(Oh)
02/17/2017
★★★★★

Hi Heather,

I have been taking LDN for more than six years for autoimmune problems. When you take the LDN, it will block your opiates and opiate receptors for four to six hours, which may be why you experience an increase in pain after taking it. It is during the next 18 a 20 hours that LDN will make your body think it is in short supply of these, and it will make more of both. This is usually where the healing is found, especially with MS. If you take LDN more than once in any 24 hours, the blockade will begin again and interrupt the healing time. May I suggest you try taking 3 mg. LDN once a day, and see how it goes? You could then experiment with 4.5 mg. once a day, but if you experience any muscle cramping at 4.5 mg, which sometimes happens at this dose with MS, then go back to 3 mg once a day. I hope you have joined the Yahoo LDN Group with over 13,000 members who take LDN, about half for MS. They can give you their personal experiences and guide you with what has worked out best. Wishing you relief from your pain soon. Best wishes!

Replied by Rsw
(O! For This Reason.)
02/17/2017

Hi Heather,

I forgot to mention that if you are taking opiate based pain medicine, the LDN will block it, which also may be why you feel more pain after taking the LDN. This has the potential of throwing a person who is dependent on the opiate pain meds into a dangerous withdrawal. The ONLY thing that LDN should NOT be taken with is opiate based drugs, for this reason. Some people take pain medicine (Tremadol - sp?)in the morning, and LDN at night, 12 hours apart, and this seems to work for them. I would join the LDN Yahoo Group to get specific information about this from people who use it this way. LDN seems to work better for people with MS when they take it at night, between 10PM and 2AM.

Replied by Jb
(Tx)
08/06/2018
★★★★★

When taking LDN, you work up from a dosage of 2 mg to 4.5 mg. If you feel dizzy, nauseous, or get headaches at 4.5mg, try taking your dosage back down to 3 or 3.5mg. You've arrived at your correct dosage when you feel good again. Very small people or those with poor liver function can't handle 4.5mg. Many people do well on 3mg.

Replied by Rsw
(Oh)
08/06/2018

3mg. of LDN is often recommended for those with MS due to spasticity problems in some at 4.5 mg. If muscle cramping or spasms occurs at 4.5mg/day, reduce your dose to 3mg/day and see if you feel better. You will still reap the benefits of LDN.



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