★★★★☆
I have Lyme, and have probably since I was a teenager. I had a few neurologic symptoms at that time and rode horses in MN - covered with ticks all the time. The Lyme came out post pregnancy when I was 32 (of course it was diagnosed as fibromyalgia), and I was perfectly fine until then. Another baby, and boom - could hardly work, going blind, seizures, etc. Terrifying. 7 years later, I am doing pretty well.
In the beginning, you need to go to a Lyme literate MD, I repeat MD, not a holistic practitioner. This bacteria is too evil and gentle remedies will not work. I did 7 months of IV, and when your Lyme has become neuro and has passed the blood brain barrier, that is likely what you need. To find a doctor, contact ILAD. You must find a good one that knows how to treat Lyme. After the IV, I wasn't 100% and continued pill ABX until 2 years ago. I was better and better, but still felt horrible the entire time I was on ABX.
Other things that help - I watched diet, added magnesium, fish oil, B multivitamin (methyl - we Lymies usually can't methylate), lower stress (acupuncture and meditation), enjoy the little things in life (which you will when you feel better! ), get your mercury filings out and DETOX. Lately I have heard Iodine helps a lot too (at high doses).
I reached the apex of conquering this awful disease when I started acupuncture - that has helped me so much with remnants of pain and fatigue. I don't think without all of the invasive ABX and IV etc. that would have been enough, but it has gotten ride of most of my pain, fatigue and brain fog. If I had to take ABX again, it would be part of my regime. Somedays I would say I am at close to my former self - 98%. I still need a lot of sleep ...
So, you can do this. Just keep at it. Everyone I know that has this disease that has really stuck to it has gotten their life back. It is awful and I wouldn't wish it on my worst enemy.
Also, if you are planning to have kids, GO ON ABX while you are pregnant, or there is a 50% chance your kids will have it too (my son has Lyme - severe ADD). It won't transmit if you are on ABX while pregnant.
We are getting well and happy now after climbing a mountain I thought I would never get to the top of. STICK WITH IT AND CHIN UP!
You will come out the other side a more giving, compassionate and wise person.
