Last Modified on Jul 16, 2014
What is Trigeminal Neuralgia?
Trigeminal Neuralgia (TN) is a chronic pain condition of intense pain in the face. Also known as prosopalgia, suicide disease, and fothergill's disease, the pain stems from the trigeminal nerve that sends information from the face to the brain. Mild facial stimulation, from putting on makeup to brushing your teeth, can cause intense pain; it is considered one of the most painful conditions to have. Attacks can start short and mild, but TN can progress to longer and more frequent episodes of pain.
The pain has been described as stabbing electric shocks, burning, pressing, crushing, exploding or shooting pain; and attacks typically affect just one side of the face at a time. The leading theory as to what causes this condition is a compression of the trigeminal nerve by enlarged blood vessels damaging the protective myelin sheath of the nerve. Other causes may be from aneurysms, multiple sclerosis, tumors, or lesions. TN is found more frequently in women over 50.
Cure Trigeminal Nerve Pain
On this page you can find home and folk cures for trigeminal neuralgia and other neuropathy associated pains. Earth Clinic readers have recommended B vitamins, coconut oil, magnesium supplements, and dietary changes to fight trigeminal neuralgia. Let us know if you try any of these remedies; or if you know of a remedy not listed here, feel free to let us know about it.
Table of Contents
- Alkaline Diet, Peppermint Oil
- B12, Omega 3, Facial Tissue Stimulation
- Binaural Beats
- Coconut Oil, Fish Oil, Magnesium, Cell Salts
- Colliodal Silver, DMSO
- General Feedback
- Laser Treatment
- Multiple Remedies
- Oil Pulling
- Peppermint Gum
- Remedies Needed
- Setting Boundaries
- Trigeminal Neuralgia Diet
- Trigeminal Neuralgia Remedies
- Upper Cervical Chiropractics
- Vitamin B Depleted by Flax Seed Connection
12/08/2012: Thomas from Fountain Inn, Sc: "There is an interesting scientific paper in "Medical Hypothesis" 2002 Nov, 59 (5): Issue: "Are latent immediate-early genes of herpes-simplex virus-1 essential in causing trigeminal neuralgia. " Source: Biology Department, Medical University Syracuse NY. "Abstract: The etiology and pathogenesis of major trigeminal neuralgia remain largely unknown, but are believed to result from an irritative lesion near the semilunar ganglion. We suggest that its primary cause is a single, active DNA sequence in the persistent but non-integrated genome of latent herpes simplex virus type 1 commonly observed in a few infected A-delta nerve fibers in the cheek. Facial pain occurs as a result of herpes virus reactivation and when supplies of neurotrophins controlling normal transport functions of axolemmal ion chanels become depleted."
The paper gives a theory as to causation althought not a remedy. My suggestion is as follows which will kill viruses of all kinds.
A person who is seeing cases of mono, ear infections, sinus infections, cluster headaches, migraines and Bells Palsy might see this type of TN infection also. I gave my own personal experience in the Earth Clinic Bells Palsy thread. I futher hypothesize that hormonal issues may be a triger to the viral activation which might explain why females are more often effectd than males.
A possible attack on the TN virus is to use a topical application of fifty drops of colloidal silver and add ten drops of DMSO to make it penetrate through the skin into the nerve. Apply as a poltice with a white paper towel and let it sit for fifteen minutes. Press against the paper towel to be sure the liquid absorbs into the skin. Be sure to use a white paper towel and do not have any other substances on your fingers. (The DMSO is a carrier, solvent and penetrant. ) Do this procedure at least six times over a two day period. In theory, the silver will kill the virus. Same procedure for Bells Palsey. Shingles too. God bless."Replies
01/22/2014: Ashwini from Houston, United States replies: "Please elaborate on the procedure. I'd like to try the treatment on using the colloidal silver poultice. How do I exactly prepare it and where do I apply? Thanks, Ashwini"
01/22/2014: Dave from Fountain Inn, Sc replies: "Hello Ashwini,
Re how to do the topical application of CS and DMSO for Trigeminal Neuralgia ...
My post on this first cited an authority connecting a virus with TN and then I laid out how to prepare Colloidal Silver with DMSO. I get a white paper towel and soak it till very wet and nearly dripping. Then I apply to the surface of the skin where the TN pain is located.
Please re-read my post (to which you posted on the thread). The article I wrote was precise as to proportions and how often to use.
If you have other questions please write back."
05/13/2014: Jessica from Oklahoma replies: "Thanks for this post. how long does it take to cure the virus and how would you know? I just started using DMSO by itself, and it gets rid of the pain immediately. On another page here it says DMSO cures herpes, and since this may be a form of it, then I would would think DMSO would be enough. I need to read up on the silver because I am not sure of using silver in my body.
I have had this pain for 2 years and had teeth pulled. A month ago I quit chewing foods like crackers, meat, etc. as it would start the pain. I would wake up pain free until I had something I really had to chew.So I went to soft foods and it helped a lot.
The DMSO is a God send. Some people are afraid of DMSO, but I began using it back in 1981 and have used it often over the years for other problems and it has always cured them. My blood tests to this day are normal.
Recently I added the B-12 and B-1 mentioned here, and I will continue with it especially since I am almost a vegetarian now, only eating fish and need those vitamins.
As for using peppermint oil, yes, it works, but touching your face with it causes pain, and so when the affects wear off you are in worse pain. Same with Tabasco Sauce or Cayenne. I believe, in spite of what my doctor said, that you should not agitate it by touching or chewing hard foods. This is only my own opinion. The DMSO being in a roll bottle doesn't hurt for some reason. Also I go to the Farm Supply to buy it because theirs is stronger, and they will tell you that it is animal grade and not for humans, but hey, they use it on Thoroughbreds and they don't want their animals harmed. Again, this is my own opinion, but I could never get DMSO from other sources to work for me on anything. And like I said, I have been using it for 40 years."
05/14/2014: Dave from Fountain Inn, Sc replies: "Hello Jessica;
Re TN and using DMSO and colloidal silver...
You ask how long should the treatments be used? Well, I mention a number that I'd use to see if the formula would bring relief. You are certainly perceptive in your understanding of DMSO. DMSO has been a "friend" for twenty years. It is anti inflammatory so by itself (as you mention) it could give some relief and also DMSO is an anti viral or so I've read. But I use it with CS, knowing that CS definitely kills viral infections. So IF TN is viral based, then (like Bells Palsy) in theory the TN could be helped with a DMSO/CS poultice.
I'd apply three times a week for a few months...or until the symptoms are gone. AND, I would drink the CS (without the DMSO) .... two tablespoons three times a day for a few months to make sure the virus is killed in the system. Take the CS orally on empty stomach."
07/16/2014: Jana from Australia replies: "Provided that its primary cause is a single, active DNA sequence in the persistent but non-integrated genome of latent herpes simplex virus type 1 commonly observed in a few infected A-delta nerve fibers in the cheek, the above protocol using COLLOIDAL SILVER (topically and orally) would work. Since we are dealing with virus, I also strongly advise to use orgone zapper (known from Dr. Hulda Clark's studies). I have been using zapper on myself and many of my patients for over 15 years with gigantic amazing results."
07/16/2014: Dave from Fountain Inn, Sc replies: "Hello Jana,
Thank you for your addition to the thread...
You add a knowledge of genome and DNA that I am not able to bring...
In your practice do you use Colloidal Silver or just the zapper...or both?"
05/07/2012: Rosali from Mumbai, India: "Peppermint oil gives you instant relief but you will have to address the cause of trigeminal neuralgia for complete relief. Here the problem lies in the nerves. One will have to decrease their sensitivity and also help them in strengthening and calming. One can try Biogetica essentials kit with HMYLN myelin sheath sarcode formula to relax the nerves and to improve their motility."
[YEA] 11/03/2011: Ginny from El Paso, Tx: "I just began getting the symptoms of TN, and began googling my symptons like crazy. I am so thankful to have come across this site. Since I knew peppermint oil helped with headaches, I decided to rub the oil all over the areas that hurt, and it does relieve the pain! I use Dr. Young Living oils or if you want to pay less you can order them from Mountain Rose Oils. (Try and get their highest grade)
I am so thankful to have come across this site, as I am totally against taking drugs. I am going to order the supplements mentioned here. I am thankful to have done the alkaline diet previously for Chronic Fatigue. But fell somewhat off the wagon for the past 6 years. I want to stop this in its track, before it gets worse, so I am back to eating greens, greens, greens, breakfast, lunch and dinner. The good part is, I will finally lose those stubborn 10 lbs I had put on. The book that helped me cure my CF was THE PH MIRACLE. Dr. Robert Young (different from the OIL Dr Young) teaches all disease comes from an overacid diet. I am hoping I have the same success with this TN that I had with CF. I can't imagine what the pain that some of you experience as mine is still mild, with electric feeling shocks thru mostly the left side. It started with a very sharp shooting pain 4 days ago, and immediately I started alkaline and noticed the pain subsided. But I still have the electrical shock thingies. (I had nerve damage on that side from surgery in 2000, but only now is it starting to act up)! Wish I had never had that face lift, LOL."Replies
07/11/2012: Sue from Minneapolis, Mn replies: "If you were able to rub oil on your face I assume your pain was minimal. I could not touch my face much less talk, brush my teeth or eat when inflicted."
12/19/2012: Marianne from Livermore, Ca replies: "Where exactly do you apply this poultice??"
06/23/2014: Aileen from Miami Beach, FL replies: "As I read your comment, I think of myself. I came down with Trigeminal Neuralgia 1yr and 4 months ago. I can understand why it has also the reputation of being called the suicide disease. After 4 Drs. and 2 teeth being pulled, I was told about 2 Drs at a university down here in Florida that have been studying this condition for 30 yrs or so. Unfortunately they lean more toward the pharmaceutical industries. So I am now on oxycarbapentine and carbamazepine. 2 seizure medicines.
It has made a differance in my life. I can now live normal. I too was unable to eat, talk, laugh stand up quickly, sit down quickly, exercise. I was on baby food and had lost 15 pounds. (Not good for me). Plus these damn drugs have given me an ulcer. My life had come to a complete stop the nite it hit me. I had to quit my job as a restaurant Mgr.
I love all natural and holistic remedies and cures. I would like to start them but don't know what to do first. Am scared to get of the drugs because the pain was so excruciating. ( And I must say I have a wonderful husband that did all he could do for me at the time even tho he was without understanding the problem That was a huge help. ). Looking for the natural way. Please help."
06/23/2014: Dave from Fountain Inn, Sc replies: "Hello, Aileen, Re your Trigeminal Neuralgia. If you go to a thread under Earth Clinic: Ailments and then "Trigeminal Neuralgia" the very first post is my theory and possible help to solving the TN nightmare. Please take a look at it. It is a viral theory of what is going on ... same as shingles and Bells Palsy."
06/23/2014: Suseeq from Sydney, Australia replies: "Dear Aileen I understand what you are going through, my husband suffered with this for years. He thought it was a tooth problem at first but the dentist diagnosed it, it was so good to at last have a name to this awful condition . It was so bad he asked me to help him end his life . he couldn't even wash his hair because water touching his face would set off an attack but what helped was acupuncture plus like you said seizure medication. He finally had the operation and has been pretty good since. so maybe that's the way for you to go to, there is light at the end of tunnel.So good luck I wish you the best"
06/23/2014: Dave from Fountain Inn, Sc replies: "Dear Aileen, So glad you are open to "natural"...and if you look under Ailments (Earth Clinic) ... under "T" and scroll to Trigeminal Neuralgia ... the first post if a post by me from a few years ago. Please read the thread and you'll find my proposal for what is causing TN and what I'd try to rid myself of it if I had TN. I believe TN is caused by a virus...like Bells Palsy. Or like Shingles.
Please take a look at what I suggest. I did cure myself of shingles by using this method.
The idea is that something prompted the infection... maybe dental work or a serious sinus infection. And you'd have a clue as to this possible source if you can go back in time before the onset of your symptoms and if you recall a few months/six months or so prior to symptoms, if you had some dental work or a serious infection. That's a clue that indeed the problem might be a virus."
05/08/2013: Pain In Seattle from Seattle, Wa: "B12 must be accompanied by B1. European studies showed that B12 injections and mixed with B1 injections (each cc mixed in a injection) help to relieve Trigeminal Neuralgia. It takes a few weeks until all symptoms show a large decline. Don't be fooled; B12 isn't as effective as the total mix."Replies
05/08/2013: Trish from Europe, Eu replies: "In what ratio?"
06/21/2013: Susan from Seattle, Wa replies: "For Trish: Ratio should be the same for each; one cc of B12 and one cc of B1. B1 is the painful injection. My doctor gives me some lydocaine to help dull the pain. Another course of action would be to get just the B12 injection and take a good B1 complex vitamin. Get the B12s twice a week, and take the B1 vitamin orally everyday.
I have also noticed my shocks get worse from Splenda. So I did some research; yes, Splenda can cause seizures in people who have never had seizures before. Very strange.
So watch your diet; it is important."
09/21/2013: Ramon from Monterey Park, Ca replies: "Is the dosage of B12 1000mcg, and B1 100mg as specified in the bottles OTC? And how long is the treatment - 8 weeks, 12 weeks, etc. ? Thank you for your feedback, Susan!"
[YEA] 08/23/2012: P from Seattle, Washington: "Hi again; this is P from Bothell. I have found that taking Glutamine helped me heal faster from the gluten allergy and the malabsorption problem and also prayer (bigtime) and now I seem to be able to go with just one B12 injection about every 6 days or once a week for maintenanance (of no symptoms. ) this is considered (I believe) a therapeutic injection, on my insurance but would like insurance companies to know that this is for pain control. Still have out of pocket expenses (such as co-insurance, about $10. 50 an injection) but it is worth it if it controls the pain. B12 (hydrocobalamine) is FDA approved and B1 complex given together in one injection is what I have been recieving. All B12 has to convert to methocobalamine to be absorbed by the body. Stay away from cyanacobalamine-it is not the same thing... And has cyanide in it. Few traditional doctors know this it seems.
Hope this news helps someone. I did try the biogetical herbs but after 6 months they didn't help anymore. The B12 seems to be working...... So far... so good.
My advice to T. Smalls is get the B12 and B1 injections (in one injectable)for Trigeminal Neuralgia or go to a certified homeopathic doctor who can prescribe an individual treatment plan for you, if the Biogetical herbs stop working."
01/29/2012: P from Bothell, Usa: "Sheila: Hi. I figured that I had a malabsorption problem because it usually accompanies a gluten allergy. My Vitamin D levels were only on the small side of average (after a blood test at the doctor) and that is after taking 5000 mg a day of Vitamin D. I also tested for thyroid antigens of TPO and TGO and they were really off the normal amount. I am not sure if you have Classic Trigeminal Neuralgia or not, but vitamin B12 injections take some time to work; about 8-12 injections over a period of a few weeks-and then they do work for the above disorder. Taking oral vitamin B didn't work for me, as it might for others who do not have my disorder. (classic TN)It is important to be diagnosed with the correct disorder so you know what will be effective or not.
My best advice to you is see if your doctor is willing to give you the B12 (methocarbo--with the B1 complex- 1cc of each) it least twice a week, and don't go off the antiseizure meds until you see a real reduction in symptoms. B12 injections are now covered by my insurance company (Regence of Washington) Some neurologists are also prescribing oral B12 but the oral kind is not potent enough for me. (ho hum.... ) MS patients also are being prescribed B12 injections. It helps the pain and disorder of the nerves.
Another way to help the pain is to try homeopathic remedies. We get a lot of our prescription drugs from India in the US. (such as glenmark mfg. ) I have used their kit for Trigeminal Neuralgia. It can take 1-2 months to work though, but gradually you will see a reduction in symptoms and can get off your anti-seizure meds completely in about 2 months or so.
Hope this helps. I know my neurologist advises surgery for everyone but I will wait as long as I can."Replies
10/18/2013: Nishka from Johannesburg, South Africa replies: "What kit are you referring to from Glenmark"
11/24/2011: Pat from Bothell, Wa: "P.S. To those who suffer from Trigeminal Neuralgia:
I wanted to give you the exact website url to the Biogetica. com Trigeminal Neuralgia products;
I also want to let you know that with this product I bought, it worked. Traditional Medicine balks at it because it doesn't contain really any measurable pharmeutical agent; that is the main reason it is so safe. But it does work; on the principal of physics-the original agents were diluted enought times in purified water, to keep the original vibrations of the agents. Now just the "water pill" works by itself. they have been arguing about this company for ages on the website. I am hear to tell you that Traditiional Medicine only offers us terrible dangerous drugs that lose their effectiveness after a period of time. This Natural way offers you real help without the danger. I am a living witness to this; I would just like to be doing more than just masking my symptoms--so I am trying the Methyl B12 road.
02/09/2014: Christina from Sammamish Washington replies: "I am interested in learning more about your expedience with Biogetica for TN. Did any of the products cause side effects? Etc. Thank you"
11/24/2011: Pat from Bothell, Wa: "Happy thanksgiving, Connie. Happy Thanksgiving Deidre who has given us this opportunity to frankly advise and report to each other about what can help this most horribly painful condition.
I am back on a Homeopathic remedy which does seem to help in about 3-5 days. I am also on 2 injections per week, until I get tests to see why I can't hold or absorb the B vitamins like most people.
I need to find a way to take sublinigual Methyl B12 and the B complex vitamins orally, instead of the expensive injections. I am very terribly afraid of needles and don't seem to be able to do it myself. Even giving it to myself, it would cost about $100 a month from a safe and reputable place I trust. It only costs about $20 for 2 months for the oral Methyl B12.
The doctor can't figure out why this form of B12 )dibenzocide)hurts my nerves more and wonders if it is something else in the product. But 2 different products with the same version of Active B12 hurt my nerves, so I am staying off it.
To report: my nerves are better, much better today. Only feel a little symptoms, nothing worse. When I stop feeling any symptoms, I will get off the homeoathic remedy (which has almost saved my life this past year-but doesn't really heal the problem-just masks the symptoms)
SO I need to find a sublingual B-complex that doesn't have PABA in it. I am allergice to PABA and find alot of people are as well. IT can almost put me in anaphylactic shock, so I have to not buy the same B complex you use. My doctor says to try to get a sublingual form of B complex-yeah, good luck without the PABA.
Any way, also, my doctor says it should be safe to augment my injections with 4000-5000 mcg of the Methyl B orally a day, and a B complex, when I don't get the injections that day. It can't hurt you since your body gets rid of any extra B12 it doesn't need.
I would advise people to try the Methyl B12 who have any nerve, brain, problem to help them, cause it is pretty safe.
It lease I haven't had a full=blown attack since I used the homeopathic remedies. My last full-blown attack was when I was diagnosed with TN almost 2 years ago, (in Feb)A day I will never forget.
Hope this info helps others. If anyone wants to buy homeopathic remedies that help with the pain safely, until you can figure out what med plan works for you best, then others can log into: biogetica.com. Try the $55 kit-it should last about 2-3 months--it is safe and it really takes the pain away.
Have a wonderful holiday,
11/25/2011: Bess from Calgary, Alberta, Canada replies: "Hi Pat - You were looking for other ways to take B12 instead of sublingual or injections. There is a B12 spray from mercola.com.
Also, if you do an Internet search for DMSO B12, some people have mixed the two and applied to the skin. You will need to read up on DMSO before trying this. Earth Clinic has the following page:
Good luck Pat! Bess"
11/22/2011: Connie from Slc, Ut: "Hi Pat ; Thank You! I'm not a professional practitioner, I'm someone who has had many conditions over the years, and has tried a great many substances to alleviate them, like folks here. I came looking here in my searches through the internet a couple of years ago, and found what I consider to be one of the great inventions of this century, really. Deirdre has designed this forum so that people can report their findings, positive, negative, inconclusive, etc. , so that we may better understand their effects. We are specimens in the best of ways, who share this information with each other. This is a very intense theater of the real, and it takes a lot of bravery for us to reveal our conditions to each other, but it can be most healing. ( I admit to feeling a lot of embarrassment after I post). I see these qualities in your posts, and I look forward to reading your results with whatever you find in your ventures.
Even though our posts are anecdotal, we can learn so very much from this. So again, Thank You Deirdre for creating this marvelous forum!"
11/21/2011: Pat from Bothell, Wa: "Dear Veerle:
You mentioned you have been taking B12 for Trigeminal Neuralgia. What kind of B12? Is it sublingual and is it methylcobalamin and what is the amount? do you take it orally or thru injections? It sounds good if it can help you back to being pain free in 2 weeks.
I need to buy some of this to have it on hand to take myself. I am also thinking of chiropractic care with the neck, since I have heard that this helps too.
11/21/2011: Pat from Bothell, Wa: "Dear Connie:
I do not know what words I can say to let you know how much I appreciate your help. My doctor will not be in til Wednesday, and I have been having quite a few short shocks today and worried that they will get worse. I will have to wait for an injection and am not sure if I can keep affording them. They wind up being about $200 a month, so for the short term it is ok, but long term it is hard.
So I went to our natural supplement store. I did not buy what you take, since I am new at this and thought it would be hard to divide and break them apart. (the 5000 mcg) But I did get B12 Methylcobalamin, 1000 mcg that you place under the tongue and it melts pretty fast. I have taken 2 of these and will probably not take more for today.
I also got a peppermint flavored Coenzymate B complex with only B6 with 10 mg only a pill. It also contained folic acid at 400 mcg and also vitamin B12 from dibencozide (co-enzymated) and some other Bs such as ribloflavin, niacin, thiamine. I think I have enough Bs for the day and will see how I feel tomorrow morning.
I have acquired 4 auto-immune diseases since I contracted drug induced lupus a few years ago. So the no-gluten diet is helping to free me from these symptoms, but obviously not the TN. I got the lupus from an allergic reaction to Osteo-Biflex. Can you imagine that? Yes, I also have knee arthritis but have found some naturopathic remedies to heal this as well. I am a work in progress, but have learned alot about health and supplements on my road to a life with less pain. You have helped immeasurably, because lets face it, what is worse than Trigeminal Neuralgia?
Sometimes the B vitamins don't get absorbed as well because of low stomach acid. So supplementing carefully with hydrochloric acid and pepsin can help --and can aid in your body carrying the Bs to places it needs to be. Sometimes citric acid and vinegar is an alternative to the hydrochloric acid route as well.
My doctor feels that one shouldn't have to supplement the rest of their life for Trigem Neuralgia, but with Trigeminal Neuralgia, well, let's face it, vitamin Bs ain't a bad thing such as the drugs that disable your other organs. And you can know that your myelin sheath is healing in the process, which is a good feeling in itself.
I hope these oral Bs help me. I was really needing some help today and I am so thankful to God that I found this website, with someone as knowledgeable as you. Are you a Naturopath or something?
God bless you,
11/20/2011: Pat from Bothell, Wa: "Hi Connie:
The trigeminal Neuralgia has been coming back since my injections dropped from 2 a week to 1 a week. Trying now to determine if I have a malabsorption problem (I am on a gluten-free diet now-only 2 weeks) and also going to be tested for metals. ) I guess the no. of injections I have had have put most people in remission, except me.
I also found that vitamins that have high amounts of the B12 ((adenosylcobalamin), another active form, seemed to cause me more pain just yesterday. (I couldn't figure out why my pain was so much worse yesterday, until I checked out the B12 ingredients and reread your online info) So I am stopping this now.
If I start the sublingual B12, I will probably need close to as much as you do. (is that about 4000 mcg? daily-what are the mgs dose equivalence?) I wanted to ask you for the brand name of the Subliminal Methyl B12 and the B complex you take. Is the B complex subliminal? Also how long have you been taking these?
Do you have malabsorption issues too? Have you tried a gluten-free diet? Been tested for metals? Or have you tried Milk Thistle, which enhances the body's liver to absorb nutrients? Have you ever tried Homeopathic remedies for the control of symptoms? I have also heard that Ashwagandha (east indian herb for stress) greatly benefits people with this nerve disease. I know it helps me a little. It is an actual ingredient in the formula, Trigical, which I think is from Denmark and marketed that it stops the pain of Trigeminal Neuralgia.
Where did you come across the knowledge to try subliminal B12? Hope some of my comments can help you too. Is there a way we can get each others email privately?
It is good news knowing that there is hope to heal these nerves. Most traditional doctors can't agree on the cause of this most painful horrible condition. Most MRIs don't really show it and only rule out a possibility of it being a brain tumor. Who wants to go for brain surgery with so many risks and little, if any, long term relief?
Looking forward to your comments. They have given us all hope.
12/16/2011: Lou from Tyler, Tx replies: "I think I have a malabsorption problem too. Have you read about Mastic Gum? It come from Chios, Greece. It has been known to cure a lot of digestive problems, which can be the source of many ailments. I took it a few weeks ago and now I am so "regular. " IBS symptoms gone!"
12/31/2011: Sheila C from Brunswick, Ga replies: "Can someone tell me how you figure out if you have a malabsorption problem. My condition sounds somewhat different than some of the posts I have read here. I am in pain everyday. I'm not sure how you really confirm the diagnoisis? I am going downhill fast. I am trying to get into mayo, they gave me an appointment 2 months from now. I am barely functioning. I also had numerous dental procedures. I have horrible ringing in my ears.
Of course the neurologist I have seen has put me on multiple anti-seizure meds, none of them work well, but when I stop, I have one major attack after the other. I am so worried about losing my job after 23 years. This is terrifying! I went from being perfectly healthy to having so many ailments, I have no idea which ones are related. I would honestly welcome surgery at this point. How do you figure out how much of the B12 you should take? Is there anyone that has actually tried the laser med center?"
12/31/2011: Debbie from Melbourne, Australia replies: "Sheila, you can get a hair mineral analysis done. That should tell you whether you are lacking in minerals.
Do you drink much diet soda or sugar free foods? Artificial sweetners? Chewing gum. Processed foods? Energy drinks?
Ringing in ears is a major symptom of aspartame poisoning. There are other major problems associated with aspartame consumption. I am just throwing it out there for your consideration and to rule that out if you do not consume those."
02/13/2012: Wes from Charleston, Sc replies: "I have tried and had success with the Laser Med Center. It has reduced my pain by about 80-90%. I have had no "episodes", but I have had cycles where I still feel "twinges". They come and go, but they are nothing like the pain I used to have."
06/26/2013: Susan from Seattle, Wa replies: "Please Wes, tell me how long did the pain free or remission of severe pain last from the laser treatments? Your entry is in Feb 2012. We hear nothing of you since. We need to know. How long have you had TN too?"
11/15/2011: Pat from Seattle, Washington: "I have been getting the injections and the last 2 have seemed to irritate my nerves a little. they did help with the Trigeminal Neuralgia and I wonder and am so thankful that I came across Connie's entry about B6-be careful that this can irritate the nerves if overdosed.
I am off all shots and meds now and feeling pretty good so far. Time will tell. I don't know if the injections of B12 and the B complex vitamins put people in remission or not. I have had 19 injections so far and probably only needed 17. After the last 2, is when I felt some nerve irritation. I am concerned about it being a slight overdose.
People can go indefinitely without any other meds or shots for Trigeminal Neuralgia or in the case of a few, just need a maintenance dose-only 1/3 of the cases need a maintenance dose of once a week, after 2-8 months from stopping the injections. 2/3 need nothing more indefinately, I am not sure what part I will be.
I go to my Naturopath later to talk about this. I wonder about the subliminal B12 and B6 and if you are supposed to take them everyday forever?
11/15/2011: Connie from Slc, Ut: "Hi Pat ; It's great that you've found relief from TN, as it is one of the most shocking of pains... Now, you've reached another hurdle, the question of whether to maintain nerve health with supplements. It's true that too much of one can disturb the balance of the others. I can only guess what you personally may need, but I'll try to help you with a method of finding this. If you have had no other signs of B12 deficiency, particularly ones such as balance problems, numbness with tingling, vision disturbance, incontinence, etc. , then you may need less than other people (such as me).
If the cause of the TN was a mechanical injury, such as dentistry, then you may be fine by continuing good dietary practices alone. If there has been chronic exposure to heavy metals, such as mercury, or to noxious gases, there may be more of a need for regular supplementation. If there is a malabsorption problem, that so many of us may have, then regular supplementation can even be a lifesaver. Although many people can take large amounts of the B's and have no problems; they excrete the excess, I have to take them in a more measured way. I take a smaller amount with each meal. I'll divide a cap of , say a B-25, and take 1/2 of that with a meal. Some of the B's, such as B1 and B6 can be helpful to nerves in the right amounts, but irritating with high amounts. I have a high need for B12, so I take extra, 5000 mcgs. of sublingual methylcobalamin every day, or I begin to suffer nerve damage. Even though there are people that need much more than I, it looks like many more people need much less than this to maintain nerve health. Some people thrive with 1000 mcgs daily, and many may find that they need B12 two or three times weekly or less. I suggest that you watch for the return of symptoms, even the slightest twinge may indicate a need for more regular supplementation."
06/02/2011: Anna from Buffalo, Usa: "Hello. Searching different ways to treat and/or cure trigeminal neuralgia. I see on your site that people are praising vitamin b12 for this. However, when I go to supplements and search b12 on your site, the benefits of taking this vitamin do not list TN at all. I am recently diagnosed with this and am trying to see light at the end of the tunnel. Why is that?"Replies
10/17/2011: Lilith from Indianapolis, In replies: "Will try the B12 and Omega just diagnosing TN. Praying for all who suffer to have the mind of Christ and know this is just for a moment."