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<title>Neurofibromatosis Remedies</title>
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<pubDate>Wed, 15 May 13 11:13:36 -0500</pubDate>
<description> Teresa Larsen from Omaha, Nebraska  Usa writes: "I was wondering what is the best remedy to user for Neurofibromatosis? There are so many different remedies to use and I don\'t know what to do.
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<title>General Feedback</title>
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<pubDate>Tue, 19 Mar 13 13:28:30 -0500</pubDate>
<description> Teresa  from Omaha, Ne, United States writes: "I have Neurofibromatosis and from this I have brown spots all over my body and I am getting small tumors on my body. I have read all the information on your website about this and there is so much to remember What I want to know what would be the best thing to take to get rid of there tumors inside and outside of my body. Please help me. I have been looking for an answer. Teresa
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<title>Remedies Needed</title>
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<pubDate>Sat, 24 Nov 12 08:55:57 -0600</pubDate>
<description> Tania from Funchal, Madeira, Portugal writes: "Hello, I\'ve been exploring your site and found it very interesting. I have a 12 week old daughter with several cafe au lait spots. She is suspected to have NF1. We are aware of the several possible consequences of the disease and would like to know what can we do to improve her immunitary system in order to minimize or even prevent some possible tumor growth, if it occurs.

She is currently being breastfed, and we would like to know if you recommend something to improve my immune system and therefore improve hers as long as she is breastfed.

Thank you in advance and hope to hear from you soon.

Best regards, Lisa
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<title>Remedies Needed</title>
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<pubDate>Tue, 10 Jul 12 09:21:24 -0500</pubDate>
<description> Nida from Lucknow, Uttar Pradesh writes: "Hi, I have neurofibroma which was surgically removed. Now again, slight pain occured. I got diagnosed and its again there on d10-d12 spinal nerves. If it could be cured by medicine please let me know.
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<title>Remedies Needed</title>
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<pubDate>Thu, 23 Jun 11 10:57:08 -0500</pubDate>
<description> Saje from Shaftsbury, Vermont writes: "Hello- I have nf and so does my daughter-she is 4.. What can I do for her so that she does not devlop the growths like I have?? What can I do about mine?? Would like an update to the info from Ted- and appropriate amts. for daughter...THANKS!!
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<title>Remedies Needed</title>
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<pubDate>Thu, 09 Sep 10 11:01:59 -0500</pubDate>
<description> Woody from 29 Palms, Ca writes: "Have you heard anything on moya moya? My 4 year old has been diagnosed with it and NF1 and due to the shrinking of his artery to his brain. His body was over compensating by increasing his blood presure. We let the surgeons take a small vein from his temple to supplement blood to his brain, which has worked somewhat. Is there anything you know of that can help reverse or slow the progresion of the artery shrinkage?"</description>
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<title>General Feedback</title>
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<pubDate>Wed, 09 Jun 10 17:13:55 -0500</pubDate>
<description> Yvonne  from Spring, Tx, Usa writes: "I am 51 years old and have had the odd freckling in my arm pits, back, shoulders, and torso since very early in my life. My parents took me to a USAF pedi dermatologist and later to a pediatrician. All I remember was being told I have cafe'ole' spots. No other doctor has ever expressed any concern until I went to a dermatologist recently about an unrelated matter. He has suggested that I have NF1. Other than the speckling on the surface of the skin I have no other markers or history, signs or symptoms. Should I be concerned?"</description>
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<title>Remedies Needed</title>
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<pubDate>Sat, 08 May 10 18:09:53 -0500</pubDate>
<description> Sally from Winona, Minnesota writes: "neurofibermatosis: My 13 year old daughter has cafe au lait spot (10) on her body. No other symptoms of this disease. The doctors say the spots may increase during puberty. Is there anything I can do??

Thank you,
Sally
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<title>Supplements</title>
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<pubDate>Fri, 08 Jan 10 10:58:12 -0600</pubDate>
<description>[BETTER BUT NOT CURED] Tia from Spooner, Wi writes: "NF1

I have noticed since taking Vitamin C, E, and B that my tumor growths have shrunk. I dont know if it is just me who notices or feels it but I feel it is. Does anyone else know anything else I could take?
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<title>Bee Propolis</title>
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<pubDate>Fri, 31 Jul 09 10:08:21 -0500</pubDate>
<description> Michael from Sabinal, Texas writes: "my name is michael martinez and i have neurofibromatosis and i was searching for anything that might help with what i have and i read that bee propolis might help with the tumors - http://www.naturalnews.com/026158_propolis_tumors_cancer.html
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<title>Supplements and Dietary Considerations</title>
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<pubDate>Mon, 02 Jun 08 00:00:00 -0500</pubDate>
<description>[YEA] Gregory from Quezon City, Philippine writes: "I have read an article on the web, the remedy in NF1 [Neurofibromatosis -- brain tumor] , that Vit.E (400 IU) + Vit. C (500-1000mg) with rose hip and citrus bioflavonoid complex supplement; plus dieting by avoiding meat product, especially highly preservative food and sugar will slow down the tumor growth. I have try it over a year and a half. The result is satisfactory. 

I wondering from Ted if there another way to reduce the tumor? Also if i can combine cesium chloride+Vit.B complex+ Vit.C+Vit.E and baking soda solution at a same time?Will there be side effect? Thanks...
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<title>Ted's Remedies</title>
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<pubDate>Sat, 10 Dec 11 21:19:00 -0600</pubDate>
<description> Patricia from Montreal, Canada writes: "I am 22 and have membranous glomerulonephritis. I have had it for 6 years. I have been on TONS of different medication and nothing has worked. Recently I decided to go off all of my medication, since it wasn't working anyways I figured whats the point of me being on it then. I see a naturpath and homoepath and am very into natural health. My protien levels in my urine are the problem, I am now at around 3 mg protein a day in my urine. Over the past few years I have gotten better and better with other symptoms (water retention) and the oil pulling which I started about a month ago has really helped my energy. I am now able to work part time. A couple of years ago and I was taking 2 naps a day. It is just the darn protein! I had severe stress in my life before I got this, for sure this was the cause. Do you have any advice to get my protein in my urine down? Thanks! I love your website!"



Ted from Bangkok, Thailand replies: "Patricia: My own experience of high protein in urine is due to infection usually of bacterial origin, and indicates bacterial colonies or that the body is having an infection. Therefore zinc gluconate 50 mg/week, magnesium citrate 250 mg 5 days out of a week would increase the body's defenses against these bacteria, thus reducing the high protein in the kidneys.

Also whenever urine pH is acid, which means the pH of urine is below 6.5 (usually infections exists whenever urine pH is about 5.5, which is quite low). In which case raising the body's alkalinity would increase the immunity and reduce bacteria colonies. In which case a Apple cider vinegar 2 tablespoon plus 1/4 teaspoon of baking soda in 1/2 glass of water, taken twice a day, once in the morning and once before sleeping should help. Lime (lemon) of 8 teaspoon (or 2 tablespoons) plus 1/2 teaspoon of baking soda in 1/2 glass of water taken twice a day could also help too. But this is often done on alternate days.

Adding 1/4 teaspoon of sea salt in one liter of drinking water will raise the salinity of the urine somewhat so that the antibiotic effect of some salt, would reduce the bacteria thus reducing the protein buildup in the urine.

My own experience with "cloudy urine" usually from weaknesses can also lead to protein buildup in which case it helped me a lot to take vitamin B complex for a couple of days. The urine will often clear up and reduces the protein buildup from my own experience."

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8/24/2007: Ted adds: "One more thing, the membranous glomerulonephritis may be related to heavy metal toxicity which is why oil pulling works, although a proper oil pulling should be done between brushing of teeth, I believe taking some granulated lecithin would also reduce excess fatty liver and reducing the liver's congestion while the addition of one drop of close oil in one liter of water does help too but its mechanism is more in killing the bacterium in the liver is usually how the clove oil works in reducing the excess urinary proteins too."
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        <item>
<title>Ted\'s Remedies</title>
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<pubDate>Thu, 01 Mar 07 00:00:00 -0600</pubDate>
<description> Nag from India writes: "Hi, i have been told by my Doctor that i have \"Multiple Neurofibramotosis\", he said there is no cure instead stop it to grow further with some E-Vitamin capsuls and B- Vitamins. I have this lumps on my both hands, some of them on my legs, stomach and on back so please tell me if you have any cure with detailed process to follow. And i have another problem that on pimples on my scalp itching and irritating sometimes it has been there for some 7 years and it is coming sometimes heavily and iam losing my hair aswell so please let me know the cures...Thankx in advance"</description>
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        <item>
<title>Ted\'s Remedies</title>
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<pubDate>Tue, 14 Nov 06 00:00:00 -0600</pubDate>
<description> Thomas from Columbia, SC writes: "The only thing you got right was what causes Neurofibromatosis. I have NF1, and I know for a fact that it cannot be cured that simply. If it were that easy, them the doctors would have found out years ago. If anyone else with Neurofibromatosis reads this, please don\'t try it expecting it to work, because it will not happen. However, we would love to have you join us on the NF web site. http://www.ctf.org. We have a Bulletin Board and Chat Room both open 24 hours a day, 365 days a year. Hope to see you there."</description>
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        <item>
<title>Ted\'s Remedies</title>
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<pubDate>Fri, 15 Sep 06 00:00:00 -0500</pubDate>
<description>[SIDE EFFECTS] Steph from TX writes: "I have been taking the said things and its making feel a little ill, is this suppose to or is there something else I am suppose to take with it."</description>
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<title>Ted\'s Remedies</title>
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<pubDate>Sun, 16 Oct 05 00:00:00 -0500</pubDate>
<description> Mary from  writes: "Is there a cure or remedy for nf1 (Neurofibromatosis) brain tumors, skin tumors and the other illness's from nf1?"</description>
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<title>Ted\'s Remedies</title>
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<description> A from  writes: "I have read your article where you indicate certain things to take for NF tumors. Can you please tell me more? Have there been studies done on this? How do we know what to take and how much? My husband has a lot of tumors in his left leg - they are all benign, but they could become cancerous as I\'m sure you know can happen with NF. Please help us, we are finding that the doctors in the U.S. are not interested in healing him, but rather with just waiting and seeing if it gets worse and then to operate (which would cause potential paralysis.) Thank you so much in advance for your time. I truly appreciate it."</description>
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