Table of Contents
- QUESTIONS & ANSWERS
- Baking Soda and Borax
- Barrier Product
- Borax, Tea Tree and Lavender Oils
- Coconut Oil
- Comfrey Root Ointment
- Dietary Changes
- Eliminate Vitamin D
- General Feedback
- Hydrogen Peroxide
- L-Lysine, B-6
- Lichen Planopilaris Remedies
- Low Carb Diet
- Low Carb Diet, Vitamin-B Complex
- Multiple Remedies
- Olive Leaf
- Oral Lichen Planus Treatment
- pH Regulation
- Remedies Needed
- Tea Tree Oil, Dietary Changes, Urine
- Vinegar Water
- Vitamin E Oil
- Vitamin K, Vitamin D, Baking Soda and Borax
- Wet Cloth
12/04/2010: Marilyn from Plattsmouth, Ne: "I have been reading your posts concerning your battle with Lichen Planus. At one point, I believe in November of 2008, you said you were taking 1000 mg of vitamin C and Apple Cider Vinegar. Then you said that you found the cause, which was some sort of mite. Am I to assume, then, that the Vitamin C and Vinegar helped for a while but didn't cure it? And did your treatment for mites then cure it for you?
I have Lichen Planus both in my mouth and on my skin and am using a dexamethason solution which I rinse my mouth with twice a day for the oral Lichen Planus. This seems to help the condition, but if I quit using the solution, it comes back with a vengeance. The doctor wants to put me on some sort of steroid treatment for the skin LP but I am very leery of this because of the possible side effects, which include weight gain and osteoporosis.
A friend sent me an email which talked about the benefits of using a 35% food grade peroxide for Lupis, which is also an autoimmune condition, so I am thinking of trying that. It is inexpensive and looks to be a beneficial way to treat Lichen Planus as well as other conditions. We have our own well water and my husband raised the question of whether or not there may be bacteria in our water that could be either causing or worsening my Lichen Planus. So I am now drinking only bottled water, which to my concern, I am reading now on the internet, may be too acidic for me. Woe is me! Maybe I am reading too much on the internet! Any feedback would be appreciated. Thanks, Marilyn"Replies
04/18/2012: Debbie from Nobleton, Florida replies: "I have been fighting sores mostly on my arms for 3 months now. The inside of my mouth and tongue are very sensitive. After this long, I decided to research the condition because it just wasn't going away. I finally come to the conclusion that it has to be lichen platus. I remembered when I was a child, doctors used to recommend sulpher tablets for various issues affecting the skin, such as impitigo. I just went on the net and ordered some. I will let you guys know how it works. I have confidence."
[BETTER BUT NOT CURED] 01/30/2009: Rich from Boca Raton, Fl: "I'm 2 days into trying "Betadine/Providone" as a mouthwash for the "Oral Lichen Planus", aka Gum Disease of the cheeks and tongue. This is similar to the cure for white tongue in another topic, which uses Iodized Salt. The Salt may work eventually as well. I'm very encouraged by the preliminary results though. Iodine kills candida and many bacterias as well. The protocol here is 40 seconds, 3x per day for 10 days. It's used for drug resistant thrush in Aids patients... and may aid in Gum disease.
The FDA approved perscription drug for Gum disease is Chlorhexadine, which as I said, kills ringworm as well, and is antifungal. If this iodine solution doesn't work perhaps I'll try that, but I have good preliminary indications that this will work."Replies
08/05/2012: Mignon from Arnhem, The Netherlands replies: "The post is so old, but I wondered what the result was of iodine mouthwash for Lichen Planus?"
[YEA] 06/28/2011: Mspatpat from Dayton, Ohio: "I have had skin Lichen Planus for about 1-1yrs. I tried all the Dr's suggestion. But it always returned just as bad. Finally and herbalist for a health food store in Atlanta Georgia call (i think) the Garden of Eden, told me to take 2000-3000mg of L-Lysine & 50mg P5P (B6) 3x per day. And from the first 1000 mg that evening my itching & breakouts decrease about 99%!! I like the L-Lysine by Solaray that also contains vitamin C, Zinc and Vitamin B6. Hope this helps."
Lichen Planopilaris Remedies
05/15/2013: Angela Hardnett from Houston: "Lichen planopilaris: I want to know any alternate treatments that I may utilize to treat this condition. I also believe this may come from a fungus. Please help."
Low Carb Diet
[YEA] 11/22/2008: Julie from Phoenix, AZ: "I've had oral lichen planus for 8-10 years and latley light outbreaks on wrist/ankle. With me, my oral lichen planus will often clear up completely, and always get milder, if I stick to a lower carb diet. While I'm not overweight I confess to preferring to eat lots of carbs typically from sweets. When I ease off, my condition always improves - often to miraculous degree. Today on internet I searched 'lichen planus diet' and found a similar post from a dentist stating a patient of his experiences same. I'm convinced there is a link between proper body funtioning (caused by better diet) and ease of auto immune probs like lichen planus. Likewise my other auto immune issue of painful joints also worsens with poor diet, and goes away when less carbs consumed. Other posts on earth clinic have suggested links to vitamins, acidity, etc for treatment/cure. I think perhaps when your body functions properly when you eat right, burning fat as it should, that your body heals itself of some odd ills. And conversely, when you eat poorly, your body's systems are adversely affected, sometimes presenting in various ways such as lichen planus for some of us.
I'd love to know if others experience same. I hope this helps some others. I will try to stick to better diet. It's tough though. To remove my lichen planus completely I have to drastically reduce carbs, then I can have sugary desserts, pasta, etc. 2-3 times a week without recurrence of lichen planus. What's tough for me is falling off wagon and getting into bad cycle of too much sugar too often - if I don't break pattern my lichen planus remains and can worsen. But the good news for all is it CAN be done. I recall many times where I broken pattern, fixed my lichen planus, and ate well for MONTHS at a time without issue. The real trick is this: when you see even the smallest hint of lichen planus returning, you've been eating too many carbs and need to ease off."
Low Carb Diet, Vitamin-B Complex
[BETTER BUT NOT CURED] 01/23/2010: Kristi from Danforth, Maine: "I've had oral Lichen Planus for years now, some days are better than others.. I have notice that the summers are better and I agree with the Low carb diet. My exercising and eat are so much better in the summer than the winter. I also take B-complex which helps but doesn't clear it altogether. I do use a prescription mouthwash in the winter time that I get from my doctor. I am not sure of the ingredients. I am looking foreward to seeing some of the other peoples exact amounts of ingredients that they are using, like the vitamin k, vitamin d, borax, baking soda, salt solution, iodine ,Peroxide, grapfruit seed axtract. the numbers will really help. I also notice people with Lichen Planus also have other systoms of another type of fungus like nail fungus, ringworm, Maybe there is a simularity . Does anyone know what there blood type is? Mine is A positive. Very interesting study."
01/08/2011: David from Montreal, Quebec, Canada: "Since 5 month I have skin lichen plan, I tried, cortisone, prednisone, protopic, elidel, Tazorac, Topicort and Apo Hydroxyzine for itching, since I bought a neckless made of hazelnut dried wood, it slowly started to fade away. I am doing Soriatane 30mg a day since 1 month, it works. Success is skin well hydrated, soriatane and hazelnut wood."
[BETTER BUT NOT CURED] 02/09/2010: Chrys from Chennai, Tamilnadu: "Lichen Planus
I did read all the posts.And i was surprised to see so many people are facing the same problems like one i am. But feel little better cause i have someone to share the feeling, pain and information of something overtaking our lives called "Lichen Planus"..Some months back i was so sick i could not help myself out of bed i had fever and severe cough by the time i found relief not cure..i lost my father due to heart attack. It was as though something was waiting for the push down the cliff and there i started getting aggravated symptoms of lichen planus...which i thought was bronchitis or sore throat. When i read your information i feel we are so helpless to understand our own bodies with which we live 24x7. Understanding of Lichen Planus in chinese culture is stagnant heat and stagnant blood.. Anything stagnant starts causing to decaying effect. Cleansing becomes highly essential..Similarly yoga says it is cleaning of wind that moves through your body..which needs to be done via the appropriate breathing excersie and some hand gestures..
Please read this link and look for this moo-draa (this is how it is pronounced "mudra" or hand gesture saying " Varun Mudra " read it carefully and understand the same..it is natural body mosituriser...it helps relieve the lack of moisturein oral lichen planus. Also check "Prithvi mudra" for mental relaxation which is a must in this growing anxiety of growing lichen planus.Please try to take Vitamin C dosage i am currently taking aamalika (indian gooseberry capsules 2x a day)and neem capsules 2x a day (leaves which are blood purifiers and relieve the itch effect to decent extent...not too promising, yet helpful as of now...do take vitamin C in the afternoon as late evening will cause disturbed sleep.
I alternate bedtime routine with 1. Oil rinse ( i have infused olive oil with garlic and rinse just front portion of mouth with this 1 tsp oil) (do not follow this instructions if you have Olive oil or garlic allergies) and next day an tumeric poweder 1/2tsp in lukewarm water (if sores are bad reduce the water heat from lukewarm to little more manageable levels)and rinse in the front of the mouth and spit it out but do not wash your mouth, let the tumeric particles remain(do not follow this instructions if you have tumeric allergies)...try not to take it closer to throat...not harmful cause it is just spice but may leave unpleasant taste..but i sure did get quick relief from open sores and they are sealed all the time and do not oooze bloody taste in the mouth.
Check this website for some yoga techniques to cool off your internal self as i mentioned earlier...body is captured heat that does not convert into energy and flow out..instead stagnant and causes ailments...
2nd Posture is one which unwinds and cools off the body...but read the instructions carefully and consult a yoga practitioner for good results...slowly take this situation under control...but wisely..in haste we may do more harm then good..We should not bombard ourselves with tons of medications..
Do read these techniques : http://www.naturalworldhealing.com/thefetalcure.htm
Once you try them once a day chalkout the techniques that made you see the happy and soothing results (much needed now)...Put them in front of you or place you visit the most (for me it is the kitchen) paste it and write on the heading "If it is to be it is upto me" do check with your doctors everytime...period of 5days/10days/15days
These are just over and above your regular medicines...hope this helps...atleast ithelps me to know we are helping stranger who bought us togather for a cause..treat this group as your study group...and work...we will see reults and hope for any future cases..I hope doctors read these case studies..."
[BETTER BUT NOT CURED] 01/17/2009: ELIZABETH SCHMIDT from WOODLAND, CALIFORNIA , USA: "I was diagnosed with lichen planus in November 2008. I saw a dermatologist who was to say the least not helpful with information in regards to this condition and told me to "just live with it and be grateful that it's not worse" I have been working with an Herbalist and only using natural, organic products. I take daily: 3 Source of Life vitamins, 6 oral enzymes, 6 skin cleansers, 6 ignatia, and I shower daily with a liquid bath soap made with lavendar, olive, coconut, and palm oil. I also use an eczasalve for itching. Lichen planus starts from the inside and I have learned that in order to at least stabilize it, I have to treat it from the inside out. I had in my mouth when diagnosed and it has not gone. I would suggest to anyone who also suffer with this to learn about Natural and Organic healing products."
[YEA] 09/21/2008: Savanah from Guelph, CA: "Drink 1 full tsp baking soda in a glass of water to take away the itch of Lichen Planus. Also when extremly itchy apply ice under a cloth, also I have tried Mr Clean Wipes with Antibacterial and they worked really well. Also just baking soda and water paste applied on the lessions and let dry against skin. One more is, I have applied the little yellow container of Carmex lip balm for cold sores to lessions and it works too. For my mouth I use Oracort Dental Paste that you dab not rub as it turns grandular if you rub it. You only need a ml size of it."
[YEA] 01/20/2009: ELIZABETH from WOODLAND, CALIFORNIA, USA: "I WAS DIAGNOSED WITH LICHEN PLANUS IN 2008. I WAS TOLD THAT THERE IS NO CURE BUT WAS NOT SATISFIED WITH THAT. I WENT TO MY LOCAL NUTRITION STORE AND THE GENTLEMAN WAS SO HELPFUL. HE EXPLAINED TO ME THAT THIS CONDITION STARTS ON THE INSIDE SO THEREFORE MUST BE TREATED FROM THE INSIDE-OUT. I PERSONALLY DO NOT USE ANYTHING THAT IS NOT ORGANIC OR NATURAL. BECAUSE THIS CONDITION MAY HAVE STARTED WITH MY LIVER, I REFUSE TO PUT ANYTHING ON MY BODY THAT MY LIVER MAY HAVE TO TRY AND RID ITSELF OF. I WILL NOT USE ANY KIND OF STEROID BECAUSE IT SIMPLY DOES NOT WORK. MY SUGGESTION TO ANYONE WHO IS SUFFERING FROM THIS CONDITION WOULD BE TO CONTACT THEIR LOCAL NUTRITION STORE AND SEE WHAT THEY HAVE TO SAY."Replies
09/10/2010: Blackandmoore from Boston, Ma, Usa replies: "I refused to accept my doctors answers either and that is why I found this website. I have seen that love your liver diet- do you eat only raw fruits and veggies? thanks,blackandmoore"
[YEA] 04/04/2013: Yass from London, Uk : "Please, anyone with mouth lichen planus, please try olive leaf you can swallow."Replies
04/04/2013: Rsw from Uniontown, Oh replies: "Could you please elaborate on the dose and kind of olive leaf you are suggesting? I have tried olive leaf capsules and didn't notice any improvement in LP. I only took a small dose and would be interested in hearing how much, how often and what kind of olive leaf you used. Are you completely cured or is it temporary relief? Thanks!"
Oral Lichen Planus Treatment
10/20/2013: Gonyx from Jakarta, Indonesia: "Dear Ma'am/ Sir,
My name is Atira from Indonesia. I've been diagnosed for Oral Lichen planus for 4 years now. My OM Doctor prescibes me to use Klorderma and Solcoceryl (ointment). I use Klorderma twice a day and the next day I will use Solcoceryl twice a day also. I would like to ask you whether there are any treatment for this OLP using baking soda or other herbs. My tongue condition now is red at the side of my tongue and it's very painful if touched to the teeth or food. Right now I only use my left side of the mouth to eat. Last April, I had my 2nd biopsy and Thank God everything is clear, only the red and soreness left. Thank you so much for your help. I hope that you could help me with my problems."Replies
10/20/2013: Rsw from Uniontown, Oh replies: "I have oral LP, also, and after trying many things for over 5 years, I have found something that has cleared the part of my mouth that I had biopsied to confirm the LP. This has been confirmed by my dentist. I take one of these after I have brushed and flossed before bed. Don't drink any water for at least half an hour or more after dissolving it in your mouth.
This is the only thing that has worked for me to heal my gum. My mouth still burns some in the morning, but no more lesions. Best wishes!"
10/23/2013: Rosanne from Toronto replies: "This is a question for Rsw from Uniontown, Oh, or anyone else who may know.
You posted the other day and said that you had tried many things for OLP. I'm curious to know if you've ever tried purslane. I saw some studies that indicate it may help, but it's rather pricey to order. I'm hoping for some feedback before spending that much money.
I'd really like to try those lozenges that you mentioned, but I can't find a source for them here in Canada. I guess I'll have to keep looking."
10/23/2013: Rsw from Uniontown, Oh replies: "Hi Rosanne,
Yes, I have tried purslane. I bought it in dried powder form. I took it for a short time without any change, then read that it is very high in oxalates which is not recommended for LP, so I stopped taking it in favor of a low oxalate diet. Although some have benefited by this diet, I found no noticable change after many months. The oral probiotics with the BLIS ingredients worked for my mouth, and another man who also has LP tried it and it worked for him in his mouth, also. Systemically, we are both still trying to figure this out. Currently taking LDN ( this is not effective but I believe it is so good for the immune system that I continue taking it), enhanced absorption curcumin, a special CoQ 10 since I believe this may have been statin induced, yoga, low dose benedryl (just started this today) and a high anti-oxident cream. If you find anything effective, please post. I continue to read and research every day. Best wishes."
10/24/2013: Rosanne from Toronto replies: "I'm so glad I asked for feedback on the purslane before buying it. Thanks!
I've had a patch of OLP on my gums for many years, which never caused me any trouble. In fact, I wouldn't even have known it was there, except every time I went to the dentist, they asked if it was bothering me.
But in the last few months it has slowly crept up on me. About two weeks ago, it got really awful all of a sudden. My lips/gums/cheeks/lips were burning and tingling, and a white patch under my tongue was downright painful. I happened to have had a dental cleaning scheduled then, and they confirmed it was OLP.
Of course, they could not offer me much in the way of treatment, but they did give me a sample of "moisturizing" toothpaste and mouthwash. (brand name starts with B) I also bought some toothpaste that does not contain sodium lauryl sulphate, and I quit oil pulling (EVCO) since my mouth was just so irritated.
A week later, I am considerably better. Of course, there is no way of knowing which, if any, of the things I changed had any impact upon the state of my mouth. And the white patches are still there, of course. And...I have issues with LP on other parts of my body as well, so I'm most interested in this as a systemic issue. Might this be related to the Perioral Dermatitis that I battled at this time last year? I have to think that's a possiblity.
Thanks for your information."
[YEA] 07/25/2011: Ben from Ny: "I think that lichens planus has alot to do with the acidity of the body. I have found that if I keep my (urine) pH up (~6.2 or higher), that the itch goes away and the bumps stop appearing. If the pH goes lower, the itch starts and the bumps start reappearing.
I started noticing this because I would get something like water blisters in my mouth around meal time. If figured that my pH would be lower around meals. I also noticed that the blisters would pop easily if my pH was up, and would be harder to pop if the pH was low.
I think that lichens planus might be a reaction to acidic sweat.
I have used baking soda to raise my pH"Replies
07/14/2012: Kr.arun from Faridabad, India replies: "hi I'm ashwini. I have been suffering from lichen planus for almost 2 years. Well till now all the itching and all has reduced but I'm left with the scars. So it would be great if you could help me out on this my age is 16 and I am female."
07/16/2012: Ben from New York, Ny replies: "I would suggest putting vitamin E oil on the scars from lichens planus. It gets rid of the scars but it may take a few weeks."
07/09/2013: Ali from Canada replies: "Hi... I have the same blisters appearing when I eat food, fruits or sometimes vegetables. Sometimes they stay for a day sometime a week. Some times easy to burst and sometimes not... Did you find any cure? Any help would be appreciated. Thanks in advance."
07/09/2013: Rsw from Uniontown, Oh replies: "Ali, I have been diagnosed with oral LP by a biopsy. After trying many things over a ten year period, I found J----oral probiotic lozenges with BLIS K12 and BLIS M18, an inexpensive supplement with 8 lozenges per pack. To my amazement, my gum has healed and my dentist confirms that! I use one at night, after brushing and flossing before I go to sleep, and it takes at least 30 days to colonize. I am so happy and it may help you, too. However, oral LP usually means systemic LP, and the other mucous membranes are not changed. But I'm grateful that my mouth has healed. Best wishes!"
11/27/2012: Patricia from Milton, Kentucky: "I have had this horrible disease in my mouth for almost 2 years. Unfortunately my Primary Doctor was passing it off as a problem with diabetes. He was giving me Nistatin rinses, then that magic potion, YUCK, .... Then I was sent to an ENT. He tried lozenges, and Oravig.... Nothing worked. So, My primary FINALLY got a look at my mouth when it was flared up. YIPPEE!!!!!!! Off to an oral surgeon.... After 2 biopsies, I got the diagnosis. NO CURE PEOPLE....... Now I see a Pathologist this Thursday. I do find some relief avoiding acidy foods, soda pop, and brush my teeth with only baking soda. All my medications except my thyroid and insulin were put on hold. I NEVER GET OVER ONE WEEK WITHOUT GETTING A FLARE UP!!! I JUST PRAY THAT IT HASN'T GOTTEN TO THE WORST CONDITIONS. I just recently asked my primary doc, of 15 years, to check me for Hep. C and Luekemia..... No go... Well, I'm gonna ask the Pathologist for those tests.... I have hurt in my liver area for quite sometime. PRAYING FOR RELIEF.... AND FOR ALL THOSE 2% OF PEOPLE OUT THERE WITH THE SAME DISEASE.............:)"Replies
11/27/2012: Rsw from Uniontown, Oh replies: "Hi Patricia, I have been diagnosed with LP for almost ten years after a biopsy of my mouth. If it is in your mouth, it is systemic (as in nails, skin and/or mucous membranes). I hope you have seen Daisy's posts on Lichen Sclerosus, a close relative of LP. She has cured herself with nonalcoholic essiac tea tonic so the possibility of resolution is out there. I will receive essiac tea herbs on Friday and hope it will be effective. I have been on LDN (low dose naltrexone) for a year and a half with no improvement, which makes me question if this is an autoimmune problem. (I have seen too many use LDN with success to doubt it's effectiveness on many autoimmune diseases) Also, the low Oxalate diet has helped others, along with NAG and other supplements.
I believe Lisa's suggestion of taking water kefir several times a day is beneficial to balance the good yeast and bacteria in the body. Articles link LP with Hep C (60%), statin drugs(and other heart and BP drugs), dental work, stress, candida, and previous injuries, but it is not even marginally understood. Sharing what does or does not help gets us closer to some resolution without wasting so many resources. Best wishes!"
12/05/2012: Vooloovoo from Naugatuck, Ct replies: "Are you sure it isn't candida?"