Interstitial Cystitis Remedies

Last Modified on Jul 29, 2014


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Chondroitin, Glucosamine, MSM

Approval Ratings
YEA (1)
50%
SIDE EFFECT (1)
50%

[YEA]  04/14/2011: Md4im from Orlando, Fl - Florida, United States: "after immense daily suffering, I found an article on glucosamine-chondroitin-MSM for IC relief. Provides cellular components that are essential to the epithelial bladder lining. Made a 180* difference - very noticeable after just 2 days. Still taking it 6 years later, and I can TELL when I miss a few days. It has been a real life saver. I hope this helps other women out there!"

Replies
[SIDE EFFECTS]  07/07/2011: Mary from Hastings, Mn replies: "Side effects for me are bad digestion, IBS. CAN"T take it. Also can't take that hyaluronic acid either (eyes feel like sand in them) Any other ideas to heal the GAG layer (glycosaminoglycan layer)?"
08/16/2011: Mary from Hastings, Mn replies: "Found a Glucosamine and Chondritan that doesn't bother my GI tract that much if taken w/food. It's sold at an IC site CystoP*****. Maybe it's because it's got Olive Kernal in it, which makes it more bio available. I take 4x per day (1 capsel per day) rather than twice per day (2 capsels per meal). Already see a small differance after 4 months. Constant flair is gone, and can have salty snacks and sometimes blueberries now. I had gone crazy w/blueberries over the last few yrs since getting this and I seem to have developed a problem w/them."
09/26/2011: Tricia866 from Collinsville, Il, United States replies: "Hi Mary, Is the Glucosamine the only remedy that you are taking for your IC? Is it still helping with repairing the bladder?"
11/23/2011: Mary from Hastings, Mn replies: "Update on this Glucosomine & Chondroitin: I found that when I take it, the Quercetin makes me VERY hot only at night. I tested this by just taking Quercetin. Same result. The heat radiates from my vagina! I am 48 yrs old, and having night flashes, but this is ridiculous. I had to quit the product. I had tried it for a few months and I wasn't gettting much sleep. I just got hotter and hotter. I hear it helps alot of other people though as stated by their testimonials on-line. I called the company, and they said that they had not had this complaint before. Maybe I will need to try another brand."
01/17/2012: Mary from Hastings, Mn replies: "Anyone try Gotu Kola? I tried it in the past, but got hives and had to quit. I found out Acidophilis stops hives. Now I am on alot of Acidophils and will retry some Gotu Kola. Anyone find relief with this? They sell it online for Cysitis, as it repairs the GAG lining of the bladder. Thanks!"

Cinnamon

Approval Ratings
YEA (1)
33%
NAY (1)
33%
WARNING! (1)
33%

[YEA]  01/05/2010: Donna from Royal Oak, Mi: "I've battled bladder issues all my life, and for a while, high contentrations of cranberry (pills, not juice - juice has too much sugar which feeds the infection) helped. That was until I got IC and became antibiotic resistant. Felt like I was peeing glass. By fluke I read 3 sentences in a magazine that saved me - it basically said that cinnamon kills off E-coli. E-coli is often the cause of bladder issues and IC. I started taking cinnamon capsules and felt major relief in a matter of a few days. I highly recommend it to anyone who suffers from IC. You'll sing its praises too."

Replies
01/06/2010: Elizabeth from Nashville, Tn replies: "How much cinnamon do you take daily? Do you take capsules already premade or use fresh? Thanks."
01/08/2010: Donna from Royal Oak, Mi replies: "Fresh is of course always better, but I basically took premade capsules for the convenience. Started out with 4-6 a day, a couple in the morning, afternoon and evening. After the symptoms were alleviated, I gradually reduced my intake. I still will take one a day, and sprinkle fresh cinnamon on my toast or apples just for maintenance purposes. Wonderful thing is that cinnamon also helps stomach issues! (gas, bloating,etc) It is a miracle worker as far as I am concerned."
01/08/2010: Elizabeth from Nashville, Tn replies: "Thanks for the information. I will add this to my daily regimen for my IC and hopefully get the same results. God Bless!"
01/08/2010: Donna from Royal Oak, Mi replies: "Let me know if it works as well for you as it did for me! Good luck!"
08/16/2010: Emily from Charlotte, Nc replies: "Hi Donna,

I live in NC but used to live in Ann Arbor, Mi! Hope you are doing well. I have suffered from pelvic pain for a while - I believe it's IC, as it flares up after I drink coffee, eat chocolate, or eat strawberries or tomatoes. I read your post and bought cinnamon capsules. I would love to know if you or anybody on this post has had luck with cinnamon - how many 500 mg capsules should I take every day to feel a difference?

Thanks! Emily"
09/08/2010: Jen from Ann Arbor, Mi replies: "Be careful with Cinnamon, it's a major IC bladder irritant for me."
[NAY]  01/19/2012: Ichater from Northern, California Usa replies: "Prior to the worst flare up in my life, I had already been taking cinnamon capsules daily for a year prior... So I don't think that cinnamon works for everyone. I was taking 1000 mg a day and I still had a flare up. :/"
[WARNING!]  01/28/2014: Steph from Lake Erie, Pa replies: "According to healthyICrecipes, the problem with Cinnamon (most likely including capsules) in the US, is that it isn't "real" Cinn.! We use a cheaper alternative, called "Cassia", while "real" Cinn is "Ceylon". The cheap stuff contains a toxic compound called "coumarin", which is known to cause liver and kidney damage in high concentrations (I think I read something about it being poisonous to dogs once.). This is why IC patients have trouble with it.

For me, Cinnamon is wonderful to my stomach, and not so to my IC. I found the waaay expensive Ceylon at my Whole Foods Store and am doing an experiment. I am also anxious to try, despite the price ($27.99/lb. this part of US! ), b/c of the grain-free, low sugar diet I am also trying. It is in very many recipes. Also, Cinnamon helps regulate blood sugar by "tricking the taste buds that sugar is present", so one can use less! Yea!

I haven't read yet on Cardamon, the only other spice I feel is a similar taste & therefore substitution. Does anyone else know if Cardamon has the same "Coumarin"?"

Coconut Oil

Approval Ratings
YEA (1)
100%

[YEA]  08/10/2013: Maggie from Philadelphia, Pa: "I had interstital cystitis in the form of bladder aches and pains for about 4 years or so. Some days it was more painful than others, but it often felt irritated. I changed my diet completely about 6 months after onset (veggies and lean protein - no sugar or carbs) and about a year and a half ago, I stearted taking a lot of coconut oil - up to 5 tbs per day. The diet helped, but the coconut oil put me over the top. I almost never have any issues anymore unless I get an infection (I take garlic and grapefruit seed extract for those) and I can eat fruit, although I only eat it occasionally because of the sugar, and drink decaf coffee with no issues. I also can take B vitamins several times a day, which is often a no no for people with IC. Try coconut oil and cleaning up your diet, but stick with it for a while and you will notice that your symptoms will diminish with time."

Replies
01/21/2014: Isabel from Guelph Canada replies: "This is very interesting. For a while I have thought that IC is caused my by leaky gut syndrome in my case so the coconut oil would make sense because it helps shut the gut."

Coconut Oil, Coconut Water

Approval Ratings
YEA (1)
33%
NAY (2)
67%

[YEA]  03/29/2010: Kelly from Chicago, Il: "I only found out about virgin coconut oil Dec 2009. I had bladder pain for 15 years - eventually diagnosed with interstitial cystitis but was always convinced it was a bladder infection since Bactrim (sulfa antibiotic) would always make me feel better with flare ups even though cultures were negative. I had a flare for months that would no longer go away with Bactrim. I started with coconut water and it helped my urethral pain. Now, I take coconut oil and coconut water. I no longer have urethral or bladder pain!!!!

I am beginning to believe that interstitial cystitis is a bogus diagnosis that thousands of MDs have earned a pretty penny off of - in fact - entire medical fields have opened due to this diagnosis. I think all women with this should try coconuts before they spend another dime! I know the frustrations - I have been to the best urogynes and urologists - Northwestern in Chicago since I was a teenager and in California. I have had my urethra widened twice, - I have been tortured like so many other women; missed life events, canceled trips, spent many days in the ER with flares - not too mention the $$$ spent! AND ALL THIS TIME -- COCONUTS WOULD HAVE SOLVED MY PAIN. I MUST TELL EVERY WOMAN!!!!"

Replies
04/27/2010: Teresa from Rockville, Md replies: "I have suffered from IC for years. I take a prescription med but also take quercetin. I have been in remission for 8 years."
[NAY]  08/14/2010: Lucy from Chicago, Il replies: "I'm wondering if the coconut oil is still helping and how long it took to see results. I have been taking both the water and oil for nearly 1 week, with no decrease in symptoms. Thank you."
11/16/2010: Iceangel from Chicago, Il replies: "Salgal,
I was diagnosed with IC Oct 2008. I have had symptoms including, urgency, pressure, and burning. 4 weeks back the symptom went to another level! I was having unbearable burning (felt like razor cuts in my bladder), blood clots in my urine, chills, pressure, extreme urgency.. I took the uti strip test at home and it came negative for nitrites, but positive for leucosites. I went to the doctor and for the first time I got a POSITIVE UTI results. They said I had ESBL infection.

Currently I am prescribed antibiotics for 4 weeks. The symptoms decreased down after a week, but they are not gone. The first week they it got better, but now they seem to be coming back. I have been sexually inactive ever since the symptoms increased. As I was feeling better now, I gave it a try yesterday, and now my symptoms have increased again. I am not sure if ESBL infection can be long term. I have had IC for 2 years. I want to believe that it is this ESBL infection and will be cured by antibiotics :)

I wanted to know if your ESBL infection was cured? Also, was it a separate infection beyond your IC or has your IC been cured as well?"

11/16/2010: Francisca from Michelbach-le-bas, Alsace, France replies: "Hi, I always have the most common bacteria coli bacillus, no idea what are the others you are talking about but one thing I make sure of is that I treat it right from the start. I have never let it get really bad because that is very dangerous. I drink a lot of water right way and if I don't get better quite quickly I take antibiotics for three days. I hate them but luckily this now only happens once a year and when I don't take care to drink enough liquids. I think that maybe it is taking time to go away now because you let it go too far. Be careful......... If it gets to your kidneys, my doctor told me, it can kill you in no time!"
02/05/2011: Aron1947 from Sarasota, Florida, Usa replies: "Hello Kelly from Chicago,
Could you, please, let me know how much coconut oil you were taking and who is the manufacturer. Thank you very much in advance. Best regards. Aron."
[NAY]  12/12/2011: Martin from Seattle, Wa replies: "I'm a man, 46, who may have this condition. My symptoms fit it to a tee, and more serious symptoms are not evident.

Regardless, two of three flareups in the last 3 months occurred as a cause of using coconut oil as a lubrication, and this was after using it for years as a lubricant. It is the clearest trigger I've seen, and I used to use it for 3-4 years all the time satisfactorily. It does not seem to have adversely affected my gf.

This leads me to believe either I'm not keeping it fresh enough, or it's a transit vehicle for the fungus or bacteria, but I just wanted to add in that it hasn't been a wonder cure for me. Maybe ingesting it would help, ironically, but direct application has become a total no-no for me."

09/11/2012: Shampoo from Los Angeles, Ca replies: "Your absolutely right, its must be some kind of money making conspiracy, cuz I just cured my 6 month long, unrelenting battle with interstitial cystitus with Macrobid, basically. Coconut oil, and coconut water didnt help my interstitial cystitus, altho I have cured standard, garden variety UTI's, with coconut water.

Long term antibiotic therapy was the cure for me and my interstitial cystitus. The key is, you need to stay on a high enough dose, for a long enough time to get rid of the infection, and you have to get the right antibiotic for it, as antibiotic resistance is becoming an increasing problem. I was on Macrobid for almost a month (about three weeks, at 100mg, every six hours, (about 3 times a day) thats high, but normal, and prescribed to cure a persistant and severe infection which is what I had. I was rendered completely disabled by this bladder pain, I considered my life over, as I was told there is no cure. The problem is. Doctors are becoming incresingly reluctant to prescribe antibiotics nowadays. But in the old days, they understood, (as Ive talked to older people, my moms age, baby boomers) that sometimes, infections require antibiotic treatment, for longer than a week or two. These days, if you cant cure an infection in 14 days, at the lowest possible dose, your screwed, and there is "no cure".

Period.

I cant tell you how many times Ive taken my daughter to the emergency room, with 103 degree fevers, throwing up, sick as a dog, and they made me walk out of there empty handed, and told she had a viral infection, therefore doesnt require antibitoics. I now use homeopathic remedies (for kids) and thats helping her now.

Interstitial cystitus, (in my case) required hardcore antibiotics to eradicate the infection.

I tried EVERY, I mean every natural remedy known to man to try to fix the problem, and they didnt even touch it. What kills me, as I had to fight my doctors, and tell them what was wrong with me, cuz they didnt care, and they just do things by the book. I kept saying"how could this not ba a UTI", and "How can there be no cure??" They just put me on one or two rounds of antibiotics for a few weeks and when BACTERIA DIDNT SHOW UP IN THE URINE TEST, and I was still complaining of extreme pain and frequency, they dianosed me with interstitial cystitus. It didnt even occur to them to try me on different antibiotics and maybe for longer or higher, I had to FIGHT for that, and I became such a pain in the ass, they just wanted me out of the office."

06/04/2013: Kara from Minnesota replies: "Amen sister! I agree with you on the bogus diagnosis. Coconut oil reduces yeast. I'm on the yeast diet and progesterone. No more docs screwing up my lady parts! :D"
06/04/2013: Marie from Atlanta, Ga replies: "I actually used corn silk herb. I started taking 1/2 tsp twice daily for about a week, then decreased to 1/2 tsp once per day. The pain had stopped after the first day, that's why I only use it once per day for maintainance.

The corn silk that I purchased in the herb shop, I just further grind it in the vita mix. It last longer that way. I have also use the tea."

Colloidal Silver

Approval Ratings
YEA (2)
67%
BETTER BUT NOT CURED (1)
33%

[BETTER BUT NOT CURED]  06/30/2010: Rs from San Francisco, Ca: "I have been battling interstitial cystitis since February 2010 and have been on several rounds of Levaquin thinking it was a UTI. After reading this site I know its cystitis. I went to Whole Foods yesterday and bought ultra colloidal silver and took 2 tsp. yesterday right when I got home and 2 tsp. this morning on an empty stomach, as directed. As of this moment I have no urinary pain at all and no urgency to pee. This is a miracle. It worked fast and it took all the symptoms away in about 24 hours or less. I took my first dose yesterday at about 3:0pm and my second dose this morning before work at about 4:40am. Im pain free and peeing like a normal human being. I did get up last night about 3 times to pee but I expect tonight to be very different. I can feel a difference already. I will give another update in a week. Good luck ladies!! Give this a try if you are at your wits end like I was."

Replies
11/19/2010: Hot Diva from Lexington, Sc replies: "I have to agree. I suffer from IC as well and been dealing with it for 2 years now. I was just introduced to this site last week. After reading some of the rememdies on here, I decided to buy some Colloidal Silver and Cinnamon tabs. My symptoms tapered off in a matter of 2 days. BIG relief! Thanks to all!"
01/03/2012: Jproffer from Des Plaines, Il, Usa replies: "What dosage did you use for the colloidal silver and cinnamon tabs?"
11/04/2013: Sunny from Ca replies: "Hey, Rs from San Francisco, Ca. How are you doing with this treatment? Did you get cured? Pass the love forward -Sunny"

[YEA]  10/09/2006: Trudy from Netherlands: "I tried everything for bladder disease. The regular doctor prescribed Nitrofurantoin... so bad.. it causes even bladder disease... so I became very very ill ONLY COLLOIDAL SILVERWATER was THE REMEDY( for E-coli). Bladder disease was gone. Afterwords I took DMannose...very good..no pain anymore...also good for interstitial cystitis...really true. I have to tell this for the doctor did not know that Nitrofurantoin causes bladder disease. read: Natural Medicine Encyclopedia C.Norman Shealy."

Replies
09/21/2008: Shaelyn from San Diego, CA replies: "Hi There, you give the what type of Colloidal silverwater you took and where you purchased it? I found some CSV spray at the health food store, but I am not sure if it's the same. Also, how much did yo take and how often.
Thanks!!"
[YEA]  06/28/2010: Katie from Atlantic, Pa, Usa replies: "I have been taking a teaspoon of colloidal silver daily for 6 months and its been amazing for my IC along w/ a little baking soda now and then. I feel human again, no more peeing razor blades."
09/11/2012: Shampoo from Los Angeles, Ca replies: "Actually, Macrobid CURED my interstital cystitus, but the last week of taking it, I did notice some pain and irritation that stopped as soon as I stopped the medication, so I think it does irritate the bladder somewhat in the process of curing it, I noticed that too. I mean, it helped me, in my case. I was also on other medications for months, but that seemed to be the icing on the cake that cured me, I noticed an instant release and relief within the first hour of taking it."
11/04/2013: Sunny from Ca replies: "Hey Katie from Atlantic, Pa, That was a good while 6 months did you take it everyday? How many times? How are you doing now? Are you cured? Thank you.

Pass the love forward -Sunny"

Cornsilk Tea

Approval Ratings
YEA (1)
100%

[YEA]  01/21/2014: Sd from Salt Lake City, Utah: "I suffered with Interstitial Cystitis since I was four years old. My older sister had it to and went to countless doctors and physicians, who didn't help her at all. I also tried a number of things that never cured it. When I was about ten years old, a woman that we knew who was knowledgable about health suggested a few things for me. The biggest thing was CORNSILK tea. You can buy this in any health store, or you could make it yourself. They dry the silk from corn and then you brew it to make tea. I drank it for a few weeks and noticed a difference. I continued drinking it for years because it actually worked! I was cured! While I was a teenager, I occasionally had the problem and the cornsilk tea always fixed it. I'm writing this now because after about 8 years, the problem came back. I've been taking cornsilk tea again, and it's been helping. I'll probably drink it for a few months before I stop again.

SO...drink about 4-8 cups of cornsilk tea each day as well as plenty of water each day. Do NOT drink juices, sodas, coffee, or milk except very rarely and in very small doses. Let your liquids simply be cornsilk tea and water.

Eat lots of vegetables. Avoid sugars and any processed foods. Eat organically. Get lots of exercise and sleep."

Replies
03/08/2014: Sunny from Ca replies: "How long do you have to take the cornsilk tea, before you can stop taking it completly? And then you do not have to take it at all, until the IC comes back? What else did u do?"

D-Mannose

Approval Ratings
BETTER BUT NOT CURED (1)
100%

[BETTER BUT NOT CURED]  01/22/2014: Christine from Vista, Ca: "After suffering with urinary pain, I sought out the usual cures. The pain was alleviated by drinking 100% cranberry juice (not ones with sugar added), and eating watermelon and celery. I finally went to my gynecologist to find out if I had a urinary tract infection. She was on maternity leave, so a nurse practitioner saw me. She gave me the usual UTI prescription, but told me to start taking it BEFORE the tests results came back. I wasn't happy about this so I waited a while. Eventually, I took one dose of the prescription, when I got the call that my UTI test came back NEGATIVE for a UTI infection. I immediately stopped taking the anti-biotic.

I ran across a website that explained what I had was IC. A friend recommended D-Mannose, which is a supplement that comes in powder and capsule form. The recommended dosage is 1 level teaspoon 1 to 2 times daily. Add to a glass of water or unsweetened cranberry juice. (I only add it to water). This supplement has been a tremendous help in fighting the symptoms of IC. It is expensive, but worth it!

I carry the capsule form when traveling and when I know I will be unable to mix the powder with water. Sometimes, I take both in the same day - powder in water in a.m., then two capsules in p.m."

Replies
07/20/2014: Christine from Vista, Ca replies: "I wanted to add some information to my comment that may help someone else in their struggle with interstitial cystitis (IC).

I had been taking the green coffee bean extract to lose weight, but used it far longer than what is recommended. According to a recent Dr. Oz (big promoter of this supplement) comment, the green coffee bean extract capsules are only to be used as a "jump start" to losing weight - especially fat around the waistline. I did not know this until after I had been taking it for two years! A friend told me about the Dr. Oz comment which was made during a TV segment.

I noticed that the green coffee bean extract label contains 50% chlorogenic acid (200 mg). I was taking one capsule twice a day, so I was ingesting 400 mg of this acid each day!

When my gyno suggested that I either lessen or eliminate acidic foods, it occurred to me that this supplement was probably worsening my urinary tract problems!

Since stopping the green coffee bean extract (over 2 months now) I haven't been completely cured of IC, but the pain and frequent urination has been greatly reduced! Therefore, I think that the extract was a big part of my particular problem with IC.

I hope that this additional information will be helpful to those who may have been taking green coffee bean extract and have been suffering with interstitial cystitis."

D-Mannose, Dietary Changes

03/10/2014: Ally from Kenya: "Dear Ted and EC Community,

Pray you are well. I am 35 years old and since I was 14, I have suffered form chronic cystitis (i have never been diagnosed properly). I have had 9 cystoscopies and all doctors confirm that I have severe inflammation in my bladder wall. One doctor said my bladder lining has ‘holes’ in it which makes the urine seep in to the surrounding tissue which causes me a lot of irritation and leaves me with the sensation of wanting to urinate all the time.

For the last 21 years, I have suffered immensely in all facets of my life and am extremely despondent. I have never felt any sense of relief!!! I have been taking D-mannose for the last 5 weeks but with minimal relief. I would sincerely appreciate all your guidance and help as I have lost all hope in conventional medicine.

My Symptoms:

1. Severe frequency and urgency – constant sensation to urinate. - While I don’t have to ‘run’ to the toilet, I constantly have an urge to urinate.

2. When I do urinate, the flow is poor and I have to ‘push’ to get the urine out.

3. A visit to the toilet, takes me three voids before I feel some relief. Basically I could always go! . I never just urinate once and feel relief.

4. After urinating I feel a horrible sensation, like I have an infection

5. On average I urinate 20 times a day.

6. I have no pain but I experience discomfort and a sense of tightness in my pelvic area and lower back.

7. There are certain times in the day where the sense of urgency is exacerbated – in the afternoon between 3-5pm. I can urinate at least 10 times in an hour between those times.

8. When I experience a little bit of stress, (taking a flight, work deadlines) my bladder goes haywire and the symptoms are the same as symptom 6. This makes it very difficult for me to concentrate on anything and I quit my job last year as I cannot cope. This issue of stress makes me feel like I have no control. Please help me with this.

Effect of change of diet:

1. Have become vegetarian and a vegan in the last 2 weeks

2. The discomfort around the pelvic area and back has subsided, but not disappeared

3. Feel much more relaxed

4. The severe symptoms that I experiences in the afternoon are now less (2-3 times a week, as opposed to 6 times a week).

5. While a typical visit to the washroom needs 3 voids with lots of ‘pushing’ I don’t push as much."

Replies
03/10/2014: Mama To Many from Tennessee, Usa replies: "Dear Ally,

I am so sorry you have suffered with this condition for so long. It seems encouraging that you have noticed some improvement with a new diet. Perhaps over time that will continue to be helpful.

Here are some things I would try...

If you drink coffee, I would avoid it for a time to see if that helps. It is pretty acidic and hard on the system.

There are a number of bladder/kidney herbal formulas available. They usually have cornsilk, uva ursi, and marshmallow root in them. All of these things should be helpful. Dr. Shultz and Dr. Christopher both make one that people seem to find helpful for bladder issues.

I would also try a tea of equal parts of comfrey leaf and plantain leaf. You can add some peppermint leaf for flavor if you like. Plantain is good for inflammation and for bladder issues (and lots of other things.) Comfrey is soothing and helps cells regenerate. I would mix the dry leaves and put 3 Tablespoons in a quart jar or pot. Add boiling water (to make 3.5-4 cups) Let sit for 15 minutes. Strain out the leaves. Sweeten if you like, with honey or stevia. Try to drink a quart a day for a couple of weeks.

I do hope you find complete relief soon. Please keep us posted on your progress!

~Mama to Many~

Please keep us posted on your progress!"

03/10/2014: Prioris from Fl, Usa replies: "Try Aloe Muciliginous Polysaccharide tablets as a treatment."
03/10/2014: Mike62 from Denver replies: "Ally: I too suffered for many years from a variety of diseases because I did not eat right. I would like to assist you with the food portion. I have done a lot of studying and experimenting with various food programs. I am 95% raw vegan. Organic or sustainable grown traditionally has important nutrients not in conventional. Raw has enzymes. Most of the nutrients are in the peel. The nutrients in vegetables are locked up in cellulose. This is why they are cooked or juiced. The best veggie is baby leaves. You can make green smoothies from them with a blender. Next is mature leaves. The best fruit is berries. For more calories you can add some organic whole cane sugar. A less expensive way is to make live ferments from organic whole flours. Many rural people are familiar with this. I make a gallon a day from 300g organic whole flours. Flour has more protein than fruits and veggies. Keep fat below 5%/g. Take 1/2 saturated and 1/2 unsaturated. Get some omega 3s from plants. The 80/10/10ers soak nuts and seeds before eating them for oil and protein. Home made sprouts have 6 times the enzymes as soaked."
03/11/2014: Dave from Fountain Inn, Sc replies: "Hello Ally,

Go to Number 4 in your symptoms: Feels like you have an infection or words to that effect. I'm always suspecting viral issues as causation. You suspect it yourself.

If me, I'd at least try Colloidal Silver for a few weeks. Two tablespoons twice a day for two weeks."

03/11/2014: Cindy from Usa replies: "To mike from Denver I was wondering how you make a fermented product from organic flour? could you give us the recipe? Thanks. I am learning how to ferment things. A lot of trial and error so far. Thanks"
03/11/2014: Mike62 from Denver replies: "Cindy: Dormant kefir grains cost $10 shipped at Amazon. Put them in 1 pint drinking water, 35g organic whole flour or 30g organic whole sugar, and let brew at room temp away from direct sunlight for approximately 4 days. 80 degrees is ideal. Sites say that kefir is delicate. The opposite is true. They are very hardy. They have been alive for longer than marine phyto plankton. I have fermented them from 50 to 100 degrees. The farther away from 80 the slower the brew. Periodically taste the water. The taste goes from water, to slightly sour, to sour, to vinegary. When sour they are fully awake. They do not like metal like spoons or strainers. Most people make theirs from sugar. Sugar costs more and does not have any protein or fiber. Some of the microbes end up in the water so they repopulate the digestive tract. The dosage is 60g sugar or 75g flour per quart drinking water. The flour is more because it has protein and fiber. Over many decades of experimentation by many people the right dose for carbs is 6%. 1 quart has 1000g water so 6% would be 60g carbs. I consider kefir to be the best remedy. The microbes change food that has more protons than electrons to fertilizer that has more electrons than protons. There is a lot more energy from 1 quart of kefir than in 75g of flour. The microbes change matter into energy. After making the 1 pint you can increase the dosage for the following batches."

Diet, Turmeric, Exercise

Approval Ratings
BETTER BUT NOT CURED (1)
100%

[BETTER BUT NOT CURED]  11/13/2012: Mary from Oakville, On, Ca: "I am so thankful I found this site. I thought I was going insane with all the negative tests and fine kidneys from the hospital... Until one smart doctor, tonight, told me I most likely have IC. I couldn't have more similar symptoms. I have had 5 years of recurrent UTIS and am 20 years old. It is, indeed, an awfully painful disease...

However, diet and tumeric are crucial to this matter. I'm surprised, however, a lot of you are disabled, yes, but, we all are well aware that exercise couldn't be more important. In order to strengthen the linings, we must strengthen the muscles... So, do your best! I find leg lifts reduce my pains, as well as running, more than any other exercise... Simply because running is generally beneficial cardio and leg lifts target the pelvic muscles.

I also did some research based on my past experiences and cranberry juice can very well make IC matters worsen, as well as D-Mannose. D-Mannose and cranberry juice are for milder urinary tract issues, but for severe matters, they can cause severe damage. If the case is severe, D-Mannose is known to stick to the bacterias, yes, but it can stick to the walls of our organs, obstructing practically every option of ridding/treating IC. Regardless, stay away from acidic and fatty foods, equally.

As for the flares, I have it right now as I'm typing, but walking truly does help, as working out reproduces healthy cells and bacteria. ALSO... VERY IMPORTANT. If you have a lot of stress, be sure to see the doctor. Anxiety is a major cause of my increased symptom pains, and if you are unaware of your psychology stability, it could very well be the underlying reason for your IC and many other illnesses. If you meditate with faith that your body is healing, then it will do just that, and the pain will reduce immediately. I have severe anxiety, so it'll work on anyone if you try and do it right. Just breathe and do your best to keep the symptoms down... Never stop researching... never stop believing and always remember it could be much, much worse! Much love and best regards to you all."

Dietary Changes

Approval Ratings
YEA (1)
100%

01/26/2013: Hannah from Paris, France: "Hi, I'm just wondering if anyone else with Interstitial Cystitis, that has been treating themselves primarily through diet and nutrition changes, has experienced mood swings as a symptom?"

Replies
11/01/2013: Sunny from Ca replies: "Yes moodswings, but because it also affects your mood and emotions, the pain and no sleep, pressure, social consequences, not being alble to eat foods ect. I also have mood swings close to my period like pms, I feel that the hormone changes affect IC very much.

Have you joined the IC network?

Pass love forward - Sunny"

[YEA]  12/14/2012: Hannah from Paris, France: "Hello all, I have what seems to be IC, and have had vaginal burning/itching/discomfort, pretty much everywhere and in every situation for the past two or three years.

I just recently eliminated acidic foods from my diet, since I'm trying to treat the IC, and I noticed the vaginal itching and burning has been gone completely since.

When I first started having vaginal pain, I did notice that certain foods, like chocolate would trigger almost immediate burning. This was before I developed IC symptoms.

Now, I notice the only time I've had burning or itching has been during or right before and/or after my period. I started taking coconut oil regularly (1 tsp in the morning and 1 at night) and I haven't had any burning or discomfort this cycle expect for the one day that I didn't take the coconut oil!

Everyone's body is different, and perhaps this isn't a solution for everyone... but for those of us that have really sensitive bodies (prone to IBS/vulvodynia etc) like me, I have a feeling that diet plays a really important role.

I wonder if trying to eliminate acidic foods for a while would help relieve the symptoms for other vulvodynia sufferers? I would recommend starting with the IC diet and then adding in foods little by little to find the real culprits... I was surprised when I realized I could eat dairy, which I thought was a big no no, but not oranges!

I guess what I realized was that food was playing a huge role in my suffering, maybe for some it has nothing to do with acid at all, but the burning is a symptom of another food sensitivity that could easily be eliminated.

I hope this is helpful to someone!"

Distilled Water, Potassium Iodide, DMSA

Approval Ratings
YEA (1)
100%

[YEA]  05/15/2013: Lisa from San Diego, Ca: "Interstitial Cystitis: Hi everybody! I have suffered terribly like so many of you with yeast infections and urinary problems. I found a solution after many hours of research. What works for me is 2 T of distilled water, 10 drops of potassium iodide and 10 drops of dmso in a small glass or ceramic bowl. I swirl it to mix and lay a tampon in it to absorb. I insert the tampon for 30-60 mins and all pain and inflammation is gone! Now when I feel a flare coming on, ( which I suspect it is from some kind of food), I treat myself. It works every time! I hope this helps!"

DMSO

Approval Ratings
YEA (2)
100%

[YEA]  04/06/2012: Britt from Harrisburg, Pa: "Hello, I'm 22 year old female suffering with a bad flare up of IC. For the past 2 years I've been getting DSMO treatments every 6 months (once a week for about 6 weeks). I've found these to be amazingly helpful. It's been about 8 months since my last treatments and that is why I think I have a bad flare up now.

I am able to drink coffee (sometimes) and basically anything I want for up for 6 months after the treatments and feel fine!

During this current bad flare up (the worst it's ever been) I've tried cinnamon pills, baking soda, and colliaded silver. So far cinnamon pills and baking soda may have helped a little and just took the silver so I'm not sure how that will work.

I would HIGHLY advise to get DSMO. The first treatment or 2 can be pretty painful in itself, but after that the results are so worth it.

Good luck everyone :)"

[YEA]  06/28/2008: Bret from Phoenix, Arizona: "You know, DMSO is approved by FDA for treatment of hemorragic cystitis. I about died when I confirmed this, as DMSO has be characterized as quackery by the medical powers that be. I don't understand why lesser forms of cystitis are not being catagorized as treatable with DMSO. My suspicion is that the hemoragic cystitis is so crippling and so evil that somebody with a heart at the FDA couldn't igonore the clinical research suggesting efficacy for this horrific illness. Cystitis has been called "autoimmune," naturally! By now many people reading this can predict that I will associate it with a virus or elusive infection.

How does DMSO work? Many, many theories but very few pertaining to viruses. It would be too simple and easy to say that DMSO best known as oxygen donor, attacks anaerobic viruses by depriving them of their anaerobic environment. This would be too easy! Too cheap!

Baking soda, I was skeptical at first about this broad range therapy. But, after reading so many,many testimonials from people not promoting themselves or selling anything, hell, I am about to write something about this cheap, simple remedy on my own research website. I will of course try it myself as I too am battling a chronic illness, a confirmed infection of the prostate.

Ted, in this regard has been benificial by taking the time a providing the chemistry to me which explains Baking soda's relationship to CO2.
Baking soda, higher urine ph, is in fact anti viral as viruses just love slightly acidic environments. Alkaline ph actually prevents viral transcription of RNA for replication. Base pair matching cannot happen at certain ph levels. Even in cancer. Whatever we believe causes cystitis one thing is for certain, once again, higher oxygen and higher ph are god sent remedies."

Replies
10/18/2011: Lauren from Northern Ca, Usa replies: "Do you mean DMSO medically inserted into the bladder? Or cream applied to the area? I love DMSO and would love more info on how you used it."
11/04/2013: Sunny from Ca replies: "Thank you for sharing this information. What do you think about the female prostate?"


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