Table of Contents
- QUESTIONS & ANSWERS
- Alkaline Ph
- Aloe Vera
- Aloe Vera, Vitamin C, Marshmallow Root
- Apple Cider Vinegar
- Apple Cider Vinegar and Hydrogen Peroxide Douche
- Apple Cider Vinegar, Baking Soda
- Baking Soda
- Baking Soda, Peppermint Extract
- Barley Milk
- Best Bottled Water
- Chondroitin, Glucosamine, MSM
- Coconut Oil, Coconut Water
- Colloidal Silver
- Dieary Changes
- Diet, Turmeric, Exercise
- Dietary Changes
- Distilled Water, Potassium Iodide, DMSA
- General Feedback
- Hydrogen Peroxide, Iodine, Organic Food
- Medications for Ic
- MSM, Vitamin C
- Multiple Remedies
- Pumpkin Seed Oil
- Reader Feedback
- Remedies Needed
- Turmeric and Lemon Juice
Interstitial cystitis is a painful, chronic condition in which the walls of the bladder are inflamed. Also called painful bladder syndrome, the condition does not have an evident cause, and it is often confused with bladder infections and other conditions with similar symptoms.
Common symptoms of interstitial cystitis include pain in the pelvis, discomfort during sex, and changes in urinary habits, specifically: more frequent urination, pain on urination, and intense bladder pressure.
Natural Cures: Since interstitial cystitis is essentially an inflammatory condition, an anti-inflammatory diet can help to provide long-term relief, while anti-inflammatory drugs can provide immediate relief. On the other hand, certain foods seem to trigger bladder discomfort. Acupuncture may offer a natural remedy for interstitial cystitis.
Our readers offer information and opinions on Earth Clinic, not as a substitute for professional medical prevention, diagnosis, or treatment. Please consult with your physician, pharmacist, or health care provider before taking any home remedies or supplements or following any treatment suggested by anyone on this site. Only your health care provider, personal physician, or pharmacist can provide you with advice on what is safe and effective for your unique needs or diagnose your particular medical history.
[YEA] 08/02/2008: Deborah from Riverview, Fl: "Deb for your IC please get some Ph paper and test your urine. You want it alkaline, not acidic. Check it all day long. I think you might have a fungal growth. To kill it and get alkaline take 400mg of potassium citrate 3 times a day. Also take 1/4 tsp. borax, 1/8 to 1/4 tsp. baking soda and 1 to 2 tbls apple cider vinegar in a little water. Take it 3 times a day. You can drink some plain water after it to wash it down. The fungus won't like this and you may feel worse, before you get better, please stick with it and stay away from all sugars. I can now go 2 to 3 hours without going to the bathroom and only get up 3 times at night, it use to be every 20 minutes. Good luck and I will pray for you."Replies
04/16/2009: Anjie from Goodlettsville, TN replies: "Please help me understand this. I was told 3 weeks ago that I probably had I.C. UGH!!!!! My Dr. gave me Enanblex and the run down on this disease and told me to check several websites and support groups on how to deal with this. His nurse said it all to do with what I ate and if I ate something acidic to do the baking soda trick. It didn't help as a matter of fact it seem to get worse and my urine then had a foul odor with some pus in it. I finally convinced my Neurologist not my gyno to put me on antibiotics (even though the urinalysis was negative)and it seem to start getting better right away. Does any body else have this problem? I did find that you can use _____ to remove the acid from foods and it comes in a oral tablet & a granule formula to put in foods that you are cooking.I feel like I need to find a different Dr. because he wasn't very helpful and basically told me to talk to the internet if I had a problem. Any feed back would be so helpful."
05/03/2009: Elizabeth from Nashville, TN replies: "This is for Angie from Goodlettsville, TN that suffers from IC...if you had pus in your urine than it sounds like an infection to me. My urologist said that the does not rely on the urinalysis done in the office because they can be unreliable. He always sends them out to be cultured. I would definitely get a second opinion if I were you. I would much rather have UTI's which can be cleared up rather than IC which is a chronic condition. Best of luck to you."
07/01/2009: Pooky from San Diego, Ca replies: "potassium???!!! that would kill an ic patient. An ic patient cant get alkalined with acids. it would kill them!!! The potassium test is a test to see if you have ic. If you are crying after it you have ic. it's a cruel test."
07/26/2009: Susan from Grand Rapids, MI replies: "I have had IC for 19 years so I have a lot of experience dealing with it. When I first came down with it I also noticed that antibiotics relieved my symptoms, so I kept going to the doctor and begging for antibiotics. Whatever causes it is some kind of virulent fungus. What has worked best for me is ___ ____ [anti-candida supplement] and colloidal silver."
01/14/2011: Diane from Ottumwa, Iowa, Usa replies: "For I. C. , look at a particular form of calcium called Calcium Glycerophosphate, (brand is P______.) good luck everyone.
06/05/2011: Renae from Mpls, Mn replies: "Calcium Citrate alkolizes urine while giving you calcium you need anyway. Search on Google " "Calcium citrate" "urine PH" " Plus you can put them in your purse. I use 4/day (The recomended dose), one per meal and 1 w/small snack b4 bed. (Purchase w/Magnesium in the pill also, or you can get constipated. ) Test w/ph paper if you like. Works like a charm, while providing what we need anyway-strong bones. I hear to always take calcium w/food for best absorption. 1st time I took them, I tested PH and wow very alkaline. Pain went way down. After taking for 3 weeks, I was pain free, but still on the IC diet, but starting to cheat a little with good results. (salty foods good now, I couldn't eat blueberries b4, can drink white wine now) Sleeping well (up 2x- was up to 10x), and able to wait to go for over 1.5 hrs now."
06/16/2011: Lisa from Hastings, Mn replies: "Yes. I agree. Calcium Citrate did the trick. And Fast. Pain gone almost right way and permanently. I can eat much larger variety after only a few days. Staying off citrus and tomato sauce because I don't want to push it, as I am back on low acid caffeinated coffee after only 2 wks and I am afraid to push it. I need the caffeine more to get to work. I am also back on chocolate. If I take it on an empty stomach though I get nauseous! I take 3 to 4 per day. If I take 4 I get dry lips though. PH of urine is VERY alkaline."
[BETTER BUT NOT CURED] 07/12/2011: Renae from Mpls, Mn replies: "Update: still have IC as a problem even w/calcium and mag. Not cured. Can't open up diet much, but constant pain gone. Took awhile to get the correct calcium to magnesium ratio. As I have fibro and that got bad (as did constipation) on just the calcium citrate (w/the little magnesium oxide that was in the capsel) so had to add more magnesium oxide , but adding too much caused diarrhea. After finetuning this I still need to move on to do more w/glucosamine and condritan, but have a hard time taking that due to gastro issues. I am going to try some "manesium citrate and ozide", together as I keep reading about how the citrate changes urine PH to alkaline."
10/11/2011: Sandi from Clarksville, Tn replies: "I just read your post, even thought it was written about 2 years go. I hope that you are doing much better. Just wanted to let you know that you live very close to one of the best doctors in the country. Dr. Barry Jarnagin is absolutely awesome. Just Google his name and you will be very impressed. I cannot say enough great things about how wonderful he is. Not only did he help me get my IC under control, he also diagnosed a hernia that everyone else missed. Feel free to email me if you need to chat."
10/23/2011: Bobbie from Hartsville, Sc replies: "I read your post here and am interested, I've had IC in 2003- 04 for about a year, Sat before last it started back... I'm just sooo depressed about this and in pain most of the time. I've been through all that back then, and can't tolerate the idea of going through all that again.
We thought it my just be a regular UTI but now I'm thinking it''s IC back. Burning, pain, and urgency. Thanks, Bobbie."
04/19/2012: Ali from Brisbane, Qld Australia replies: "I had recurrent cystitus for 30 years. Got to the point where I could not have sex without getting it. I would also get it if I got too dehydrated. Doctors advice did not prevent the attacks. I had to help myself, I cured myself by using a mild antibacterial cream instead of KY jelly before sex for six months. I have not had an attack since and that was 5 years ago. Sounds simple, but it worked. If you are into more natural methods you could try ACI-JEL which is just vinegar in a cream. You can also try 1/4 tsp of bicarb with water twice a day to keep you alkaline, as the problem thrives in an acid conditions. Good luck to all you long sufferers, my heart goes out to you."
01/03/2013: Sueb from Potsdam, New York Usa replies: "To ALi from AUstraila, could you PLEASE tell me what kind of mild antibacterial cream you used. is it specifically for the vagina or intercourse? Thank you."
02/10/2013: Helisphere from Raymond, Wa replies: "I have to say that I haven't seen anyone mention digestive issues as being a root cause for IC, but in my research of IC I have found that it may well be caused by digestive tract problems, not urinary tract problems. Some of you may want to consider dumping your urologist and finding a good gastroenterologist or other digestive specialist. Many of you may just be on the wrong tract if the root cause is indeed in the digestive tract. Search for IBD and IC together and see what you find."
02/10/2013: Grandma from Narooma, Nsw Australia replies: "On the subject of cystitis, about 25 years ago I had chronic cystitis, bled from the bladder each time and life was pretty tough. Try holding down a job while suffering a bout! After 7 doctors and 3 surgeons, and the only solution seemed to be live on antibiotics for the rest of my life, (plus one doc who inferred that I might get help from a psychiatrist! ) I walked away and began my own long journey into natural solutions. It's right that cystitus is more about the digestion than the urinary tract. What I've found it's caused by candida yeast overgrowth (Candidiasis). Due to poor digestion from this, grains and dairy in particular clog the whole digestive system especially the bowel, and feed the yeast while the good bacteria are smothered. Remove grains and dairy from the diet, clean the build up of 'sludge' through the system by eating a small piece of cabbage each day to cleanse and heal the digestive system. You may suffer bloating and wind for 2-3 days but that's the cabbage doing its job.
Because candida is a small plant its roots reach through the bowel wall into places like the bladder, cruising the blood stream, creating itchy nose, ears, rear area, skin problems, general havoc. The more antibiotics they fill us with, the more the candida yeast is happy and grows. I've been free now for more than 20 years after being told by a lady doctor that it's something that many women get and have for life. I have it and I'd better get used to it! A couple of other things to note - it's best to stay away from oranges, mandarins, peaches, nectarines, apricots and pineapple until the whole inflamed system is healed because they can be an irritant. After some 3-5 years of living on lots of fresh vegetable juices, raw fruit, vegetables, nuts and dried fruits I found I could eat any fruit or vegetable I liked with no affect. My husband and I still live this way today having raised our family on the above diet. Juicing and a raw food diet will help to heal any health problem without fail. We're all basically suffering from malnutrition and toxic chemical overload. I wish you good health."
02/15/2013: Mar from Sunrise, Florida replies: "Hi, I am very happy to know that you are healed from IC. I like you believe that there is a cure in healthy eating. How much cabbage do you eat? Do you juice it? How lomg did it take for you to start feeling better? Thanks for sharing that information."
06/16/2011: Pinklight from New Orleans, Louisiana: "I am interested to know if anyone has used a special aloe vera formula for ic available from two particular companies that are online. These aloe capsules are formulated specifically and takes 2-3 months to cure, not treat ic. Both companies have the word "harvest" in them.
07/29/2011: Nettie from Chicago, Il replies: "I have used a supplement from evenbetternow.com for my IC (I think it's called Buffer Ph). It has aloe vera in it and alkalizes your ph if you are acid, which was part of my problem. I tested my ph and was as acidic as one can get. Bad news and dangerous. I take 2 caps 3X per day on an empty stomach. I also take a multi-vitamin, vitamin D, Calcium, Magnesium, high dose Omega 3, probiotics and some supplements that my acupuncturist gave me. I get acupuncture once per week. It's been a life saver. Along with the IC, I also had problems with chronic UTI's, which I cured by taking Inner Defense capsules from the essential oil company, Youngliving. Before starting on the essential oils, I was taking antibiotics all the time and they were making me more and more sick. The ant-bacterial essential oils got me off of the antibiotic cycle and have helped to strengthen my immune system."
[NAY] 09/02/2011: Renae from Hastings, Mn replies: "http://www.buzzle.com/articles/side-effects-of-using-aloe-vera.html
Don't listen to "aloe has no side effects" Not true.
I have tried the Harvest Aloe. Severe gas, gut ache. Not everyone can use it. They give you a sample of 6 pills for free. 1/8 th of one pill gives me severe problems. Can't use. I have a history of IBS. I eat no sugar, gluten, dairy, alcholol due to IBS.
Many people are helped according to their website. Not me."
[NAY] 04/20/2012: Gianna from Costa Mesa, Ca replies: "I started using freeze dried aloe vera capsules for my mild IC, which I have had for 10 years now and can't seem to find a remedy :( Anyhow, I took 2 capsules 3x a day and I really didn't see any signs of improvement."
05/28/2012: Shampoo from Los Angeles, California replies: "Ok, Ive read Aloe Vera doesnt really work per se, but you need the concentrated freeze dried Aloe Vera from Desert Lily or something, I forget the name. Its expensive, but worth it, I guess, Ive heard of women being able to return to work, by taking 3 to 4 pills a day. Also, Colostrum, along with other herbal supplements(marshmallow root, quercitine, etc) has put some people in remission. One lady I read, buys MSM powder every month, and takes quit a bit thru out the day, and it takes care of the pain 75%. You can either put it in empty Gel caps, or take it in water or juice. Also, Turmeric is supposed to be very helpful. Several caps a day.
Ok, I thought I had Interstitial Cystitus, and since Im very prone to UTI's and I get them all the time, I finally did some kind of damage to my bladder from all the infections, or the cures, cuz I take vitamin c and drink apple cidar vinegar like its my job, and I figured I burnt my bladder lining or something, anywhoo....
My conclusion is that this maybe, perhaps, most probably, in many cases (not all), interstitial cystitus is an infection of some kind, that wont go away for whatever reason. The ecoli, has embedded itself in your bladder lining or something. Cuz I started taking essential oils, and it got 85% better.
Try Thieves oil, 3 drops a day, every day for a month. Its expensive, but im planning on buying it next month, since Ive used other oils with success, and Ive read great things online about it."
Aloe Vera, Vitamin C, Marshmallow Root
[BETTER BUT NOT CURED] 11/29/2009: Karen from Riverside, California: "IC Home Remedies
I have a mild case of IC and hoping is doesn't worsen. I notice that stress, spicey foods and menstral cycle provokes flare ups.
I am curious if the apple cider vinegar will really help prevent IC or if it is toooo acidic???
My home remedies for IC are: aloe vera juice (very concentrated) daily, Buffered Vit C, marshallow roots boiled as tea to neutralize urine for temporary and effective relief, the product called "___" for temporary relief, and pin pointing and relaxing specific abdomen muscles. The aloe vera juice seems to be very effective.
I would also like to try the baking soda and will keep it on hand at work for emergency relief. My father has always used the baking soda for stomach pain."
04/08/2010: Wendy from Toronto, Ontario replies: "I have found the Marshallow Root to be very helpful for flare-ups. The Baking Soda did not help me but Apple Cider Vinager has been helpful. I get flare-ups the same as you - stress, certain foods and during that time of the month. I am also prone to bladder infections and collidoial silver has been helpful for these."
Apple Cider Vinegar
[WORKED TEMPORARILY] 01/11/2009: Nancy from Charlotte, North Carolina: "i have suffered from IC for the past 10 years. it has caused extreme, constant pain bringing on bouts of depression i never had. i had read about apple cider vinegar and its benefits. over holidays, tried it, two tablespoons in an 8 ounce glass of water twice a week. for a week i was virtually pain free and realized it had to be the vinegar. walked today and am hurting. does anyone else hurt after walking? took baking soda, 1/2 tablespoon to 8 ounces of water for relief. this seems to help for a "quickie relief". IC is a horrible disease that gives you pain 24 hours a day. have seen four urologists in four states. elmiron did not help. when pain is really bad lasts too long i do have percoset for my migraines that is a last resort. it gives me a day of relief. working and just living are difficult with this constant pain. hoping the vinegar will continue to help. any other folks finding that vinegar relieves? doctors send me in the same circle, cystoscopes, CT scans, cultures, different meds like Urelle. i've spent a fortune."Replies
08/27/2010: Molly from Madison, Sd replies: "I have had IC for quite sometime. I am going to a chiropractor now (not your typical one) and he is treating me with laser treatments and acupuncture. It seems to be helping, but I did just start. You may want to give that a try. I've had more problems solved/questions answered going this route than I have for the past 6 years plus of doctor visits, tests, and "treatments"."
01/13/2011: Vegathegreat from Charlotte, Nc replies: "I am also in Charlotte. You should go see Dr. Robert Evans in Greensboro, NC. He's one of the foremost IC experts in the country, and is extremely knowledgeable."
02/02/2013: Paolaic from Springfield, Va replies: "His goes to Molly from Madison: how did the laser treatments work with this Chiro? I'm doing stuff that may be similar with a chiro in AZ. PLEASE respond... Very curious!!!"
Apple Cider Vinegar and Hydrogen Peroxide Douche
05/21/2011: Pinklight from New Orleans, Louisiana United States: "I am greatly interested in anyone who read about an equal parts Apple Cider Vinegar and hydrogen peroxide douche that reduced or cured ic. My issue is the frequent urination day and night. I tried this concoction today and it burned so badly I could not really do it. It may have been the Apple Cider Vinegar that caused the burning; I'm just not sure. Has anyone tried this? If so, did you end up having to dilute the recipe with water and it still worked? I'm anxious to know. Thanks for any replies! -Pinklight"Replies
08/23/2011: Rabm from Austin, Tx replies: "Hi New Orleans, Did the douche work for you? Are you still having pain? rabm"
01/24/2012: Natalie from Pittsburg, Ks replies: "Hi RABM, I am going to try the douche, hoping it works but I was wondering, what do you use to douche? Do you buy a douche at Walmart or where would you get the supplies to douche. Sorry I have never done this before but REALLY want to get relief without the extreme diet and pills. Thanks so much. Natalie"
05/08/2013: Abc123 from Help, Me replies: "Did the apple cider vinegar/peroxide douche help with the frequency and constant urge to urinate?"
[YEA] 09/04/2010: Cherieh. from Odessa, Texas, Usa: "I was diagnosed with Interstitial Cystitis more than 2 years ago and it's been excruciating. Having been told there is no cure, and after many painful and expensive treatments I had to be my own health care advocate. A couple of months ago I began to douche 2x a day... Morning and afternoon... Using equal parts apple cider vinegar and hydrogen peroxide. (Do NOT douche in the evening or the hydrogen peroxide will keep you from sleeping. ) Within 4 days, the constant urge to urinate was completely GONE and I was able to discontinue the Flo*** I was taking to help me urinate. After the second week, I was able to discontinue taking El***** because all my symptoms of I. C. disappeared! My doctor is utterly amazed and telling his other I. C. Patients. I am able to eat anything I want (with the exception of beets and hibiscus tea) without fear of a flare up. I have my life back!!!! Amazing that the help I needed was under my roof the whole time. I am still douching 2x a day as of today."Replies
09/12/2010: Greatful from Frisco, Texas replies: "Wow, Thank you for sharing I am going to try this right away!!!"
09/20/2010: Silliesyl from Long Beach, Ca replies: "Hello I am in so much agony with my ic and have been trying everything. Just wanted to know how soon you got relief?"
09/21/2010: Zsaqwe from Brownsville, Texas replies: "I think DMSO is for interstitial cystitis. CVS pharmacy might have it for that condition. I got it from the web. DMSO, although it is not approved by the FDA for anything except an obscure bladder condition (interstitial cystitis), is widely used in sports medicine. Professional sports in particular are obligated to use DMSO to get their athletes recovered from injury and back on the playing field. Each team knows the competition will use it, and this would mean a tremendous advantage for the other team, if it were to be ignored. Combine that with the fact that DMSO is as safe as it is effective (unlike large-dose steroid injections, which were once commonly used in professional sports) and its use becomes mandatory in professional sports medicine. When you consider the fact that DMSO is not a new and patentable drug, is cheap, safe and effective, and knowing what you should know about the medical establishment in the U. S. , you could predict with your eyes closed that there is a propaganda campaign against DMSO. The FDA has done nothing except drag its feet in DMSO research since October 25, 1963 when the first research application to study DMSO was filed with that agency. I got the information from: The Doctors' Medical Library by Ron Kennedy, M. D. , Santa Rosa, CA"
09/21/2010: Elizabeth from Nashville, Tn replies: "That is wonderful to hear! I also had suffered from IC and never once thought to look in that area until I read this article:
"Researchers Ruben Gittes, MD and Robert Nakamura, MD, of the Scripps Clinic and Research Foundation recently published a research study on Female Urethral Syndrome: A Female Prostatis" in the May 1996 issue of WJM. Their studies have conclusively proven that women do indeed have a set glands, the paraurethral glands, which are homologues of the male prostate. In the abstract for their research project, they state "The most important aspect of recognizing this microscopic 'female prostate' as an anatomical feature is that it's infections may completely explain many cases of the urethral syndrome."
I noticed my symptoms decreasing when I started using boric acid capsules for my recurring bv/yeast infections. I noticed within weeks that my IC symptoms improved dramatically. I now use a verrrry diluted oregano oil for my vaginal health and guess what???? No IC symptoms.... I take my daily turmeric just in case (it's a great anti-inflammatory) I just thank the Lord that I found Earthclinic over a year ago. I have found soooo many awesome remedies that WORK!"
09/22/2010: Rs from San Francisco, Ca replies: "I also tried all the remedies for BV and also had continuous bladder infections (so I thought) most likely caused by douching with H20 and H202. I read about the boric acid capsules and quickly bought boric acid and veggie caps and made my own (very cheap). I inserted one capsule nightly for about 3-4 nights and it was gone. Totally gone, and like you, I never had another bladder infection again, which I later found out was I.C. And I never knew it. I also believe that the boric acid capsule cured the I.C. When I feel the BV or the I.C. coming on, I immediately insert a boric acid capsule and its totally gone. I also highly reccommend liquid colloidal silver for I.C. I read about it on this site for treating I.C. And also make that a daily part of my regimen. The first day I took the liquid colloidal silver I felt all my I.C. Symptoms go away. I take it everyday now without fail and no pain, everything is back to normal. I also take large doses of super cranberry extract everyday just to be sure I have everything covered. It may be over kill, but its better than dealing with the pain and discomfort of I.C. And BV on a daily basis. Thanks for your comment and thank your Earthclinic for helping me and others."
09/28/2010: Melisa from Odessa , Texas replies: "What doctor here in Odessa do you see for IC?"
11/27/2010: Alex from Yorba Linda, California replies: "To: Rs from San Francisco, Ca I wanted to undesrtand correctly... U insert the Boric Acid in the vigina? I want to make sure I am understanding the note u posted. Thank u so much. Alex"
02/08/2011: Lauren from Los Angeles, Ca replies: "Hey ladies, I developed "IC" after a miscarriage last year. A doc put me on various types of antibiotics (which always made my bladder feel better) for ureaplasma and possible Lyme disease; I have not had a positive urine culture since the onset of my "IC". Because of the antibiotics I got yeast infections a lot. Frustrated, I began douching with peroxide and - SURPRISE!!! My constant bladder symptoms (urgency, frequency, burning, pressure) and pain during intercourse were nearly erased!! So I ordered a vaginal test to figure out why. It showed that I don't have BV at all and very little yeast, but a serious overgrowth of group B strep (4 on a scale of 0-4 !! ) an antibiotic and herbal sensitivity test was done, showing all antibiotics to work, and also oregano and colloidal silver.
I'm currently trying oregano mixed with coconut oil (so I can mold it into a suppository and it wont sting). My doc says the herbals are better for vaginal problems because antibiotics kill off the lactobacillus/bifidobacterium, allowing infectious bacteria to return stronger. Whats interesting is I tested negative for group B strep while pregnant with my son 3 years ago.
Also, I noticed while using the antibiotics, kefir or any other cultured milk was the only product that seemed to truly have live and active bacteria. If I drank this, my stomach was fine. But with probiotic capsules, regular yogurt, my stomach was NOT happy! I hope this helps someone!! I'll keep you guys updated! "
02/25/2011: Shawna from Bronson, Mi replies: "I want to say thank you for this idea. I have been battleing urinary issues since just before Thanksgiving. These issues include constant burning, pressure and really bad spasms. Tests continue to be negative for infection. I've been on antibiotic off and on the whole time and __viaz for about a month, still no relief. Pain so bad at time I can't get out of bed, sleep in a recliner with pillows between my legs and have been off work for over a month. Running to the bathroom 30 or 40 times a day and 8-12 times at night has foreced me to hybernate. I started using the half perioxide half apple cider douche 3 days ago and drinking lemon juice with honey also and feel like a new person. Only getting up 1-2 times at night is awesome and I no longer feel the spasms or my bladder hardening. I quit taking my scripts yesterday and can not wait to go back in next week and find out the results of my scope and udi test. But am so thankful you shared this remedy."
[BETTER BUT NOT CURED] 03/04/2011: Lauren from Los Angeles, Ca replies: "I too started douching w/ peroxide and vinegar due to a stubborn yeast infection and- voila!! IC symptoms (burning, pressure, pain, frequency) were soooo much better. So I douched for about 2 months, but it kept coming back quickly unless I douched every few hours. I learned I have a very heavy growth of group B strep in my vagina (tested negative for it 3 years ago, before IC started). So this explains why antibiotics always made my bladder feel better, but after I stopped i'd get a major flare-up (good bacteria killed off enabled bad ones to proliferate more).
Currently having luck with boric acid. I insert a "00" size veggie cap full of it at least once a day, and also a cap full of kefir cultured milk to repopulate good bacteria."
07/01/2011: Gloria from Yucca Valley, Ca replies: "Do all of you use boric acid, or is this a mistake, and you meant to say borax (which kills fungus?) I thought boric acid was poisonous."
07/07/2011: Mary from Hastings, Mn replies: "It's something that dehydrates the tissues. I have noticed this, when I have done it. It will also burn if done too frequently. It is used for bugs. They lick it off their feet and they get dehydrated and die. I suggest to use in an emergency only."
08/15/2011: Doodlelady from Westfield, In replies: "Can you please tell me what the ratio of Hydrogen Peroxide - Apple Cider Vinegar is for this douche? Also is it mixed with anything else ie...wWater. What do you use to douche with... Sorry for all the questions. I have IC, and have been suffering since I was 21, and I'm 46 now. I had yeast infections on and off my whole life, but have been testing negative for years now, but I do have itching. Also would the Boric Acid work better than the douche? Can you use the oregano oil vaginally? This sounds like overkill though. I could not tolerate the oregano oil capsules because it upset my GERD/Acid Reflux... Thanks for all the wonderful information..."
09/15/2011: Mary from Hastings, Mn replies: "Boric acid capsels can be premade for emergencies and kept with you. I fill only to 1/2 full or I can get a burning sensation. I put them in my purse in case I flair and have to drive a long way, or fly on a plane all day. They can be inserted in any restroom really fast if you have your purse with you. I premake a few for if I can't sleep due to pain and urgency, and I want quick relief. Works in 15 min to 1/2 hr for me. Keep with the tampons in your purse. It can save a vacation, or a dinner out, that's for sure!"
01/30/2012: Natalie from Pittsburg, Ks replies: "To Cherieh: I have started the douching and it is amazingly helping alot. My question is, do you douche during your period? I know this is an older post but I hope someone has an answer for this one. Thanks for the the great info everyone! Natalie"
02/23/2012: Julianna from Three Rivers, Mi replies: "Hi all - just something to add for stomach issues, acid reflux.... Try digestive enzymes for your stomach. The chewable papaya enzymes are easy to take. order them from www.drugstore.com for the best price. It should help with your acid reflux/stomach issues. It's not recommended if you have IBS or Crohn's however."
Apple Cider Vinegar, Baking Soda
[QUESTION] 08/05/2009: Ga Girl from Villa Rica, Georgia: "IC and High Blood Pressure
Hi, I looked to see if i could find a question similar and couldn't find one... please excuse me if there is already (and kindly direct me to it). I started taking ACV with honey 2x/day morning and evening after my mom in law told me about it. Her mom has been taking it for yrs and is rarely sick. It was great until my IC started acting up. My bladder was throwing terrible fits. I looked on your website and did the baking soda thing and it helped so much. I also went out and got an over the counter pill that my OB/GYN had suggested back when my IC was flaired up and initially diagnosed. on monday i went to the doctor and was told my cholesterol and triglycerides were high (total cholesterol was 232). I am 33 yrs old and not very active at the moment, plus i have a desk job. I know i need to modify my diet and get some excercise.
My question is this: I was wondering, if i mix the baking soda with the ACV, like i saw in another post, will I still get all the benefits of the ACV (such as lowering my cholesterol) without it causing my bladder to flare up? And is the baking soda safe to take everyday?
I don't want to go on any medications...anything i can do naturally is the way to go for me. I was also recommended by a friend to take 2 oat bran tabs 2x/day... it helped her lower her cholesterol 30 pts. I am going to get some of those today.
01/06/2012: Mary from Tucson, Az, United States: "I have had IC for 30 years. My main pain triggers are vinegar, lemon, citric acid, acidic foods, vitamin C, some of the B vitamins. I am unable to take any products with citrates, orotates, asporotates. The perfect remedy for me is 1/8 tsp. Baking soda (I use nonaluminum product from health store) mixed into very warm water. Usually pain subsides within the hour. If not, I take another 1/8 tsp. It is important to read labels carefully because many products contain triggers. My flare will occur within hours of eating a substance so I have learned that even small amounts of vinegar in mayonaise and salad dressing can be a problem. Before I reached menopause, hormones (I believe estrogen) were a trigger as well. That occurred at onset of menstrual cycle. An over the counter product for vaginal burning was very helpful to me at that time. It contained Benzocaine for numbing. I would only use for extreme pain though because it contains parabans, etc.
I learned these are common causes of flares at the IC website: Vitamin C, some B vitamins, the hormone Estrogen, acidic foods. Unfortunately, I suffered many years before I found what was helpful for my flares. Now I forget that I even have IC because I can treat it so easily. I'm hoping this will be helpful to someone."Replies
[NAY] 05/28/2012: Shampoo from Los Angeles, California replies: "Doesnt work. I did a half teaspoon every 2 hours with a ton of water for two days and it did NOTHING for me except made me sick. Absolutely nothing, and baking soda can be dangerous in large amounts."
[YEA] 07/21/2012: Aunt Jan from Verdigre, Ne. replies: "I have had severe bladder problems for well over 5 years now and just recently been DX. With Interstitial Cystitis. My problems kept getting worse and worse and even though my doctor started me on Elmiron most of you know that it only works in 30% of patients and takes about 4 months just to see if it will work. I got on the internet and began reading and one day I ran accross the 1/8 tsp of baking soda and I told my husband the next time the pain starts I'm going to try it.
I didn't have to wait long and I tried the baking soda and within one hour the pain and frequency were gone. I have now used that on several occasions and for me it stopped the pain within the hour a simple miracle. CHEAP 1/8tsp in a very warm glass of water. Not particularly taste so now I put the 1/8 tsp in a gelatin capsule and I take it with the larage glass of warm water and golly gee, pain free within the hour. I know that everyone is different, thats for sure but this has to be a first try for everyone suffering like I was and like most things we take RX's they are costly and have all kinds of side effects, this is easy, cheap and it works great if not what have you lost. I encourage each of you to give it a try. Thanks for allowing me to tell my story, I hope it helps just one IC patient."
07/23/2012: Plumhappy from Eugene, Oregon replies: "Am curious with that much pain, are you following the diet precribed for IC, ie. Avoiding high acid foods, etc. I have IC and as long as I leave the offending foods alone and take MSM, I experience no pain, occassional "sensation" for lack of better term."
07/24/2012: Ducklucky from Monroe, Maine, Usa replies: "You have to be careful if you have any other conditions. My hub has severe IC, but also has history of pulmonary embolism and deep vein thrombosis, and he retains fluid, so has to take blood thinners and water pills. Too much sodium swells him right up and can lead to CHF. So just a warning to others who may have any of these conditions to take it easy or avoid the baking soda."
[YEA] 02/08/2008: Elizabeth from Memphis, TN: "I have chronic bladder problems (Interstitial Cystitis) and am always looking for something to make it better. I drank 1/2 tsp of baking soda in some water during the worst possible bladder pain ever. In 15 minutes the pain was gone. I feel that the baking soda made the urine less acidic and that let my bladder be less irritated. Anyway, baking soda did what hundreds of dollars of meds could not do--make me feel better! Elizabeth"
Baking Soda, Peppermint Extract
[YEA] 10/30/2011: Sharron from Grove, Ok Oklahoma: "I've been suffering a terrible flare of IC. Apparently, I've had it for years, although I just learned about it recently. I've adjusted my diet to eliminate all acidic type foods. Onions appear to have been a particularly bad thing for me, and I used to eat them all the time! Anyway, I'm still recovering from this flare -- it's been two weeks now that it's been bad. I came on the EC site about a week ago and read separate posts about peppermint tea and baking soda. Well, what I've discovered is that both of those things help me. However, what seems to help me best when I'm having a lot of pain and urgency is 1/2 teaspoon baking soda and a few drops of stevia extract mixed with either 7 drops of peppermint extract (not oil) OR a strong-brewed cup of peppermint (leaf) tea. Within minutes I'm feeling better. If it is during the night, I'm able to go back to sleep right away instead of laying awake with stabbing pain in my abdomen.
Additionally, I've lost 6 pounds in a week. I think it is related to all the inflammation that the IC was causing. I hope that it will continue!
I hope my little remedy will help others who are suffering. Thanks for a great site. I almost always come here first when I need a remedy for something.
11/25/2010: Mel from Portland, Or: "Whole Barley Milk with MSM Recipe
This recipe is very easy and cheap to make. Whole barley flour can usually be purchased from a health food store or ordered online for about $2/lb. The cheapest source of pure MSM powder I have found is an online bulk food supply site for $9.71/lb, and it lasts a really long time. Even if you omit MSM from the recipe, it is still wonderfully soothing and healing. Whole barley milk is smooth, creamy, and easy to drink. Personally, I find it tasty. It is a perfect beverage for mixing in other supplements such as ph drops, aloe, condroitin, d-mannose, liquid calcium, etc. It makes a nice smoothie shaken-up with 100% blueberry juice. I have been drinking about a quart of whole barley milk a day and it has helped me greatly. I recommend it for any one wanting to improve their health, especially those suffering with IC, UTIs, arthritis, or heartburn. Like marshmallow root water, barley water is demulcent. It is purportedly soothing and healing to soft tissues, such as internal organ linings and soft tissues surrounding joints throughout the body. Water boiled from barley has been used for digestive health and general soothing tonic for centuries. Whole barley is rich in fiber and good for cholesterol health. I usually triple this recipe, making three quarts at a time. Ingredients:
2 tablespoons whole barley flour, organic preferred, - not coarsely ground
1 pinch sea salt, optional
1 tablespoon raw honey or organic agave syrup, optional
1 tablespoon safflower, grapeseed, or coconut oil; cold-pressed/organic preferred
1 level teaspoon pure MSM powder
4 cups cold water
Have a clean quart jar and lid handy for each quart of milk being prepared. In a good non-reactive saucepan, whisk the barley flour into 3 cups of the cold water, and heat over medium-low heat, stirring regularly until steaming. Do not boil. Whisk or shake the MSM into the remain 1 cup of water, and set aside. Add salt and honey or agave to the saucepan, if desired. Continue to heat and stir until thickened (about 5 to 10 minutes). It should look something like skim milk the consistency of heavy cream, and should be well heated like hot soup. Remove from heat. Whisk in oil. Whisk in MSM mixture. Pour un-cooled into clean quart jar, cap and refrigerate. Chill barley milk overnight before using. This allows fine barley particles to fully absorb liquid. Shake well before serving. If you prefer a thinner beverage, mix with water or blueberry juice. Keep stored barley milk refrigerated and use within a week. Notes about adding other supplements: A single serving size (as directed) of supplements such as ph drops, liquid condroitin, and/or d-mannose powder may be mixed in the last cup of water along with the MSM, before incorporating into the barley milk and refridgerating. Heat sensitive supplements - such as Aloe, or supplements that should not be taken near bedtime - such as liquid calcium, may be added when serving, if desired.
I am a 38 yrs old. I believe that I have had too much acid in my system my whole life, both as a result of diet and exacerbated by times of stress. As I approach middle age, soft tissues throughout my body are suffering, especially my bladder lining and those involving my joints. I have been a natural foods junkie most of my adult life - but unfortunately I also had a serious daily habit for all things extremely spicy and sour, as well as copious amounts of caffeinated tea. I also drank alcohol and smoked cigarettes socially. For bodily comfort, I have omitted these things from my diet/habits. General stress reduction is also a must. Yoga helps! Best of luck and health!"
11/29/2010: Ziggy from Franklin, Pa replies: "I have read your post & see that you suffer from ic & joint pain. I am currently going thru the same thing at this time. Do you know why you have the joint pain. Just curious to know if you found out anything. Thanks so much!"
[YEA] 12/22/2010: Mel from Portland, Or replies: "I can not say for sure if there is a direct link between my personal joint pain and I.C. , however, I believe they are indeed related. I believe they are related because first because the dietary/supplement remedies that help one always seem to help the other. And correspondingly, when one is flaring, so is the other. I believe that they are conditions both exacerbated by high acidity in the system, either as a result of diet, or stress, or both. These are the dietary items I have found that seem to give me comfort, relief, and healing... -barley water, and barley milk
-eastern barley (also known as hato mugi, jobs tears, coix), also as water or milk
-unflavored gelatin, mixed with cold water, then dissolved in tea or hot water and drunk or added to kefir, nondairy drink, or low-acid juice
-agar, used with beverages the same way as gelatin, above
-whole grain hemp seed milk
-whole grain unsweetened brown rice milk
-whole mixed grain nondairy beverage (a healthfood chain sells one with quinoa and amaranth)
-coconut water/juice (all natural)
-marshmallow root tea
-soaked basil seed drink (all natural/homemade)
-fresh broccoli and kale sprouts
If there is anything above you have not heard of, search it online and you will find info. I am doing very well after changing my diet and drinking plenty of the assorted beverages listed here. Good luck!"
05/17/2011: Jen from Portland, Or replies: "Mel, I am not sure if you will see this since you wrote a year ago here. I just found out I have IC and am wondering if you are still doing well from your changes and barley milk? I live in Portland too. Thanks"
09/02/2011: Renae from Hastings, Mn replies: "http://wellbladder.com/bladder_symptoms__gluten_sensitivity
I feel better off gluten. Barley is gluten."
10/31/2011: Lynne from Titusville, Pa replies: "Mel I also am curious if you are still doing well and what kind of bladder pain was yours cause mine is burning, pulsing pain in my bladder and back that has been 24/7 since 2006, and is the barley milk healing to the bladder? This pain is so horrrible I would like to try the milk- is that what has helped your bladder?"
Best Bottled Water
[QUESTION] 10/06/2009: Husseypat from Panama City, FL: "Interstitial Cystitis
I have IC and have suffered severe pelvic pain. Diet has helped a lot, but I am definitely not pain free. I have found that heat can help the pain temporarily and that the acid reducer listed on the IC NETWORK does help if you take it before every meal or snack. I know tomatoes drive me to a bad flare-up, so I try to avoid them at all cost. It's very hard to not eat foods with any preservatives-----that means nothing out of a box, can, or package. I do not drink ANYTHING but water. I wondered if anyone knows which of the bottled waters has the highest PH and the least of damaging processing for an IC patient. I can't walk much, stand much and definitely can't exercise. I get horrible pain. I bought an Elliptical Trainer machine and after a couple of days it had my pelvic in a complete knot. I have always exercised religiously, but not anymore. I find this condition can be very depressing because you know the lining in your bladder is gone forever and you have to deal with this the rest of your life. You look healthy when people see you, but they can't imagine the suffering you do in private. Good luck to all. pat"Replies
03/03/2010: Julie from San Diego, California replies: "this is a reply to husseypat-- evian and fiji have the best ph, which is a 7. many people drink these when trying to alkalinize their bodies... hope this helps!"
08/12/2010: Lori from Palatine, Il replies: "Essentia 9.5 ph - I bought at Whole Foods"
[YEA] 07/28/2009: Angela from Federal Way, WA: "I am so sorry to read of soo many struggling with bladder problems and UTI's. It is miserable and costly and sometimes embarrassing!!!
I had what I thought was constant UTI's or feeling like I was getting one for about a year. I did get many uti's but even when i didn't 'officially' have one it felt one was coming on. I was finally diagnosed with Interstitial Cystitis. This is when part of the lining in your bladder is thinned or damaged- causing tissue, muscle, and nerves to be exposed to your urine causing debilitating pain. If you get an infection on top of this it is excruciating. I thought I was dying one time. After being diagnosed and not ok with "experimental drugs" I looked into natural options and prayed a good deal. I asked God for wisdom as no one here seems to know what to do to end the pain.
I started taking cayenne pepper. Believe it or not it actually works! I was scared to death to try it but the incredible pain i already had made me feel "it can't get any worse". I found capsules that also had ginger root in them to help the pepper not burn your tummy. Cayenne is an amazing healer of Interstitial tissue (bladder lining included). Start slow.. maybe two pills a day at 40,000 hu. It does burn some but that means it is working. After a couple of days add more pills to your intake until you can take 3 in the morning and 3 at night. Always take with food. Hang in there through the initial tough parts... you will get some diarreah and it can be painful. Also, cut out coffee, fruits and berries for awhile. After a couple of weeks try a half cup of coffee with an antacid and see if you can tolerate. Add lots of greens to your diet.
I have been doing this for over two months now. I can drink small amounts of coffee and little bits of fruit. I went from a 10 in pain to a 0... no pain at all. At times a little discomfort but I can tell my bladder is healing. The heat of the pepper is supposed to help fight infection too."
10/29/2009: Christie from Cottage Grove, Tn replies: "Dear Angela,
I just read your post about cayenne for IC. You posted July of 2009. It is now October. I would be very interested to know whether you are still taking the cayenne and how it has worked out over the last three months. Thank you!
06/27/2010: Jim from Franklin Park, Illinois replies: "My girlfriend has suffered from IC for years. She has loosely controlled (only a couple of flare ups a year) it with diet. The taking of Cayenne sounds crazy for those suffering from IC. I am looking an update from anyone using Cayenne to treat IC. Thanks for any help."
06/02/2012: Shampoo from Sandusky, Ohio replies: "ok guys. I know how debilitating this can be so Im putting my post on here.
About 3 months ago, I got a UTI. What else is new, I get them all the time, but this was an especially bad one. I normally take probiotics everyday and it prevents them for me, so I hadnt got one in like 6 months, it was all gravy. But I missed about 3 days of my probiotics and BAM!! I got like, the worst UTI of my life, I was on the toilet weeping. Anywho, went to the doc, got a script for cipro, took it, didnt go away, got another script, took it, STILL didnt go away.
Now, antibiotics normally NEVER work for me. This is why Im very into alternative medicine, but I was desperate this time. and ofcourse, didnt work.
All the usual things I do for a UTI, didnt work at all, I tried every herb known to man, baking soda, 40 pills of vitain c in one day with gallons of water, apple cider vinegar, olive leaf extract, uva ursi, echinacia, even d mannose, (3 jars) didnt get rid of it. I was in EXTREME PAIN, and I was terrified.
Id been reading alot on the net, about overactive bladder, and a condition called interstitial cystitus on the net HOPING TO GOD, I didnt have it. Alot of women said it started with a bad UTI and ended with YEARS of chronic daily debilatating pain. I guess the theory is, the bladder lining somehow gets damaged, or ulcerated, or mayne you have a bacteria or virus that is hiding, or embedded somehow deep in the bladder walls, where antibiotics or anything else cant get to it. We are talking YEARS of this pain, even, to the point where these women cannot work, cant sleep, cant have sex, cant even function, cant ride rollercoasters, run or exercise. I already have so many problems with my female region as it is, I have struggled so long with other health problems, screw that! They even compare interstitial cystitus on the pain level scales to CANCER. Thats how awful it is. And there is no cure. And I was getting all the symptoms, and it didnt feel like these antibiotics or anything else I was doing was helping this pain. They prescibe Methadone to these folks.
anywho, I did some serious, serious research, and I came up with a game plan that is beating this interstitial cystitus.
In the morning I take: a gel cap filled with one drop each clove oil, rosemary essential oil, lavender, sandlewood, and peppermint oils. Foolowed by 2 full glasses of water and 1-2 pills cayenne AFRICAN RED PEPPER(xtra hot) has a bright orange red color. 1 pill MSM, and 3-4 gelcaps of Turmeric powder, and 1-2 Dong Quai. I cap these herbs myself. Then I take:: 2 milk thistle, 2 echinacea. I bought those ones at the store.
2-3 hours later. I fill another del cap 2 drops each peppermint oil, and rosemary oil. 2-3 hurs after that, 1 pill filled with; one drop each, lavender, rosemary, peppermint, and sandlewood, followed by 1 MSM, 1 cayenne, 2-3 turmeric, 1 dong quai. 2-3 hours later, 1 gelcap, 1 drop each peppermint, rosemary, or lavender )optional) I do this according to my pain levels. If the pain is especially bad, I will add more cayenne, or turmeric, as it is not dangerous to OD on those herbs. You cannot OD on cayenne or turmeric, unless you have a bad, sensitive stomach. Im only 30 years old, and I seem to have a cast Iron stomach, lol! LOTS and LOTS of water. Then before bed, 1 cayenne, 2-3 turmeric, 1 dong quai, 2 echinacia, 1 MSM. you can reduce herbs in the days following as you get better.
The essential oils: I used to be afraid to take essential oils, as I thought they might be extremely toxic. They are in large amounts, you just have to be careful. I never exceed 2 drops usually of anything. Clove, and lavender oil, can be pretty dangerous, especially clove, as only 6 drops can be toxic. Remember to get pure essential oils, not perfumes.
I went hardcore, and I didnt care if I got kidney failure, or liver damage from the herbs I was taking. This painful bladder condition has ruined lives, and I wasnt about to let that happen to me, after everything else Ive been thru. Ofcourse, Im fine. and I did not poison myself, and I am 95% pain free today, and It gets better every single day..so..
Its scary when you feel helpless, and hopeless, and no doctors can help you.
I did alot of research on cayenne pepper actually healing bladder tissue. Some people have cured themselves in less that a week using cayenne. They say you should build up to 3 in the morning, 3 in the eveneing, but I am already seeing at 2 a day, results so. Turmeric also heals mucas membrabe tissue, and MSM, is a sulpher based herb, and is excellent for pain. Alot of people are also talking about colostrum. and Ive already ordered that, its coming in the mail."
06/05/2012: Shampoo from Los Angeles, California replies: "Ok guys, Im back! And so far, so good!! I had hardly nothing, no pain today, awesome!!!! :))))))))))))
You guys, I was SURE, I had intersticial cystitus. Unexplainable bladder pain, getting up 8 times a night to pee, etc. Nothing was even touching it. My protocol is healing this, and in this journey, I have discovered the wonders of essential oil therapy. When antibiotics dont work, essential oils. Its a freakin miracal. O thought I had a prolapsed bladder or some physical problem, not bacterial. Unbelievable. Ive been taking the thieves and juniper along with the other oil recipes. I take about 3-5 drops theives, 1-2 drops juniper in a gelcap, couple times a day along with the others
Im researching Lemongrass, Thieves, Dragontime, Juniper, Pine, ravansara, Tyme, Oregano oil.
I actually found a page, listing essential oil recipes, and it was very interesting, as far most of my life I didnt think you can safely take essential oils, etc. I also started on the colostrum today, and it tastes very pleasant, and I feel great, Im excited about it :)"
06/10/2012: Shampoo from Los Angeles, California replies: "ok guys, I am updating my interstitial cystitus game plan here as Ive drawn a few more conclusions over the last few days.
Im getting better. I feel great today, but I did have pain return with a vengeance 3 days ago, to the point where Ive made an appointment with a urologist, and I was looking up worst case scenerios stories on the net about having my bladder removed! :(( $%#@!!
Ive come to conclusion that this is a bacterial issue and not a physical or ulcerated bladder problem. How do I know this??
Ive upped my dosage of essential oils.
I did some research about curing stubborn bladder problems with alternative medicine, and I found out about a product sold in canada and eastern europe called nano drops. I found one random company in eastern europe that sells it. Its $80. There is also a youtube video under "nano drops" cure UTI. I wondered if it was a scam, and anywho, I dont have the money. However, Credited naturopaths had seen it clear incurable serious, interstitial cystitus cases, etc, etc, I found alot of different posts about it so I figured it was for real.
I looked up the ingredients. Juniper essential oil, Lavender, Eucalyptus and Pine needle oil. Thats all. $80. And thats it. In the directions it said, put 10 to 20 drops in a glass of water 3 times a day for up to a month until symptoms dissappear.
So, I increased my lavender and juniper oil intake signifigantly. I then ordered more juniper, and lavender, cuz I knew Id go thru the bottles in no time flat. I also ordered Cinnamon and Lemon oil cuz along with Clove, those are the main ingredients to the "thieves Oil" which is really helping me.
I take about 5-10 drops of juniper and 4 drops lavender in a capsule 4-5 times a day, no joke along with random gelcaps of 1 or 2 drops rosemary(cuz rosemary can be toxic) and more lavender 1 or 2 drops 2 drops peppermint, 1 or 2 drops sandlewood oil, or 1 drop clove here and there. Its been sporadic, Im just trying to get this fixed. Whenever I feel pain , I pop a gelcap with a few drops of random oils, being cautios about the more toxic ones (rosemary, clove) Everyday I push the envelope a little more. My bladder is healing. I can feel it. I cant believe it. It is awesome. I also have been dosing myself with cayenne, and turmeric basically, Ive been stuck at home, with the burning, flaming rocket runs :))) But its worth it. Drinking lots and lots of water, cuz I noticed symptoms started really returning when I slacked off on the water intake. Ive been at home, not going anywhere, focused, on trying to beat this thing.
I do not want biopsies, dont want to have them fill my bladder with potassium iodide or whatever, dont want these horribly invasive tests and procedures. Dont want this to ruin my life. I dont want the nitemare, and now that this has happened to me, its made me aware of this awful disease, I didnt even really know existed.
Ill sometimes do a random capsule of thieves, when I get hit with real pain, usually after I go to the bathroom. About 10 drops. Its pretty safe. I experiment with myself. Sometimes I get racing heart, or strange sensations when I do clove, or too many oils at once, I get paranoid, drink milk, and monitor myself. Its fine. And then I do more. Ive researched younglivingessential oils, and this is fairly safe, as there are recipes on the net calling for quit a few drops of oils, that I thought might be volatile, or unsafe to take. Just be careful.
Do your research guys. I have. Im determined. Im scared and determined. Im 32 years old, and Im not ready to throw the rest of my life away on this disease."
06/16/2012: Scully from Saint Charles, Mo replies: "I was first diagnosed with IC five years ago, went into remission after being put on meds, was fine, until 2/12. Suddenly, it flared up, and has been back with a vengeance. Since Feb, I have had two bladder distillations, and one bladder stretching. My urologist said that he is out of options, and recommended me to a clinic specializing in IC. He said that they can inject me with (if I can't say the name, it's the same thing as cow's pee, or people inject it in between their eyebrows for anti-aging effects). Anyway, my bladder is officially exit only now; I don't want any more wierd stuff going on. My family doctor just put me on a two week short term-disability, to get away from my stressful job. When I got home to tell my husband, he told me that he didn't want to be married anymore because of all of my medical problems. We've been married almost 11 years.
I know this is a long, boring story. I guess that I'm frustrated, and out of options. I've noticed that a lot of people who have IC also have stomach problems.
I would be interested in trying the cayenne, but I know that it would fry my tum.
If anyone truly recommends the essential oils, and you could only take five to begin, which ones would they be? I am in a constant pain, basically. I'm sure like everybody else.
Thanks for listening and the advice.
06/18/2012: Heather from Leicester replies: "Hi, You could send a request to Ted as this maybe something he's interested in. I would think an alkaline diet would help you. I have read somewhere on Ted remedies that salt water helps urine/bladder infections. I have heard that essential oils need to be used under guidance."
06/19/2012: Shampoo from Los Angeles, California replies: "UPDATES:::: Ok guys. Im doing good, but its been a process and a journey, but I feel Im in remission (knock on wood ::)). Heres what Ive been doing ::
About the essential oil therapy. My God, was that Hard. I gradually incresed my dosages to abround 7 pills a day. Maximizing the Lavender and Most of all JUNIPER essential oils, and theives oil. In the morn upon waking. A gelcap filled with Juniper and 5 drops Lavender oil. Then a second gel cap filled with theives oil mostly and one drop of whatever Oils I had on hand except lavender, so that would be about 2 drops rosemary 2 drops sandlewood, 2 drops peppermint, etc. Then the cayenne, turmeric, msm etc. I would have the runs for most of the day, and I was drinking about a gallon and a half of water or more a day. I dont have a job, so I can devote myself to this full time. I would do the juniper thieves caps, 3 times a day. Then in between... One gelcap filled with mostly lavender oil, and peppermint, sandlewood, and more juniper.
A couple days ago, I also started making parsley tea with an ounce of my own morning urine in it. I was desperate guys, and at this point, willing to try ANYTHING. A well known herbalist stated in 30 years, and 100 cases of UTI, hed never seen the tea fail, and you have to stay on it for 10 days. It was awful. I was still in pain, but I was controlling it, to where I could function. I costly monitered myself for ill effects and Kidney pain. I was nervous, and many times nausious. But desperate to get rid of this, and there were some days where I felt almost cured, so I kept going. Reading these stories online were terrifying.
About 3 days ago, I reached my breaking point with the oils. I was at a wedding, and going to the bathroom every fifteen minutes it seemed to pop one, or pee. Pain hit me like a ton of breaks and I had to lie down. I was giving up, and starting to make myself sick with the oils. I felt all the focus, hard work and suffering was for nothing and the Ic was coming back at me full force, like the infection mutated, and won. When I thought I was winning. I was broke too. I broke down and started crying. I truly felt my life was over. I was angry at God, eveything. It was horrible. I swore If I could cure this, I would devote the rest of my life to healing people. This disease. I had no idea, anything like this ever existed. I figured this wedding would be the last thing Id ever do, before being bedridden and in pain for the rest of my life, my life was over. My back started hurting, I had chills, I figured, the oils were causing me Kidney problems, finally, as Juniper is known to irritate the kidneys, but also, known to cure disease, specific to the urinary tract.
That nite I went home, and cried, wept huge tears on my moms shoulder. I felt my life at 32 years old was truly over. I stopped the oils, and said FORGET the urine therapy parsley tea!! Id givin up and givin in. My body needed a break.
The next day I got up and made a pot of a kidney cleanse tea I ordered online. I alos, popped a femdophilus, womens probiotic pill, and 4 reg acidophilus pills, as I had stopped the probiotics completely while taking the oils. (((The tea))). I read on experience project, a women had cured her IC with it. It is composed of Hydrangea root, Gravel Root, and Marshmallow root. She said she took 2 cups a day, every other day, for a month, I only found one website that carries it. I decided, the tea wouldnt work, but it was something I could do before I could see my urologist in a week, and throw myself woefully at his mercy.
I also have a manual juicer, I recently started growing and juicing my own wheatgrass. I decided to juice the rest of the parsley I had on hand, as I had read numerous reports of it curing UTI over ages, and antiquity. Something very strange has happened. Its been four day, and I feel cured. There was still some pain the first day, but it was slight. Today I have none. Ive been drinking 3 teasp of the tea in 12 oz of water, twice daily, and a shot glass of parsley juice twice daily, morn and evening. Im drinking water normally now as well. Its a miracle from God. As he heard my cry. I will post my findings on the internet here shortly. I will cont. the treatment with the parsley for another week, the acidophilus for another two weeks, until I run out of the bottle, and I will return back to the 2 womens femdophilus probiotic formula a day (morn and evening)permanantly, and the tea for another few weeks, less and less, just to be sure, as I never want this to come back, again, ever."
06/19/2012: Diana from Horseheads, New York replies: "I was diagnosed with IC a little over a year ago after going through pain for three years and several urologists and obgyns that didn't know squat... Give out a script and see ya! I finally got rippin mad and told them to recommend someone out of town that knows whats going on. I had to travel an hour from home to get better information. I was treated for the IC in a couple of ways and symptoms came back again and we tried another avenue... I had day surgery to explore my bladder and they discovered a stone... Just had this removed a month ago at a well known facility in the other direction two hours away... Relief is wonderful... No more pain (and previous pelvic mesh was part of my problem)... Please do not just accept one person's opinion or diagnosis... Go for more - IT IS WORTH THE TRIP!"
06/20/2012: Shampoo from Los Angeles, California replies: "ok, here are the links I found on the internet regarding the tea Im on rite now, and also things about Parsley aswell. I only did the Parsley tea, Urine therapy for a couple days as it was DISGUSTING. Even tho you only put an ounce of your Morning Urine per Quart of water and boil it, you can still taste and smell it, it was just WRONG!!! And disgusting, and I hated my life at this point. However, I am cont. to juice just fresh parsley in a shot glass twice a day, and its helping me alot. Im gonna cont this for 7 more days. Im completely off the essential oils, cayenne, MSM, and Turmeric. Just doing Tea, and Parsley juice, and some wheatgrass juice atm, and I feel almost completely cured. ***************
06/20/2012: Shampoo from Los Angeles, California replies: "I simmer the Kidney Cleanse tea for about an hour on low, after immediately getting it to boiling. To the point where after an hour, I need to add more fresh water to it, to make a full cup when Im done with it. I like to make it dark, and to get as much out of the roots as possible. I drink 2 cups a day. I make a batch in the morning and evening, and get one cup out of each batch, each time. Im also back to drinking fluids normally now aswell. Ive also bought severa bunches of fresh parsley for from the grocery at 89 cents each, to last me the next seven days. I juice a full shot glass morning and evening. It tastes awfully earthy, but hey, its better than the urine tea I was drinking, and I am healing. Praise God, as God answered my prayer."
06/28/2012: Shampoo from Los Angeles, California replies: "UPDATE OMG!!! Breakthru, breakthru, breakthru!! Two words. Ureaplasma. Just got diagnosed with this by my urologist, OMG!!!!!
Ok. Parsley, essential oils, colostrum, cayenne... needless to say, did not really work to eradicate this infection.
I made an appointment with a Urologist. Breakthru!!!! She immediately tested me in my vaginal culture for everything, including a test for a microbe called Ureaplasma. I have never heard of this. Now, Ive been tested numerous times over the years, and everything always came out negative, but I get a call about 4 days ago from her saying I tested positive for this. She put me on zinthromax and I am taking it now. She tells me this is not an STD, but a sexually transmitted disease??? present in 70% of the human populations normal flora, (rectal, genital, and bladder tracts), but it is transmitted sexually, meaning, we are not born with this, we get it thruout the course of our sexually active lives. , and usually it does not cause problems for people, however.... There is now a compelling link between IC and this bacteria, or mycoplasma. I guess the test is expensive. Which is why most doctors will blow you off, and try to not test you , or REFUSE you and tell you tat since this is considered common flora for most people it wouldnt be considered a factor in causing, your IC. Cleveland Ohio is rated second best in the country for urology, with sum of the best urologists in the country studying and researching, IC. The first test they perform is for Ureaplasma. They say they get a 50% cure rate right there for people, once they treat it with antibiotics. However, my symptoms have improved vastly, I must go back again, and get retested. I was reading just now, online, that many people end up going back and still testing positive, and then after a three week course of doxycycline, get a complete cure. Googling it, I can hardly find any imformation at all about this, I cant believe how ignorant and reticent physicians are about testing for this, its awful, and scary. I was just reading about a gal, who had to fight to get tested and then fight to get treated for it, she saw 8 different doctors, and urologists... So be prepared to fight. There is compelling link here guys google it. I was really doomed. It scary, how a little microbe can jeopardize your whole future and life."
06/28/2012: Shampoo from Los Angeles, California replies: "I also want to add that, its been 4 days on the zinthromax, or erythmycin, and I feel great, but I still have some pain, and I will be returning to my urologist in a week to get retested and hopefully get on long term antibiotics, as I've read thats what most people end up having to do with IC. So, now I KNOW this is an infection from a Bacteria, since I wasn't sure whether I had a damaged bladder or what?? A few more things about essential oil. Ive stopped that, as I wasnt getting over the hump, and it seemed to be very harsh on my body, but I was reading alot about BIOFILMS. Ureaplasma is considered a biofilm infection, by the way. Please learn and google this guys. In a research study, they tested 15 different essential oils, in breaking down Biofilms. Of the 15 only 4 broke the biofilms, of stubborn bacteria, and that is Tea tree, Eucalyptus, Palmarosa, and Rosemary.
Also, Ureaplasma is linked to miscarriage, and infertilty, which would explain my failure to conceive over the last 3 years. Like 50% of couples failing to conceive, looking for in vitro fertilization tested positive for this bacteria. But then AGAIN. Many people have this. Its just some people seem to have real problems with it, as it is SO LINKED to IC. Maybe some people's bodies dont like it, as one girl I read on a forum said. Ive also added coconut water to my regime. As I read some people cured bladder infections with it. It also makes your skin glow :))"
07/03/2012: Shampoo from Los Angeles, California replies: "Update::::: By now, I feel pretty foolish with all Ive gone thru these last 4 months with this horrible IC with natural remedies that didnt work for me, when all I had to do was take antibiotics, and Id be cured.
However, I had already tried 2 rounds of Cipro, and macrobid, and then started testing negative on all urine cultures, and being sent home empty handed, in horrible, horrible, horrible, crippling pain, feeling like I still have a bladder infection.
After finishing the z pack, I was almost all better, But 2 days later, symptoms returned full force and the nitemare was starting all over again for me. However, I knew the symptoms would return, and I couldnt get an appointment with my urologist, (which was 2 and a half hours away by the way, and I dont have a car) for another month. She wouldnt precscribe me another z pack, unless I retested again for the Ureaplasma. I would have to wait a month. Get retested, and wait an additional 4 days, then get more antibiotics, and hopefully be cured, but I knew it was impossible to wait the long, and it seemed horribly cruel, when I felt so close to a cure. Id have to start all over.
From the research Ive done on Ureaplasma, you almost always have to take more than one round of strong antibiotics to cure it, and some people take low dose long term antibiotics, from months to years to eradicate it. I saw a long painful road ahead, and I decided, getting Genital Herpes would have been a better fate for me than this, as at least with herpes u get periods of respite and you can SOMETIMES have sex, if your not having an outbreak. I was ready to Die.
I got the numbers of several Urologists closer to my area, about four. NONE of them tested for Ureaplasma, or even heard of it. I asked if they would do a test, they said no. You see. Many Urologist do not believe or even acknowledge the role Ureaplasma plays in IC, since 70% of the population carries this in their genital, bladder tracts without any problems. The community is split on the issue.
Ive been doing alot of research on this little bug, Ureaplasma. Its getting more and more attention, as more and more people are having problems with vulvodynia, and IC. Like I said, its considered sexually transmitted (but not), as we arent born with it, we get it thru sex.
A good gynecologist will also test for ureaplasma if you are having problems becoming pregnant, or have a history of miscarriages, or early deliveries. There's alot of talk about it on infertility boards on the net. The test is expensive. And the cure requires the use of long term antibiotics. Many doctors are hesitant to do that, these days.
As there is more and more hype about the overuse of antibiotics. Especially long term.
So I panicked, and I took matters in my own hands. I knew I needed more antibiotics. I had a reoccuring sinus infection for months. I made an appointment with my family doctor, and explained the situation, plus I made great emphasis on my sinus infection, (which had actually gotten better) but I wanted to make myself sound really sick (hammed it up), and she gave me Augmentin. A 10 day, supply and guess what. It is the third day, and I feel 95% awesomeness.
I then made a few more calls, and found out, I can get my doctor (the one that actually believes in Ureaplasma) to fax over an order to my family doctor or lab of my choice to do the test and everything will be gravy. So Im gonna test again for it, a week after I finish the Augmentin. Its also interesting to note that after researching IC, unrelentingly, for the last 4 months, and visiting, every IC website, and healthboard on the planet, and hearing people talk, Augmentin is considered one of the successful antibiotics for IC.
Thers only 3 that work against IC, only three.
Zinthromax (z Pack)
From what I read, its hard, hard, hard to cure. Harder than any STD. But its not incurable. It usually takes months to eradicate it.
many women just live with the pain, and take steroids, pain killers, and ANTIDEPRESSANTS. Isnt that sad?? Thats part of the protocol for IC patients. They give you an antidressant too, to cope with your life being over!!
I know on a gut level, this was some kind of elusive, hidden bacteria, embedded deep inside my bladder. Most people develop IC after a bad bladder infection. The pain lasts for years, YEARS. and its almost impossible to get a Urologist to help or even hear you.
I prayed to God to help me.
Its a miracle, and I will never doubt his presense and his ability to heal me again. Its a miracle the first Urologist I saw helped me, and was cutting edge enough to do this test."
08/29/2012: Shampoo from Los Angeles, California replies: "UPDATE: I cured my interstitial cystitis. And Believe me. I had it. I couldnt eat tomatoes or anything acidic, I was constantly flaring, especially a week before my period, I was unable to get out of bed, or even think, and I havnt had sex in 6 months either. I considered my life over. I would have rather got a diagnosis of Cancer or Herpes, as with Herpes, you get a break, and with Cancer, there is atleast hope for a cure or remission. 6 months of Hell.
Heres what I did. A month and a half of Doxicycline, first 3 weeks, 100mg morning and evening. Still was in alot of pain, still had symptoms. She upped my dose to 200mg morning and evening. 400mg a day... 2 weeks of that. Tested for Ureaplasma. Long gone!
But I still had symptoms. Altho I was much better, able to eat what I wanted (including tea, and acidic foods) and was able to walk around, and function with my life somewhat... Still wasnt testing positive for bacteria in the Urine. Technically I did not have a UTI.
One night, I got desperate. Was thinking I was having a "flare", it became unbearable, went to the emergency room. Tears pouring down my face, lying down, couldnt even get up when the doctor came in the room, wouldnt let them put anything in my urethra, cuz I was in so much pain. Gave me a script for Macrobid, (10 day supply, 100mg every six hours)
10 days later it was gone.
Ive been reading alot lately about UTI resistant antibiotics, and the link to supermarket/storebought chicken. They say, its becoming more and more of a problem. I think thats what was wrong with me, even tho I dont know why, the bacteria wasnt showing in my urine. So, 2 rounds of Cipro, 10 days of augmentin, 3 Z packs, and a months worth of Lyme disease dosage doxi, and macrobid finally cured me.
A not about the Doxi:: at 400mg a day, ti was very harsh on my body. I threw it up half the time, cuz it was so hard on my stomach. I got a SEVERE sunburn on my feet, (cuz it made me extremely photosensitive) I was tired all the time, sleeping all the time, and I was very hungry, and I had to eat alot of food just to keep it down, so I gained 25lbs. Its been Hell. But Ive learned to never to take my health for granted again. Im not sure what just happened to me, but im aware now about antibiotic resistance becoming an increasing problem. and I hardly ever take antibiotics, I always try the natural route first.
What Im plan to do now, to make sure this never, ever, happens to me again. I plan on taking my womens probiotic every single day, and add D Mannose to the regime as well. At least 2 teaspoons a day. (moring and evening) prevents bacteria from clinging to bladder wall. Especially when Im sexually active. Its expensive. But nothing can be more life ruining than interstitial cystitus.
To not be able to eat like a normal person again. (read several cases of people being able to cure their pain, by living on a diet, exclusively, of vegetables, brown rice, and nut butters, no salt, no sugar, no fruits (acidic) and claiming remision after a few years. Some women gradually being able to add in small amounts the old foods again, they used to eat again. "cheating" by eating Cheescake and Curry and to never be able to have sex again?? How sad is that? What kind of life is that?? and Im young women. Horrible. Id rather have gotten Cancer, or Genital Herpes any day of the week.
Im gonna give full credit to God, and Jesus Christ for my remision. There were prayer circles at my Church, and friends were praying for me. I prayed every morning to be healed. Plus I was on the prayer line, my life, my very life hung on the balance.
In the past Ive been promiscuous.. And I know Im not perfect, and I pray to God to guide me on this issue. I just know to be much more careful now, next time. Its worth it to stay in a monogomous relationship."
08/29/2012: Shampoo from Los Angeles, Ca replies: "I also want to add that, diseases are becoming increasingly resistant to antibiotics, including Gonorrhea, and tuberculosis. The guy I was sleeping with who I think gave me all these problems, was very primiscous himself, its not fair to say I was the one, when in actuality I know people personally that are far more "active" and with multipal people than I was, but then Im also seeing more and more people less willing to commit, and taking a very, and increasingly casual attitude towards sex but GOD KNOWs, I wouldnt want a drug resistant form of the clap, would you??!!"
10/31/2012: Shampoo from Los Angeles, Ca replies: "Hey, just an update about whats up with me lately. I cured my IC with 3 rounds of the antibiotic Bactrim, finally, however, Im sensitive to all acidic foods now, and as long as I avoid them, Im back to normal again.
However, its nerve wracking trying to prevent another UTI, as nothing, not even probiotics seem to work for me anymore.
Ive come to the conclusion I had some kind of fluke staph, or MRSA infection that was antibiotic resistant. The doctor and I discussed the further concerning problem of antibiotic resistance. , it seems antibiotics hardly work for anything really serious anymore."
Chondroitin, Glucosamine, MSM
[YEA] 04/14/2011: Md4im from Orlando, Fl - Florida, United States: "after immense daily suffering, I found an article on glucosamine-chondroitin-MSM for IC relief. Provides cellular components that are essential to the epithelial bladder lining. Made a 180* difference - very noticeable after just 2 days. Still taking it 6 years later, and I can TELL when I miss a few days. It has been a real life saver. I hope this helps other women out there!"Replies
[SIDE EFFECTS] 07/07/2011: Mary from Hastings, Mn replies: "Side effects for me are bad digestion, IBS. CAN"T take it. Also can't take that hyaluronic acid either (eyes feel like sand in them) Any other ideas to heal the GAG layer (glycosaminoglycan layer)?"
08/16/2011: Mary from Hastings, Mn replies: "Found a Glucosamine and Chondritan that doesn't bother my GI tract that much if taken w/food. It's sold at an IC site CystoP*****. Maybe it's because it's got Olive Kernal in it, which makes it more bio available. I take 4x per day (1 capsel per day) rather than twice per day (2 capsels per meal). Already see a small differance after 4 months. Constant flair is gone, and can have salty snacks and sometimes blueberries now. I had gone crazy w/blueberries over the last few yrs since getting this and I seem to have developed a problem w/them."
09/26/2011: Tricia866 from Collinsville, Il, United States replies: "Hi Mary, Is the Glucosamine the only remedy that you are taking for your IC? Is it still helping with repairing the bladder?"
11/23/2011: Mary from Hastings, Mn replies: "Update on this Glucosomine & Chondroitin: I found that when I take it, the Quercetin makes me VERY hot only at night. I tested this by just taking Quercetin. Same result. The heat radiates from my vagina! I am 48 yrs old, and having night flashes, but this is ridiculous. I had to quit the product. I had tried it for a few months and I wasn't gettting much sleep. I just got hotter and hotter. I hear it helps alot of other people though as stated by their testimonials on-line. I called the company, and they said that they had not had this complaint before. Maybe I will need to try another brand."
01/17/2012: Mary from Hastings, Mn replies: "Anyone try Gotu Kola? I tried it in the past, but got hives and had to quit. I found out Acidophilis stops hives. Now I am on alot of Acidophils and will retry some Gotu Kola. Anyone find relief with this? They sell it online for Cysitis, as it repairs the GAG lining of the bladder. Thanks!"
[YEA] 01/05/2010: Donna from Royal Oak, Mi: "I've battled bladder issues all my life, and for a while, high contentrations of cranberry (pills, not juice - juice has too much sugar which feeds the infection) helped. That was until I got IC and became antibiotic resistant. Felt like I was peeing glass. By fluke I read 3 sentences in a magazine that saved me - it basically said that cinnamon kills off E-coli. E-coli is often the cause of bladder issues and IC. I started taking cinnamon capsules and felt major relief in a matter of a few days. I highly recommend it to anyone who suffers from IC. You'll sing its praises too."Replies
01/06/2010: Elizabeth from Nashville, Tn replies: "How much cinnamon do you take daily? Do you take capsules already premade or use fresh? Thanks."
01/08/2010: Donna from Royal Oak, Mi replies: "Fresh is of course always better, but I basically took premade capsules for the convenience. Started out with 4-6 a day, a couple in the morning, afternoon and evening. After the symptoms were alleviated, I gradually reduced my intake. I still will take one a day, and sprinkle fresh cinnamon on my toast or apples just for maintenance purposes. Wonderful thing is that cinnamon also helps stomach issues! (gas, bloating,etc) It is a miracle worker as far as I am concerned."
01/08/2010: Elizabeth from Nashville, Tn replies: "Thanks for the information. I will add this to my daily regimen for my IC and hopefully get the same results. God Bless!"
01/08/2010: Donna from Royal Oak, Mi replies: "Let me know if it works as well for you as it did for me! Good luck!"
08/16/2010: Emily from Charlotte, Nc replies: "Hi Donna,
I live in NC but used to live in Ann Arbor, Mi! Hope you are doing well. I have suffered from pelvic pain for a while - I believe it's IC, as it flares up after I drink coffee, eat chocolate, or eat strawberries or tomatoes. I read your post and bought cinnamon capsules. I would love to know if you or anybody on this post has had luck with cinnamon - how many 500 mg capsules should I take every day to feel a difference?
09/08/2010: Jen from Ann Arbor, Mi replies: "Be careful with Cinnamon, it's a major IC bladder irritant for me."
[NAY] 01/19/2012: Ichater from Northern, California Usa replies: "Prior to the worst flare up in my life, I had already been taking cinnamon capsules daily for a year prior... So I don't think that cinnamon works for everyone. I was taking 1000 mg a day and I still had a flare up. :/"