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Hidradenitis Suppurativa Remedies
DISCLAIMER
Our readers offer information and opinions on Earth Clinic, not as a substitute for professional medical prevention, diagnosis, or treatment. Please consult with your physician, pharmacist, or health care provider before taking any home remedies or supplements or following any treatment suggested by anyone on this site. Only your health care provider, personal physician, or pharmacist can provide you with advice on what is safe and effective for your unique needs or diagnose your particular medical history.
MEDICATIONS
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10/20/2010: Ana from Las Vegas, Nv writes: "I went to my surgeon yesterday who says there's nothing else he can do for me. If that wasn't a big enough blow to my mental state after suffering with HS for years, he also prescribed me some antibiotics that I am weary about taking. The first is Cleocin and the other is Rifampicin. I have read the literature on both and the side effects are scary to say the least. Does anyone have any information about these drugs and their use for HS? I am already suffering with depression from everything I've been through over the years with this disease so I'm wondering if I am needlessly worried about these drugs. Can anyone help?"
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[WORKED TEMPORARILY] 02/06/2009: Reena from East Hanover, NJ writes: "antibiotics and cortisone shots to the infected area only help somewhat - no cure exists (had it 46 years) I've been cut and had drains on and off for 46 years - I have found that washing with TRIAZ (a prescription liquid soap) works in fighting the bacteria that flourishes in the groin and armpit areas - the only natural remedy that helps me is the ocean and sun - thanks for all the info in this website."
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MERCURIUS VIVUS (HOMEOPATHIC)
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02/19/2009: Ana from Las Vegas, NV writes: "Mercurius Vivus as a HS remedy:
I was diagnosed with HS about 5 years ago. I've tried just about everything you could imagine to keep it "in check" since there is supposedly no cure. I've had them lanced, surgically removed, month after month of antibiotics, special soaps and salt baths, etc...I recently found a homeopathic site that mentioned the use of Mercurius Vivus as a remedy. Has anyone heard of this? I've gone to several sites looking for infomation on this but they all seem to say the exact same thing. Nothing about side effects (since we all know mercury can be toxic). I know most homeopathic treatments use such small amounts of these compounds that there is very little chance of adverse reactions but...
It sounds like it could work. I bought the pills from the Seacoast Vitamin site; they are very inexpensive, but I would still like to know the pros or cons of taking them before I start the interesting regimen. (dissolve 5 pills under your tongue 3 times a day until condition resolves) I thought that was different. :) Thanks in advance for any help. Everyone hang in there; we are definitely not alone in this."
RepliesEC: Interesting article about Mercurius Vivus here: http://findarticles.com/p/articles/mi_g2603/is_0005/ai_2603000520
[NAY] 04/09/2009: Ana from Las Vegas, NV replies: "Well I tried the Mercurius Vivus that I spoke of earlier. I took the pills as instructed on the bottle; 5 tablets 3 times a day, so the bottle only lasts about 7 days. I didn't purchase more because there was no real effect on the HS. Also I had a dull aching headache that interestingly went away when I stopped taking the pills. So in short; it didn't work for me. I am now trying the Turmeric. Hopefully I will get some relief. Next step is surgery so I'm praying something will help soon."
09/23/2009: Mp from Phoenix, Az replies: "I am a Naturopathic Doctor and a Homeopath. Homeopathy is prescribed according to unique symptoms and is very specific and individualized. You cannot take a remedy prescribed to another person and expect it to work the same way. There are hundreds of remedies and several people with the same diagnosis could express their disease differently and each be given a different remedy that works. Therefore, I recommend going to a homeopath if you are interested in trying homeopathy and let them do the prescribing."
10/14/2010: Ana from Las Vegas, Nv replies: "I have posted on this site several times now. I had a visit to my derm July 1st and was admitted to the hospital for another blood infection. They did a CT and found that the abscess had made it all the way to my thigh muscle. The next morning I had surgery. I have had 3 surgeries since July 2nd. As horrible as the surgery is, the pain afterwards is far less painful than the HS itself. All he did was open every boil and tunnel, left them open and had me start taking Vitamin A. I am due for a 4th surgery but I am putting it off for a bit so I can recoup from the other 3 surgeries. Don't get me wrong, it is far from anything I would willingly do to myself but it's a necessary evil. I will eventually have to have reconstructive surgery to get things back to "normal" but that is still way out in the future. The surgeon thinks it may take up to a year of surgeries to get all of them taken care of before a plastic surgeon will take over. Again, not a fun surgery and it is disfiguring but a lot less painful than the disease itself and the surgeries are working. Air and vitamin A seem to be the best result I have had so far and I have tried everything imaginable. My prayers go out to everyone suffering with HS."
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MULTIPLE REMEDIES
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[YEA] 07/25/2011: Jobaby1 from Hayward, California, Usa writes: "Hello everyone I have personally dealt with Hidradenitis for over nine years. I have terrible scars under my right armpit as well as scars on my buttocks. The first boil I ever had was in high school and it was on my buttocks and it was huge and painful! Needless to say from that point on I have been plagued ever since. I would go to the hospital and get them lanced and they would just put me on antibiotics which would help but the relief was always short lived. I found out years later that I had this Disease and learned the official name for it. The doctor suggested the surgery option or the Accutane. Neither option was appealing so from that point on I researched and researched as much as I possibly could on remedies and treatments.
I came across this website and read a lot of the posts and cried because I really could relate and I didn't feel alone. Once I browsed the site I was eager to try whatever I could to make this go away! I began using only Lever 2000 soap, cooking with Turmeric. I also used Tea tree oil topically, after all these steps I noticed an improvement but still kept having reoccurring boils that would never completely heal I'm talking about weeks and months. So with a little more web surfing, I decided to try Echinacea and I loved it! I noticed it brought boils to the surface immediately! I also changed my deodorant from secret to tom's and Jason's. Also being on a health kick I decided to do the master cleanse to see if that would help the situation, and it actually did.
But this is when it got even better I researched an herb called Pau d' Arco and have been taking it in conjunction with the Echinacea and OMG I'm getting some seriously AMAZING results! First of all my bad acne on my back is clearing up and most importantly it's causing my boils to drain and the area surrounding the boils to clear up. I feel almost like a tingling sensation as if it's fighting the infection! I just wanted to share this I really hope it helps someone."
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MULTIPLE REMEDIES TRIED
11/28/2010: Holly from Kelowna, Bc/canada writes: "I am 39 years old and have had HS for over 30 years. I've tried Retin A and Accutane, neither of which worked. I've also tried Bactrim (Sulpha) which worked until it killed all the good bacteria in my gut and I ended up in the hospital with clostridium difficile toxin. I also have Ulcerative Colitis and Vasculitis (both of which are autoimmune). For these, I take an immunosuppressant called Imuran. In search of something to take that would not greatly boost my immune system (counterintuitive with the imuran) I am currently using Native Remedies' Boil-RX. It is a homeopathic tincture and it is really working well for me. It has softened some of my most tenacious "boils" (that I thought were just remnants (scars) of old boils), has allowed them to drain and now they are drying up nicely. I got good results from Turmeric.... But it gives some pretty bad breath. I am currently trying the zinc gluconate 15mg x 6/day. However, it seems to have made things ALOT worse. I'm hoping it starts that way and then calms down. So, in an attempt to calm down what the zinc may have flared up, I'm using the Boil Rx and all seems well now. It's tasteless, just put 10-15 drops in some water and sip. I believe that homeopathic tinctures only actually contain a very VERY small amount of the thing they claim to be the active ingredient. Because of this, I am not worried about it mounting a huge immune boost and wiping out the effects of the Imuran.
I suspect many of you with HS also suffer from autoimmune disorders as well as pilonidal cyst/sinus. I've had a couple of surgeries to remove a pilonidal sinus. I believe it's all part of online you will find some interesting info. Symptoms these remedies treat and personality traits seem to go hand in hand. These remedies treat both for mind/body wellness. An interesting way to go. I don't completely understand how it all works. However, it seems to be doing the trick for me."
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OLIVE OIL
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[BETTER BUT NOT CURED] 10/12/2009: Wellsprings from Tarboro, Nc, Usa writes: "Hidradenitis Suppurativa
Eating yogurt every day and putting olive oil on daily prevents flare ups of Hidradenitis Suppurative. I rub olive oil on my groin every morning and every night; it soaks in quickly. Most of the time, I do not get the bumps unless I skip several days of putting on the oil; however, even if I get a bump, it prevents any bumps from getting large. I have had some so large I could not even sit correctly. ____ patches are great for pain relief. You can cut the patch to the exact size you need. I am 49 and have had bouts with these since I was in my teens. About six months ago, I read about the oil in Isaiah 1:6 In the JPS version it reads "From head to foot no spot is sound: all bruises, and welts, and festering sores-not pressed out, not bound up, not softened with oil." I had pressed bumps allot, but I had never softened them with oil. The oil works miracles."
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ON SCALP
02/05/2011: Dee from Toronto, Canada writes: "Hi When I first started having thes things before it was diagnosed 19 years ago, they started out on my scalp. Doctors thought it was a cyst. They covered my whole head and I lost a lot of hair. Then in the places where they healed, they healed with a keloid so they never went flat down and the dermatologist says hair will never grow there again because the follicles are dead. Then progresses to my armpits, my groin and my buttocks. I think it's fair to say I have a severe case of it.
The thing is I never hear anyone say they have had it on their scalp but me and I am female so you know how devastating that must be. Is there anyone out there who has had it on their scalp or know someone who does? I feel very isolated in this. All I want is for something to flattent these keloids on my head or recommend something to grow my hair back in these areas. I used to have thivk abundant hair and now this disease has destroyed it. It makes me sad to look in the mirror and see what a evastating affect this thing has had on me and that I probably will have to live the rest of my life with these raised scars on my head and thr hair loss that comes with it. If anyone know of anything, please let me know. Thx."
Replies04/17/2011: Tupperwareandavonmomma from Sevierville, Tn replies: "I do too have the HS on my scalp. Then it spread. I have been diagnosed for about 6 months but I am decreasing the outbreaks by using Melaleuca shampoo, Selenium sulfate 2.5 (alternated), rarely ever use hair products, I take bleach baths when it gets really bad (once a month or so). I do my own drains and compresses and have not had surgery yet although there are a few times before I got diagnosed I probably should have. Good luck."
09/14/2011: Ace from Vancouver, Bc replies: "I put Aloe Vera gel all over my scalp every single night before I sleep and keep it on all night (and shower after I wake up in the morning)...I have the same problem in my head... but this seems to have really controlled and reduce the problem (takes time to fix)...
I also use Shea butter shampoo bar (by African Trade Society) on my head....I would recommend both."
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OREGANO AND COCONUT OILS, ADRENAL SUPPORT
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[YEA] 11/13/2009: Goodforyou from Sweetwater, Tn, USA writes: "I am a self diagnosed case of Hidradenitis. My MD took a culture and it came back Strep, but she never used the medical term Hidradenitis; I'm sure she is unfamiliar with it. To the woman (or anyone ) who soaks in bleach water, please don't do that: Bleach suppresses the endocrine system; not safe at all especially when sick!
My MD prescribed a short round of Penicillin which helped me, but not for long. I then switched to coconut oil (medium chain fatty acids in coconut oil kill many viruses and bacteria). I also used oregano oil, (super Strength P-73). If it doesn't say P-73 on the bottle, it may not be the right oil. I also took adaptogens (Rhodiola, schizandra, etc.) to support my adrenal glands.
OREGANO: I filled two 00 gelatin capsules twice a day for 2 days with food, then backed down to one 2x a day. I also rubbed it on the skin as much as I could tolerate throughout the day.
COCONUT OIL: I took 4-6 coconut oil gelcaps 2x a day and also rubbed it on the skin constantly. Be aware that oregano oil can cause a temporary burning sensation. After all this; there is no evidence that I ever had a boil. Praying helped too, I'm sure.
What a horrible, HORRIBLE PAIN!!!"
Replies09/26/2010: Ljeanbeans from Ashland, Wi replies: "My health took a turn for the worst after an especially stressful 2008 and quitting Birth Control after 10 years to remedy the situation. That may have sent me in a tail-spin, but I'm sure it's healthier in the long run. I got HS about 6 months later. I did have a few isolated boils in my teen years.... Strange. Before BC, hmmmm. I had one bad one tested last year, and it was just regular good skin bacteria. Autoimmmune.... I have had a multitude of other problems in the past year, but one is Adrenal Exhaustion. I think that was the orignal problem. I had mine in remission for about 3 months earlier this year... Until I had surgery and couldn't exercise anymore.... I have been taking L-Tyrosine daily for over a year. And 5-Htp. I love my Yoga Booty Ballet exercise. I shower after I exercise while still hot and sweaty. I had it in remission this way. I haven't exercised really in about 4 months. I prayed when I pressed a boil in a sitz bath and it came loose and drained instantly. I know this is the best thing to do. I want to try oregano and coconut and tumeric for secondary bronchitis from a virus right now, anyways. Curious how the treatments for Bronchitis and HS are so similar. I started taking ACV with the Mother yesterday and ate about 3 tbsps of Cayenne Pepper in a drink yester. Didn't help the HS yet.... Curious I had it in remission before..... I've always smoked additive free organic tobacco and love coffee as well. I don't drink, though, maybe I should. I eat at natural as possible always. NATURAL and organic if I can afford it. ALWAYS."
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PAU D'ARCO, RED CLOVER TEA
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[YEA] 12/26/2008: Kiki from Baltimore, MD writes: "After a lot of ineffective medical intervention and trying things that didn't work (Dial soap, Epsom salt soaks, losing weight, etc.), an herbalist finally gave me a simple remedy that has proven incredibly effective for my HS. I have had the condition in mild form for 17 years, but with my first pregnancy, progressed into a more severe stage that left me with debilitating pain, multiple legions that wouldn't stop draining, and nothing that seemed to make a difference. I lost about 60 pounds after the birth of my daughter and started eating healthy, which also didn't help. Once I stopped breastfeeding (you cannot take these herbs while pregnant or breastfeeding), I take one cup of Pau D'Arco and one cup of Red Clover tea daily. Use about 6 oz. of water for each and steep for at least 10 minutes. I saw definite results in about 2 weeks. Daily soaks in dead sea salt baths and Neosporin 3X daily on legions helps them to heal with less scarring, and the teas keep the legions from coming back. Cutting out sugar and white foods cleared it up completely. This has absolutely stymied the condition when nothing else worked and everyone swore nothing would. Give it a try! You can find both teas at your local herbalist or Whole Foods."
Replies01/20/2010: Cs from Bordentown, Nj replies: "Were you able to get pregnant on this? I think I have HS, although have not officially been seen by a dr for this but I think I will soon. I am considering becoming pregnant but am nervous due to this horriffic disease. Can you share your experience with HS as it related to your pregnancy?"
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READER COMMENTS
01/11/2009: Keturah from Albuquerque, New Mexico writes: "Hi I just found this site, I had my first boil (i guess you can call it that) when i was 19 I was carefree and had a rocking body and great skin I was often asked what did I use on my skin. I had a great natural golden glow, then my life slowly been to change, I usually get my boils or cysts on my back...just recently I started to get them under my breasts and in my arm pits...I never knew what I had and had no insurance to go to the derm...I finally got some school money and saw my first derm I was given no help at all. At this time my back now had bullet like holes left from the scarring, I no longer can wear backless anything...I questioned... Was I too vein in my teens and early twenties the reason this happened to me? I saw another derm...at 28 I was pregnant with my son, he told me I had HS...I live in pain...I would burst these things myself because I just could not take the throbin burnin pain another day...and oh the relief! I started to do more research because the derm I started to see didnt make me feel like he wanted to truly help me, He kinda gave me my walking papers...So next week I will meet with another...I have one on my back now! I see now that a soap or pills can not help this alone and this will be a life style change for me...I will try the dial soap my Benzoyl Peroxide is not working and my topical cream is not working, I will try the tumeric, I will also change my diet drastically...I hope my little girl does not have this, and I only got one on my upper thigh...I dont want any in any other areas in that region...but I did get them inside the checks...of you know where! but I was too embrassed too tell anyone. I thougt I had hemorrhoids. But since I'm African American there's a whole set of rules...The derm said that my hair products are most likely the cause of the cysts, but then how will I do my hair? I feel like I've lost so much of my beauty I used to model...Now I have scars on my breasts...In the folds of my cheeks of you know where...and holes and scars all over my back...I had two kids so my tummy isn't like it was when I was 22. I'm just sad, mad, a bitch some days...most days esp. when I have a cyst, but at least...I'm not alone. I guess I will try more natural hair styles but if anyone has any suggestions, post please...most of the ingredients in African American products have stuff in them that you should stay away from."
Replies01/11/2009: Dianna from Austin, TX replies: "you said your derm said your hair care products are giving you your boils? stop using them. i wash my hair with grandpa's pine tar soap once a week and then use a rinse of either ACV (1 capful) or lime juice (1 small (key) lime) and a liter of water.
i now have more beautiful hair than ever. oh - and don't ever use hot water on your hair. i have switched to only washing my hair with cold water and i can't believe the difference it has made. i used to have very dry hair no matter what i put on it conditioner wise. now i don't even need conditioner at all and my hair is long again and in much better condition.
try it!!! you will certainly save money and maybe your skin problems will stop too. when you are bathing all of the stuff from the hair care products goes all down your back and onto your body. makes perfect sense to me. i for one would never put anything on my head/scalp that i couldn't put in my mouth. btw - i also brush my teeth with grandpa's pine tar soap...
djh/texas"
01/12/2009: Amber from Antigua, Guatemala replies: "I read your post and just wanted to share my suggestions:
Spots and boils represent some form of toxicity/poisons that your body wants to get rid of. Cleansing your body (internally) will help tremendously towards getting your healthy,glowing skin back again. As a simple boost - try having 1 or 2 fresh lemons in a glass of water each morning. Look into doing a colon cleaning programme which has tremendous benefits to skin and overall healh. Eat more raw vegetables and fruits to cleanse,nourish and purify your body. Explore the Hydrogen peroxide blogs -this amazing liquid cleanses your blood and kills bacteria and virus', as well as killing the bacteria when applied (concentration of 3% neatly with a Q-tip) directly to the boil.
In terms of beauty/hair products: cold pressed, raw coconut oil (available in most health food stores) makes an excellent hair oil, which shines,conditions and softens as the same time. It also smells divine.
I hope this helps for now."
05/09/2009: NB from Los Angeles, California replies: "Pine tar soap.... that's funny. I, too, am African-American and all this started for me at eight years old. I can barely believe I've been dealing with this for 30 years. I'm not sure which hair products your doc is referring to, but I'm pretty sure the pine tar soap as shampoo deal is NOT gonna work on Black hair. I have natural hair and always have since my teens and still have the condition so I don't know about that.
I'm still trying to discover a cure that will work for me. The less wholesome my diet and lifestyle are the more boils I get. When I was pregnant I had NO boils for the entire time. But afterwards they came back with a vengeance.
It's an ugly, embarrassing, lonely condition.....just keep experimenting, we may luck up. Many blessings and good luck."
07/26/2009: angjoy from Jackson, MI replies: "Hi Keturah, I'm not sure it this would work on your hair or not, but it might be worth a try. When I noticed a couple of places forming on my scalp, I thought, oh no, not my head too, they were small, but painful. I replaced my shampoo with a 1/2 cup of baking soda made into a paste. I have very long hair and yes, you have to get use to 'no lather' but baking soda does a great job of cleaning your hair and scalp. As a matter of fact, I have found that I no longer have to wash my hair daily as I use to. I occasionally do a vinegar rinse. My hair is a lot healthier looking now and no more spots on my scalp.
For anyone wishing to try the 'wonder whatever - 200c Elaps Corallinus', well I did. I went 2 months without a boil. 2 blissful months. The honeymoon is over however. I was so hopeful that this would be the end of this miserable stuff. The gentleman who mentioned that he could relate to Job from the Bible. Funny he mention that. I often felt that way myself. God bless us all. ~Ang"
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REMEDIES NEEDED
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01/19/2012: Reena from Ahmedabad, Gujarat, India writes: "Hi, I am Reena from India and I have been suffering from HS from the age of 15 and I am 53 now so that is a long suffering time. I have never tried turmeric as a medicine but here in India turmeric is part of our daily cusine and we have it everyday in all our food however I still have HS and it is painful. A doctor here had prescribed an ointment 'dermogard' which has silver sulphadizene and it helped me a lot, not that I was free of HS but the outbreaks were rare, however 6 mths back the ointment went off the market and I just heard that they have stopped manufacturing it so I have not used it for the past 6 mths and I had a new cyst in my groin area last week it has drained but will take ages to heal. Can someone help suggest something?"
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01/16/2012: Alicia from Ohsweken, On, Canada writes: "I have had this for 8 years. I was not overweight when I first got it. I since than have stopped all my sports and it was due to pure embarrasement and pain. I too has no idea what it was a took 6years before I finally couldn't take the pain no more and seen my Doc about it. I have had very very bad mood swings and bursts of tears -- due to the pain itself!!! . I cannot at time brush my hair, reach over my head, turn the dial on my car radio 9 cause then I would have to reach= pain)
I have had so much pain I was beginnnig to have dark suicidal thoughts... Alot... I have a family and am a working mother of 3 who are all healthy. I have since gained 30 lbs since I don't do anything and feel like the uglisiest mother, partner, coworker alive!! . I could love to wear a smiple white skirt!! .... I had so many crying jags over this.... I have found that a tea I got from a local medicine woman has dried "them" out and made some scars lessen. But I don't know what exactly is in the tea she makes for me. it is natural from the ground/bush/fields...i will ask her and post it.
I know she used some tobacco and asked the creator for help in our language (cause I was literally going crazy from the pain and lashing out at everyone) I also say a prayer for the medicine to help me.. ( I know, everyone has a higher up/ culture). I will look more at my diet, now that I have been to this site! ... I love it. I felt so ashamed and alone. The smell is gross and my partner still never seen me naked or seen under my arms - - I cry alot :( . But I know am not alone and I will try a few things on the site, that I seen..... I wish everyone luck and by me going back to my traditional medicine ppl - its helping, ( I know there are dried daisyes inside, I seen them.. And some kind of root?) she mixed me 4 months worth to drink 3 times a day. Slowly helping."
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01/07/2012: Hidradsupprtpain from Knoxville, Tn writes: "boils - I too get these but believe are probably the hidradenitis suppurativa for in groin area and one on each side; left side there for over year and flames up whenever. Just had real bad episode with 2 together and it was so painful so I just took gauze, soaked w/ vinger (regular) and kept it on all night. It has worked wonderful but now have another problem. I have this huge hole and no idea how to begin to treat so as not to get an even worse infection. This is about size of dime, on groin and literally about 1/8 inch deep.
Please any suggestions would be greatly appreciated for I have no money for doctors and believe there is a great home remedy out there."
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12/12/2011: Lashondra from Batonrouge, Louisiana writes: "Hello everyone I have been diagnosed with this disease I am 36 years old- its like I have no life. I have horrible scars and I'm always in pain I have tried everything and through out all the years nothing has worked. I have 3 kids and I can barely go to work. It is horrible- I have tried all kind of meds and nothing seems to work. I was taking a bath in bleach and I'm just really tired basically I just want to be pain free and get on with my life and start back doing things with my kids someone please help thanks!!!!"
Replies12/13/2011: Mmsg from Somewhere, Europe replies: "Look up turmeric for that, on this site and elsewhere."
12/13/2011: Debbie from Melbourne, Australia replies: "Lashondra, please look under the ailments section of this website under "Hidradenitis Suppurativa" where many people have had good results aleady."
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08/16/2011: Sagaret from Dayton, Oh writes: "Thank you thank you thank you. I am 37 year woman suffering with HS for 20 years now. My flare ups seem to have worsen year after year. My mother suffered with it, my sister has a severe case and I found out tonight my brother suffers from this horrible condition. I currently have a horribly painful (worst so far) cyst or whatever its called and need relief. I have tried so many things and its not working. I have been applying heat for days. It seems ready to burst at any minute I just cannot stand it. I have found hope with this website and I wanna thank you all. Anything work to get it to bust?"
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01/31/2011: Celine M. from Pasay, Metro Manila, Philippines writes: "Hello, I am from the philippines and ill be 23 years old this year, I started having boils and scarring in my left underarm last january 2010, I thought it was just scarring but when one heals, one opens after a day or so and it keeps on getting painful, then I started searching on my symptoms and its compatible with HS, just last month my right underarm had lump and now I have 2 small wounds in my left underarm and 3 open wounds in my left, I am so scared because sometimes it really bleeds alot, I have read this disease from wikipedia and it says that it is not curable so maybe I had a little hope that it is somehow manageable, it says that it maybe caused by overweight and stress, before I had this my father had an attack and recently he passed away and I am trying to cope up with it, I also have a habit of binch eating when depressed so from the moment my father had his attack I have been binch eating and now I am obese. What I did so far is dried my wounds in front of the electric fan for 20 minutes every after I take a bath, I dont know what to do anymore, I am so scared.. Please can anyone help me? did someone here had HS and tried to manage it and prevent it from breaking out? how? help me please... I am so scared that sometimes I really wanted to die and it is so painful."
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[QUESTION] 03/17/2010: Guppydas from Lamsai, Prathumthani, Thailand writes: "Hello everybody. I am writing this in a desperation as I have been suffering this condition for more than 3 years now and it got worst due to improper medical procedure. Please excuse me if I am too graphical in explaining the sysmptoms.
3 years ago, a small acne like boil developed on right thigh. Disappeared in 2 days. Only to appear a week later. Then it changed the location. This time, on left thigh. Sometime then I also had an attack of Herpes Zoster on my Left shoulder and left back. I was completely exhausted by this two infections.
Eventually after a month or so, Herpes disappeared, leaving pain in the spot which is more intermittent. However, the infection around thigh didn't go away. In fact it became more stubborn and aggressive.
I do not like to take anti-biotics as I know the devastating unwanted effects they have. Still I visited doctor and I was put on some heavy doses of Antibiotic. I was dead against use of any cut and drain procedure. I believed this could be sorted by medication.
With patience I kept taking the medication to no benefit. The infection spread, finally covering almost the entire region on buttocks, inner thighs and groins. It was painful, foul smelling and not improving at all.
All this resulted in extreme exhaustion and finally in May 2009, I was taken to local hospital for check up and treatment. I was given 2 units of blood, put on drip for 5 days. During this, without my permission, the doctors performed a incision to drain the fluid out. Did bring good relief. However the entire procedure was conducted in a very unprofessional manner. No local anesthesia or numbing aid was given.
Eventually this short lived relief faded away in 3 months. I was completely bed ridden for a month during July and August 2009. Finally to get admitted to a bigger hospital. Results of diagnosis came around and to my shock and surprise, I was found HIV .
However, the doctors were nice and explained me the benefits to do a proper incision procedure to drain out the infected area so that the medication bring about healing faster. I agreed. I was taken to the surgery room. General anesthesia and after 3 hours, I was back in my bed in my ward. Felt very good. For few months. Then, the reality started sinking in.
The wound was not healing at all. 8 spots about 2 cm wide and 1/4 centimeter deep at least were not healing up. Once again there was pus formation and pain returned. This happened relatively swiftly before I could get to doctors and get some medical attention.
NOW, cutting long story short, I cannot get any medical attention nor can I afford any. So a well learned friend of mine suggested to take Food grade H2O2. I started taking that about 10 days ago. I am taking 3% food grade in about a litre of bottled water (says no chlorine on the lable). Can't get distilled water here. Don't see much difference. The only thing I see different is sleepiness. I don't fall asleep but I am sleepy all the time.
Ok this is getting too long. I did cut it short. My question is, in addition to the above treatment, I wish to take mega doses of Vitamin C. Any suggestions, warming, comments, recommendation on this? Vitamin C H2O2? Any other suggestions to heal this wounds faster? I am held back due to this. I can't sit or sleep properly. I need to travel back to my Home country and infection holds me back from travelling for so many hours in an airplane. The discharge is foul smelling and is constantly painful. Any suggestions are welcome. Please please help. I am emotionally and financially broke due to this condition.
Thank you all for your support.
PS: No doctor has so far given any name to it. However looking on Internet, I found two conditions (two names) most fitting to describe this infection on buttocks. 1) Hidradenitis Supprativa 2) Acne Inversa. many misdiagnose it as Acne Vulgaris. Yes I have had inherent Acne problem all my life. I also have a long medical history. I can share if it is helpful."
03/17/2010: Rena from Mineral Bluff, Georgia, Usa replies: "Hi Guppydas, from Lamsai,I understand the financial situation, so perhaps we can start off with the less expensive remedies. First off, you need to alkalize your system with fresh lemon or lime juice, mixed with baking soda.
Recipes can be found here:
http://www.earthclinic.com/Remedies/alkalizing_formulas.html#REMEDY4Next due to all the antibiotics, you need to replenish your good flora with a good pro biotic. If you can't find any, then perhaps you can make some fermented foods, or kefir.
Good recipes can be found here:
http://www.earthclinic.com/Remedies/fermented-foods.htmlNow for the wounds themselves, to put on externally and this will be the most expensive, is to get some Manuka honey. You may have to google this, but you will get some good information. If you can not get Manuka honey, then use a good pure or raw honey and apply to wounds, and bandage. Change bandages and re-apply the honey morning and evening. You can not use pasteurized store bought honey, it will not work, it must be pure honey. Your best wound healing would be to get the Manuka Honey, so if there is anyway, please get this.
I wish you the best, Peace, Rena."
03/17/2010: Charlotte from Boston, Ma replies: "Hi, I think turmeric would be very helpful in treating your sores. My family has used it many times for boils and acne both internally (1/2 teaspoon powdered turmeric in a glass of warm water)and externally (turmeric paste). Here is a page on Earth Clinic that I use frequently! http://www.earthclinic.com/CURES/boils.html.Please let me know if the turmeric helps you."
03/18/2010: Guppydas from Lamsai, Prathumthani, Thailand replies: "Hi Rena,
Thank you for your response. I can do the Baking soda lime thing. Manuka honey, raw, I doubt it is possible to find in this part of the world. However, I will ask around. Meanwhile I am continuing to use H2O2 for cleaning the wounds. Also, I have 3% Food grade H2O2 that I drink every day. About 5 oz. Mixed with either bottled (non chlorine) water or orange juice. It's only been 12 days so far so I think it would be too early to comment on results.
I was wondering if it would be OK to take Baking soda and Lime along with H2O2? Your comment is highly appreciated. I also wanted to know if high doses of Vitamin C be any good?
As you can see from my emails, I am 'zero' in this health matters. Besides, for some time I am feeling extremely sleepy. Droopy feeling, if it means something. My eyes feel heavy, as if I am about to fall asleep. When I put aside the anything that I am doing and try to sleep, I can't sleep. Mind is hyper alert. It is difficult to focus for 5 minutes and read an email or write a reply. Eventually I end up spending the entire day, doing one message at a time.
Once again, thank you for your response. I will get Baking soda and lime. One more question, can I squeez lime, lets say for 3-4 days worth and keep it or it is better to squeeze fresh?"
03/18/2010: Shandy from Limerick, Ireland replies: "Dear Guppydas,
My daughter was recently bitten by spiders that were poisonous, the bites became sores that refused to heal. The Drs tried to treat her with antibiotics and steroids - which did no good at all. After some research and help from others on EC I made a poultice with equal amounts of onion, garlic, and potato and bound it with bandages on her sores changing them every 4 hours - within 3-4 days it had drawn out all the pus, and scabbed over, we then applied plantago tincture for a few days which is supposed to regenerate tissue, now we are just applying vit e oil and they are healing nicely.It might be worth making a poultice and applying it to your sores since onion and potato have drawing power and garlic is antibiotic, all cheap and available? I'm not sure if you have plantain (plantago) growing in your country as I think it is a temperate climate plant, but one thing I also considered was pineapple - which I think is abundant and cheap in Thailand? Apparently it is also good for rejeuvenating tissue. I had considered binding freash pineapple pieces to my daughters sores but her being 15 and objecting to walking around like a human fruit salad we settled for plantago tincture.Vit e would most likely be the most expensive thing you could try also after the sores are healing well and the skin has grown over and is pink. Hope it's a help."
03/19/2010: Rena from Mineral Bluff, Georgia, Usa replies: "Hi Guppydas,Yes, I am a believer in vitamin C in helping to heal infections. What kind are you taking and at what dose? The H2O2 should have helped by now in increasing your energy, what is your dosage of this in drops to the 5oz? Do be mindful of your nutrition during this healing. Juicing vegetables would be a good way to go, if you don't have a juicer, could you borrow one from a friend? It also sounds like you are not sleeping well, this is also important in your healing, you need to sleep to help keep your immune system strong.
I have seen others post some good suggestions on a poultice, if you can't get manuka honey, or pure local honey, maybe you can try another poultice, there are many that could work.
Do keep the H2O2 and lime/baking soda taken different times of the day, not together. Keep us posted of your progress, Peace, Rena."
03/19/2010: Bill from San Fernando, Luzon, Philippines replies: "Hi Guppydas...I had what I thought was jock itch (tinea cruris) some while ago and no matter what I tried -- all the powders, drugs, antibiotics etc, it just wouldn't go away and looked awful. I had this problem for 7 years. Nothing seemed to stop it. The same as you, my infection was in the genital and inner thigh area, eventually extending right round to my buttocks and rectal area.
I'm pretty convinced that this was not just jock itch -- but probably involved MRSA as well and I eventually read about the effectiveness of Milk of Magnesia (MoM). Anyway, through reading alot, I decided to try this:
Every night after my shower I would simply apply Milk of Magnesia topically to the whole infected area, front and back with my hands(I applied alot). Then I simply let it dry on my body(it dries quickly to a white dust) and went to bed. I found the MoM to be very soothing and cooling on the skin. Next morning, I would shower all the MoM off thoroughly and repeat this the next evening. And it took only 2 days to completely heal the whole area -- I had normal skin again !!
The are two specific reasons why the MoM remedy worked. First MoM has a pH of 10 which is very high -- no bacteria, virus or fungus can survive it's alkaline effects. Second, MoM is hydrophobic -- drives water away, so not only did MoM kill the bacteria or virus with its high alkaline pH, it also sucked all the water out of these microbes as well.
One warning here -- if you've got sensitive skin, then just apply the MoM for only about 20-30 minutes -- until it dries to dust -- then wash it off and do this twice a day. Also apply a natural moisturizer afterwards like jojoba oil or cocoa butter to remoisturize your skin. And continue alkalizing with lime/Baking Soda and continue taking the H2O2."
03/21/2010: Guppydas from Lamsai, Prathumthani, Thailand replies: "Thank you Rena, Charlotte, Shandy and Bill for your replies.
Today I have a chance to post updates.
I wish I could do turmeric, as I remember, back home, my mother used it for curing many ailments. However, here in Thailand, the turmeric that is available in the shops is so full of additives that I rather not take that. Will have to wait till I get back to India, where I can get fresh turmeric and also pure dried powder.
Currently I live in a Catholic mission run hospice. Unable to go anywhere due to infection and constant pain. I have to depend on the staff or the monks, to get me things. They are typically opposed to idea of anything that is alternative. Initially the staff refused to use H2O2 for cleaning the wounds. They preferred Beta Iodine as some local Doctor taught them that H2O2 is useless and is rather harmful. It took me more than 2 months to convince them. Now they are seeing the effect. The foul smell is reduced and a couple of smaller wounds have shown significant improvement.
I was given a bottle of 3% Food grade H2O2 by a friend who is supporter of alternative treatment. He gets the 35% food grade somehow. From information on another website, I take 5 oz of this 3% H2O2 with non chlorine water or at times mixed with fresh orange juice. The taste gags so I prefer orange juice. But not always. Due to weird schedule of things happening here, I get a chance to drink that once a day. So I make it first thing in the morning, on an empty stomach. All 5oz together in one go.
Rest of the day, every 2-3 hours I am eating. I get hungry very fast. Someone suggested I am hypoglycemic. Whatever it is. I can't stand hunger and tend to get cranky and restless. Feel dizzy if it goes on too long.
Food is a bit of a problem in the current situation. In Thailand, rice is the main meal. No matter what you have, breakfast, lunch, dinner, it's rice and something else. On top of it, I am at a place where the show is run by local Thai people. Who think I am crazy when I refuse to eat rice. The point is, eating healthy and getting all nutrition from there is a challenge. However, with help of monks, I am trying to work out something.
I have discussed my needs for Baking soda, ACV/fresh lime, Milk of Magensia with my care taking monk. He is excited to learn about it and has promised me that when he goes out to the nearby town, he will surely get these for me. Just to clarify, this hospice is on a property that is located way out of town. The main street is about 5 Km away and the nearest town/village/shopping is about 15 Km. Monks don't go out so often. So eagerly waiting for that day when I have all the above and start using it. I have a feeling, a very strong feeling about this and it is positive. I am sure it will help heal the wound faster.
On Vitamin C. A friend has sent me some crystalline powder form of Vitamin C. Suppose to take a teaspoon full in a litre of water and drink it in parts. Haven't started it yet. Wanted to know if it is ok to do that alongside H2O2. Now I know I can, as long as they are taken far apart. So I will need to readjust my schedule to incorporate that. I think 1 teaspoon = 4 gms. (4000 mg). Been told to increase the dosage till I get diarrhea and then drop a step back.
Thank you all once again for your kind help and support to me during my difficult times. I will keep posting as and when I can, about progress on my healing.
I wish you peace beyond all understanding. Thank you.
PS: Please excuse my typos. It is difficult to sit comfortably and spend quality time in typing properly. I hope you understand."
03/23/2010: Lisa from Thousand Oaks, Ca, Usa replies: "Hi Guppydas,Seeing that you are in Thailand, I am going to assume young coconuts are readily available to you. I don't think there would be opposition to you taking these. They are full of nutrition and very healing. Google about young Thai coconuts and you will see all the benefits. They could help you with several of your issues. I hope this info helps. Best to you, Lisa"
04/23/2010: Guppydas from Lamsai, Prathumthani, Thailand replies: "Greetings all,
Here I am once again. Failed at H2O2 therapy to get rid of my infection and the wounds around my buttocks, inner thighs and groin area.
I was convinced that there is more to this infection and hence spent many hours reading EC and all the posts. Cross referencing with other material available on internet. I knew I was missing something. Something very elementary.
Besides that, friends a quick reminder. I am bed ridden with this ailment. Energy levels at the rock bottom. It is hot here in this part of the world. Day temperatures are as high as 39 Celcius (I.e almost 102 F, if my conversion is correct) and it does not help. This part of the world, simple things are impossible or unheard of. I remember someone suggested to drink young fresh coconut. Strange but true, young fresh coconut is NOT available in this part of this country. I am completely dependent on my charm, luck and bit of broken Thai to get my message across to Thai staff of this Hospice to understand what I need.
So here is the latest. Finally I did manage to explain I wanted Baking Soda, ACV, Turmeric Powder, Milk of Magnesia (without aluminium) and fresh lime. I also got some help from a friend who had some pure Vitamin C powder. He also had some good quality Baking soda and he sent me some. Eventually the staff managed Lime, Turmeric powder and Milk of Magnesia.
Now here is my plan. I will start with :
1 teaspoon of Vitamin C, mixed in water or fresh fruit juice to sip through the day
1 Lime 1/2 teaspoon Baking Soda and water x 3 times a day
Will continue this for first couple of days or even 4 days. Then I will begin with 1 teaspoon Turmeric powder with either warm water or chocolate flavoured milk. Maybe with warm water and then chase it with chocolate milk.
For physical cleaning of wounds, first wash it with H2O2, then apply some Beta Iodine and finally put some Milk of Magnesia and do the dressing. The staff has understood the procedure well.
I know the taste of Turmeric. I am Indian and my mother used to make warm milk with Turmeric in it whenever I was down with severe cold and cough. It gives me jitters to think that I am going to drink that again. Maybe it won't be as bad. Whatever, I am fed-up of this sickness and want to be normal again. I may also sprinkle some on my food.
My logic behind this is simple. All my previous attempts, including H2O2 did not succeed as my body was highly acidic. Due to bad life style over past several years, I am not surprised that I have terrible pH. So first things first. Get pH in order... then attack the infection. Please note, I am also diagnosed HIV positive so my natural immune system in not that great. In addition, the food I get here is not alkalising at all.
I would be adjusting dosage of alkalising formula to speed up the process, following Ted's suggestions. Same with Turmeric. I will try and post progress on regular basis, for those who wish to follow. I will be posting it on my personal blog anyway but for reasons I will not mention my personal blog URL here. As there are some commercial aspect and may not fall within rules of EC forum. However, I am more than happy to share the URL if someone wished to. Maybe EC would show the URL as an exception to the case or maybe not. Whatever, I will surely post the progress here for benefit of those who wish to know what happens.
My infection is chronic. I had same problem some 10-11 years ago, in the same region and it was removed after a long surgery, in Australia. I was living in Australia at that time. It surfaced again this time it won't respond to any treatment. This time due to circumstances, I am unable to get surgery and I feel that is blessing in disguise else I would have never found EC site and the wonderful information that is available here.
Starting tomorrow, 24 April, Thailand, I will be doing the above mentioned regime. Look forward to my progress.
Thanks to all who replied to my earlier post. Thanks Bill particularly for his explanations. Thanks to Ted and of course HUGE thanks to EC team. GOD Bless you.
funkyguru@gmail.com
website http://guppydas.com
PS: Please excuse my typos as I can't sit and type. I have to lay on bed with notebook on tummy. Not particularly comfortable for typing."
04/26/2010: Guppydas from Lamsai, Prathumthani, Thailand replies: "A quick update on my new regime.
It is day 4 today. One thing for sure, something IS happening. Yesterday evening, I fell asleep and woke up today morning. In the night, the wounds discharged a lot of fluids, pus mixed with blood and foul smelling. Two points, one the fact that it discharged the fluids and second is that it happened while I was sleeping and didn't pain.
For me these are great break breakthrough. First been able to sleep for two nights in a row. Sleep peacefully without disturbance or waking up. No need for pain killers.
All this, while I am still only on pH balancing. Turmeric will start tomorrow. I have posted the daily routine on my blog, mentioned in previous message, under category of Alternative Therapy.
I am really excited to be able to heal my self and also to share the progress. I feel this should clear a lot many doubts in minds of people who still doubt the power of natural remedies to heal."
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RUBBING ALCOHOL
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[BETTER BUT NOT CURED] 03/08/2010: Julie from Salt Lake City, Utah writes: "Hi everyone,
I'm 19 and have had HS ever since I can remember. I've had surgery to remove abscesses in both armpits. I remember being in grade school and not participating in gym because I could not sweat and risk having it resting on my skin all through school. My gym teachers never really believed me and just assumed I got a doctor's note because I was overweight and didn't want to exercise. This is an embarrassing disease and I'm sorry all of you had to go through it too.
Over the years, I've gotten better though. I do something that I think no one has mentioned after every shower I use sterile cotton balls and PUT RUBBING ALCOHOL on the areas that I normally get them (especially the open sores). Doctors use this to clean instruments and they go in first aids kits to cleanse burns and wounds. It sounds harsh but It doesn't make my skin dry at all. Once I started doing this, I barely even get any boils maybe one or two a month! :)
I also use softsoap antibacterial liquid soap or any other generic brand that is close. I look at the ingredient triclosan the higher it is the more antibacterial quality. I DO NOT USE bars of soap because they can carry bacteria on the surface, unlike liquid soap that comes in a bottle.
If you'd really like them to go away I would really suggest using the rubbing alcohol after showers and before bed (if you only shower in the mornings) and put on clean LOOSE clothes to sleep in. One last thing, it is very handy to put the rubbing alcohol in a medium sized spray bottle to spray on the skin during the day or anytime you apply it. (This is also great for spraying on public toilet seats to disinfect them. I also lay down toilet paper ALWAYS before sitting on public toilets) Sanitizing toilet seats (even my own toilet) before going to the bathroom has helped so much I hardly ever get sores down there anymore!
Soon I am going to start trying more natural methods like putting tea tree oil on instead of rubbing alcohol. I am also going to start taking turmeric (used in making curry) they say it has anti-inflammatory agents.
I hope this helps someone because I know how hurtful and embarrassing it is to live with this disease."
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SALT CRYSTAL DEODORANT
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[BETTER BUT NOT CURED] 05/02/2011: Aalexand from Greenwood, Ms, Usa writes: "I've suffered with HS for about 6 years now and I've tried everything from Accutane to tumeric and nothing had worked until about 3 weeks ago I went to my gynecologist for my yearly check-up and during my breast exam he check my under arms.... I was so embarrased because I had band aids under my arms for the drainage. He asked me what was going on and I told him and I also explained how I had gone to several dermatologist and had paid out so much money and tried several different harsh medicines, he told me to get some salt crystal deodorant and to try that and that it would not only keep me smelling fresh, but that it will clear it up.
I tell you that my HS has cleared up 80%.... I no longer have to have all the band aids because it is drying up and there is no foul smell under my arms. I just had to share this and hope that it will help someone else that is dealing with this terrible disease. And remember GOD can heal you of this because he has healed me and I thank GOD for healing me."
Replies09/01/2011: Justsayin from Toronto, Ontario, Canada replies: "Reply to: Aalexand from Greenwood, Ms, UsaHello,
My under my arms is the worst part of my HS, because of odor under my arms and the small open sores that don't want to close. My mobility of my right arm is limited, I can't reach for things with that arm, hug people and sleeping hurts. Actually my right arm is usually down at my side. Friends and family haven't noticed because I sadly play it off well.
Something simple like using salt crystal deodorant is why I love EC so much, I would have never though of that. I am already using turmeric and AZO yeast supplements which helping ridiculous amounts, but if salt crystal deodorant would help with the odor under my arms and actually aid in clearing the HS up as you said... Would be AMAZING!
I was wondering though how salt crystal deodorant feel under the arms, because I am a bit sensitive on the right side with the HS. Also if there is any stinging or burning sensation associated?
Thank you so much for your comment, I am so glad you are doing much better =)"
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SWISS CHEESE
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[BETTER BUT NOT CURED] 06/19/2011: Jacob from Rancho Cucamonga, Ca writes: "IF YOU HAVE HS PLEASE READ THIS
I have had HS for around 7 years now. Some breakouts are bad and some are bearable. I think there is really no rhyme or reason to it. Around this time of the year (summer) is when it is at its worst for me. Luckily I have not had any outbreaks since last July of 2010. It ruined my world cup experience. My doctor had prescribed me Keflex also known as Cephalexin. The problem is you can't take Keflex year around because it is a strong anitbiotic. I typically have a jelly bean size and very hard bump under my armpits. I experience discomfort but it is bearable. When the infection starts to get bad it can turn into the size of an egg until it drains. When I can feel the infection worsen I take my Keflex and it has been keeping it in check but the bump never went away. I also clean with hibiclens but from what I understand hygeine has absolutely nothing to do with it. The Keflex has had my spirits up and feeling that I could contain this. I was also prescribed clindomyacin lotion.. But... NOW READ THIS. I SWEAR IT WORKED FOR ME. I FEEL OBLIGATED TO POST THIS.. ITS UP TO YOU IF YOU WANT TO TRY IT OUT. IT IS VERY INEXPENSIVE COMPARED TO THE THROBBING ACHING PAIN WHEN IT GETS BAD..
All of my friends are aware of my problem because I decided I wasn't going to be embarrased about it anymore or let it affect my personal life. When my friend told his dad his dad told him he he had a friend that had it too and he went to countless doctors who were unsuccessful in treating it. The last time he went to the doctor (because obviously he never had to go back since this worked for him) the doctor told him to simply eat swiss cheese. I know it souds crazy but please keep on reading. Apparently Swiss chesse has a different type of bacteria than any other cheese and the reason for the holes in the cheese are because the bacteria expels gasses. Something in that counter acts what we have. I can honestly say I have no bumps and have been eating Swiss Cheese for 2 weeks now. I don't eat an insane amount but I go through about 1 lb in 3 days. I only eat the swiss cheese from Switzerland not made in Connecticut or anything like that. I don't know if they use the same process. I found it at Sams club for $1.17 per lb. , which cost around $25 a week. Someone please try it. It WORKED for me.. I do not own a cheese company or invest in any stock of any kind. I just want someone else to try it because maybe this is a coincedence... But maybe not.
Feedback Please."
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TANNING BEDS
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[BETTER BUT NOT CURED] 05/12/2009: Ana from Las Vegas, NV writes: "I have tried several possible remedies for HS if anyone has read my previous post; none of which have worked. Good news! In an earlier post someone spoke of getting as much sunlight to the affected area as possible. Well for those of us with HS of the groin, that's kind of hard to do, so I improvised. I go to the tanning salon! Works great. The sores are drying up and the heat is very soothing to the area. Of course I don't use any lotions on the affected skin but if you time the tanning session just right you won't burn or damage the skin. Obviously if you're prone to burning in the sun I would not recommend using a tanning bed, but for those of us who don't burn, it's a God send. I've only been going for about a month and I already have noticed a significant change in the number of sores and drainage. I'm praying it will continue to work and I may not have to have surgery!"
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TEA TREE OIL
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[YEA] 07/14/2011: Mike from Tulsa, Ok writes: "I had to have a sulfa-based antibiotic to cure my last swollen node on my groin. After wearing tight synthetic workout undershorts for several hours (which I won't do again), I had another case in the same groin area and felt the swollen gland grow to the size of a nickle. I read someone's suggestion on this site that Tea Tree Oil may work and I applied it to the swollen node three times a day and it has gone away in 5 days. I am thrilled. I suppose catching it early helps. I purchased Tea Tree Oil from a beauty supply."
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[YEA] 12/28/2007: Tina from Indianapolis, IN writes: "I was Diagnosed with hidradenitis July 06. I have had terrible breakouts in the groin area from my bikini area to my anal area. I have tried everything to stop the breakouts, even bathing 3 or more times a day nothing has worked. Recently I went to a local natural food store and read a natural remedy book were it stated Tea Tree oil, pure tea tree oil will take out the staph from boils and soothe the pain. I tried it several times so far so good. It has a scent of eucalyptus and the same drying action like alcohol. So far it works"
Replies01/04/2009: T3 from Chicago, IL replies: "I will try this. My cysts go on for 20 years all over and each has a different name and none have a cure. I either have to wait til it comes to a point (huge then) so dr. can cut it or it busts by itself and is a bloody mess. Not to mention the pain. I had 3 in my breast all come to a point at once after a mamorgram, which never showed them, but the ultrasound did. So for any of these cysts, I need answers, deoderant, shaver, soaps all been tried and no relief. No insurance now and when they come I'm on my own. Few times dr. wouldn't even open it and drain it, so pain, pain to my toes on the side of the cyst. I looked bruised or blackened on the ones that have reawaken lately. Antibiotic is hard to get, the dr's don't believe it helps me, but one did, plus I said they make me exremely nausaus and they said it was all in my head. I told them they're crazy,i get so much pain and it gets so big, i can't go to work, what more proof you need? I get so sick to my stomach, headeaches, radiation of pain on the entire side and can't move sometimes. Just need some help. Apple cider baths did not help, baking soda relieved pain, but stung the other unopened one and bactraban seemed the best, but is a prescription, and may eventually flair up anyway til it needs to break. They all do this and I can't take it anymore. Even my clothes are getting ruined. I had some removed and they come back 1/2 inch from the last one. Like I'm 1 big cyst with a head on top. Let you know if tea tree oil helps. Also tried the diet thing too, over 20 years of this, one thing right dr.'s say, NO CURE. Cut, cut, drain, scar, scar, cut, cut. Been there don't that. I was only 19 then. I can cry/I do."
03/17/2009: Evelyn from Brevard, NC replies: "Hi, I had HS for 25 yrs or more. Didn't have name for it until 8 yrs ago. Try many different things, nothing work. I use dial (bar) anti-septic soap but sometimes in the summer, I use liquid soap and mix with tea tree oil. It cheaper than buy it at the health food stoe. The only thing I found to help with the pain is Emla, it a cream I get from my doctor, it has lidocaine & prilocaine. It come in genertic, also. Use it only on my real ones. Help to numb the pain some! Also use a Draw Out Salve to help bring it to surface. It main ingredent is green soap. Hope these suggestions might help! Ev."
[YEA] 03/24/2009: Sonia from Christchurch, New Zealand replies: "Since I started using Tea tree Oil I have not had many problems at all. Prior to this I had new lesions coming up all the time one after the other."
10/26/2011: Ray from Oklahoma City, Oklahoma replies: "How do you apply tea tree oil? Can it be added to bath water? Applied directly to affected area? After bathing? Has anyone seen a wound care therapist?"
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TOOTH ABCESS LINK TO H.S.
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[YEA] 11/07/2009: Asd from Houston, Texas writes: "Doctor informed me I had hidradenitis supperativa. Symptoms included boils and inflamed lymph nodes. Alternative effective treatments included daily high doses of Vitamins C, E, zinc, mucinex. New information and treatment described below has lead to cessation of symptoms.
Recently received root canal re-treatment and discovered abscess into bone tissue. No longer experience hidradenitis superativa symptoms. Taking Vitamin D and Calcium to support bone restoration, which also appears to be reducing the appearance of scars on skin. Bone damage was not visible on x-rays."
07/14/2010: Melissa from Jacksonville, Florida replies: "I went to the dentist because my front teeth were aching really bad and they did an x-ray and immediately sent me to an oral surgeon. I had an abscess above my front top teeth that was so big they had never seen anything like it. He went in through my gums and roof of my mouth and removed a golf ball sized abscess. I have had many cases of that size cyst on different parts of my body for the past 20 years. Some were lanced, some surgically removed. Many antibiotics and no explanations. I researched myself and found this site. I found out it was Hidradenitis supperativa and that I should try Turmeric. I drink a Heaping teaspoon of Turmeric in a half cup of water as soon as I feel one beginning to flair up. I continue to drink it 2-3 times a day until its gone and it never gets big. It stops it before it grows big. Thank God and this site!!!"
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TURMERIC
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10/26/2011: Hania from Houston, Tx writes: "I wanted to thank the creators of this site and its contributors so much for all the helpful information I found on here. I've had HS for years and always felt as if I was the only person who had this. It was actually just last year when I found out this was HS and not some mystery disease. Unfortunately there is no cure. I've seen different doctors who just didn't know how to go about dealing with this disease. I didn't want to go in for another round of antibiotics, or expensive injections at an expensive dermatologist, so I decided to go the home/organic remedy route. I'm so thankful to have found this site.
I had a really bad flare up last night, a very large and painful boil. It was very difficult for my to walk or sit, and I could only lay on one side of my body in bed, to keep pressure from building on the boil. I drank a mug full of hot water with 1/2 teaspoon turmeric and crushed black pepper. When I woke up this morning the first thing I drank was half cup of hot water with black onion seeds. Then I drank the turmeric and black pepper in hot water again this morning at 6 and 11:30, and the swelling and pain have gone down considerably. It's nasty but it works! I will drink it again at 4 pm and 10 pm. My mother has been telling me about drinking milk or water with turneric for a long time now, I don't know why I never listened! Mother really does know best!
I've noticed that sugar and coffee is the only main thing that causes these boils for me. I need to lose weight as well. It may not be everyone, but I've been doing my own research on this disease and have seen that a lot of people dealing with HS are overweight or obese."
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