Fibromyalgia Questionnaire & Results

Latest Update: 02/02/2012

If you suffer from the widely misunderstood, crippling condition known as Fibromyalgia and would like to anonymously share some of the details of your experience, please take time to answer our QUESTIONNAIRE!

While even many physicians tend to associate Fibromyalgia only with extreme muscle pain & stiffness, the chronic condition includes a long list of symptoms, many of which are severely debilitating. Cognitive difficulties, widespread joint pain, extreme fatigue, gastrointestinal problems and thyroid dysfunction, all play a major role in the crippling nature of Fibromyalgia.

SHARING INFORMATION & EXPERIENCES
The information that you share with us in our questionnaire is summarized in an effort to help those suffering from this disturbing disorder.

Since 2006, we have received over 2,000 completed questionnaire forms, which can reviewed below and in our fibromyalgia archives section (see links at the bottom of this page). Our 2008 SUMMARY OF QUESTIONNAIRES is a great way to explore some of best, uncensored advice and feedback that we have received from more than 820 people that have already responded to our questionnaire.

Here are just two examples of the kind of important feedback you have given us so far...

Cognitive dysfunction, which ranges from concentration & short-term memory problems to brain fog (that borders on dementia in the most severe cases), is a symptom shared by over 93% of those that have completed our questionnaire. And yet, shockingly, many respondents indicate their doctors still don’t even know this symptom is associated with Fibromyalgia!

Similarly, while growing evidence speaks to a link between fibromyalgia and thyroid dysfunction, many in the medical community are unaware of this seemingly important connection. Nevertheless, without even asking a specific question in our survey on thyroid dysfunction, it was impossible to ignore the thyroid problems that are so commonly associated with Fibromyalgia.

Learn about Fibromyalgia directly from those who suffer from the condition!

1   What advice do they have?
2   What initial symptoms do they share?
3   How do their symptoms advance?
4   What are their theories and comments on the condition?
5   What treatments do they suggest?
6   How debilitating are their symptoms during the various stages?
7   How are they treated by physicians, as one symptom after the next slowly emerge?

Please note, the author of "The Cause of Fibromyalgia" has been most generous with Earth Clinic and has helped us compile all of our questionnaires between 2005-2008. We are so grateful for the brilliant, pro bono work he has done on this project.

THANK YOU SO MUCH TO EVERYONE WHO TOOK THE TIME TO ANSWER OUR QUESTIONNAIRE!

EXPLORING QUESTIONNAIRES, BY PERSON
We have added a second tab to our SUMMARY OF QUESTIONNAIRES to help you locate the questionnaire of each respondent. Thus, if you find some information provided by a specific person that you find particularly useful, you can quickly find the answers they provided to the rest of the questions in our archives, below.

4 QUESTIONNAIRE COMPLETED DATA FORMS FOR February 2012

02/02/2012
First Name: amy
Age: 32
Male or Female: femail
City: greenwood
State/Province: ar
Country: united states
How long have you lived there: 32
Where were you born:
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: desk job
How has Fibro affected your ability to work: its hard to sit comfortably all day i hurt all day long
How has Fibro affected your life: im tired of being tired and hurting all the time

History:
Did You Ever Have A Long Lasting Virus: no
What were your first symptoms: chronic pain
What are your current symptoms:
Your age at onset of symptoms: 26
How fast was your rate of decline:
What are your current symptoms:
Number of years since you developed symptoms of fibromyalgia:
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: i dont know
Describe the extent of your brain fog: i can think one thing and say something completely different
Estimate number of doctors you have seen for Fibro related symptoms: 0
Do your doctors tend to focus on all your Fibro symptoms:
Do your doctors treat your symptoms individually or collectively:
Describe your experience with doctors:
What remedies or medications have you tried: alphalipoic acid
What makes you feel better: nothing
What makes you feel worse:
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: low fat diet
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

02/01/2012
First Name: Eunita
Age: 37
Male or Female: female
City: whangarei
State/Province: new zealand
Country: new zealand
How long have you lived there: 9 years
Where were you born: cape town
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: social worker
How has Fibro affected your ability to work: it has slowed me down. constantly in pain. brain fog ect
How has Fibro affected your life: I am less active. i am constantly tired. life less

History: I have suffered with back pain
Did You Ever Have A Long Lasting Virus: no
What were your first symptoms: loss of grip
What are your current symptoms: pain in the rotar cuff muscle. neck pain. chest pain
Your age at onset of symptoms: 29
How fast was your rate of decline: it declined very quickly
What are your current symptoms: pain in the rotar cuff muscle. neck pain. chest pain
Number of years since you developed symptoms of fibromyalgia: 8 years
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 7 years
Describe the extent of your brain fog: lack of concentration. forgetfull ness
Estimate number of doctors you have seen for Fibro related symptoms: 6
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: no
Describe your experience with doctors: not very helful
What remedies or medications have you tried: painkillers, heat packs, vitamins,
What makes you feel better: rest
What makes you feel worse: cold weather,
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

02/01/2012
First Name: Billie
Age: 60
Male or Female: female
City: Moro
State/Province: IL
Country: USA
How long have you lived there: 19 yr
Where were you born: illinois
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: RN
How has Fibro affected your ability to work: yes
How has Fibro affected your life: yes

History: Heart disease, degenerative disc disease
Did You Ever Have A Long Lasting Virus: yes
What were your first symptoms: joint pain
What are your current symptoms: neuropathy, fatigue, insomnia, joint pain, phantom pains, thinking problems, depression
Your age at onset of symptoms: 20
How fast was your rate of decline: fast last 10 yrs
What are your current symptoms: neuropathy, fatigue, insomnia, joint pain, phantom pains, thinking problems, depression
Number of years since you developed symptoms of fibromyalgia: 35
Do your symptoms include brain fog: YES
Number of years since you developed the brain fog: 30
Describe the extent of your brain fog: varies
Estimate number of doctors you have seen for Fibro related symptoms: 5
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: not really taken seriously because symptoms so vague
What remedies or medications have you tried: pain pills, ambien, antidepressants, arthritis meds
What makes you feel better: Ibuprophen
What makes you feel worse: not sure
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

02/01/2012
First Name: vee
Age: 40
Male or Female: female
City: lansdale
State/Province: pa
Country: usa
How long have you lived there: 14 years
Where were you born: pa
Is this the first time you have taken our questionnaire: yes
If not, why are you returning: I'm new
Are you still working: no
What is Your Line of Work: mail svc
How has Fibro affected your ability to work: difficulty standing, Sitting, Walking. problems concentrating.
How has Fibro affected your life: I stay to myself alot. turn down social events

History: sciatics, chronic joint pain, arthritis
Did You Ever Have A Long Lasting Virus: no
What were your first symptoms: joint pain, lower back pain
What are your current symptoms:
Your age at onset of symptoms: 28
How fast was your rate of decline: gradual at first
What are your current symptoms:
Number of years since you developed symptoms of fibromyalgia: 10
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: just recently
Describe the extent of your brain fog: forget where i put things, can't remember names, hard to find words
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: frustrating
What remedies or medications have you tried: heat pads, oinments, gabupentin, nerontin, tramadol, amitriptyline, vitamin d, flexiril
What makes you feel better: hot bath and rest
What makes you feel worse: cold weather, walking
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments:
Your theories or comments:
Are we missing any important questions:

Archived Case Studies...
March 13 - April 12, 2008
February 21 - March 11, 2008
February 2 - February 20, 2008
January 13 - January 31, 2008
December 14 - January 11, 2008
November 20 - December 13, 2007
November 4 - November 19, 2007
October 21 - November 1, 2007
October 6 - October 20, 2007
September 10 - October 5, 2007
August 26 - September 9, 2007
July 26 - August 25, 2007
July 10 - July 25, 2007
May 21 - July 8, 2007
April 25 - May 21, 2007
April 1 - April 24, 2007
March 19 - March 31, 2007
March 5 - March 19, 2007
February 13 - March 1, 2007
January, 2007 - February 12, 2007
August, 2006 - January, 2007
August 22, 2006
June - August 6, 2006
April - May, 2006
February - March, 2006
November, 2005
September - November 2005

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Fibromyalgia Questionnaire & Results