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Fibromyalgia Questionnaire & Results

Latest Update: 11/20/2009 

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35 QUESTIONNAIRE COMPLETED DATA FORMS FOR October 2008

10/30/2008
First Name: olivia
Age: 56
Male or Female: female
City: guildford
State/Province: surrey
Country: england
How long have you lived there:
Where were you born: yes
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: part time
What is Your Line of Work: nurse/carer
How has Fibro affected your ability to work: yes
How has Fibro affected your life: yes
What were your first symptoms: lack of mobility pain in arms,leg hips lower back stiffness in neck,shoulders+pain
Your age at onset of symptoms: early thirties
How fast was your rate of decline: steady
What are your current symptoms: all of the above only worse
Number of years since you developed symptoms of fibromyalgia: 20+
Do your symptoms include brain fog: do you mean forgetfullness yes
Number of years since you developed the brain fog: 20
Describe the extent of your brain fog: names,time,need to write things down sometime
Estimate number of doctors you have seen for Fibro related symptoms: they have never said this is what i have
Do your doctors tend to focus on all your Fibro symptoms: no arthritists
Do your doctors treat your symptoms individually or collectively: no treatment
Describe your experience with doctors: my gp is wonderful hospital doctors dont listen to what you have to say and do thier own thing not always for the best in my experince
What remedies or medications have you tried: voltarol co.codrymol mst
What makes you feel better: hot baths any thing warm my hands very painful if cold+ my feet
What makes you feel worse: being cold or sitting,standing still even for 10 mins
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: dont drink tap only when boiled for tea/coffee drink bottled water
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: have under active thyroid on amour as reaction to man made types make my muscule swell very painful to touch
Your theories or comments:
Are we missing any important questions: i just want something to help me have no pain without harmful side affects

 

10/30/2008
First Name: Melanie
Age: 43
Male or Female: Female
City: Lawrence
State/Province: Massachusetts
Country: USA
How long have you lived there: 43 years
Where were you born: Medford,MA.
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: Office Manager
How has Fibro affected your ability to work: I can not work
How has Fibro affected your life: My quality of life is horrible
What were your first symptoms: Chronic pain and fatigue
Your age at onset of symptoms: 39
How fast was your rate of decline: rapid
What are your current symptoms: pain, numbness, fatigue, depression
Number of years since you developed symptoms of fibromyalgia: 4
Do your symptoms include brain fog: what that
Number of years since you developed the brain fog:
Describe the extent of your brain fog:
Estimate number of doctors you have seen for Fibro related symptoms: 6
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: an uphill battle. A fight to the finish
What remedies or medications have you tried: cymbalta,lyrica,neurotin,willards water,
What makes you feel better: good weather,sleep,narcotics.keeping active
What makes you feel worse: bad weather,PMS.stress
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: I would love to learn more about this disease
Are we missing any important questions: What type of Doctor/specialist do you see for the fibromyalgia?

 

10/27/2008
First Name: Peggy
Age: 74
Male or Female: female
City: san andreas
State/Province: California
Country: usa
How long have you lived there: 9 years
Where were you born: Stockton, Calif.
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: retired
How has Fibro affected your ability to work: yes
How has Fibro affected your life: terrible
What were your first symptoms: headaches, pain
Your age at onset of symptoms: 64
How fast was your rate of decline: fast
What are your current symptoms: pain throughout my body
Number of years since you developed symptoms of fibromyalgia: 10
Do your symptoms include brain fog: no
Number of years since you developed the brain fog:
Describe the extent of your brain fog:
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: poor
What remedies or medications have you tried: rest, sleep
What makes you feel better: sleep
What makes you feel worse: extensive activity
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes
Have you tried any thyroid specific treatments: no
Your theories or comments: is there a cure for this?
Are we missing any important questions: no

 

10/26/2008
First Name: David
Age: 60
Male or Female: m
City: honolulu
State/Province: hawaii
Country: usa
How long have you lived there: 60 years
Where were you born: Honolulu
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: outdoor sales
How has Fibro affected your ability to work: Can hardly walk and lift things
How has Fibro affected your life: constant pain
What were your first symptoms: Pain in my legs.
Your age at onset of symptoms: 48
How fast was your rate of decline: It took 12 years for the medical to diagnose it as fibromylgia
What are your current symptoms: pain in calves, thigh, joints,ankles and knees and hip. shoulder pain on both sides wrist pain and lower back pain
Number of years since you developed symptoms of fibromyalgia: 12 years
Do your symptoms include brain fog: yes,
Number of years since you developed the brain fog: 4 years
Describe the extent of your brain fog: I would forget where I left things. Forget to do things and make mistakes figuring things
Estimate number of doctors you have seen for Fibro related symptoms: 5
Do your doctors tend to focus on all your Fibro symptoms: athritus
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: They thought that I had a virus
What remedies or medications have you tried: I was given Ibuprophen 800mg
What makes you feel better: I have just started an alternative approach. triptophan, magnesium melatonin
What makes you feel worse: my diet
Have you tried avoiding fluoride in your diet: yes
If so, which sources of fluoride: tap water, but I drink only purified water
Have you made dietary changes to avoid any other neutrotoxins: I am trying to avoid red meats
Have you tried any thyroid specific treatments: no
Your theories or comments: I think my pain is from food allergies causing my fm
Are we missing any important questions:

 

10/25/2008
First Name: Jeff Caldwell
Age: 43
Male or Female: Male
City: Linden
State/Province: MI
Country: US
How long have you lived there: 18 Yrs
Where were you born: MIchigan
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: Yes
What is Your Line of Work: Engineer
How has Fibro affected your ability to work: Extremly difficult to get through the day.
How has Fibro affected your life: Greatly diminished the the quality of life. Every day is a struggle. However some days are better than others. Strange
What were your first symptoms: It came on very suddenly.literally in a day. including extreme fatigue, muscle weakness, headache, jaw pain, vision problems, nausia, verigo and memory loss.
Your age at onset of symptoms: 29
How fast was your rate of decline: As I stated above it came on in just a few days
What are your current symptoms: Current symptoms a re the same as my first symptoms, however somewhat less sever as I have learned to sleep more and have less activity in my life.
Number of years since you developed symptoms of fibromyalgia: 14Yrs
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: 14Yrs
Describe the extent of your brain fog: Difficulty with short term memory, heavy concentration activities cause extreme fatigue & headache. Difficulty reading due to vision problems
Estimate number of doctors you have seen for Fibro related symptoms: 4-5
Do your doctors tend to focus on all your Fibro symptoms: Yes
Do your doctors treat your symptoms individually or collectively:
Describe your experience with doctors: They tend to not want to deal with the problem.
What remedies or medications have you tried: To many to list
What makes you feel better: 10mg amitriptyline at bed time. exercise, relaxation
What makes you feel worse: stress and to much sleep
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: n/a
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: yes, one doctor initially prescribed thyroid meds. I did not notice any improvement. I was told I had a goyter
Your theories or comments: just prior to Fibro, I was working out of town in St. Louis.for several months. I had come down with an extreme sinus infection. Very painful, the worst I ever had. I ended up going to a doctor for antibiotics. I do not recall what they were.
Are we missing any important questions:

 

10/24/2008
First Name: Carol
Age: 61
Male or Female: Femake
City: Alpharetta
State/Province: GA
Country: USA
How long have you lived there: 40 years
Where were you born: Northern USA
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: Trying to
What is Your Line of Work: Retail sales business owner= home decor
How has Fibro affected your ability to work: YES -- stuggle to get up, walk, lift, cope, think
How has Fibro affected your life: Taken my "lifestyle", freedom & ability to function & contribute to society.
What were your first symptoms: Muscle pain all over -- fatique, couldn't & still can not get restful sleep
Your age at onset of symptoms: 45
How fast was your rate of decline: Fast--
What are your current symptoms: Severe chronic deepmuscle & tissue pain & burning, chest pain, brain fog, irritable bowel, stomach issues, sensitive to light, smells & sounds, can't sleep,
Number of years since you developed symptoms of fibromyalgia: 21
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 21
Describe the extent of your brain fog: Can't concentrate, can't remember what I indeded to say mid sentence
Estimate number of doctors you have seen for Fibro related symptoms: 6
Do your doctors tend to focus on all your Fibro symptoms: No
Do your doctors treat your symptoms individually or collectively: Not sure--
Describe your experience with doctors: Most are well intended & do BELIEVE I am in PAIN but do not know the root cause & how to treat.
What remedies or medications have you tried: Most ALL of the ones available.
What makes you feel better: DIFULCAN ==Strong med that treat systemic yeast infections
What makes you feel worse: Most
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins:
Have you tried any thyroid specific treatments: Armour Thyroid
Your theories or comments: I think low carb diets are helpful to some
Are we missing any important questions: Ask about chronic yeast infections-- to see IF their is a common link.

 

10/23/2008
First Name: Marie
Age: 37
Male or Female: female
City: Cincinnati
State/Province: Ohio
Country: United States
How long have you lived there: 22 years
Where were you born: Kentucky
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: sales
How has Fibro affected your ability to work: not much
How has Fibro affected your life: I am in pain a lot
What were your first symptoms: Pain in the hips
Your age at onset of symptoms: 36
How fast was your rate of decline: quick
What are your current symptoms: pain in the hips and sholders
Number of years since you developed symptoms of fibromyalgia: 2
Do your symptoms include brain fog: no
Number of years since you developed the brain fog: 0
Describe the extent of your brain fog:
Estimate number of doctors you have seen for Fibro related symptoms: 2
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: good
What remedies or medications have you tried: Lyrica
What makes you feel better: this med
What makes you feel worse: not taking this or doing too much physically
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

 

10/22/2008
First Name: Tracy
Age: 41
Male or Female: Female
City: Des Moines
State/Province: IA
Country: USA
How long have you lived there: 41
Where were you born: Des Moines, IA
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: Customer Service, office & waitressing
How has Fibro affected your ability to work: If I take pain pills all the time I manage small jobs, without I can't work at all
How has Fibro affected your life: changed everything, made my family think I was crazy, tired all the time, in pain most of the time, I just want to feel normal again.
What were your first symptoms: Pain all over, stomach problems, sleep issues, memory problems
Your age at onset of symptoms: 39
How fast was your rate of decline: With in 6 months I was useless at simple home chores
What are your current symptoms: Pain, migraines, sleeping problems, tired all the time
Number of years since you developed symptoms of fibromyalgia: 2
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 1.5
Describe the extent of your brain fog: Will just stop thinking and be lost or in a daze, if asked what I did yesterday take longtime to remember
Estimate number of doctors you have seen for Fibro related symptoms: 3
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: seperately at first, couldn't find exact cause until 2 months ago. Not much treatment now
Describe your experience with doctors: Took a long time to listen to me when I said that it wasn't stuff they tested for before, now I have no treatment just told to lose weight, learn yoga, no caffine, hope pain gets better in future
What remedies or medications have you tried: cymbalta and pain medication
What makes you feel better: pain medication, Narcotics
What makes you feel worse: using nothing
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: yes
Your theories or comments: I just want one person to tell me what needs to be done to feel normal again. I am tired of testing and testing because nobody has any concrete answers
Are we missing any important questions:

 

10/22/2008
First Name: kay
Age: 48
Male or Female: female
City: st george
State/Province: ut
Country: usa
How long have you lived there: 10 yrs
Where were you born: usa
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: part time Feng Shui practitioner/designer
How has Fibro affected your ability to work: estremely limited in number of clients,projects, & hours
How has Fibro affected your life: full of suffering and misery. it has made almost everything in life hard.
What were your first symptoms: pain around joint area, not in joints- around the joints
Your age at onset of symptoms: 21
How fast was your rate of decline: fast after a car accident
What are your current symptoms: sleep difficulty, lower back pain, muscle pain, fatigue, low immune, on-going dental problems
Number of years since you developed symptoms of fibromyalgia: 27
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 10
Describe the extent of your brain fog: worsens when pain & fatigue are worse..hard to concentrate & remember everyday things..also get words turned around when communicating & always searching for the word I want.
Estimate number of doctors you have seen for Fibro related symptoms: 3
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: very good, they have tried to find medication that helped. I had one bad experience when the doctor told me this pain isnt doing anything serious to me, its just a chemical in my brain making me more sensitive to pain & everybody at 46 has pain
What remedies or medications have you tried: chiropratic care, physical therapy, anti depressants, pain meds, water therapy, 20 or so natural rememdies
What makes you feel better: if I can sleep deep, supplement colostrum, pain med ultracet, swimming in very warm water, low stress
What makes you feel worse: physical activiy is painful, any stress, in activiy is as bad as too much activity
Have you tried avoiding fluoride in your diet: yes
If so, which sources of fluoride: water, toothpaste, pesticides
Have you made dietary changes to avoid any other neutrotoxins: organic as much as possible, elimination of trans fat
Have you tried any thyroid specific treatments: yes, wilsons therapy, synthroid
Your theories or comments: number one importance to me is pain control. Then sleep is possible which helps everything. Without pain control I would have no nothing in my life. No joy. That along with Swimming in very warm & the supplement colostrum has given me the most relief.
Are we missing any important questions: Yes, something about diet. I spend 15 yrs eliminating so called bad food & excaberated sypmtons. I find eating natural "real" food has been helped my overall health

 

10/20/2008
First Name: Sandra
Age: 40
Male or Female: Female
City: Mount Orab
State/Province: Ohio
Country: United States Of America
How long have you lived there: 40 years
Where were you born: Cincinnati Ohio
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: NO
What is Your Line of Work: Disabled
How has Fibro affected your ability to work: It has disabled me and have depression, bi-polar, and anxiety,
How has Fibro affected your life: I am unable to maintain a daily schedule of need to do things such as cleaning, empty kitty liters, and just down and out functioning.
What were your first symptoms: moderate muscle pain, stiffness, depression, limited use of arm (result of injury),
Your age at onset of symptoms: 28 years old
How fast was your rate of decline: slowly for first year. Progressed quickly as I went from doctor to doctor (23 in all) being told it was all in my head, the stress sped the progression of it.
What are your current symptoms: feel like I have been beat from one end of my body to the other (as if there are bruises all over but not visible), muscle stiffness, sever headaches, and chronic fatigue.
Number of years since you developed symptoms of fibromyalgia: 13 years
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 8 years approx
Describe the extent of your brain fog: like things aren't really happening, can't remember things, as if I can't do things (brain wont let me function).
Estimate number of doctors you have seen for Fibro related symptoms: 23
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: collectively. also have bulging and protruding disk of the cervical and lumber.
Describe your experience with doctors: Horrible. For the most part they don't acknowledge fibro, and only really treat the disk pain in my cervical and lumbar disk problems.
What remedies or medications have you tried: accupuncture, epidurals, meditation, NSAIDS, steriods, anti-convulsants, de-tox diet, all that I can think of right off hand..memory not that great.
What makes you feel better: Extremely hot shower, Hot tub (when I can use one), and not sure if it is the fentynal patches helping the fibro and or the disk problems I have.
What makes you feel worse: Cold, Rain, changes in barametric pressure, excessive touching, having blood pressure taken, bumping any part of my body, some excercises.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no, have no idea what that is.
Have you tried any thyroid specific treatments: no, was told that I had a floating goieter though.
Your theories or comments: I would have and still would try and do anything that would get me off all the drugs that I am on. I want my life back, I miss my old life and it makes me sick to think I am 40 years old and missing out on so much of life.
Are we missing any important questions: Not that I can think of.

 

10/19/2008
First Name: Natalie
Age: 34
Male or Female: Female
City: Palmer
State/Province: Alaska
Country: USA
How long have you lived there: 5 years
Where were you born: CA
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: Yes
What is Your Line of Work: School teacher
How has Fibro affected your ability to work: Tired in mornings, hard to get up. Back pain, between shoulders, neck aches.
How has Fibro affected your life: Getting hard to be patient with my kids. Don't get out as much, my friends say they never see me. Am a social person so this is a big change for me.
What were your first symptoms: Intense PAIN in my back between shoulder blades and neck. Couldn't move or get out of bed.
Your age at onset of symptoms: 34
How fast was your rate of decline: Came on very suddenly, within about one month.
What are your current symptoms: Same as above, pain in my back and neck, unable to relax much. BEtter with medication.
Number of years since you developed symptoms of fibromyalgia: 3 months
Do your symptoms include brain fog: yes.
Number of years since you developed the brain fog: 1 year
Describe the extent of your brain fog: I never knew this was a part of it until researching it. I would forget things, completely drive past my destination MULTIPLE times in a row. Easily frustrated becaus I knew I said things but was told I didn't/
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: Good, current GP also deals with back pain. I was only recently diagnosed so have only seen one doctor.
What remedies or medications have you tried: Heat, massage, ultrasound, electric, Gabapentin.
What makes you feel better: Ultrasound, Gabapentin.
What makes you feel worse: Massage. electric
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: Don't have fluoride in my water here.
Have you made dietary changes to avoid any other neutrotoxins: No milk.
Have you tried any thyroid specific treatments: no.
Your theories or comments: I am still so new to this but I have found I have a hard time relaxing my muscles. SO if I take a sleeping pill I can relax into deeper sleep and feel better the next day.
Are we missing any important questions:

 

10/18/2008
First Name: Joe
Age: 45
Male or Female: Male
City: Mamaroneck
State/Province: NY
Country: USA
How long have you lived there: 45 yrs (Away for 5 years)
Where were you born: Same (New York)
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: No
What is Your Line of Work: Engineering
How has Fibro affected your ability to work: Brain Fog
How has Fibro affected your life: Joint and Muscle Pain, Brain Fog, Reduced my energy and physical capabilities
What were your first symptoms: Lower back pain, muscle tenderness extending from back to left side hamstring and left knee aches, brain fog
Your age at onset of symptoms: 43
How fast was your rate of decline: very slow, until 2 months ago when I stopped running to give my body a rest and also a change. then my entire body started to hurt very quickly from joint and muscle tenderness to heavy brain fog.
What are your current symptoms: Joint pains, brain fog, muscle tenderness, neck and back pains, sever shoulder pains
Number of years since you developed symptoms of fibromyalgia: started 2 years ago, true onset 2 months.
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: 2 years
Describe the extent of your brain fog: Loss of focus, can't remember things long term and short term, ADD symptoms, can't focus on things for too long.
Estimate number of doctors you have seen for Fibro related symptoms: 2
Do your doctors tend to focus on all your Fibro symptoms: I have just been diagnosed with this, and I am resisting to believe it as I think it is a catch all diagnosis (easy way out for a doctor)
Do your doctors treat your symptoms individually or collectively: Currently taking anti-inflammatory which is helping significantly and that is it for now. I don't feel depressed although the 2nd doctor would like for me to go under a light anti-depressant. I would prefer to see therapist and work it out that way. I am very healthy conscious, prefer less drugs in my system and would rather do something holistically.
Describe your experience with doctors: Fair, as they are typically all too busy and working too many hours to make the big bucks and have lost focus of what is important. They are very hard to reach and sometimes do not call you back for days after you have left four messages for them four days in a row. Not how it should be.
What remedies or medications have you tried: Just anti-inflammatory Like Advil 3 times daily 4 tablets each time
What makes you feel better: Advil
What makes you feel worse: less activity once I have started taking Advil
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: I didn't know that this was a contributing element to Fibromyalgia... over the past 4 months I have been using a new toothpaste and I wonder if this has any contributing factors to how I feel??
Have you made dietary changes to avoid any other neutrotoxins: No, I am a pescetarian (fish eating vegetarian), and have been for 9 years.
Have you tried any thyroid specific treatments: No
Your theories or comments: I think there is something else going on than just a catch all name Fibromyalgia, I am seeking further professional opinions and look to find out what is really going on.
Are we missing any important questions: Sure, how about operations and other ailments that have been imposed on the individual, History of activity levels, Not sure what other items are key here?

 

10/18/2008
First Name: marena
Age: 40
Male or Female: female
City: bunnell
State/Province: fl
Country: united states
How long have you lived there: 2 yrs.
Where were you born: maine
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: i had my own buisness detailing airplanes and boats.
How has Fibro affected your ability to work: some days i can barely get out of bed.
How has Fibro affected your life: pain/sleeplessness etc.etc.etc.
What were your first symptoms: it hit me quite fast.i was working one day flat on my back the next.
Your age at onset of symptoms: i was diagnosed officially by a dr.1 yr.ago
How fast was your rate of decline: like i said hear today down tomorrow.
What are your current symptoms: same/more tired lately/other problems with my health keep popping up/
Number of years since you developed symptoms of fibromyalgia: on and off
Do your symptoms include brain fog: definately
Number of years since you developed the brain fog: brain fog is there /fluoridation
Describe the extent of your brain fog: water/food/prescription drugs/etc.etc.
Estimate number of doctors you have seen for Fibro related symptoms: dozens
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: no
Describe your experience with doctors: poor
What remedies or medications have you tried: naproxen/ranitidine/flexoril/pain meds/etc.etc.
What makes you feel better: not much.
What makes you feel worse: america the beautiful/or toxic
Have you tried avoiding fluoride in your diet: that is very hard to accomplish
If so, which sources of fluoride: i dont take many prescription drugs/bottled water has fluoride/no otc/
Have you made dietary changes to avoid any other neutrotoxins: cut down on sodium fluoride/thanks to my mothers knowledge of fluoridation.
Have you tried any thyroid specific treatments: no but my sister is on thyroid medicines/my brother is on insulin/my mother says its because of this corrupt fluoride deception.
Your theories or comments: fluoridealert.org/50reasons to oppose fluoridation.
Are we missing any important questions: drs.are abusing their authority with prescription drugs and fluoride.dentists are abusing their authority with fluoride.congress can over-turn reforms and mandates.demand congress to over-turn mandate fluoridation and many other mandates and reforms.the torts are CIVIL-WRONG.REQUEST FDA WITH DRAW THE cam GUIDANCE.MANY MORE things our congress shoild be over-turning.real reform for american families.bail out was a big farce.wake up america.

 

10/18/2008
First Name: cindy
Age: 51
Male or Female: female
City: Lemont
State/Province: illinois
Country: usa
How long have you lived there: 27
Where were you born: borger, texas
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: homemaker
How has Fibro affected your ability to work: can not work at all
How has Fibro affected your life: suffer every day; went from very content, fun,somewhat energetic and upbeat to the opposite
What were your first symptoms: have had it to a slight degree after 20 but didn't notice then at 40 had a flu that left me with severe pain and exhaustion ever since
Your age at onset of symptoms: 20
How fast was your rate of decline: very, very slow for 20 yrs; then at 40 very rapid decline
What are your current symptoms: the "classic" symptoms of overall sensitivity and chronic pain especially below the knee,neck and lower spine. swelling of the hands in the morning. Feet are very sensitive and I sleep with the sheet/covers draped over a little table so as not to touch my feet.
Number of years since you developed symptoms of fibromyalgia: 31
Do your symptoms include brain fog: YES
Number of years since you developed the brain fog: more noticeably 4
Describe the extent of your brain fog: currently my short-term memory is horrible, ability to concentrate and focus can be tough and I am experiencing dyslexic speech and grasp at the right words.
Estimate number of doctors you have seen for Fibro related symptoms: 6
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: They each sympathize but seem helpless with lack of aid other than nuerontin and pain releivers
What remedies or medications have you tried: nuerontin, advil, xanax, cymbalta, magnesium, celebrex
What makes you feel better: all of the above
What makes you feel worse: msg I think, all alcohol, lack of sleep of course...
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: Magnesium intake is an absolute definite turnaround!!! I take it with a micronuetient drink Oswalda super green three time a day. I have gone from unable to walk to swimming everyday and able to perform household chores. I am very interested in the fluride theory as I was born in an overly fluride abundante area in texas.
Are we missing any important questions: I suffer from chronic fatigue syndrome; didn't see any specific reference to it though I know it generally accompanies fibro

 

10/17/2008
First Name: Donna L.
Age: 55
Male or Female: F
City: Atlanta
State/Province: GA
Country: USA
How long have you lived there: 40 yrs
Where were you born: Summit, NJ
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work:
How has Fibro affected your ability to work: weight gain because of inability to move around or exercise
How has Fibro affected your life: depression, weight gain, pain all over
What were your first symptoms: tenderness, inability to stand depression, suicide attempts, pressure in legs, could not have my kids wit on my lap without pain and discomfort
Your age at onset of symptoms: 16
How fast was your rate of decline: decline rapid after menopause, within 4 years unable to work without significant pain
What are your current symptoms: pain all the time ut I am so used to being in pain I don't know what it is like not to have it, always depressed
Number of years since you developed symptoms of fibromyalgia: 39 years
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: I've had brain fog all my life
Describe the extent of your brain fog: ADD
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: acupuncture with trigger-point injections, soma, lortab, tamazepam
What remedies or medications have you tried: acupuncture with trigger-point injections, soma, lortab, tamazepam, ambien, zoloft, prozac, paxil,
What makes you feel better: nothing
What makes you feel worse: anti-depressants
Have you tried avoiding fluoride in your diet: yes
If so, which sources of fluoride: when I was a child I received the series of floride treatments I was probably 10 years ol. I can still remember that horrible taste. Our water in Dekalb Cty. Ga is floridated, toothpaste, and perhaps pesticides & medications i took or used not knowing what they contained
Have you made dietary changes to avoid any other neutrotoxins: somewhat use filtered water but still use the tap water for many things including bathing and some cooking
Have you tried any thyroid specific treatments: no
Your theories or comments: I had never read about the connection between fibro and floride. This is very interesting to me and I appreciate your research on this.
Are we missing any important questions: no I don't think so

 

10/16/2008
First Name: Angie
Age: 25
Male or Female: Female
City: Houston
State/Province: TX
Country: USA
How long have you lived there: 25 years
Where were you born: Conroe
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: receptionist
How has Fibro affected your ability to work: soreness, irritability (due to tiredness and pain)
How has Fibro affected your life: tiredness, lack of desire, lack of desire to leave the house, lack of stamina (when walking and shopping)
What were your first symptoms: chronic tiredness, pain, and numbness in fingers (which was mostly due to the thoracic outlet syndrome)
Your age at onset of symptoms: 23
How fast was your rate of decline:
What are your current symptoms: brain fog, tiredness, soreness, pain/soreness in all pressure points, headaches, irritability
Number of years since you developed symptoms of fibromyalgia: 2
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 1.5
Describe the extent of your brain fog: occasionally forget what I was doing, forgetting names, forgetting dates, forgetting what day of the week it is, forgetting appointments, forgetting coversations
Estimate number of doctors you have seen for Fibro related symptoms: 5
Do your doctors tend to focus on all your Fibro symptoms: no, only the rheumatologist put all of the symptoms together.
Do your doctors treat your symptoms individually or collectively: the neurologist doesn't believe in fibromyalgia and only treats the Thoracic Outlet. The pimary care Drs trea the symptoms individually
Describe your experience with doctors: My rheumatologist is nice, but he became very hands off when I told him I wanted to try something more holistic. My primary care doctors tends to ignore it. The neorologist actually said he didn't believe that fibromyalgia exists.
What remedies or medications have you tried: Lyrica, rozerem, amitriptyline, physical therapy, warm baths, stretching
What makes you feel better: none of the above medications have helped me. The physical therapy helps temporarily as well as the warm baths and stretching
What makes you feel worse: weather, over exertion, over stretching, bumping into thins
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: avoid: milk, MSG, fried foods, processed foods
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

 

10/16/2008
First Name: Dottie
Age: 65
Male or Female: Female
City: Lavonia
State/Province: Georgia
Country: USA
How long have you lived there: 10 yrs.
Where were you born: North Carolina
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: Part time
What is Your Line of Work: Self employed cleaning service
How has Fibro affected your ability to work: Limits my ability to reach, bend or stand for long periods of time beacause of the muscle and joint pain.
How has Fibro affected your life: I was a very active individual. Working in my flower garden,reading,used to walk 5 miles a day.I experience some degree of pain 24/7.
What were your first symptoms: Very tender spots in muscles and severe pain over most of my body
Your age at onset of symptoms: 60
How fast was your rate of decline: rapid
What are your current symptoms: Still a lot of muscle tenderness and pain. Insomnia
Number of years since you developed symptoms of fibromyalgia: 5
Do your symptoms include brain fog: no
Number of years since you developed the brain fog:
Describe the extent of your brain fog:
Estimate number of doctors you have seen for Fibro related symptoms: 5 or more
Do your doctors tend to focus on all your Fibro symptoms: No
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: I like my doctors, for the most part they listen to what I have to say and treat accordingly
What remedies or medications have you tried: Lyrica,Lortab,Fentnal, deep muscle massage, water therapy and chiropractic treatments
What makes you feel better: Some
What makes you feel worse: The first couple of hours after the therapy I feel less pain. The meds only made me sick and worse.
Have you tried avoiding fluoride in your diet: water has fluoride added
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: I eat a low fat, low carb diet.
Have you tried any thyroid specific treatments: no. Thyroid test did not show need for treatment
Your theories or comments:
Are we missing any important questions: Not aware of any thing.

 

10/14/2008
First Name: Kim
Age: 48
Male or Female: female
City: Grandville
State/Province: MI
Country: USA
How long have you lived there: 10 years
Where were you born: Wyoming, MI
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: secretary
How has Fibro affected your ability to work: tired at work, inability to focus causes diminished productivity
How has Fibro affected your life: need naps, easily irratated, I limit my social activities
What were your first symptoms: whole body ached constantly.
Your age at onset of symptoms: 38
How fast was your rate of decline: it was almost instant from being slightly below average in health to constant pain.
What are your current symptoms: upper third of back aches, hips ache especially when I try to sleep (i'm a side sleeper) fatigue is lessening due to dramatic decrease in sugat and processed foods
Number of years since you developed symptoms of fibromyalgia: 10
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 8
Describe the extent of your brain fog: last year it was difficult to even remember simple instructions without writing them down. This summer brain fog lessened because of diet changes and continues to improve slowly
Estimate number of doctors you have seen for Fibro related symptoms: 3
Do your doctors tend to focus on all your Fibro symptoms: no, just medicate the pain
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: willing to push pills, never give hope of cure. Check thyroid regulary. unwilling to test for leaky gut syndrome, candia overgrowth.
What remedies or medications have you tried: Ibuprofen, Relafen, Ambien, Elavil, Lyrica
What makes you feel better: hot baths, mild stretching
What makes you feel worse: sugar, stress (real or imagined) lack of sleep
Have you tried avoiding fluoride in your diet: yes
If so, which sources of fluoride: toothpaste, water
Have you made dietary changes to avoid any other neutrotoxins: yes, have used Master Cleanse Diet for 1-2 months at a time, am now trying to eliminate processed foods, and sugar
Have you tried any thyroid specific treatments: no, thyroid always test normal so doctor does not prescribe anything
Your theories or comments: I have had pain of one sort or another all my life with occasional respites (early 20's I excersied, middle 20's felt good while pregnant) The big event for me was when we moved from one city to another due to my husband's job and I did not want to move and took it badly. Had a major job change (school cook to factory worker) had a very poor attitude about the relocation.
Are we missing any important questions: a medical history checklist would be helpful since some things that could be causes I might not think of.

 

10/13/2008
First Name: Martha
Age: 55
Male or Female: female
City: Sliema
State/Province: none
Country: Malta
How long have you lived there: Most of my life
Where were you born: Malta
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: No
What is Your Line of Work: Public relations
How has Fibro affected your ability to work: Totally. Cannot sit or stand for more then ten minutes at a time due to pain, so i cannot give any task the energy needed for it's success.
How has Fibro affected your life: I have become a shadow of the vibrant giving person i once was. I feel as though a light has gone out inside me .
What were your first symptoms: Difficulty in walking without pain as soon as i got out of bed in the morning.Not being able to bend without feeling pain on the way up again.Migraine.
Your age at onset of symptoms: forty five
How fast was your rate of decline: Slow at first . Rapid in the last year.
What are your current symptoms: Severe stiffness and pain in both legs and arms ,with swolen elbows. Dull pain in lower back and pelvice area causing irritable bowel syndrome . Dizzines and nausia ,probably cauase by the severe pain.Numbness in both arms and legs. General malaise at all times.
Number of years since you developed symptoms of fibromyalgia: Had a car accident ten years ago which caused some spinal damage and whiplash. Differant pains started to imerge since then but none of the surgeons who examined me at the time ever mentioned fibro.
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: about two years
Describe the extent of your brain fog: I feel as though my minds ability to store and retrieve short term data has been severly impaired and i have to work very hard to remember the simplest of things .I find myself performing a checklist every time i do something.
Estimate number of doctors you have seen for Fibro related symptoms: One ( a reumatologist)
Do your doctors tend to focus on all your Fibro symptoms: They do discuss them all , if thats what you mean.
Do your doctors treat your symptoms individually or collectively: The only treatment offered to me so far has been a course of antidepressants to help me sleep.
Describe your experience with doctors: I seem to get the impression that treatment for fibro is ,so far, on a "trial and error" basis and not much is being documented in terms of what works and what doesen't. Sufferers like myself are being left more or less alone to get on with it.
What remedies or medications have you tried:
What makes you feel better: Antidepressants , until i started feeling like a zombie. Strong pain killers if i need to go out,and they only work for an hour or so .
What makes you feel worse: Mostly everything these days, but my worse enemy for pain is stress which criples me.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: I have tried to cut down on sugery things so as not to put on weight (which increases pain). i also stopped smoking.
Have you tried any thyroid specific treatments: No. Should i ???
Your theories or comments: I think that until such time as the crypling symptoms of this condition are truly taken seriously by doctors and researchers alike, we (the victoms) are doomed to suffer in silance.
Are we missing any important questions:

 

10/10/2008
First Name: stephanie
Age: 48
Male or Female: f
City: canonsburg
State/Province: pa
Country: usa
How long have you lived there: 25 years
Where were you born: pa
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: y
What is Your Line of Work: health care
How has Fibro affected your ability to work: you mean if i can get out of the house in the am
How has Fibro affected your life: miss out on all social events (most) go to the ones i must
What were your first symptoms: could not walk hip locked
Your age at onset of symptoms: cant remember
How fast was your rate of decline: slowly over years
What are your current symptoms: flu like in bed 12 hours of every day
Number of years since you developed symptoms of fibromyalgia: since high school
Do your symptoms include brain fog: y
Number of years since you developed the brain fog: 30
Describe the extent of your brain fog: dont know what max brain power is maybe had adhd as child
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: no time to have an experience
What remedies or medications have you tried: hot bath epsom salt cardio weight train ultram advil vitamins
What makes you feel better: all of the above to some extent nothing lately
What makes you feel worse: weather hot cold too much sitting down over exertion
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: I just want to say i read all the testimonies above and i felt like i was reading my diary. someone please help
Are we missing any important questions: no

 

10/10/2008
First Name: jen
Age: 21
Male or Female: female
City: potomac
State/Province: maryland
Country: usa
How long have you lived there: 21 years
Where were you born: washington dc
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: student
How has Fibro affected your ability to work: unable to do most school work, concentrate, or be active in school activities
How has Fibro affected your life:
What were your first symptoms: chronic fatigue and depression
Your age at onset of symptoms: 13
How fast was your rate of decline: very quick
What are your current symptoms: chronic fatigue, depression, muscle and joint pain, fibro fog, headaches, IBS
Number of years since you developed symptoms of fibromyalgia: 10
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 5
Describe the extent of your brain fog: cannot concentrate on work needed to be done for classes
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: not good. many doctors are not receptive to fibro and will treat some symptoms but not all
What remedies or medications have you tried: lyrica, cymbalta, flexeril
What makes you feel better: excercise and organic diet
What makes you feel worse: stress, fatty foods, not sleeping well
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

 

10/09/2008
First Name: Misty
Age: 31
Male or Female: F
City: Wewahitchka
State/Province: FL
Country: US
How long have you lived there: 3 years
Where were you born: TN
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: sales
How has Fibro affected your ability to work: much less productive
How has Fibro affected your life: constant pain cant do all I used to do
What were your first symptoms: fatigue itching gas
Your age at onset of symptoms: 29
How fast was your rate of decline: with in weeks
What are your current symptoms: fatigue ibs muscle joint pain gerd tingling sensations skin probs dry and rosacea edema selling
Number of years since you developed symptoms of fibromyalgia: 3
Do your symptoms include brain fog: y
Number of years since you developed the brain fog: 3
Describe the extent of your brain fog: have to write everything down or I forget
Estimate number of doctors you have seen for Fibro related symptoms: 8
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: very frustrating have nothing for pain
What remedies or medications have you tried: ultram lyrica cymbalta effexor lexpro flexaril soma valium arthrotec aspring ibuprophen massage chiropractice excercise
What makes you feel better: alchohol
What makes you feel worse: too much excercise
Have you tried avoiding fluoride in your diet: n
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes tried an elimination diet
Have you tried any thyroid specific treatments: an otc supplement
Your theories or comments: If I had any idea I would not be here. It just seems it all started with gastro upset
Are we missing any important questions:

 

10/09/2008
First Name: Laraine
Age: 49
Male or Female: female
City: Altamonte Springs
State/Province: FL
Country: USA
How long have you lived there: 38 years
Where were you born: NY
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: stay at home Mom
What is Your Line of Work: Mom
How has Fibro affected your ability to work: I don't think I could, some days are worse than others
How has Fibro affected your life: I hardly do any of the things I used to. Seems like I'm always in pain
What were your first symptoms: Hip Pain
Your age at onset of symptoms: 46
How fast was your rate of decline: Just keeps getting worse everyday
What are your current symptoms: Pain in all 18 tender spots. Memory loss,feeling tired all the time. Very hard to get comfortable
Number of years since you developed symptoms of fibromyalgia: 3
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 6 months
Describe the extent of your brain fog: Memory loss,hard to stay on task
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: I do not have insurance, so I get pain,(and I have to fight for those) then I'm sent on my way
What remedies or medications have you tried: Heat, Ice, Pain pills, IB
What makes you feel better: Pain Pills for a while
What makes you feel worse: Lack of sleep
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: I wish I could get some help!
Are we missing any important questions: My doctor says I'm too old for fibro. What is usually the age of the first sign of fibro?

 

10/07/2008
First Name: Nickola
Age: 51
Male or Female: femalae
City: Oxnard
State/Province: Ca
Country: usa
How long have you lived there: 51 years
Where were you born: Torrance
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Secretary P/T retail
How has Fibro affected your ability to work: not able to lift and bend like I used to
How has Fibro affected your life: the pains have taken over me not able to excersie like usual and sleep
What were your first symptoms: chronic burning pains and feeling arthritic
Your age at onset of symptoms: not sure but at 50 is when my doctor diagnoised me
How fast was your rate of decline: in the last year the symptoms have doubled in pain
What are your current symptoms: insomnia muscle aches, cramps in the feet and calves, burning pain in the nerve endings
Number of years since you developed symptoms of fibromyalgia: I have not slept through the night since I was a teenager and have complained about this burning sensation for at least 10 years
Do your symptoms include brain fog: not sure what this is but if it is losing my train of thought it would be yes
Number of years since you developed the brain fog: 5
Describe the extent of your brain fog: I sometimes wonder I how got somewhere, when spoken to I sometimes don't really hear what they are saying becasue I am somewhere else?
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: who knows
Do your doctors treat your symptoms individually or collectively: He's trying to get me to sleep
Describe your experience with doctors: I like him but they want to give medication and I don't want to take them I am using Trazadone to sleep with and it does help
What remedies or medications have you tried: I just found out I have this and I'm on Trazadone, and I'm now drinking this drink ZRII
What makes you feel better: So far nothing has but my chiropractor helps me alot and massages help, I am getting some relief with sleeping more and this ZRII might be helping but haven't been on it long enough
What makes you feel worse: the cold weather and sometimes when I exercise it hurts me more than good but I keep it up
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: I'm on synthroid
Your theories or comments: If I could sleep I'm sure I feel better evrywhere and without Trazadone I can't sleep on my own
Are we missing any important questions:

 

10/06/2008
First Name: Christie
Age: 31
Male or Female: Female
City: Shepherdstown
State/Province: WV
Country: USA
How long have you lived there: 5 years
Where were you born: Alexandria, VA
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: Yes
What is Your Line of Work: Accounting/Controller
How has Fibro affected your ability to work: Not really
How has Fibro affected your life: Slowed me down because of pain and always being tired, but I have tried to live as "normal" as possible.
What were your first symptoms: Numbness/tingling in neck all the way down to fingertips, contant back pain
Your age at onset of symptoms: 30
How fast was your rate of decline: Within months
What are your current symptoms: Same numbness/tingling in limbs, constantly tired, headaches, back pain, memory and concentration loss
Number of years since you developed symptoms of fibromyalgia: 1
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: 1
Describe the extent of your brain fog: It comes and goes...seems to be tied directly to how stressed I am.
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: No, he just wanted to prescribe me drugs, which I am avoiding taking. I want to try to manage the pain myself, do not want to be dependant on medication.
Do your doctors treat your symptoms individually or collectively: No
Describe your experience with doctors: Not good, see above answer about doctor.
What remedies or medications have you tried: Healthy lifestyle (i.e., no caffiene, healthy eating, daily excercise), massage therapy, yoga.
What makes you feel better: Ironically enough, Excercise
What makes you feel worse: Pushing myself too hard causes the pain symptoms to increase. Have to find the right balance for my own body.
Have you tried avoiding fluoride in your diet: No
If so, which sources of fluoride: We are on well water at my house, so I assume that has no flouride in it since we do not add it.
Have you made dietary changes to avoid any other neutrotoxins: No, but I have been a vegetarian for over 10 years.
Have you tried any thyroid specific treatments: No
Your theories or comments: I have no idea. Trying to educate myself as I learn more about the condition.
Are we missing any important questions: Not that I can think of.

 

10/05/2008
First Name: Holly
Age: 35
Male or Female: female
City: Big Pine Key
State/Province: FL
Country: USA
How long have you lived there: 11 years
Where were you born: Pittsburgh PA
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: I teach Culinary Arts at our high school.
How has Fibro affected your ability to work: It has greatly deminished my energy amd stamina. I used to be able to go go go... now I have to go day by day
How has Fibro affected your life: It has been hard on my son who struggles with why I have to sleep in on weekends and cannot be as physical as I once was. My attendance at work was questioned by outsiders and I almost lost my job over it. I struggle with feeling weak. My mond knows what needs to be done to do what some people call weekend warriors, and I used to be able to do all that on weekends plus do more than anyone could ever imagine at work
What were your first symptoms: pain. a car accident gave me whiplash, and the pain never went away.... before the accident I had periods of tiredness over the last 9 years but since the car wreck it is much worse.
Your age at onset of symptoms: 31
How fast was your rate of decline: like hitting a wall. but looking back I see may have had it before, just the car accident made it a lot more pronounced.
What are your current symptoms: muscle pain and spasms,tightness and lumps. fatigue. depression. brain fog.
Number of years since you developed symptoms of fibromyalgia: 4
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 4
Describe the extent of your brain fog: bad. I walk across campus to the office an forget what I went for.
Estimate number of doctors you have seen for Fibro related symptoms: 12
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: not great. they prescribe so many drugs. I do not like taking RX sometimes I need to, but am now weening off of Cymbalta due to the bladder probrlems it is causing, I did not know it was the meds, until recently. If I took all they gave me I would be a zombie on the couch.
What remedies or medications have you tried: DOCs gave me: Cymbalata Many different muscle relaxers naproxen so many pain meds I cannot keep track. I do not take them I try: chiropractic accupuncture PH balancing cayenne detoxifying healthy eating 5 HTP
What makes you feel better: NATURAL APPROACHES
What makes you feel worse: RX
Have you tried avoiding fluoride in your diet: yes, just recenly
If so, which sources of fluoride: all that I can.
Have you made dietary changes to avoid any other neutrotoxins: No but I now cannot tolerate wheat it seems. I get a rash on my hands and feet, then it itches and peels very badly
Have you tried any thyroid specific treatments: iodine painting.
Your theories or comments: I think we have to be in charge of our own health, I am not anti-western medicine but I find it is too limited and doesn't work as well for me
Are we missing any important questions:

 

10/05/2008
First Name: Jason
Age: 34
Male or Female: Male
City: Reader
State/Province: WV
Country: USA
How long have you lived there: on and off for 34 years
Where were you born: Clarksburg WV
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: I was a boilermaker
How has Fibro affected your ability to work: I stay in bed most days all day.
How has Fibro affected your life: Yes, now I have none. My wife has lost her husband, my kids have lost their dad.
What were your first symptoms: muscles in the back around 1998
Your age at onset of symptoms: 24
How fast was your rate of decline: slow at first, then after about 8 years it clobbered me and here I am
What are your current symptoms: pain, bad sleep
Number of years since you developed symptoms of fibromyalgia: 10
Do your symptoms include brain fog: yes, at times
Number of years since you developed the brain fog: 2
Describe the extent of your brain fog: just like I'm so sleepy I can't function right
Estimate number of doctors you have seen for Fibro related symptoms: 6
Do your doctors tend to focus on all your Fibro symptoms: no, I was originially diagnosed with RA
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: bad until this last doctor. Most docs think you're nuts with these symptoms
What remedies or medications have you tried: lyrica,cymbalta,tizanidine,percocet,robaxum,
What makes you feel better: muscle relaxers and sometimes the pain pills
What makes you feel worse: weather, to much movement
Have you tried avoiding fluoride in your diet: yes
If so, which sources of fluoride: tap water
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

 

10/04/2008
First Name: Heather
Age: 28
Male or Female: Female
City: Seattle
State/Province: United States
Country: United States
How long have you lived there: 28 years
Where were you born: Seattle
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working:
What is Your Line of Work:
How has Fibro affected your ability to work:
How has Fibro affected your life:
What were your first symptoms: Body aches & extreme tiredness.I thought I was coming down with the flu.
Your age at onset of symptoms: 28 (three months ago)
How fast was your rate of decline: Very fast, I feel like I get worse every day.
What are your current symptoms: Generalized pain (like an aura of pain all over my body), severe body aches, exhaustion.
Number of years since you developed symptoms of fibromyalgia: N/A (3 months)
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: N/A (3 months)
Describe the extent of your brain fog: I have trouble concentrating, easily forget things. My short term memory is practically nonexistent.
Estimate number of doctors you have seen for Fibro related symptoms: 3 so far
Do your doctors tend to focus on all your Fibro symptoms: No, they don't seem to know what to do with me except for run more blood tests and tell me to "wait & see".
Do your doctors treat your symptoms individually or collectively: I haven't really been treated.
Describe your experience with doctors: They seem indifferent.
What remedies or medications have you tried: Mostly pain medication, meditation & relaxation techniques.
What makes you feel better: Pain medication and sleeping or staying still.
What makes you feel worse: Moving, exercising and "over doing it" as far as physical exertion.
Have you tried avoiding fluoride in your diet: No
If so, which sources of fluoride: N/A
Have you made dietary changes to avoid any other neutrotoxins: No
Have you tried any thyroid specific treatments: No
Your theories or comments: My Mother also suffers from Fibro.
Are we missing any important questions:

 

10/04/2008
First Name: Becky
Age: 61
Male or Female: female
City: Athens
State/Province: USA
Country: USA
How long have you lived there: 37 years
Where were you born: Macon, Georgia
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: Worked in an E.R. as a ward secretary, then EMT/tech for 25 years...total 30 years at hospital.
How has Fibro affected your ability to work: not sure if this is Fibro. Have unexplained illness with neurological efffects/balance problems/pain/burning/difficulty walking, standing.
How has Fibro affected your life: My life has been restricted a great deal.I used to go camping,rafting, travelling on vacations with my husband, worked hard with no problem.
What were your first symptoms: pain in both legs, beginning in lower legs/ankles, with tingling,burning...travelling up both legs over a 7 year period to mid-thigh. An increase in muscle stiffness as the day goes on.
Your age at onset of symptoms: 54
How fast was your rate of decline: gradual over 7 years.Symptoms helped with Wellbutrin, Lexapro and Lyrica.
What are your current symptoms: Now includes pain arms, shoulders, wrists with some numbing. Symptoms get worse after emotional upheaval or stress.
Number of years since you developed symptoms of fibromyalgia: seven
Do your symptoms include brain fog: yes, but not sure if brain fog due to meds
Number of years since you developed the brain fog: 7
Describe the extent of your brain fog: forgetting to do things, appointments, paying bills, trouble remembering names, words. Tested at UGA for memory loss...got good results. (tested at onset)
Estimate number of doctors you have seen for Fibro related symptoms: 2
Do your doctors tend to focus on all your Fibro symptoms: I've seen my regular internist and my osteopath Gyn MD. They have tried to figure out what the symptoms mean.
Do your doctors treat your symptoms individually or collectively: Collectively.
Describe your experience with doctors: So far, my dxs. have included fibromyalgia, post-herpetic neuropathy, Reflexive Dystrophy Syndrome. My oeteopathic MD tested my vitamin levels and found some low levels in B vitamins, D, and some other vitamins. The Lyrica prescribed by my internist alleviated some of the pain, etc. but caused terrible bruising, vision changes. The terrible stiffness continues despite everything.The muscles in my legs tighten until the knee is not able to bend. I'm at my wit's end. They are good doctors, but we don't have the answer yet.
What remedies or medications have you tried: Lyrica, Lexapro, Wellbutrin.
What makes you feel better: Felt better on all 3, but could not stay awake, and was very foggy. Lyrica works, but side effects bad.
What makes you feel worse: Stress
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: tap water
Have you made dietary changes to avoid any other neutrotoxins: no. I have begun to give up wheat,fruit, and other foods per Dr. Bernstein's Diet book as there is diabetes in my family.(recommended by osteo)
Have you tried any thyroid specific treatments: No.I'm on Armour now 90 mg. instead of Synthroid for hypothyroidism.. Feel better, but wonder about pigs' diet re: mad cow.
Your theories or comments: I have no idea what is wrong with me.
Are we missing any important questions:

 

10/04/2008
First Name: pamela
Age: 40
Male or Female: female
City: houston
State/Province: houston
Country: houston
How long have you lived there: 2 1/2 years
Where were you born: mass.
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: hair stylist
How has Fibro affected your ability to work: extreme fatigue, headaches, muscle spasm, pain
How has Fibro affected your life: in everything, social, exercise, work, relationships - can't have one if you are always with no wornierd or i get nausea with no warning
What were your first symptoms: muscle pain and knawing of joints almmost like throbbing and pulling like you would a turky wish bone numbness in hand right
Your age at onset of symptoms:
How fast was your rate of decline: this year
What are your current symptoms: fatigue, pain and not happy about it
Number of years since you developed symptoms of fibromyalgia: not sure i think 6 or 7 years
Do your symptoms include brain fog: yes, bad
Number of years since you developed the brain fog: 2
Describe the extent of your brain fog: i just can't do simple task some days
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: 1
Do your doctors treat your symptoms individually or collectively: indiv
Describe your experience with doctors: for years treated headaches, stress, ext blood work, no one ever mentioned fibro until now female md saw me sent me to rheumatologist
What remedies or medications have you tried: lerika cant take
What makes you feel better: tylenol
What makes you feel worse: stress
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: dont know i d bottle water
Have you made dietary changes to avoid any other neutrotoxins: yes
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

 

10/04/2008
First Name: Rebecca
Age: 36
Male or Female: female
City: Fitzgerald
State/Province: USA
Country: USA
How long have you lived there: 4 months
Where were you born: Connecticut
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work:
How has Fibro affected your ability to work: Everthing fatige pain ibs ect
How has Fibro affected your life: I cant do anything i used to do just getting through the day is tough
What were your first symptoms: Pain extreme and fatique
Your age at onset of symptoms: 33
How fast was your rate of decline: Took 5 years to diagnose but the decline was gradual
What are your current symptoms: Fatique, extreme pain muscle spasms Ibs depression
Number of years since you developed symptoms of fibromyalgia: 5
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog:
Describe the extent of your brain fog: 2 years
Estimate number of doctors you have seen for Fibro related symptoms: 2
Do your doctors tend to focus on all your Fibro symptoms: yes and depression
Do your doctors treat your symptoms individually or collectively: indivifually
Describe your experience with doctors: They dont understand
What remedies or medications have you tried: vICODEN SOMA ANTIINFLATORYS ANTIDEPRESSENTS
What makes you feel better: Baths medice heat pad massage
What makes you feel worse: Doing house work
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

 

10/03/2008
First Name: Carrie K.
Age: 30
Male or Female: Female
City: St Charles
State/Province: USA
Country: USA
How long have you lived there: 30 years
Where were you born: St Charles, MO
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: Yes
What is Your Line of Work: Office Clerk
How has Fibro affected your ability to work: I often find myself unable to stand up from a sitting position if I have been seated too long. I also cannot climb the stairs as other people my age can so do very quickly. I often feel as if I was in a hazy state of mind most of my day and I have a difficult time multitasking.
How has Fibro affected your life: I cannot exercise, climb stairs, or walk through the mall with my friends and family. I find myself very crippled with the pain and discomfort I endure.
What were your first symptoms: Pain and tenderness everywhere
Your age at onset of symptoms: 20
How fast was your rate of decline: started slowly and has increased rapidly since I turned 30
What are your current symptoms: painful aching in my knees almost as if they were bruisedvery badly sleeping difficulties, irritable bowel syndrom
Number of years since you developed symptoms of fibromyalgia: 10
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 2
Describe the extent of your brain fog: I feel like I just dont recall things like, driving to work, or what I ate for lunch, I often forget names, and what I was going to say or why I called people
Estimate number of doctors you have seen for Fibro related symptoms: 2
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: My primary care doctor took me seriously in the beginning, and IM on medication because he sent me to a rheumatic doctor, but my decline he has leaned more towards treating individual problems as they occur.
What remedies or medications have you tried: Im on Elavil at the present time 25 mg pills.
What makes you feel better: heat
What makes you feel worse: cold
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: not yet
Have you tried any thyroid specific treatments: no
Your theories or comments: Im getting ready to begin an aspartane detox. It seems that since I started my newest job I have been drinking a lot of tea and use probably 10-15 packets of Equal on a daily basis. I have this year gained 40 lbs, and have grown to the point where I cannot stand for more than about 7 minutes at most. Going to the grocery store to shop is almost completely out of the question.
Are we missing any important questions: nope

 

10/03/2008
First Name: Jamie
Age: 24
Male or Female: female
City: columbus
State/Province: usa
Country: usa
How long have you lived there: 24 yrs
Where were you born: columbus ohio
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: customer service call center
How has Fibro affected your ability to work: no longer can have a job that requires moving, lifting. need to be able to sit all day
How has Fibro affected your life: every aspect. sleep, activities, fatigue, getting out of bed, walking/jogging
What were your first symptoms: back pain
Your age at onset of symptoms: 17
How fast was your rate of decline: pretty quick
What are your current symptoms: back/leg/arm pain, fatigue, acid reflux, paralyzing pain, shakey legs, tightness in all muscles
Number of years since you developed symptoms of fibromyalgia: 7
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 1
Describe the extent of your brain fog: i can get confused or blank for aminute until taking a break to collect my thought
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: somewhat
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: my dr had me try Lyrica and had a very bad reaction to it and then he took me off all medicine. no further treatment told me to try aleve
What remedies or medications have you tried: strecthing, lyrica, teas, warm baths
What makes you feel better: warm baths, stretching, pain meds, massgae
What makes you feel worse: walking around, sleeping/laying down
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no unaware
Your theories or comments:
Are we missing any important questions:

 

10/02/2008
First Name: jenni
Age: 38
Male or Female: female
City: reagan
State/Province: usa
Country: usa
How long have you lived there: 1 year
Where were you born: michigan
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: fast food manger
How has Fibro affected your ability to work: have to take pain killers just to finish shift, can't lift anything heavy or repetative
How has Fibro affected your life: don't get to do yard work or ride my horses. light house work sit alot
What were your first symptoms: flu like pain thru the body, muscle weakness
Your age at onset of symptoms: 37
How fast was your rate of decline: about 9 months
What are your current symptoms: sever muscle pain in the butt, hips and thighs. weak sore arm muscles, neck and upper back muscle pain
Number of years since you developed symptoms of fibromyalgia: less than one
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: couple of months
Describe the extent of your brain fog: just forget what i'm doing or went to get. stare at something and have to concentrate on what to do
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: no, just started me on one med and told me to give it time
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: they do not understand how much pain I am in, just prescribe more pain killers
What remedies or medications have you tried: cymbalta, flexeral, naproxan
What makes you feel better: rest, sit when I need too, flexeral to put me to sleep, nothing so far to take pain away completly
What makes you feel worse: working for 8 hours on my feet, walking for long periods, driving in cars for long periods
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: n/a
Have you made dietary changes to avoid any other neutrotoxins: eating salads and only chicken
Have you tried any thyroid specific treatments: no, doctor said it was fine
Your theories or comments: I do not want to live with pain everyday for the rest of my life I would like to enjoy my horses
Are we missing any important questions: has it effected your sex life, or your family

 

10/01/2008
First Name: emilzy
Age: 35
Male or Female: female
City: orlando
State/Province: USA
Country: USA
How long have you lived there: 8YRS
Where were you born: PUERTO RICO
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: YES
What is Your Line of Work: MEDICAL TECHNOLOGIST (PERFORMING LAB TEST)
How has Fibro affected your ability to work: I HAD TO STOP WORKING FOR A YEAR BECAUSE OF THE PAIN
How has Fibro affected your life: A LOT.
What were your first symptoms: MUSCLE SPASM, JOINT PAIN, MUSCLE TWITCHES ALL OVER,DIGESTIVE MALESTAR,FOOD SENSITIVITIES(GLUTEN, LACTOSE, SOME CARBO), FATIGUE, HEADACHE AMONG OTHERS.
Your age at onset of symptoms: 32
How fast was your rate of decline: SUDENLY
What are your current symptoms: JOINT PAIN (HIPS AND NECK), UPPER BACK SPASM
Number of years since you developed symptoms of fibromyalgia: 3 YEARS
Do your symptoms include brain fog: YES
Number of years since you developed the brain fog: MORE THAN 3 YEARS
Describe the extent of your brain fog: PROBLEM WITH CONCENTRATION AND REMEMBERING THINGS
Estimate number of doctors you have seen for Fibro related symptoms: OVER 20 DIFFERENT SPECIALTIES BEFORE DIAGNOSIS
Do your doctors tend to focus on all your Fibro symptoms: NO
Do your doctors treat your symptoms individually or collectively: DRUGS FOR PAIN AND ANTINFLAMATORY
Describe your experience with doctors: BAD
What remedies or medications have you tried: NATURAL APPROACH, CHANGE DIET HABIT, CUT SUGAR, FLOUR, (LOW CARB DIET) VITAMINS, MINERALS, ANTIOXIDANT, COLON CLEANSE, KIDNEY CLEANSE, COCONUT OIL, NATURAL ANTIFUNGALS.ENEMAS
What makes you feel better: DIET,ENZYMES AFTER EATING,ENEMAS
What makes you feel worse: SUGAR, GLUTEN, GRAIN, NUTS, TO MUCH PROTEIN
Have you tried avoiding fluoride in your diet:
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: YES
Have you tried any thyroid specific treatments: NO BUT I WISH.
Your theories or comments: SOMETIMES I THINK THAT THERE IS A CONNECTION WITH THYROIDS AND OTHERS THAT IS A PROBLEM OF LEAKY GUT THAT NEED TO HEAL IN ORDER TO GET BETTER.
Are we missing any important questions:

 

 

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