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    Fibromyalgia Questionnaire & Results

    Latest Update: 02/13/2012 

    Click here to return the latest fibromyalgia posts.

     

    28 QUESTIONNAIRE COMPLETED DATA FORMS FOR August 2010

    08/28/2010
    First Name: Chelsea
    Age: 21
    Male or Female: Female
    City: Cleveland
    State/Province: Ohio
    Country: USA
    How long have you lived there: 3 years
    Where were you born: Marysville, Ohio
    Is this the first time you have taken our questionnaire: Yes
    If not, why are you returning:
    Are you still working: Yes
    What is Your Line of Work: Insurance
    How has Fibro affected your ability to work: It causes me to be overly tired and sick, taking off more work than a healthy person.
    How has Fibro affected your life: It has impacted my body physically making it difficult to do simple tasks, my sex life tremendously as I don't have enough energy most times to try, and caused severe emotional distress due to the negative connotations surrounding it.
    What were your first symptoms: Extreme fatigue and consistent pain in my shoulders & neck
    Your age at onset of symptoms: 16
    How fast was your rate of decline: When I was more active throughout the end of high school, the onset of decline was slower, but began to decline further when stress increased in my life
    What are your current symptoms: Extreme fatigue, IBS, muscular pain and fatigue, sleep disturbances, TMJ
    Number of years since you developed symptoms of fibromyalgia: 5
    Do your symptoms include brain fog: Yes
    Number of years since you developed the brain fog: 3
    Describe the extent of your brain fog: It is not enough to completely hinder my thought process but can slow it down at random times throughout the day, making it more difficult to do my job.
    Estimate number of doctors you have seen for Fibro related symptoms: 5
    Do your doctors tend to focus on all your Fibro symptoms: Mainly
    Do your doctors treat your symptoms individually or collectively: My doctors individually treat my symptoms but keep the others informed of their chosen paths of treatments.
    Describe your experience with doctors: I have had a generally positive experience with doctors, but have had one doctor who did not believe in fibromyalgia and just assumed that I was lazy. It was difficult to get a diagnosis, but once the diagnosis was made, I was taken seriously for the most part.
    What remedies or medications have you tried: Neurontin, Tramadol, Cymbalta, Savella, Flexerol, Lyrica, moderate to strong amounts of exercise, yoga
    What makes you feel better: Tramadol and neurontin have helped slightly but I still suffer the debilitating effects from the disease.
    What makes you feel worse: Exercise completely wipes me out and I find it very hard to function. Savella also did not agree with me and gave me horrible side effects such as nausea, overall malaise, and hot flashes.
    Have you tried avoiding fluoride in your diet: No
    If so, which sources of fluoride: N/A
    Have you made dietary changes to avoid any other neutrotoxins: No
    Have you tried any thyroid specific treatments: No
    Your theories or comments: I wish I had theories.. none yet.
    Are we missing any important questions:

     

    08/28/2010
    First Name: Joyce
    Age: 65
    Male or Female: female
    City: Ladysmith
    State/Province: B.C.
    Country: Canada
    How long have you lived there: 15 years
    Where were you born: England
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: no..retired
    What is Your Line of Work: retail sales/cashier
    How has Fibro affected your ability to work: limited my work time by 50%
    How has Fibro affected your life: reduced my ability to care for my home, enjoy social occasions, created depression
    What were your first symptoms: intense muscle pain, sharp shooting nerve pain, stumbling, poor sleep
    Your age at onset of symptoms: 43
    How fast was your rate of decline: gradually over several years until CFS hit like a thunderbolt.
    What are your current symptoms: same as above
    Number of years since you developed symptoms of fibromyalgia: 23 years
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 23
    Describe the extent of your brain fog: almost a daily occurrence
    Estimate number of doctors you have seen for Fibro related symptoms: 10
    Do your doctors tend to focus on all your Fibro symptoms: not usually
    Do your doctors treat your symptoms individually or collectively: usually individually
    Describe your experience with doctors: mostly not too helpful
    What remedies or medications have you tried: Lyrica, trigger point therapy for muscle spasms, sleeping pills,vitamins, supplements.
    What makes you feel better: Trigger point therapy, Lyrica on and off, some supplements for energy.
    What makes you feel worse: sleeping pills, pain meds.
    Have you tried avoiding fluoride in your diet: yes
    If so, which sources of fluoride: water, pesticides, cleaning products, fragrances etc.
    Have you made dietary changes to avoid any other neutrotoxins: next to no red meat, fresh fruits and vegs. reduced processed foods bake my own bread etc.
    Have you tried any thyroid specific treatments: did not know of connection..so, no.
    Your theories or comments: none
    Are we missing any important questions: can't think of any right now.

     

    08/25/2010
    First Name: Margaret
    Age: 49
    Male or Female: Female
    City: Mountrath
    State/Province: Co Laois
    Country: Ireland
    How long have you lived there: most of my life
    Where were you born: Ireland, Laois
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: no
    What is Your Line of Work: Office administrator
    How has Fibro affected your ability to work: to some extent but stay at home to care for my son who has special needs- autism
    How has Fibro affected your life: I am always in pain, fatigued daily,forgetful, no energy. Feel I am no longer the person I used to be
    What were your first symptoms: pain everywhere and tiredness
    Your age at onset of symptoms: not really sure but about 30 yrs old
    How fast was your rate of decline: Have not declined too much but feel it is getting worse now
    What are your current symptoms: pain, fatigue,IBS,
    Number of years since you developed symptoms of fibromyalgia: About 20
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 7yrs
    Describe the extent of your brain fog: not too bad now but before I took amitriptylene I forgot so much. I would forget where I parked my car, what i went to shop for e.g. went to buy a bed and couldn't remember why I was at the furniture shop!, thought my car had been stolen when in fact it was at the garage for repair
    Estimate number of doctors you have seen for Fibro related symptoms: 2
    Do your doctors tend to focus on all your Fibro symptoms: no
    Do your doctors treat your symptoms individually or collectively: don't really visit the doctor much
    Describe your experience with doctors: met rheumatologist once and was diagnosed and was told he wouldn't see me again as he couldn't help as there is no cure or treatment. Prescribed amitriptylene and that was that
    What remedies or medications have you tried: Amitriptylene
    What makes you feel better: Amitriptylene
    What makes you feel worse: cold weather
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: no
    Have you tried any thyroid specific treatments: no
    Your theories or comments:
    Are we missing any important questions:

     

    08/25/2010
    First Name: Ann
    Age: 57
    Male or Female: female
    City: Bailey
    State/Province: Colorado
    Country: United States
    How long have you lived there: 10 years
    Where were you born: Maryland
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: yes
    What is Your Line of Work: field representative for the US deptartment of Commerce
    How has Fibro affected your ability to work: I could not work for over 20 years, I returned to work two years ago, part time. I only work because I can work around my pain
    How has Fibro affected your life: very much, I still spend more days laying down than on my feet, it has affected my kids lives also. I have no muscle tone and every effort to regain it has failed
    What were your first symptoms: swollen knees, back pains, foot pains
    Your age at onset of symptoms: 11
    How fast was your rate of decline: slow until my second child, then it went full body I tested positive to all the trigger points
    What are your current symptoms: today, vision is foggy, pain in my lower back, calves, shoulder, neck and feet, severe memory problems,
    Number of years since you developed symptoms of fibromyalgia: 46 since it began, 22 since the problem effected me head to toe
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 15
    Describe the extent of your brain fog: its like first waking up and the mind is slow to kick start but sometimes never does all day. I can forget the name of something that will never come to me without someone telling me or reading about it. For the past three days I cannot remmeber for the life of me how much money I make per hour at my job, I will have to call and ask. It has been almost a year since a raise but I have no idea how much it is right now. A few weeks ago I walked up to a vender and wanted a hot dog with sourkraut but could not remember the name. My daughter gets mad because I will ask her a question and right after she answeres I ask the question again and am completely shocked that I aready asked it.
    Estimate number of doctors you have seen for Fibro related symptoms: 10 - 12
    Do your doctors tend to focus on all your Fibro symptoms: no they keep trying to get me to take meds, I don't like them becasue of the side effects, they find me a problem case mostly becasue they feel I don't cooperate, exchanging my mind for pain relief is not an answer nor is gaining unhealthy weight
    Do your doctors treat your symptoms individually or collectively: I hardly let them treat me anymore, I do get a script for vicodine every 8 months to a year a will take only a half of pill to help me manage the pain. I do not believe in total pain relief with meds. no pain equals no brain. I will not give up my mind
    Describe your experience with doctors: after years of telling doctors of my pain and having them tell me there was no good reason and I was depressed, I finally found a group that understands but they think I am just stubbron and uncooprative. Everything they have prescied makes my memory worse and I stop taking it.
    What remedies or medications have you tried: do to memory problems I don't remember the names, there are anti depressionants, pain pills, sleep pills, physical theropy. magnetic theropies, altunitive cures such as different pills, exercise, mind control, vinager baths, different drinks for all over health, bedrest
    What makes you feel better: bedrest, vinager baths. my soeitens machine, light ex34cise, liquid calcium, magnisium, positive attitude, smiling and laughing, doing things at me own pace not others.
    What makes you feel worse: household chores, driving long distances (part of my job) sitting cross legged with my elbows on my knees, standing too long, lifting, repetative movments, stress, sadness, anzity, I have it bad in my eyes so eye strain, cold, walking my dog, sleeplessnesss
    Have you tried avoiding fluoride in your diet: yes I
    If so, which sources of fluoride: prescription drugs, tap water, pesticides when I can buy organic, I live high in the moutains, low florides here
    Have you made dietary changes to avoid any other neutrotoxins: never use a microwave, cook and bake only from scratch, drink lots of water, no pop or juice, no tuna
    Have you tried any thyroid specific treatments: no
    Your theories or comments: I have found that people with fibro tend to be dehydrated, liquid clacium and magnisiun malate help me to stay awake and alert during the day, moving back and forth to music while driving helps greatly, vinager baths are like a small miricle, (1 cup to a tub of hot water) feeling good about yourself very important, shoes with miricle foam very important to me
    Are we missing any important questions: IT has been twenty years ago when I first was correctly diagnosed, so I do not know if it still holds true, but it was very difficult to be diagnosed. I got a clue from an eye doctor who could not fit me with contacts, he suggested that I see a rumatolagist. I have found that there many things that are needed to help you feel better. At one time I was ready for a wheel shair, struggled through every day, alternative medicine is why today I feel much better and am now working. please forgive mis-spellings I cannot see the screen well enough to check speeling!

     

    08/21/2010
    First Name: Deb
    Age: 40
    Male or Female: female
    City: South St. Paul
    State/Province: MN
    Country: U.S.
    How long have you lived there: 40 years
    Where were you born: Deer River, MN USA
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: yes
    What is Your Line of Work: RN
    How has Fibro affected your ability to work: yes
    How has Fibro affected your life: decreased social life, decreased physical activity, difficulties at work, pain, poor sleep
    What were your first symptoms: poor stamina, insomnia, constant fatigue, weight gain
    Your age at onset of symptoms: 33
    How fast was your rate of decline: slowly over first 5 years, then more progressively over the past 2 years.
    What are your current symptoms: insomnia, constant nerve and muscle pain, fatigue, weight gain, decreased stamina, brain fog
    Number of years since you developed symptoms of fibromyalgia: 7
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 2-3
    Describe the extent of your brain fog: I need to concentrate so intently to remember things such as what time I took my meds, remembering things at work, things people have told me, appointment times, etc.
    Estimate number of doctors you have seen for Fibro related symptoms: 5
    Do your doctors tend to focus on all your Fibro symptoms: No
    Do your doctors treat your symptoms individually or collectively: collectively
    Describe your experience with doctors: I have had a rhematologist tell me that I have chronic pain and sent me to a pain clinic who immediately wanted me to get trigger point injections and nerve blocks. I have been through two of my primary physicians who have just wanted to put me on antidepressant medications and did not take my syptoms into account.
    What remedies or medications have you tried: chiropractic, accupunture, massage, heat therapy, tens unit. gabapentin, savella, and currently am on lyrica.
    What makes you feel better: tens unit, sleep, heat- temporary solutions
    What makes you feel worse: driving, sitting long periods of time, overdoing it
    Have you tried avoiding fluoride in your diet: yes
    If so, which sources of fluoride: toothpaste, pesticides
    Have you made dietary changes to avoid any other neutrotoxins: no
    Have you tried any thyroid specific treatments: currently on armour thyroid
    Your theories or comments:
    Are we missing any important questions:

     

    08/20/2010
    First Name: Craig
    Age: 52
    Male or Female: Male
    City: Long Beach
    State/Province: California
    Country: United States
    How long have you lived there: 10 years
    Where were you born: Topeka Kansas
    Is this the first time you have taken our questionnaire: Yes
    If not, why are you returning:
    Are you still working: No
    What is Your Line of Work: Computer Engineer
    How has Fibro affected your ability to work: I'm completely disabled, on social security disability
    How has Fibro affected your life: I'm completely disabled, on social security disability
    What were your first symptoms: Tender points and severe fatigue
    Your age at onset of symptoms: 42
    How fast was your rate of decline: 6 years
    What are your current symptoms: Chronic pain, tender points, referred pain in arms, fatigue, brain fog, short term memory problems
    Number of years since you developed symptoms of fibromyalgia: 10 years
    Do your symptoms include brain fog: Yes
    Number of years since you developed the brain fog: 4
    Describe the extent of your brain fog: Every task feels like I'm almost doing it under water. I also have to concentrate harder to keep on track
    Estimate number of doctors you have seen for Fibro related symptoms: 3
    Do your doctors tend to focus on all your Fibro symptoms: No
    Do your doctors treat your symptoms individually or collectively: Collectively
    Describe your experience with doctors: Not too bad. My GP understands that I insist on being an active participant in my healthcare
    What remedies or medications have you tried: Tramadol, cyclobenzaprine, gabapentin
    What makes you feel better: Resting
    What makes you feel worse: Cold change in weather
    Have you tried avoiding fluoride in your diet: No
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: Yes, eliminated aspartame
    Have you tried any thyroid specific treatments: No
    Your theories or comments:
    Are we missing any important questions:

     

    08/18/2010
    First Name: Kristin
    Age: 42
    Male or Female: Female
    City: Riverside
    State/Province: CA
    Country: USA
    How long have you lived there: 7 years
    Where were you born: Provo, Utah
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: No
    What is Your Line of Work: Administrative Asst.
    How has Fibro affected your ability to work: Unable to work or even do housework or activities of daily living.
    How has Fibro affected your life: Completely. It has stolen my personality, has made me a cripple, an insomniac, very depressed, angry, and unable to create or live or full any of my dreams. Unable to take care of my family as well as I wanted, unable to have another child, unable to be a normal person at all
    What were your first symptoms: Pain in the skull, which soon traveled down my neck, into my shoulders, back, down my spine, into my hips, and legs, and ankles.
    Your age at onset of symptoms: 34
    How fast was your rate of decline: Severe pain symptoms were immediate and unrelenting which caused immediate anxiety, insomnia, and depression. Additional symptoms came on slowly, like chronic fatigue, hormone problems, weight gain, etc...
    What are your current symptoms: Pain, Myofascial pain, trigger points, body prominense pain, general aches all over,Chronic Fatigue, Mental Fog, Insomnia, Depression, Adrenal/thyroid insufficiency...
    Number of years since you developed symptoms of fibromyalgia: 08 years.
    Do your symptoms include brain fog: Yes
    Number of years since you developed the brain fog: 04
    Describe the extent of your brain fog: Severe mental fog when I first wake up for several hours and then it lessens out, but some degree is always there.
    Estimate number of doctors you have seen for Fibro related symptoms: 10+
    Do your doctors tend to focus on all your Fibro symptoms: No.
    Do your doctors treat your symptoms individually or collectively: No.
    Describe your experience with doctors: Bad. None believe me and I have been sent to the pain clinic to be shutup with pain meds and other horrible drugs like Lyrica and Cymbalta which I have discontinued.
    What remedies or medications have you tried: Trazadone, gabopentin (sp?), Lyrica, Cymbalta and numerous other anti-depressants, morphine, oxycodone, ativan... Numerous other alternative supplements, herbs, treatments.
    What makes you feel better: Oxycodone, but only takes away some pain. Has caused great weight gain and I'm sure is causing other long-term harm that I don't know of yet. Ativan helps me sleep. Distraction helps to some degree.
    What makes you feel worse: Being in the moment - no distraction. Sitting for long periods, computer use, stress, no pain meds, descreased sleep, etc....
    Have you tried avoiding fluoride in your diet: yes
    If so, which sources of fluoride: I got reverse-osmosis for drinking water. I eat organic as much as I can. No flouride toothpaste. As far as I know, there is no fluoride in my current prescriptions.
    Have you made dietary changes to avoid any other neutrotoxins: I try to eat organic as much as possible. Am vegetarian. Avoid fastfood and most restaurants.
    Have you tried any thyroid specific treatments: Lugol's Iodine.
    Your theories or comments: I could never figure out why this happened to me because I was always such a health conscious person. Then one day I got a 1st time sinus infection that was very unusual and would not go away. It caused me to be completely unable to breath through my nose as if someone had filled my nostrils with concrete. I believe now this may have been caused by my apt being fumigated and then moving into a home which had just been fumigated shortly before the sinus incident. So the sinus dr prescribed 2 months of Cipro and Flonase and Prozac. All highly dosed Fluoride prescriptions. I was hardly eating anything at all, just ingesting a great deal of Fluoride apparently. This is exactly when my PAIN symptoms began. Finally, the dots have been connected.
    Are we missing any important questions: Not that I can think of at the moment.

     

    08/18/2010
    First Name: Yesselle
    Age: 57
    Male or Female: Female
    City: Managua
    State/Province: Managua
    Country: Nicaragua
    How long have you lived there: 48 years
    Where were you born: Managua
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: yes
    What is Your Line of Work: accounting
    How has Fibro affected your ability to work: yes
    How has Fibro affected your life: socially and my active life (sports and hobbies.etc)
    What were your first symptoms: pain on my feet
    Your age at onset of symptoms: 3
    How fast was your rate of decline: very fast during this year.
    What are your current symptoms: pain all over my body (hands, feet, shouldes, legs, knees,arms,legs
    Number of years since you developed symptoms of fibromyalgia: 8 years
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 1 year
    Describe the extent of your brain fog: i easy forget recently facts
    Estimate number of doctors you have seen for Fibro related symptoms: 3
    Do your doctors tend to focus on all your Fibro symptoms: no
    Do your doctors treat your symptoms individually or collectively: collectively
    Describe your experience with doctors: no relief at all
    What remedies or medications have you tried: tramadol
    What makes you feel better: hot water therapy
    What makes you feel worse: humidity and moving
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: no
    Have you tried any thyroid specific treatments: no
    Your theories or comments: Why there is not much reumatologist specialized in Fibromyalgia?
    Are we missing any important questions: Time of the day feeling more pain

     

    08/17/2010
    First Name: Tiana
    Age: 29
    Male or Female: Female
    City: Vancouver
    State/Province: Wsshington
    Country: USA
    How long have you lived there: Fifteen years
    Where were you born: Vancouver
    Is this the first time you have taken our questionnaire: Yes
    If not, why are you returning:
    Are you still working: Yes
    What is Your Line of Work: Bartender
    How has Fibro affected your ability to work: I cannot work without taking pain killers, I'm not as fast as I used to be and I forget to do important things. I show up to work late all the time.
    How has Fibro affected your life: My social life is destroyed, I can't do much without help or really paying for it for the next four days and it's finically broke me.
    What were your first symptoms: Jaw pain
    Your age at onset of symptoms: 28
    How fast was your rate of decline: Fast
    What are your current symptoms: Tired, weak, pain all over, muscle cramping, joints get stiff and pop. Stiff and achey in my legs, I get forgetful.
    Number of years since you developed symptoms of fibromyalgia: One
    Do your symptoms include brain fog: Yes
    Number of years since you developed the brain fog: One
    Describe the extent of your brain fog: I forgot to go to my sons baseball game, and a very serious everyday thing at work I do I forgot to do it even though I've done it for seven years.
    Estimate number of doctors you have seen for Fibro related symptoms: Six
    Do your doctors tend to focus on all your Fibro symptoms: No
    Do your doctors treat your symptoms individually or collectively: Individualy
    Describe your experience with doctors: They don't listen and refuse to help with pain control
    What remedies or medications have you tried: Lyrica, cymbalta, trazadone, amitriptalyne. Tramadol, hydrocodone
    What makes you feel better: Ice cream, pain relief
    What makes you feel worse: Sugar, alcohol.
    Have you tried avoiding fluoride in your diet: No but I grew up on well water
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: I don't drink alcohol and try to stay away from sugars
    Have you tried any thyroid specific treatments: No
    Your theories or comments: I have a theory about bad backs
    Are we missing any important questions: No

     

    08/16/2010
    First Name: robert
    Age: 31
    Male or Female: male
    City: sydney
    State/Province: NSW
    Country: Australia
    How long have you lived there: 10
    Where were you born: Poland
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: no
    What is Your Line of Work: office
    How has Fibro affected your ability to work: yes
    How has Fibro affected your life: yes
    What were your first symptoms: Poland
    Your age at onset of symptoms: 8
    How fast was your rate of decline: slwoly untill 25 years old then quicker due to another final antibiotics session
    What are your current symptoms: muscle are recovering extremely slowly.Can barely wlk to shops.Cant sit too long, my trapezius muscle is very weak and does not support my back fully
    Number of years since you developed symptoms of fibromyalgia: 1
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 15
    Describe the extent of your brain fog: mostly lack of ability to concentrate and sleepy after eating carbs
    Estimate number of doctors you have seen for Fibro related symptoms: 3
    Do your doctors tend to focus on all your Fibro symptoms: depends which one.The one who is GP and naturopath tend to get the idea and does proper tests (e.g stoll DNA analysis, of IGE and IgA for Candida infection (which came high)
    Do your doctors treat your symptoms individually or collectively: Most doctors said it was RSI, only the holisitc doctor tends to understand Candida but I am still waiting for his treatment plan, my DNA stoll analysis did not come back yet
    Describe your experience with doctors: Frustration, that is how I would describe the relationship. Lack of compassion or ability to listen to the real cause of the problem. Unable to see the big picture: e.g. we are what we eat etc...
    What remedies or medications have you tried: Mostly antifungals which wored for a while and then stop: oregano oil, coconut oil, colloidial silver, grepseed extract, Borax, recently Ted's alkalizing formula which changed a lot.
    What makes you feel better: being healthy, that is all.
    What makes you feel worse: stress, daily problems which seem to be big for those healthy people
    Have you tried avoiding fluoride in your diet: yes
    If so, which sources of fluoride: tap water, toothpaste
    Have you made dietary changes to avoid any other neutrotoxins: sure, gigh in good fat, low on carbs and proteins but only recently.
    Have you tried any thyroid specific treatments: yes, I cant complain about my energy levels, I am full of energy.Can sleep but get disturb due to muscle pain and weakness.
    Your theories or comments: It is obvious that I have caused all the symptoms by antibiotics.My candida is in the first part of my small intestine.I will get better but need something strong to kill it there.It mutated badly over the last 20 years.Hardly anything gets her.Each time I use new remedy I get slightly better.Last time after drinking Teds Bicard I cleared off my 15 yeasr old oily skin and hair and acne on my back, great stuff.So far all the same but cant regulate my salivary PH, always low even with potassium twice a day.
    Are we missing any important questions: dont think so

     

    08/16/2010
    First Name: Diane
    Age: 56
    Male or Female: Frmale
    City: Appleton
    State/Province: Wisconsin
    Country: USA
    How long have you lived there: year
    Where were you born: Appleton
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: No
    What is Your Line of Work: Unskilled
    How has Fibro affected your ability to work: I'm on disability. Chronic pain, fatigue, depression, anxiety .. can't seem to follow through on anything.
    How has Fibro affected your life: What life? I have none.
    What were your first symptoms: More intense migraines, body aches and feeling like I was always getting the flu...it's about all I remember. Life was so stressful back then I don't remember many of the details. I do know I was throwing up all the time from the pain.
    Your age at onset of symptoms: 37
    How fast was your rate of decline: 6 months
    What are your current symptoms: Irritable Bowel (doesn't bother me if I use psyllium husk DAILY) Still quite chemically sensitive and everything needs to be perfume free (makes it hard to be around people) Chronic fatigue, depression. The depression now is mostly SAD as I'm back in Wisconsin and living in a cave of an apartment. I can't afford special lighting. Restless leg, Sleep Apnea (to be fair the restless leg was brought on by the anti-depressants and the med to treat the RLS caused the Sleep Apnea) I go to a chiropractor 2-3x a week and a massage therapist...he does deep tissue, myofacial release and pressure point. Helps majorly for all issues but can't afford what I need to get over the hump to get on with my life.
    Number of years since you developed symptoms of fibromyalgia: 20
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog:
    Describe the extent of your brain fog: Forget in the middle of a sentence all the time and forget what I'm going from one room to another for. Worst is when I drive and I forget where I am or am going to. This fog isn't anywhere what it used to be because of how I am treating it homeopathically. (see below)
    Estimate number of doctors you have seen for Fibro related symptoms: 20-30? I have no idea
    Do your doctors tend to focus on all your Fibro symptoms: Never. Dr's don't know squat. They play Guinea pig with people.
    Do your doctors treat your symptoms individually or collectively: Only people that have EVER treated me as a whole are Chiropractors that taught nutrition/juicing also.
    Describe your experience with doctors: Every Dr with the exception of Chiropractors just want to write out medication that exacerbated the problems or caused others.
    What remedies or medications have you tried: I can't recall everything. Seriously. What I do recall... paxil Still on 1.25mg of clonazapam to sleep for RLS I've been trying for 4 years to get off and I've gotten from 3mg down to 1.25. If I reduce the amount any faster than .25mg every 6 months I'm a nut case because I don't get any stage 4 sleep at all. amatriptiline (sp?) myrapex buspar tylenol sinus medications meclizine Benadryl antibiotics To sleep now I take 1mg of melatonin 900mg Valerian root 1.25 mg clonazapam 2-4 bananas daily (for leg cramps)+ tons of veges
    What makes you feel better: Daily Psyllium Husk PH balanced water ONLY Specialized chiropractic (bio cranial) massage therapy Vegetable Juicing none or rarely---dairy or meats never drink soda reg or diet no sugar (I hurt all over if I consume too much sugar..a little once in a while I'm ok) Potatoes in excess make me hurt too...guess the starch turns to sugar No coffee or chocolate Heat & dry weather Sunshine warm baths (which I don't have..only a shower)
    What makes you feel worse: NOT doing all the things listed above that make me feel better.
    Have you tried avoiding fluoride in your diet: Just started this week
    If so, which sources of fluoride: Can't avoid it in tap water but I stopped drinking tap water about 24 years ago. Only exposure to fluoride I've had was toothpaste that I know of and I was raised in the country and all we had was well water till I was 18 and moved into town.
    Have you made dietary changes to avoid any other neutrotoxins: yes ...see what makes me feel better.
    Have you tried any thyroid specific treatments: No .... are you talking medication? I won't go there.
    Your theories or comments: I find its all about diet and proper hydration and keeping my back/body in proper alignment. I was living in SoCal for almost 4 years and the weather there was ideal. The pollution inland wasn't good. Still sensitive to smells but I was almost symptom free .. I was never able to get well enough to work and get off SSI which in turn made housing next to impossible to keep. So without stable housing I never got on my feet and finally left. Weather here is not conducive to good health.
    Are we missing any important questions:

     

    08/16/2010
    First Name: Rayna
    Age: 28
    Male or Female: Female
    City: Saint Paul
    State/Province: MN
    Country: USA
    How long have you lived there: 26
    Where were you born: Astubula, Ohio
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: yes
    What is Your Line of Work: Yield Engineering
    How has Fibro affected your ability to work: Napping during my lunch is a necessity everyday. I am so sore when I return home I immediately hit the couch.
    How has Fibro affected your life: Everyday pain. I am so exhausted all the time from it.
    What were your first symptoms: Neck pain Shoulder blade pain
    Your age at onset of symptoms: 13
    How fast was your rate of decline: Seems to be getting worse since I passed 25.
    What are your current symptoms: Severe neck pain Shoulder pain Restless Leg Headaches Fatigue
    Number of years since you developed symptoms of fibromyalgia: 15
    Do your symptoms include brain fog: no
    Number of years since you developed the brain fog:
    Describe the extent of your brain fog:
    Estimate number of doctors you have seen for Fibro related symptoms: 3
    Do your doctors tend to focus on all your Fibro symptoms: earlier when I was younger they did. My doctor now focus' on the neurological attack.
    Do your doctors treat your symptoms individually or collectively: collectively
    Describe your experience with doctors: I wish they knew more about the disease specifically
    What remedies or medications have you tried: Cymbalta Effexer Tramadol Yoga Capoeira Lots and lots of heat
    What makes you feel better: Tramadol (temporarily) Activity does but it's hard to feel good enough to start...
    What makes you feel worse: Sitting in one spot for more than 10 minutes
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: no
    Have you tried any thyroid specific treatments: no
    Your theories or comments:
    Are we missing any important questions:

     

    08/16/2010
    First Name: Taryn
    Age: 54
    Male or Female: f
    City: cincinnati
    State/Province: ohio
    Country: usa
    How long have you lived there: 54
    Where were you born: cincinnati, ohio
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: n
    What is Your Line of Work: computer support
    How has Fibro affected your ability to work: has not
    How has Fibro affected your life: it painful
    What were your first symptoms: pain in my arms
    Your age at onset of symptoms: 38
    How fast was your rate of decline: not sure how to measure this
    What are your current symptoms: pain in arms and hips fatigue sleeplessness
    Number of years since you developed symptoms of fibromyalgia: 16
    Do your symptoms include brain fog: no
    Number of years since you developed the brain fog:
    Describe the extent of your brain fog:
    Estimate number of doctors you have seen for Fibro related symptoms: 2
    Do your doctors tend to focus on all your Fibro symptoms: no
    Do your doctors treat your symptoms individually or collectively: none I refuse to take meds. untill further research is done to provide more answers
    Describe your experience with doctors: Test in search for pressure points
    What remedies or medications have you tried: stretching
    What makes you feel better: nothing
    What makes you feel worse: exercise
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: don't know neurotoxins are. will research
    Have you tried any thyroid specific treatments: no
    Your theories or comments: Not sure wha to do. seems to be triggered by inflammation
    Are we missing any important questions:

     

    08/16/2010
    First Name: KATHY
    Age: 50
    Male or Female: FEMALE
    City: WEST ALLIS
    State/Province: WIS
    Country: MIL
    How long have you lived there: 2 YEARS
    Where were you born: MILWAUKEE
    Is this the first time you have taken our questionnaire:
    If not, why are you returning:
    Are you still working: YES
    What is Your Line of Work: CLEANING AND DELIVER DINNER TO PEOPLE
    How has Fibro affected your ability to work: YES ALOT
    How has Fibro affected your life: YESHI
    What were your first symptoms: PAIN ALL OVER HURT
    Your age at onset of symptoms: 43
    How fast was your rate of decline: DONT KNOW
    What are your current symptoms: LOT OF PAIN ALL OVER BAD HEADACHE VERY STIFF NECK FEEL VERY BAD
    Number of years since you developed symptoms of fibromyalgia: 7 YEARS
    Do your symptoms include brain fog: YES ALOT
    Number of years since you developed the brain fog: 2
    Describe the extent of your brain fog: FORGET ALOT OF THINGS JUST CANT THINK RIGHT
    Estimate number of doctors you have seen for Fibro related symptoms: 2
    Do your doctors tend to focus on all your Fibro symptoms: NO I DONT THINK SO
    Do your doctors treat your symptoms individually or collectively: DONT HAVE A DOCTOR AT THIS TIME I DO NEED ONE
    Describe your experience with doctors: SO FAR NO HELP HAVE NOT FOUND A GOOD DOCTOR YET I NEED SOME HELP ON THIS MAYBE YOU CAN HELPCANT REMBER
    What remedies or medications have you tried: CANT REBBER IT HAS BEEN ABOUT 5 YEARS I HAVE NOT SEEN A DOCTOR FOR THIS I CAN NOT FIND A DOCTOR IN MY AREA WHO KNOW ABOT FIBROMYALGIA
    What makes you feel better: NOTHING BECAUSE I HAVE NOT TRYED MUCH IT FEELS GOOD WHEN I TAKE A HOT BATH BUT YOU CANT STAY IN THE TUB FOREVER
    What makes you feel worse: WEATHER LOT OF LIFTING A LOT OF EVERTHING I FEEL BAD EVER DAY
    Have you tried avoiding fluoride in your diet: NO
    If so, which sources of fluoride: NONE
    Have you made dietary changes to avoid any other neutrotoxins: NO
    Have you tried any thyroid specific treatments: NO
    Your theories or comments:
    Are we missing any important questions: NO I DONT THINK SO CAN YOU PLEASE HELP ME GIVE ME SOME ANSWERS

     

    08/15/2010
    First Name: Karen
    Age: 50
    Male or Female: Female
    City: Humble
    State/Province: TX
    Country: USA
    How long have you lived there: 40 yrs.
    Where were you born: Houston, TX
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: no
    What is Your Line of Work: Real Estate Agent
    How has Fibro affected your ability to work: yes
    How has Fibro affected your life: disabled
    What were your first symptoms: Fatigue and Chronic Pain
    Your age at onset of symptoms: 42
    How fast was your rate of decline: Moderate to Rapid
    What are your current symptoms: Fatigue and Chronic Pain
    Number of years since you developed symptoms of fibromyalgia: 8
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 7
    Describe the extent of your brain fog: Lack of Concentration/Listless
    Estimate number of doctors you have seen for Fibro related symptoms: 10
    Do your doctors tend to focus on all your Fibro symptoms: yes
    Do your doctors treat your symptoms individually or collectively: collectively and individually
    Describe your experience with doctors: They want to help, but seem unsure of which medication to prescribe.
    What remedies or medications have you tried: Many anti-depressants, Pain relievers, Opiates and morphine.
    What makes you feel better: Opiates
    What makes you feel worse: Stress
    Have you tried avoiding fluoride in your diet: yes
    If so, which sources of fluoride: toothpaste
    Have you made dietary changes to avoid any other neutrotoxins: no
    Have you tried any thyroid specific treatments: natural thyroid supplements
    Your theories or comments:
    Are we missing any important questions:

     

    08/12/2010
    First Name: Samantha
    Age: 22
    Male or Female: Female
    City: Clearwater
    State/Province: Florida
    Country: United States
    How long have you lived there: 15 years
    Where were you born: South Philadelphia, Pennsylvania
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: No
    What is Your Line of Work:
    How has Fibro affected your ability to work: It hurts to sit in some chair continuously during work. Sometimes my legs go numb, and at times my calves, ankles, and feet swell to the point it hurts to walk and remains for a period of time.
    How has Fibro affected your life: I can't drive for a long period of time. I can't sit cross legged or any kind of bending my legs for a long period of time because they not only ache but hurt tremendously to unbend. My back and hip seem to continuously hurt intensly that at times I feel like I can't do anything without a prescription pain medication. My muscles continuously twitch sometimes violently and I have trouble sleeping. I get upset and cry easily. I feel like I "freak out" alot which is not like me before all this started.
    What were your first symptoms: The first symptoms were increasing harsh pains in my lower back and hips, more the right than left.
    Your age at onset of symptoms: 18
    How fast was your rate of decline: It started with lower back pain. About 3 monthes later it moved to my hips, then my knees and ankles about 6 monthes later. Then the swelling started soon after that with pain in my c-spine and shoulders. Now at 22 it is an all over pain and has been this way for about a year.
    What are your current symptoms: Depression, Anxiety, severe pain in my joints, lower spine, and cervical spine. Swelling of my calves, ankles and feet about once or twice every month or 2. Muscles spasms.
    Number of years since you developed symptoms of fibromyalgia: 5 years...
    Do your symptoms include brain fog: No
    Number of years since you developed the brain fog: n/a
    Describe the extent of your brain fog: n/a
    Estimate number of doctors you have seen for Fibro related symptoms: 4
    Do your doctors tend to focus on all your Fibro symptoms: Yes. I am doing a trial and error to try to find medication(s) that work. I am trying to find a chiropractor, mental and physical therapist.
    Do your doctors treat your symptoms individually or collectively: Collectively.
    Describe your experience with doctors: My physician is great trying to help me. He ordered a lot of test and spine doctor visits who just ordered more test. Concluding with fibromyalgia and some other things such as syatica, anxiety and depression. And now im trying different medications and continuous tests to monitor my body.
    What remedies or medications have you tried: I have tried cymbalta, anxiety and depression medications. Muscle relaxors, pain pills, and lyrica, sleeping pills.
    What makes you feel better: Muscle relaxors, pain medications, sleeping pills. Some stretches gradually makes it a little better. i just started the lyrica so we will see.
    What makes you feel worse: Strenuos movements. Driving, sitting, or standing for too long. Having my legs bent. Leaning on one side. Bending over at times. Flying and being in the mountains where my Grandmother lives kills me.
    Have you tried avoiding fluoride in your diet: No.
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: Since I can't really work out to loose weight I try to watch what I eat but I don't know if im avoiding nuerotoxins.
    Have you tried any thyroid specific treatments: No, but thyroid runs in my family. I do not have any problems with thyroid as of now.
    Your theories or comments: If I could just find something to make it go away I would pass it on to anyone that is having the same problems. Fibromyalgia and everything that comes with it are the worst feelings in the world and I wouldn't wish it on anyone.
    Are we missing any important questions: I would love to be a part of any testing to make it go away to help future people diagnosed with it. Just incase anyone knows any studies I could be apart of in my area.

     

    08/11/2010
    First Name: Kim
    Age: 41
    Male or Female: female
    City: Fortuna
    State/Province: Ca
    Country: USA
    How long have you lived there: 2yrs
    Where were you born: Puerto Rico
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: yes
    What is Your Line of Work: riding instructor
    How has Fibro affected your ability to work: Not able to work full schedule of days or hours
    How has Fibro affected your life: Restricted it greatly
    What were your first symptoms: extreme muscle soreness and fatigue
    Your age at onset of symptoms: 30
    How fast was your rate of decline: slow..I kept going no matter what, until about 3 years ago.
    What are your current symptoms: muscle pain, can't sleep without Advil PM every night. Can't do any new activity without "paying" for it the next day or two, which means a day or two of almost no activity.
    Number of years since you developed symptoms of fibromyalgia: about 10
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 6
    Describe the extent of your brain fog: cant make logical thoughts, make a decision, frustrated easily, uncoordinated physically
    Estimate number of doctors you have seen for Fibro related symptoms: 1
    Do your doctors tend to focus on all your Fibro symptoms: was diagnosed and then havent been to a doctor since can't stand them
    Do your doctors treat your symptoms individually or collectively: dont go to doctors unless absolutely have to which since my diagnosis has been once for poison oak treatment (I go systemic with it instantly) and once for a bladder infection
    Describe your experience with doctors: only discuss bare minimum in order to get treated for things unrelated to fibro
    What remedies or medications have you tried: guafenisin, stem-enhance. advil PM and regular advil
    What makes you feel better: Advil PM to sleep and regular Advil when in so much pain I can't stand it anymore
    What makes you feel worse: lack of sleep and any physical exertion over an undefined limit..which is frustrating since I don't know where the line is I frequently cross it
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: trying to avoid gluten as bread stuff makes me feel worse
    Have you tried any thyroid specific treatments: no
    Your theories or comments: Is it possible that heavy use of advil could cause this? Because of having heavy periods and cramps most of my life, I took NSAIDS heavily throughout my twenties...
    Are we missing any important questions:

     

    08/09/2010
    First Name: Liz
    Age: 51
    Male or Female: F
    City: Phoenix
    State/Province: AZ
    Country: USA
    How long have you lived there: 10 years
    Where were you born: Chicago, IL
    Is this the first time you have taken our questionnaire: fibromyalgia
    If not, why are you returning:
    Are you still working: No
    What is Your Line of Work: School bus driver
    How has Fibro affected your ability to work: Cannot maneuver a bus, get up early to do a route, concentrate, tolerate others (interaction), have panic attacks, pain constantly, exhaustion
    How has Fibro affected your life: I cannot perform my household tasks due to the pain I wake with. Any task causes immediate exhaustion. I am constantly irritable, which is a symptom, which causes me to be increasingly irritable. I cannot concentrate on bills, conversation, or anything. Driving SCARES me anymore...I feel so unsure of myself.
    What were your first symptoms: 1989... after a severe illness and a divorce in 1988... Bouts of intense fatigue resulting in bedrest (I thought it was a flu....NO). These would last for 2-3 weeks at a time. Pain started in 2001.
    Your age at onset of symptoms: 28-ish
    How fast was your rate of decline: Past 6-8 years: quickly Past 8 months: EXTREMELY FAST...debilitating
    What are your current symptoms: Extreme exhaustion...not just tiredness Entire body pains New-onset joint pains Tendon pain/pulling Muscle twitching RLS No rest from sleep INCREASED irritability Inability to perform daily tasks
    Number of years since you developed symptoms of fibromyalgia: 21
    Do your symptoms include brain fog: YES
    Number of years since you developed the brain fog: 10
    Describe the extent of your brain fog: Has intensified in the past 8 months... One month (Feb) went thru period of agitation/hyperactivity. THEN...started feeling at "odds" with thinking, communicating, remembering, feeling scared, unable to focus on reading or conversation or driving....EVERYTHING
    Estimate number of doctors you have seen for Fibro related symptoms: 10?
    Do your doctors tend to focus on all your Fibro symptoms: No.
    Do your doctors treat your symptoms individually or collectively: Individually. Never as an ILLNESS. They tend to discount everything all together.
    Describe your experience with doctors: I believe some are just stupid. > One rheum said that I don't have FMS becuase I didn't SCREAM loud enough when he touched my tender points. > One said I have Tennis Elbow > One said I am feeling sorry for myself > I have basically been told I am stupid.
    What remedies or medications have you tried: Lyrica...did nothing Elavil...for sleep...doesn't help
    What makes you feel better: Nothing
    What makes you feel worse: Everything
    Have you tried avoiding fluoride in your diet: No
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: ?
    Have you tried any thyroid specific treatments: No
    Your theories or comments: My theory is that I have nowhere to turn. Doctors just don't want to really help. They don't care. Fibro MAY kill me.
    Are we missing any important questions: Where can I find a REAL, caring doctor?

     

    08/09/2010
    First Name: Alison
    Age: 46
    Male or Female: female
    City: Peterhead
    State/Province: Aberdeen
    Country: uk
    How long have you lived there: 9
    Where were you born: Birmingham, uk
    Is this the first time you have taken our questionnaire: Yes
    If not, why are you returning:
    Are you still working: no
    What is Your Line of Work: Cleaner, cook
    How has Fibro affected your ability to work: Cannot work any longer, my work has made me redundant because I am unfit for work
    How has Fibro affected your life: Everything has changed, somedays I cannot even walk to get to the toilet. very seldom leave the house
    What were your first symptoms: Sore joints, painful hands and fingers, extreme tiredness but still unable to sleep, nightmares, forgetting things
    Your age at onset of symptoms: 32
    How fast was your rate of decline: steadily untill about a year ago when I started to get really bad
    What are your current symptoms: Unable to walk sometimes.very sore knees and feet,sore back,sore ribs, cough,bad chest, allergies, fluid retention and bloat, pins and neddles in hands and feet, head aches, dry eyes, itchy ears, dry nose, dry skin, course hair, itchy skin, stiff hips, thrush. brain fog, very sore tailbone to the extent where i cannot sit for long periods, painful groins. morning sickness
    Number of years since you developed symptoms of fibromyalgia: 9
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 3
    Describe the extent of your brain fog: not being able to take things in, especially whilst holding a conversation, doing things and forgetting what ive done within minuts, no concentration
    Estimate number of doctors you have seen for Fibro related symptoms: 5
    Do your doctors tend to focus on all your Fibro symptoms: No, only the ones i really complain about like my sore joints and back
    Do your doctors treat your symptoms individually or collectively: individually
    Describe your experience with doctors: I have been going that long to them I think they are starting to listen a bit more to me, but still get frustraighted as I dont think they understand how much pain i am actually in
    What remedies or medications have you tried: Gabapentin, tramadol, thyroxine, trazadone, diclofenic, cetirizine, various other pills and creams
    What makes you feel better: trazodone helps me sleep a bit better,
    What makes you feel worse: stress, doing too much activity, alcohol, carbohydrates, bright lights and noise
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: I try to eat healthy
    Have you tried any thyroid specific treatments: yes am on 250mg for hypothyroid
    Your theories or comments: I think i started symptoms of fybro after i had sarcoid about 9 years ago, as I have had mild symptoms up untill a year ago when i had my hysterectomy and after that my symptoms got really bad, i dont think there is enough talk about fybro, people usually dont beleive there is anything wrong as when they see you out you look okay, they dont realise that thay are only seeing you out because you feel ok, and that usually when they dont see you is because you are not okay and cannot go outside the house, as I once said to my friend, "Just because I'm smiling, doesnt mean I'm not sick"
    Are we missing any important questions:

     

    08/08/2010
    First Name: L.
    Age: 48
    Male or Female: Female
    City: Little Rock
    State/Province: AR
    Country: USA
    How long have you lived there: 20 Years
    Where were you born: DeQueen
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: Yes
    What is Your Line of Work: Cosmetologist and Consultant
    How has Fibro affected your ability to work: I have difficulty focusing, I get fatigued easily,my stamina is low. My hands hurt, muscles hurt.
    How has Fibro affected your life: I don't feel normal. I have headaches everyday. I am dizzy a lot of the time. I can't plan anything and know I will feel like doing it. The least little thing I lift, I hurt the next day. I feel like I am in a stiff knot most of the time.
    What were your first symptoms: Exhaustion, dizziness, pin sticks
    Your age at onset of symptoms: 47
    How fast was your rate of decline: I am now taking B-12 injections every week. and on Savella. It seems to be helping some. anything is better than nothing.
    What are your current symptoms: Headaches, pinsticks, muscle pain, dizziness, fatigue.Mental fog frequently
    Number of years since you developed symptoms of fibromyalgia: about 2-3 really not sure
    Do your symptoms include brain fog: YES
    Number of years since you developed the brain fog: 5
    Describe the extent of your brain fog: I can't think of words, names, I take Ginko Biloba everyday. Things work much better with the Ginko
    Estimate number of doctors you have seen for Fibro related symptoms: 5
    Do your doctors tend to focus on all your Fibro symptoms: I guess
    Do your doctors treat your symptoms individually or collectively: collectively
    Describe your experience with doctors: Frustrating! One says one thing, I go to a different one and they say another. I finally found one that has been trying to help me.
    What remedies or medications have you tried: Magnesium, Calcium, Savella, B-12 shots, multivitamin, st.John's wort, Acia berries, Cordyceps, DHEA, Pregnalone, Ginko Biloba, Vit.C,
    What makes you feel better: Massage, working out, tanning in cold weather, reading a good "helpful" book. Being with my grandsons.
    What makes you feel worse: Cold weather, extreme heat, a high stress environment.
    Have you tried avoiding fluoride in your diet: Yes
    If so, which sources of fluoride: I only drink bottled spring water, swap out floridated toothpaste with non fl.
    Have you made dietary changes to avoid any other neutrotoxins: I stay away from mold. I had a bad experience with that. I limit exposure to pesticides. I do not allow my office to be sprayed with pest treatments.
    Have you tried any thyroid specific treatments: no
    Your theories or comments: we did some remodeling, we lived in the house while it was going on. I felt bad the whole time it was going on. and haven't felt good since.That was 5 years ago.
    Are we missing any important questions: I believe it warrants asking about chemicals exposed to. painting, new carpet, stain, varnish, any remoleling taking place and the correlation of developing symptoms.

     

    08/07/2010
    First Name: Annie
    Age: 52
    Male or Female: female
    City: Beavercreek
    State/Province: Oregon
    Country: USA
    How long have you lived there: 5 yrs
    Where were you born: Cambridge, MA
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: no
    What is Your Line of Work: Mail Carrier
    How has Fibro affected your ability to work: yes
    How has Fibro affected your life: has effected my ability to work and to have a healthy relationship with my husband
    What were your first symptoms: neck and back pain... and fatigue
    Your age at onset of symptoms: 37
    How fast was your rate of decline: slow at first.... but has been faster now !
    What are your current symptoms: pain in neck, back, leg, feet, tail bone. IBS, extreme fatigue, hashimotos, muscle cramps, headaches and depression
    Number of years since you developed symptoms of fibromyalgia: 15
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 3
    Describe the extent of your brain fog: it seems to get worse at times... to the point of not even remembering how to write a certain letter.
    Estimate number of doctors you have seen for Fibro related symptoms: 2
    Do your doctors tend to focus on all your Fibro symptoms: no
    Do your doctors treat your symptoms individually or collectively: individually
    Describe your experience with doctors: not much help
    What remedies or medications have you tried: tylenol. tried vicodin and it gives me a hangover type feeling the next day.
    What makes you feel better: resting and hot baths....
    What makes you feel worse: exercising
    Have you tried avoiding fluoride in your diet: it was in my water growing up....
    If so, which sources of fluoride: water
    Have you made dietary changes to avoid any other neutrotoxins: yes
    Have you tried any thyroid specific treatments: yes....naturethyroid and levothyroxin
    Your theories or comments:
    Are we missing any important questions:

     

    08/06/2010
    First Name: Debi
    Age: 41
    Male or Female: female
    City: Fairfax
    State/Province: VA
    Country: US
    How long have you lived there: 35 years
    Where were you born: Miami, Florida
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: yes
    What is Your Line of Work: law enforcement
    How has Fibro affected your ability to work: makes it extremely difficult and uncomfortable
    How has Fibro affected your life: i have pain constantly which makes me irritable. headaches, IBS, and TMJ included. i feel worn out and almost can't remember what it is like to feel "good" anymore
    What were your first symptoms: morning stiffness
    Your age at onset of symptoms: 34
    How fast was your rate of decline: slow for first 3-4 years progessed faster in the past 3 years. worse after child birth
    What are your current symptoms: pain, headaches, IBS, irritablity, dizzyness
    Number of years since you developed symptoms of fibromyalgia: 8
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 1
    Describe the extent of your brain fog: can't retain numbers, or information that is just given to me
    Estimate number of doctors you have seen for Fibro related symptoms: 1
    Do your doctors tend to focus on all your Fibro symptoms: yes
    Do your doctors treat your symptoms individually or collectively: individually
    Describe your experience with doctors: not good, only want to put me on depression medication
    What remedies or medications have you tried: depression meds 1x for 2 days, awful
    What makes you feel better: massages, hot baths, excersise
    What makes you feel worse: sleep, bad weather, stress
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: no
    Have you tried any thyroid specific treatments: no
    Your theories or comments:
    Are we missing any important questions:

     

    08/05/2010
    First Name: elif
    Age: 39
    Male or Female: f
    City: little rock
    State/Province: AR
    Country: United States
    How long have you lived there: 5 years
    Where were you born: overseas(turkey)
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: yes
    What is Your Line of Work: healthcare
    How has Fibro affected your ability to work: since I get easily tired I can't work as long as I supposed to be.
    How has Fibro affected your life: I have hard times getting out of bed
    What were your first symptoms: fatigue, morning stiffness, shoulder pain
    Your age at onset of symptoms: 25
    How fast was your rate of decline: not very fast, it is almost same
    What are your current symptoms: fatigue, morning stiffness, shoulder-back pain, leg swelling and pain
    Number of years since you developed symptoms of fibromyalgia: almost 15
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 5
    Describe the extent of your brain fog: extreme forgetfulness, being aimlessness, slow thinking
    Estimate number of doctors you have seen for Fibro related symptoms: 2
    Do your doctors tend to focus on all your Fibro symptoms: yes
    Do your doctors treat your symptoms individually or collectively: individually
    Describe your experience with doctors: not very satisfaying
    What remedies or medications have you tried: analgesics, antidepressants, herbs
    What makes you feel better: egzercise, drinking melissa tea
    What makes you feel worse: anxious situations, not sleeping well
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride: probably tap water
    Have you made dietary changes to avoid any other neutrotoxins: no
    Have you tried any thyroid specific treatments: no
    Your theories or comments:
    Are we missing any important questions:

     

    08/03/2010
    First Name: karen
    Age: 46
    Male or Female: female
    City: saint louis
    State/Province: missouri
    Country: usa
    How long have you lived there: 41 years
    Where were you born: saint louis
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: no
    What is Your Line of Work: RN, (also was a massage therapist, and taught massage
    How has Fibro affected your ability to work: haven't worked for 3 year b/c... extreme fatigue-foggy brain -poor memory-disorganized input of sensory information-- blurred vision, chronic headaches, body aches, burning pain, sensory dysfunctions-tingling, electric shock sensations, sore muscles, insomnia, almost agoraphobic at times due to sensory overload-difficult to drive, chronic bladder irritation- pungent urine -burning and frequency, IBS, chronic heartburn with sour stomach, depression -- (conservation withdrawal) very little energy to deal with people, hyper excitable startle reflex, clumsy -POOR EXERCISE TOLERANCE, SEXUAL NUMBNESS, CHRONIC NECK AND BACK PAIN
    How has Fibro affected your life: I have all but socially withdrawn-difficult to keep up with people-it is more soothing to isolate in quiet than to deal with social chaos I am a very intelligient, capable, hard-working, compassionate person- I have always given my best at work- for a long time my self-esteem and self image as well as body image has suffered tremendously- it is difficult to pursue life passions when you can barely get off the couch - for a long time I BECAME my symptoms- as though"I" had disappeared -it has built my faith -though and I pray constantly-it lightens my spirit at least and I have developed a wicked sense of humor I am told -but it SUCKS-hard to not get into a victim mentality because we all well know that western medicine is NON-CURATIVE-- I am in the profession and am horrified by the way I have been treated at times by these "doctors"- IN MANT WAYS-MY LIFE HAS BEEN STOLEN FROM ME
    What were your first symptoms: I know when I was on the INH I hated it- upset stomach-chronic headaches, unable to think clearly -exhausted and emotionally overwhelmed- so starting from age 9 -I HAVE NEVER HAD MUCH ENERGY-WAS A VERY ANGRY CHILD (WITH GOOD REASON)
    Your age at onset of symptoms: 9
    How fast was your rate of decline: as mentioned- I REALLY CANNOT REMEMBER EVER FEELING GOOD, HAVING ENERGY-BEING HAPPY AND SPONTANEOUS -I NEVER FELT LIKE EVERYONE ELSE SEEMED TO FEEL (ALIVE)-I AM NOT JUST TALKING ABOUT DEPRESSION
    What are your current symptoms: EXTREME FATIGUE, LACK OF MENTAL CLARITY- BLURRED VISION, HYPERSENSITIVE TO ENVIRONMENT (SMELLS,SOUNDS,LIGHT,COLS, HEAT ETC) CHRONIC HEADACHES, PALPITATIONS -EMOTIONAL LABILITY, HYPOGLYCEMIA (IMPROVING SINCE I EAT EVRY 2-3 HOURS) CHRONIC BLADDER, BOWEL AND STOMACH IRRITATION, BURNING SKIN, FOUL URINE SMELL, FOUL BODY ODOR, VAGINAL YEAST, ORTHOSTATIC CHANGES, CHRONIC HEADACHES AND CLUMSINESS, ANXIETY, DEPRESSION, INSOMNIA, MOOD SWINGS AND I HAVE THESE TINY PALPABLE -I AM GUESSING CALCIUM DEPOSITS ALL OVER THE TOPS OF MY FEET- ABOUT THE SIZE OF A GRAIN OF SAND- 20-30 ON EACH FOOT
    Number of years since you developed symptoms of fibromyalgia: 35
    Do your symptoms include brain fog: YES
    Number of years since you developed the brain fog: 35
    Describe the extent of your brain fog: intermittent as a child -perhaps it was a dissociative state to protect me in childhood- but on INH I know I felt strange a lot - i fought terribly with my mother -I thought she was poisoning me with the medication
    Estimate number of doctors you have seen for Fibro related symptoms: at least 10
    Do your doctors tend to focus on all your Fibro symptoms: I NO LONGER SEEK MEDICAL ASSISTANCE FROM MD'S- STOPPED YEARS- WON'T GO UNLESS FORCED TO BY JOB REQUIREMENT AGO- BEEN TRYING TO HEAL MYSELF HOLISTICALLY
    Do your doctors treat your symptoms individually or collectively:
    Describe your experience with doctors: WITH RARE EXCEPTION-I AM HORRIFIED BY THE LACK OF INQUISITIVENESS, COMPLETE ABSENCE OF COMMON SENSE, JUDGEMENTAL DISMISSIVE ATTITUDES MIXED IN WITH MASKED MISOGYNY LACK OF INTEREST OR COMPASSION THAT'S MOST OF THE MD'S -- DC'S ON THE OTHER HAND I WOULD SAY ABOUT THE EXACT OPPOSITE!!!
    What remedies or medications have you tried: HYPNOSIS, FLOWER ESSENCES, MASSAGE (MULTIPLE TYPES OF BODYWORK-ROLFING, MYOFASCIAL RELEASE, NEUROMUSCULAR THERAPY) ENERGY WORK (REIKI, ETC), PRAYER, MEDITATION, AFFIRMATIONS,DIETARY CHANGES, THREELAC, APPLE CIDER VINEGAR, CHINESE HERBAL THERAPY, ACCUPUNCTURE, COLONICS, COLLOIDAL SILVER, AROMATHERAPY, OREGANO OIL, COCNUT OIL, DETOX BATHS, PSYCHOTHERAPY-PROZAC,ZOLOFT,LITHIUM,WELLBUTRIN,AMITRYPTILINE,PAXIL,CELEXA,DEPAKOTE,LAMOTRAGENE,XANAX. KLONOPIN, ZANTAC,REGLAN,INDERAL-MORE PRESCRIPTION DRUGS I CANNOT RECALL. ALOE JUICE, NONI JUICE, SWEAT LODGE, MARIJUANA, CHIROPRACTIC CARE, MAGNET THERAPY, DIGESTIVE ENZYMES, MAGNESIUM OIL , AMP FLORACEL -AND MANY MORE...
    What makes you feel better: MAGNESIUM OIL -HAS ALMOST COMPLETELY ELIMINATED MUSCULOSKELETAL PAIN- HELPS WITH PALPITATIONS, AMP FLORACEL HAS GIVEN ME A SOME ENERGY BACK- SOOTHED MY BELLY A LITTLE AND SEEMS TO HAVE GOTTEN MY SEXUAL FUNCTION BACK ON TRACK( ITS ONLY BEEN A COUPLE OF MONTHS- BUT I HAVE THE SWEETEST FEELING OF HOPE THAT WITH TIME... APPLE CIDER VINEGAR 1 TBS+1 TSP SEA SALT IN H2O 2-3 X DAY (HELPS WITH BP, DIZZINESS), MASSAGE, PRAYER, ENERGY WORK ,MEDITATION, SUPPORT GROUP, THE ONLY MEDICATION I TAKE SOMETIMES IS XANAX -IT TRULY IS ANXIOLYTIC- DETOX BATHS (WITH EPSOM SALTS, MAGNESIUM OIL, BAKING SODA, APPLE CIDER VINEGAR. PET THERAPY DON'T KNOW WHAT I'D DO WITHOUT MY DOG AND CAT. REST IS ESSENTIAL- NAPS ARE ESSENTIAL- SLOWING MY PACE DOWN (WHEN I HAVE A PACE). PRAYER, MARIJUANA EASES ANXIETY, CALMS STOMACH DOWN, HELPS ME SLEEP -DECIDING NOT TO BE A VICTIM -DECIDING TO STOP BEING SO HARD ON MYSELF -THINKING ABOUT DISCOVERING A CURE AND SPREADING IT TO ALL WHO SUFFER
    What makes you feel worse: NOT SLEEPING WELL, NOT HAVING ENOUGH SALT OR WATER, POOR EATING HABITS, WEATHER CHANGES- COLD AND RAIN ESP. WHEN I HAVE A LITTLE ENERGY- I TEND TO GET EXCITED AND TRY TO CATCH UP- END UP OVERDOING IT-- BACK TO EXHAUSTION CAFFEINE, SUGAR, FAST FOOD, STRONG ODORS, SENSORY OVERLOAD.
    Have you tried avoiding fluoride in your diet: NO
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: I CANNOT ABIDE ARTIFICIAL SWEETENERS (I FEEL REALLY AWFUL (NEUROLOGICALLY) IF I ACCIDENTALLY EVEN GET A MOUTHFUL OF SOMEONE'S DIET DRINK- TRY TO AVOID PROCESSED AND FAST FOODS
    Have you tried any thyroid specific treatments: NO-BESIDES ENERGY WORK
    Your theories or comments: . I KNOW WE DON'T GET MORE THAN WE CAN HANDLE--WE ALL MUST BE VERY, VERY SPECIAL TO OUR CREATOR -HE IS GROOMING US TO RISE UP AND CHANGE THE WAY WE LIVE LIFE ON THIS PLANET -WE ARE HER CARETAKERS- WHAT WE DO TO HER WE DO TO OURSELVES I SAW A WEBSITE THAT REFERRED TO US AS FIBROCANARIES-- OUR SICKNESS IS A WARNING TO ALL -STOP POLLUTING THE PLANET -GROW YOUR OWN GARDEN -I HAVE BEEN WAITING FOR MD'S TO START GETTING SICK WITH THIS SO THEY CAN GET A GRIP ON HOW BROKEN OUR HEALTHCARE SYSTEM IS. ONLY AN ESTIMATED 2% OF PRESCRIPTION DRUGS ARE CURATIVE I QUESTION EVEN THAT FIGURE! PRESCRIPTION DRUGS ARE PART OF THE POISONING!!!!
    Are we missing any important questions: EARLY 1980'S MANY WOMEN COMPLAINING- OF FIBRO SYMPTOMS-- WHY ALL OF A SUDDEN-- I AM WONDERING ABOUT THE PRENATAL EXPOSURE TO DES AS A CAUSATIVE FACTOR -YOU KNOW IT WAS DISPENSED LIKE CANDY IN THE 50'S AND 60'S. I DON'T KNOW IF WE CAN DEFINITIVELY EVER FIND THE EXACT CULPRIT- IT IS A COMBINATION OF FACTORS. I HAVE LONG SUSPECTED SOMETHING ABOUT THE KIDNEYS- BECAUSE OF THE WEIRD URINE SMELL-- THE THING IS...ACCORDING TO ONE STUDY ONLY 28% OF FIBROS HAVE NOTICED THEIR URINE SMELLED FUNNY-- BUT DID THEY EVEN ASK THE QUESTION-HAVE YOU EVER ACTUALLY SMELLED YOU OWN URINE- NOT HAVE YOU NOTICED AN ODOR- I DON'T SMELL IT UNLESS -I SMELL THE PAPER AFTER I WIPE- BECAUSE I HAVE A SENSITIVE BLADDER - I AM CURIOUS IF I AM DEVELOPING UTI- ODDLY FOR THE LAST 25 YEARS I USUALLY SMELL MY URINE TO CHECK FOR INFECTION SMELL--- BEING A NURSE- THERE IS A CHARACTERISTIC UTI ODOR- THIS IS DIFFERENT FROM UTI ODOR. SO WHY AREN'T THEY STUDYING THE URINE TO FIND OUT WHAT IS CAUSING IT?? I LIKE THE MUCINEX THEORY MAYBE TRY IT NEXT- BUT I CALCULATED THAT IT WILL TAKE 9 YEARS TO CLEAR ME- YIKES!!!

     

    08/02/2010
    First Name: trina
    Age: 50
    Male or Female: female
    City:
    State/Province: pa
    Country: us
    How long have you lived there: 1 year
    Where were you born: jennersville, pa
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: yes
    What is Your Line of Work: lunch lady in elementary school
    How has Fibro affected your ability to work: somestimes yes
    How has Fibro affected your life: it has slowed me down
    What were your first symptoms: not sleeping, achy finger joint and swelling feet
    Your age at onset of symptoms: 29
    How fast was your rate of decline: very slow, at about 45 started going real fast
    What are your current symptoms: constant grabbing pain in shoulders, swollen feet
    Number of years since you developed symptoms of fibromyalgia: 20 some
    Do your symptoms include brain fog: no
    Number of years since you developed the brain fog:
    Describe the extent of your brain fog:
    Estimate number of doctors you have seen for Fibro related symptoms: 2
    Do your doctors tend to focus on all your Fibro symptoms: no
    Do your doctors treat your symptoms individually or collectively: indivdually
    Describe your experience with doctors: i like my doctor, put me on ampitriplyne to hel me sleep and naproxen for pain. alot of the new drugs cause side effects that i already suffer from
    What remedies or medications have you tried: naproxen, ampitriplyne,
    What makes you feel better: this combo will ease symptons to make them manageable
    What makes you feel worse:
    Have you tried avoiding fluoride in your diet:
    If so, which sources of fluoride: can't say i do much other than toothpaste that i know of
    Have you made dietary changes to avoid any other neutrotoxins:
    Have you tried any thyroid specific treatments: thyroid tested ok
    Your theories or comments: i eat alot of whole grains and drink very little soda, try to drink herbal green tea and things high in antioxidents
    Are we missing any important questions:

     

    08/02/2010
    First Name: jeff
    Age: 22
    Male or Female: male
    City: dover
    State/Province: nh
    Country: usa
    How long have you lived there: 22 years
    Where were you born: dover, nh
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: yes
    What is Your Line of Work: tattoo artist
    How has Fibro affected your ability to work: i cant work for long periods of time. it hurts when i work. i cant concentrate and get anything done. losing function of my hand, arm, shoulder which i rely on from the pain and stiffness. cant bend for periods of time because of my back pain and stiffness. constant agonizing pain makes it extremely difficult to work but i am fighting through at the cost of everything to try to continue running my business until i am completely crippled.
    How has Fibro affected your life: constant pain. cant partake in my 3 young childrens life. cant sleep. cant move in the morning. cant walk more then i absolutely need to. can barely walk a flight of stairs. every movement is agonizing. i cant lift, i cant bend, i cant do anything. i feel like my whole life is ruined from this disease. and as if the physical pain wasnt ruining enough the mental aspect that comes from this type of pain is just as destructive. it makes me extremely depressed and angry inside. i have developed a horrible anger problem from constant extreme pain. i scream at my family when i regret it as soon as it comes from my mouth, i am constantly on edge. my depression has made me such a miserable person and i am not like that normally. i wish i could just be ok again. comfortable and happy and functioning the way someone my age should be.
    What were your first symptoms: i dont even remember. most likely my knee and back pain. constant muscle pain. headaches severe enough theyve given cat scans.
    Your age at onset of symptoms: 12
    How fast was your rate of decline: it wasnt until 3 years ago that i have not been able to do anything except for sit unless i absolutely have to. it was slowly getting worse and then over the last 3 years enough that i am feeling like i am deteriorating so fast that i have to consider options of closing my business. excruciating pain is a under statement.
    What are your current symptoms: pain that you couldnt describe in words. horrible depression. horrible anger. depression is bad enough i want to kill myself so i will not have to live with this pain anymore and not hurt my family anymore because of my disease. i affect everyone around me and i hate how this disease affects me. i feel like i cant live any longer with this. i cant continue living in this pain and there is no medicine that even alleviates this pain. ive tried everything it seems and nothing works.
    Number of years since you developed symptoms of fibromyalgia: ever since i can remember.
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: atleast 5 or 6 years
    Describe the extent of your brain fog: i dont remember anything, i cant concentrate, i am so depressed and frustrated from this.
    Estimate number of doctors you have seen for Fibro related symptoms: 10+
    Do your doctors tend to focus on all your Fibro symptoms: no. there are ride spread symptoms so get diagnosed with so many things sent to see doctor after doctor and i just get many medicines thrown at me. i feel like no one has answers for me or can even make me ok.
    Do your doctors treat your symptoms individually or collectively: individually. i feel like no doctor has an idea where to start or even know what to do with me.
    Describe your experience with doctors: overall i am so frustrated. i feel like all hope is lost for me.
    What remedies or medications have you tried: so many different medications. i cant even keep track of them all. ive taken every type of medicine for all my ailments. i feel like doctors are just throwing every medication on the market at me in hopes one of them will just do something for me.
    What makes you feel better: nothing so far i have tried. there is nothing that has even helped.
    What makes you feel worse: nothing makes me feel better or worse. i have tried everything and nothing makes a difference.
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride: havent even heard of anything.
    Have you made dietary changes to avoid any other neutrotoxins: i have not heard anything about changing my diet.
    Have you tried any thyroid specific treatments: no
    Your theories or comments: i am miserable i need answers. i cant live like this anymore.
    Are we missing any important questions: no.

     

    08/01/2010
    First Name: Lea
    Age: 19
    Male or Female: Female
    City: Macomb
    State/Province: MI
    Country: USA
    How long have you lived there: month
    Where were you born: Denver CO
    Is this the first time you have taken our questionnaire: Yes
    If not, why are you returning:
    Are you still working: No
    What is Your Line of Work:
    How has Fibro affected your ability to work: Yes
    How has Fibro affected your life: Unable to stand for sit for a long time. Unable to move heavy objects.
    What were your first symptoms: Neck pain
    Your age at onset of symptoms: 11
    How fast was your rate of decline: monthly
    What are your current symptoms: Upper back burning, Neck and shoulder pain.
    Number of years since you developed symptoms of fibromyalgia: 7
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 5
    Describe the extent of your brain fog: I forget what I am trying to say in the middle of a converstations
    Estimate number of doctors you have seen for Fibro related symptoms: 5
    Do your doctors tend to focus on all your Fibro symptoms: No
    Do your doctors treat your symptoms individually or collectively: Collectively
    Describe your experience with doctors: They told me it was in my head, They said I only wanted attention. They said that people young dont get it. That I am to fat.
    What remedies or medications have you tried: Pain Killers, Physical therpy, Cymbalta, Lyrica, Heating pad. Icy Hot creams
    What makes you feel better: All for a short time
    What makes you feel worse: Staying still for to long.
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride: No
    Have you made dietary changes to avoid any other neutrotoxins: no
    Have you tried any thyroid specific treatments: no
    Your theories or comments: That losing weight well help being able to move around more. Stay activie
    Are we missing any important questions: Age, Nationalty, Had any kids, Allgries

     

    08/01/2010
    First Name: nicole
    Age: 31
    Male or Female: female
    City: sherman oaks
    State/Province: ca
    Country: us
    How long have you lived there: 31 years
    Where were you born: hammond
    Is this the first time you have taken our questionnaire: yes
    If not, why are you returning:
    Are you still working: yes
    What is Your Line of Work: accounts receivable / collections
    How has Fibro affected your ability to work: yes
    How has Fibro affected your life: i am always achy and crabby and dont know why
    What were your first symptoms: mood, unknown reasons for pain
    Your age at onset of symptoms: 19
    How fast was your rate of decline: over many years some worse then others
    What are your current symptoms: entire body hurts, stress
    Number of years since you developed symptoms of fibromyalgia: 12
    Do your symptoms include brain fog: yes
    Number of years since you developed the brain fog: 5
    Describe the extent of your brain fog: i am confused, sometimes feel dumb
    Estimate number of doctors you have seen for Fibro related symptoms: 0
    Do your doctors tend to focus on all your Fibro symptoms: no
    Do your doctors treat your symptoms individually or collectively: individually
    Describe your experience with doctors: they think i just want pills or have emotional issues
    What remedies or medications have you tried: paxil, prozac, pain meds
    What makes you feel better: pain meds, prozac
    What makes you feel worse: no meds
    Have you tried avoiding fluoride in your diet: no
    If so, which sources of fluoride:
    Have you made dietary changes to avoid any other neutrotoxins: yes
    Have you tried any thyroid specific treatments: yes
    Your theories or comments:
    Are we missing any important questions:

     

     

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