Fibromyalgia Questionnaire & Results

Latest Update: 02/13/2012

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24 QUESTIONNAIRE COMPLETED DATA FORMS FOR June 2010

06/30/2010
First Name: E.
Age: 57
Male or Female: female
City: new york
State/Province: ny
Country: usa
How long have you lived there: 50 years
Where were you born: california
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: bookkeeper
How has Fibro affected your ability to work: painful to sit for long periods and tired a lot
How has Fibro affected your life: i live in pain un able to do things i use too
What were your first symptoms: back pain and then legs pain and arm
Your age at onset of symptoms: 52
How fast was your rate of decline: 8 years
What are your current symptoms: legs cramps pain back pain inflamation n knees ans back and arms hand pain foot numbness toes
Number of years since you developed symptoms of fibromyalgia: 8
Do your symptoms include brain fog: no
Number of years since you developed the brain fog:
Describe the extent of your brain fog:
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: yes pain killers
Describe your experience with doctors: ok hey sent me for pt
What remedies or medications have you tried: chiropractor pain killers
What makes you feel better: streching
What makes you feel worse: laying around and standing too long
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: not really
Have you tried any thyroid specific treatments: no
Your theories or comments: helpim tired of living in pain
Are we missing any important questions: no

06/25/2010
First Name: Diane
Age: 61
Male or Female: Female
City: Springdale
State/Province: AR
Country: USA
How long have you lived there: 4 years
Where were you born: Little Falls, NY
Is this the first time you have taken our questionnaire: ye
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Wal Mart Cashier
How has Fibro affected your ability to work: Extreme Pain
How has Fibro affected your life: Pain makes me feel tired all the time
What were your first symptoms: I don't remember.
Your age at onset of symptoms: 40
How fast was your rate of decline: It has taken several years and it seems the pain gets worse yearly.
What are your current symptoms: Pain in joints, pain all over my body
Number of years since you developed symptoms of fibromyalgia: 21
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 5
Describe the extent of your brain fog: As I am working, it seems like I wake up into the real world.
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: Most of them look at me like I lost my mind.
What remedies or medications have you tried: I am taking medicine for arthritis. This takes care of most of the pain. Though it hurts me to be a cashier....I take a mild pain pill. Most of the time it does not take the pain away.
What makes you feel better: Lying down
What makes you feel worse: Standing in one area for many hours cashiering.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: I have high blood pressure. I take medicine for it. I also take other medication.
Are we missing any important questions: no

06/25/2010
First Name: Mary
Age: 60
Male or Female: Female
City: Bogota
State/Province: Cundinamarca
Country: Colombia
How long have you lived there: 17 years
Where were you born: Colombia
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: English and French teacher
How has Fibro affected your ability to work: I feel very tired all the time.This takes away all the energy I have and sometimes I feel I'm dragging myself. The physical pain is also quite annoying and makes me very edgy. I'm sure I transmit all these feelings to my students even if I try very hard to hide them.
How has Fibro affected your life: It has taken away a lot of the joy of being alive. I've lost interest in most thinks except my animals and daughters
What were your first symptoms: Hip, back and leg pains
Your age at onset of symptoms: Around 53 or 54
How fast was your rate of decline: It was progressive. I would say 7 yesrs
What are your current symptoms: I feel very tired, not motivated, lazy, and have pain all over the body
Number of years since you developed symptoms of fibromyalgia: I don't know. I have the feeling it started in my forties but I didn't pay any attention to the symptoms.
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: Can not tell. It was progressive
Describe the extent of your brain fog: I forget things and have difficulties focusing
Estimate number of doctors you have seen for Fibro related symptoms: Around 10
Do your doctors tend to focus on all your Fibro symptoms: No
Do your doctors treat your symptoms individually or collectively: Individually
Describe your experience with doctors: Negative
What remedies or medications have you tried: Tramadol, Zolpidem, Sertralina, Adwil.
What makes you feel better: I take them all every day.
What makes you feel worse: Stress and cold weather
Have you tried avoiding fluoride in your diet: No
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: No
Have you tried any thyroid specific treatments: No
Your theories or comments:
Are we missing any important questions:

06/22/2010
First Name: Cindy
Age: 39
Male or Female: Female
City: Lethbridge
State/Province: Alberta
Country: Canada
How long have you lived there: 21 years
Where were you born: Grande Prairie, Alberta, Canada
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Administrative Assistant
How has Fibro affected your ability to work: Fatigue after working, sore muscles throughout the day and on weekends.
How has Fibro affected your life: It has robbed me of the energy to be able to work AND enjoy my family. After work I have nothing left for them without a significant rest period left. I can no longer participate in any of the vigorous activities I once enjoyed with my family (skiing, waterskiing, hikes, moutain biking) for fear I won't recover for days on end.
What were your first symptoms: Muscle aches, slowed digestion, fatigue.
Your age at onset of symptoms: 30 - 35?
How fast was your rate of decline: Fairly fast.
What are your current symptoms: muscle and joint aches, sluggish igestion, fatigue, dry skin,constipation, memory fog, menstral cycle difficulties, sleep problems.
Number of years since you developed symptoms of fibromyalgia: Probably 10
Do your symptoms include brain fog: YES
Number of years since you developed the brain fog: 7 - 8 years
Describe the extent of your brain fog: No concentration. I can forget where I driving to. At work I must right everything down before I forget the most simple of tasks. It worsens around my menstral cycle significantly.
Estimate number of doctors you have seen for Fibro related symptoms: 8
Do your doctors tend to focus on all your Fibro symptoms: No. With the exception of one I found recently - she specializes in Chronic Pain. Dr. Beverly Tompkins in Calgary, Alberta
Do your doctors treat your symptoms individually or collectively: Individually
Describe your experience with doctors: Lack of knowledge and belief. Prescribing medications to mask the symptoms is their only course of treatment. Recommending exercise is also big. I had one doctor tell me take amitriptyline but to go to bed at 7 every night and I should feel better - drug myself and sleep all the time. I call her my zombie inducing physician.
What remedies or medications have you tried: Meds: trazadone, amitiriptyline, prozac, cipralex, celebrex. Other: progesterone cream, sea salt, thyroid medication, Vitamin D, Vitamin B, B6, Lugol's solution, clorophyll, Biofeedback, minerals, multi-vitamins, amino acids, excercise.
What makes you feel better: Biofeedback and amino acids. Very light exercise sometime helps and sometimes worsens it. Sleep and rest also help.
What makes you feel worse: Anti-depressants
Have you tried avoiding fluoride in your diet: No
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: Sporadically.
Have you tried any thyroid specific treatments: Dessicated Thyroid
Your theories or comments: My theory is that fibromyalgia is environmental and it takes a lot of lifestyle changes including diet, sleep, temperative etc.
Are we missing any important questions: I think you covered them fairly well.

06/21/2010
First Name: Marion
Age: 47
Male or Female: Female
City: Folsom
State/Province: California
Country: USA
How long have you lived there: 24 Years
Where were you born: Germnay
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Govenmental Program Analyst
How has Fibro affected your ability to work: It has slowed me down. Problems getting around.
How has Fibro affected your life: It has limited how much and homw long I can do anything. I am depressed because of the chronic pain
What were your first symptoms: muscle pain all over the body, chronic lower back pain
Your age at onset of symptoms: 46 but may have been earlier than that
How fast was your rate of decline: Rapid
What are your current symptoms: Chronic pain in all major muscles and joints, sore skin, insomnia, chronic back pain, depression, fatique
Number of years since you developed symptoms of fibromyalgia: 1+
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: 1+
Describe the extent of your brain fog: very forgetfull, sometimes slow to think
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: Yes, she has been very good and works well with me in trying to provide some relieve
Do your doctors treat your symptoms individually or collectively: Collectivley
Describe your experience with doctors: When I finally made an appointment because I thought I was going crazy and I described to her what all was wrong me with, she ran a battery of tests, to see what was wrong. Many of the tests she ran were to rule out things like Lupus, Rheumatoid arthtitis etc. On one of the tests she consulted with a Rehumatologist to ensure that I was gven the correct diagnosis
What remedies or medications have you tried: Since I genereally don't like to take medications I am currently trying a muscle relaxer at night to help with the pain and insomnis and Motrin 500mg as needed. I opted not to take a anti depressant
What makes you feel better: Not sure, the muscle relaxer seems to help a little, A hot bath in the evening also helps. Stretching seems to help as well.
What makes you feel worse: COLD weather - makes it agonizzing
Have you tried avoiding fluoride in your diet: NO
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: NO
Have you tried any thyroid specific treatments: NO - thyroid test were run and were in normal limits
Your theories or comments:
Are we missing any important questions:

06/20/2010
First Name: M.
Age: 19
Male or Female: Female
City: Perth
State/Province: Western Australia
Country: Australia
How long have you lived there: 2
Where were you born: Abu Dhabi, UAE
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: No
What is Your Line of Work: Student
How has Fibro affected your ability to work: It has made it harder for me to do a lot of things included in student life and it just means I have to put in an extra effort to help me achieve a certain task.
How has Fibro affected your life: It had initially stopped me from any kind of social life but after I got used to the condition, I got a grip on my social life and started doing other things to keep my mind off the pain. The inability to sleep has also affected my life because I cannot concentrate in class and end up missing a few early morning lectures due to my erratic sleep patterns.
What were your first symptoms: Chronic pain of the muscles resembling the usual cramps during the flu, vomiting and headaches.
Your age at onset of symptoms: 18
How fast was your rate of decline: Pretty fast.
What are your current symptoms: Same as my first symptoms, only difference is the intensity of the pain and shooting pains through out my body including the skin being sensitive to touch.
Number of years since you developed symptoms of fibromyalgia: 1
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: 1
Describe the extent of your brain fog: Terrible memory loss and seeing things that do not exist.
Estimate number of doctors you have seen for Fibro related symptoms: 2
Do your doctors tend to focus on all your Fibro symptoms: Yes, 1 doctor did.
Do your doctors treat your symptoms individually or collectively: Individually
Describe your experience with doctors: One of them dismissed my pains as being psychiatric in the form of seeking attention since all tests proved normal. The other doctor was very understanding of the situation and gave me an anti depressant to help me sleep.
What remedies or medications have you tried: Endep, Evion, B- casule zinc and Pregalin 75. My current doctor has told me to walk till I lose my breath everyday.
What makes you feel better: Endep but I think it was only temporarily.
What makes you feel worse: Nothing so far!!!
Have you tried avoiding fluoride in your diet: No
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: No diet changes.
Have you tried any thyroid specific treatments: No
Your theories or comments: No
Are we missing any important questions: No

06/20/2010
First Name: Julie
Age: 34
Male or Female: Female
City: Bridgewater
State/Province: NH
Country: United States
How long have you lived there: on and off for 23 years
Where were you born: Worcester, MA
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work:
How has Fibro affected your ability to work: yes
How has Fibro affected your life: I am in pain so much I want to die.
What were your first symptoms: The first symptoms leading to diagnoses were sharp random pains jumping all over my body after an all over body trauma of being push down stairs.
Your age at onset of symptoms: 34
How fast was your rate of decline: progressively worse daily and still is.
What are your current symptoms: Pain, memory issues, depression,
Number of years since you developed symptoms of fibromyalgia: ?
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 5
Describe the extent of your brain fog: lack of concentration ability, poor short term memory, difficulty communicating
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: hmm, I am not sure. The pain is the only symptom treated.
Describe your experience with doctors: I have been lucky to see a doctor who believes me and assures me she will help keep me comfortable.
What remedies or medications have you tried: gabapentin, flexeril, pt, ultram, vicodin, oxycodone,
What makes you feel better: oxycodone, being in water
What makes you feel worse: humid, rainy days, thinking about it,
Have you tried avoiding fluoride in your diet: no but I will now
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: cytomel in the past for another purpose
Your theories or comments: i will try the anti flouride treatment and hope for the best.
Are we missing any important questions: the format is not good. multiple choice is better for a condition that has so many symptoms including "brain fog"!

06/20/2010
First Name: Paula
Age: 38
Male or Female: Female
City: Sherman
State/Province: NY
Country: USA
How long have you lived there: 38 years
Where were you born: Westfield NY
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: No
What is Your Line of Work: Paramedic for 15 years, Own a restaurant and have been a farmer my whole life. Now on SSD.
How has Fibro affected your ability to work: Yes
How has Fibro affected your life: It is completely debilitating. I can not even do things with my young children. I can no longer help out at the family restaurant and I am unable to care for my farm animals.
What were your first symptoms: In 2002 after I had encephalitis.
Your age at onset of symptoms: 30
How fast was your rate of decline: Extremely fast. Was completely out of work within a year.
What are your current symptoms: I still have chronic pain, seizure disorder, sleep disorder, nausea and vomiting, intersticial cystitis, stomach lining problems. However, the worst syptom is the incredibly relentless pain and swelling in both of my feet.
Number of years since you developed symptoms of fibromyalgia: 8
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: Since the beginning
Describe the extent of your brain fog: Sometimes I forget my name, I forget that I have kids. However I do not know if it is entirely the fault of the illness or the extensive medications that I take.
Estimate number of doctors you have seen for Fibro related symptoms: 27 -- exactly
Do your doctors tend to focus on all your Fibro symptoms: My general doctor does. The multitude of specialists don't really seem to care.
Do your doctors treat your symptoms individually or collectively: Seperately which is why I still see 8 different doctors monthly.
Describe your experience with doctors: My general family doctor is fantastic. My psychologist is fantastic. I appreciate my rheumatologist because he is very knowledgeable with auto-immune disorders but he makes it clear that he doesn't really believe in the diagnosis of fibromyalgia. Many of the doctors are just down right rude. It has been very difficult to find doctors that I like. I do not tolerate doctors that wont listen to me and who do not understand that this illness is horribly debilitating. One of the uroligist that I saw kicked me out of his practice because I told him that he was insensitive and when I had tears in my eyes he told me I needed mental health help. I was angry because clearly he did not read my history or he would have known that I was already seeing a therapist.
What remedies or medications have you tried: Lyrica, Hydroclorothiazide, Synthroid, Amitriptylline, Topamax, Neurontin (previously), pain management including everything from soma, percocet, methadone, fentanyl. I prefer not to be in pain management when possible because I can't do activities with my young children. I just started methotrexate. I have been to extensive physical therapy which does not help at all.
What makes you feel better: Keeping my feet elevated at all times. Pain management does not really work but it takes the edge off. I usually feel better after taking a long nap.
What makes you feel worse: Standing, letting my feet dangle such as in a chair, hot days and sunshine.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: Yes
Have you tried any thyroid specific treatments: Yes, I am on synthroid even though my thyroid levels are completely normally.
Your theories or comments: I am entirely convinced that fibromyalgia is an auto-immune disease. Either that or it is dangerously mis-diagnosed far to often.
Are we missing any important questions:

06/19/2010
First Name: Jennifer
Age: 25
Male or Female: female
City: tegucigalpa
State/Province: fco morazan
Country: honduras
How long have you lived there: all my life
Where were you born: Honduras
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Teaching
How has Fibro affected your ability to work: I just don't feel like doing anything and I'm just not as active I'm less ppatient and feels as if I care less
How has Fibro affected your life: I don't really feel I care. About anything and I can't enjoy most things
What were your first symptoms: Body ache and slept too much and always woke up tired
Your age at onset of symptoms: 21
How fast was your rate of decline: Not sure cause I thougt it had gone away since last year I barely felt any pain
What are your current symptoms: Worst ache than ever since I've been feeling again like this since about two months ago or more,headache, I don't feel like eating, depression, fatigue, unwilling to do anything, digestive probs, lot of breast and chest pain its hard t breathe
Number of years since you developed symptoms of fibromyalgia: 4 years
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 3
Describe the extent of your brain fog:
Estimate number of doctors you have seen for Fibro related symptoms: 3
Do your doctors tend to focus on all your Fibro symptoms: Not at all although other said it was something diff like colon issues
Do your doctors treat your symptoms individually or collectively: Collectively
Describe your experience with doctors: It doesn't feel as if they really care or believe what is told specially when I explain I feel wordt before it begins to rain
What remedies or medications have you tried: Antidepressants,medication for muscle ache,antinflamatories
What makes you feel better: Sunny day, massage, eating diff
What makes you feel worse: Rainy days, sodas, being too long un bed, control pills
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: Not really
Have you tried any thyroid specific treatments: Not at all
Your theories or comments: Rainy daus make it worst, when its been a while since I'm able to go to the toilet I feel worst
Are we missing any important questions:

06/19/2010
First Name: mary
Age: 67
Male or Female: female
City: bloomfield
State/Province: nj
Country: USA
How long have you lived there: 40
Where were you born: no
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work:
How has Fibro affected your ability to work: when I was employed, I felt tired a lot. pushed myself.
How has Fibro affected your life: it is hard at times to do things I have to finish in a day. pain, stifness, eta
What were your first symptoms: sometime ago, noticed florid dental rinse at any dentist was giving me stomach.
Your age at onset of symptoms: late 30s
How fast was your rate of decline: hard to say. gradual
What are your current symptoms: muscle tightness, back-total unrelenting pain. muscle tender points. pain to move. can not sit sometimes
Number of years since you developed symptoms of fibromyalgia: 30
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: not pinpoint. it comes/goes
Describe the extent of your brain fog: it is like it says, walking a fog. you are there, but your are nnt
Estimate number of doctors you have seen for Fibro related symptoms: 6
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively:
Describe your experience with doctors: collectively
What remedies or medications have you tried: supplements, herbs... and md rx. which discoverd allergic to
What makes you feel better: massage hot compress
What makes you feel worse: find not ability to releive pain when various areas of body hurt same
Have you tried avoiding fluoride in your diet: yes
If so, which sources of fluoride: toothpaste. water
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: this the first time I have read ANYTHING which offers a common denominator. yet, lt seems, no one..md..is listening.
Are we missing any important questions: why is this information seemingly not being told to public by md? I can not list the number of sites I have visited prior finding yours! you make sense..you answered the quertion... fybromyalia..thank you

06/18/2010
First Name: Penny
Age: 62
Male or Female: female
City: Palm Desert
State/Province: CA
Country: USA
How long have you lived there: 22 years
Where were you born: Los Angeles, CA
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: I used to work as a Pharmacist Assitant
How has Fibro affected your ability to work: Yes, cannot work due to pain, brain fog, very chronic fatigue, etc
How has Fibro affected your life: It has effected my life immensly, my marriage also. Fatigue hits me any time of day, pain and brain fog, have to nap for at least an hour. Forget things and I also thought I was on the verge of Alzheimers. Cannot do the things even my older friends do. It is very depressing.
What were your first symptoms: PAIN!!!
Your age at onset of symptoms: 50
How fast was your rate of decline: Slowly then picked up speed and now I am 62 and mostly just so tire all the time and exercise makes me have more pain and fatigue
What are your current symptoms: Pain, severe fatigue, brain fog, forgetfullness, loss of some interests and my husband is tired of me being tired
Number of years since you developed symptoms of fibromyalgia: 12
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: 10
Describe the extent of your brain fog: I get confused, anxiety attacks that I take xanax for and the xanax works so well, and doesn't make me fatigued, it makes me more aware.
Estimate number of doctors you have seen for Fibro related symptoms: 5
Do your doctors tend to focus on all your Fibro symptoms: My current Dr, does, the others just said to "relax more"!
Do your doctors treat your symptoms individually or collectively: Individually
Describe your experience with doctors: Most just didn't spend time with me, as though I was just another tired woman. I could not get thru to them how much I WANT TO GET BETTER and please help me!!!
What remedies or medications have you tried: Neurontin, Vicodin, xanax, prozac, methadone
What makes you feel better: xanax and vicodin and when I am with friends who are a lot of fun and especially my son and grandchildren!
What makes you feel worse: I don't know what cause me to have these big flare ups! Sometimes I am days on the couch, barlely able to climb the stairs, other days I am playing tennis
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: Tried to eat lots of fruit, veggies, fish etc. every day.
Have you tried any thyroid specific treatments: NO, I have beenwondering if that would help
Your theories or comments: SOmeone must be able to help! If you have any ideas, please mail me at calwoman@hotmail.com I am desparate!!
Are we missing any important questions: I don't think so! :)

06/16/2010
First Name: Jerri
Age: 56
Male or Female: Female
City: Midlothian
State/Province: VA
Country: USA
How long have you lived there: 3 yrs
Where were you born: Arizona
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: Dental Assistant Education Instructor
How has Fibro affected your ability to work: Initially the extreme fatigue and body pain were the most noticeably debilitating. But Fibro pain also involves a heavy, mind numbing feeling frequently called Fibrofog which makes it difficult to think clearly and be on target with work tasks, associate with my doctors, students, patients, and fellow workers. The many episodes of forgetfullness did not lend it self well to the arena I worked in nor the professionalism I prided myself in having. At night I would be tired but unable to sleep, which robbed me of the restorative sleep I seriously needed. I worked for about 7 years but felt I was slowly having my life sucked out of me. One day I simply could go no further, I was totally drained, and like a dead battery could go no further. I felt I simply could not live up to my job expectations anymore, because I was unable to perfore the quality of work necessary and I was demanding too much from my fellow workers to keep me afloat. However, I feel I did everything I could do to keep working and to maintain a positive attitude.
How has Fibro affected your life: Much in the same way as it did my employment, except I could also see I was withdrawing more and more from my family and unable to meet the many demands of a mother with 4 teenagers. I would come home from work, walk to the stove, cook up a dinner, be too tired to eat and go to bed. How I ever kept up with all the demands of being a wife, a mother, maintain our home, be active in our church, and work outside the home is beyond me. Slowly withdrew from so many things due to the fatigue and pain I lived with. The first years were bad but then I was able still able to maintain some normalcy in my life. With each passing year I was becoming more and more debilitated. I developed more and more issues such as hypothyroidism, digestive problems, cognitative difficulties. My friends and family kept going on with their lives and I became more recluse with my pain and fatigue. I stopped attending as many social events, church meetings, family functions. Andthe ones I did attend were often a big blur as I pushed my way through life. I have developed many issues and boundaries such as with what food I can eat due to new allergy like sensitivities, or inability to digest that food properly. THen there are the changes in my capabilities. Tasks and hobbies I once enjoy are now impeded because I am no longer able to do them, can't see as well, or find them too tedious. Just as I am sick and tired of being sick and tired, so are my family & friends. I used to entertain a lot, do service projects, work in the yard, and much more. Now as I write this I see a picture of myself, that I don't like and is not reflective of the person I once was. I was very active, had a positive out look, and enjoyed life. Today I have to work hard to be positive and maintain the hope that is so necessary in life.
What were your first symptoms: Fatigue and spasam of muscles across my shoulder and upper back area.
Your age at onset of symptoms: 40yrs
How fast was your rate of decline: over a 15 year period
What are your current symptoms: As far a FMS symptoms, I only have them on rare occassions, usually to do with lack of suffient sleep and / or weather changes. These usually cause me to have soure muscles and serious fatigue. My other symptoms I mentioned in Medical history are what I believe are caused by the Savella and Lyrica.
Number of years since you developed symptoms of fibromyalgia: 15 yrs
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: maybe 13
Describe the extent of your brain fog: Forget names, words, slurr words, feel drunk
Estimate number of doctors you have seen for Fibro related symptoms: 10 /15
Do your doctors tend to focus on all your Fibro symptoms: you have to be kidding, no. Or they want to blame my structural (spinal) problems on FMS. I have MRIs showing the spine problems.
Do your doctors treat your symptoms individually or collectively: both depending on which doctor it is
Describe your experience with doctors: A few a very sympathetic, some I can tell still don't believe it is a real illness, or that it is IN MY HEAD as in a mental case. Virginia tends to have very slow to change and accept doctors.
What remedies or medications have you tried: So many I don't recall their names. LOTS of NSAIDs which helped at first but I developed a sensitivity to. Among allergy like symptoms, like COX II rxs they cause me to have swelling and cause me to have more pain. which I can no longer take. Several opiates, Levorphanol which was the best until it was no longer available. a number of drugs used for psycological problems. Valium in very small doses (less than 1 mg) helped a great deal. Neurontin, Lyrica, Savella, Cymbalta, Effexor. I found I did best with Levorphanol for pain and Nuvigil for wake/sleep problems. I take BP meds now and Zetia. Levoxyl for hypothyroid, extra magnesium. I recently was given PanlorSS to replace the Levorphanol.
What makes you feel better: Levorphanol or Panlor SS for pain. Nuvigil for wake sleep. Warm pool exercises / hot tub, sunshine, warm weather with out humidity, prayer, meditation, guided imagery, nature sounds, having my grandchildren and family around, magnesium, good vit and mineral supplement, TUrmeric and Boswella supplements, deep breathing excercises
What makes you feel worse: not getting enough sleep, NSAIDs, Lyrica, Savella, Neurontin, Pork (I am allergic and i caused joint pain) weather change / drop in barometric pressure, over exzurtion, standing up too long, too much salt, infection, artifical sweetners,
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes
Have you tried any thyroid specific treatments: yes
Your theories or comments: I have long thought that asthma, FMS, and other muscle spasming problems are related. I recently read some research done with D-Ribose and how it helped FMS as well as people with Diastolic disfunction. I have not tried it but think there is something to it especially seeing I have both these and asthma. Restorative sleep is a big part of it. I wonder if I was exposed to some toxins. I used to live next to a field they would spray chemicals on. Was in a study as a child for polio immunization tx... another thing I have wondered about.
Are we missing any important questions: Yes, I think doing deep breathing excercises at night as well as guided imagery helps get a person into a deep sleep. Good job

06/15/2010
First Name: Brianna
Age: 19
Male or Female: Female
City: Los Angeles
State/Province: California
Country: USA
How long have you lived there: All my life
Where were you born: California
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: nothing
How has Fibro affected your ability to work: causes lost of concentration,muscle weakness,fatigue,trouble remembering and all of the above.
How has Fibro affected your life: Literally depressed lost of enrgy,no longer sexual arroused,inability to tollerate crouds and just fatigued.
What were your first symptoms: Extreme itchiness.
Your age at onset of symptoms: 17
How fast was your rate of decline:
What are your current symptoms: Depression,fatigue,annoyed,lost of conentration,trouble remembering,muscle stiffness,twitching/jerking,tenderness.
Number of years since you developed symptoms of fibromyalgia: 2
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: 2
Describe the extent of your brain fog: cant have a descent conversation,trouble performing simple mental tasks,trouble remembering.
Estimate number of doctors you have seen for Fibro related symptoms: 5
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: no
Describe your experience with doctors: they tell me that im going crazy,that it's all in my head and that i just think something is wrong with me.my responses are simply i know how i used to feel and i know my body,i am simply not going insane,all of my statements are accurate.
What remedies or medications have you tried: a numerous of antidepressants,psycology,and prescriptions of bacteria,yeast infections,and intestinal infections.
What makes you feel better: Nothing but a proper cure and diagnosis.
What makes you feel worse: People telling me that it is all in my head.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes,i've eliminated caffeine.
Have you tried any thyroid specific treatments: no
Your theories or comments: I do believe i have fibromyalgia,or an allergic reaction 2 what ever.please help me,i don't know what to do,if it is neither i am simply lost and do not know whatelse to do.
Are we missing any important questions: i used to smoke weed alot,and i had sex persistently while having vaginal infections,also i've used scalp med cosmetics in other areas other than my scalp for instance,eyebrow,and forhead.could all of these ignorant choices be a factor?

06/13/2010
First Name: Brigid
Age: 55
Male or Female: female
City: Annagry
State/Province: Donegal
Country: Ireland
How long have you lived there: 11 years
Where were you born: Scotland
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Horticulture teacher to children
How has Fibro affected your ability to work: Yes work part time
How has Fibro affected your life: In lots of ways, social life friendships, work, self esteem
What were your first symptoms: joint pain shortness of breath aching eyes fatigue
Your age at onset of symptoms: 46
How fast was your rate of decline: sudden
What are your current symptoms: fatigue muscle joint pain in spells eyes ache in spells lack of concentration poor memory
Number of years since you developed symptoms of fibromyalgia: 9
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 9
Describe the extent of your brain fog: difficulty remembering words find driving difficult over 30 minutes duration
Estimate number of doctors you have seen for Fibro related symptoms: 4 consultants
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: stressful until recently
What remedies or medications have you tried: Diclofenac, Meptid, Celebrex Amitryptilene Lyrica
What makes you feel better: Lyrica rest diet swimming
What makes you feel worse: Amitryptilene not pacing self sugar alcohol dairy
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes
Have you tried any thyroid specific treatments: no
Your theories or comments: stress shock induced sudden onset of symptoms self help vital
Are we missing any important questions:

06/12/2010
First Name: D.
Age: 54
Male or Female: female
City: austin
State/Province: tx
Country: travis
How long have you lived there: 54
Where were you born: Austin, Texas
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Clerical
How has Fibro affected your ability to work: By sometimes having to go home sick due to much pain making it late to work and not able to give my 100 % at work.
How has Fibro affected your life: After work I am so tired that all I can do is lay down to rest sometimes i don't even want to eat to get some rest.
What were your first symptoms: Very tired, widespread pain in my shoulders, neck,knees, shoulders. I always had trouble sleeping
Your age at onset of symptoms: 38
How fast was your rate of decline: more and more pain every year after first symptoms.
What are your current symptoms: the same pain, tired, no sleep, memory loss. I have gone to different doctors and they just want to give you more and more pills
Number of years since you developed symptoms of fibromyalgia: 16
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 1
Describe the extent of your brain fog: I have completed a task and don't remember if I have. forget from one day to the next about an appointment.
Estimate number of doctors you have seen for Fibro related symptoms: 8
Do your doctors tend to focus on all your Fibro symptoms: No
Do your doctors treat your symptoms individually or collectively: they have only wanted to treat the fibro and not other problems I have until now new doctor I am seeing she send me to a foot specialist because i keep telling other doctors that my feet starting hurting about 6 months ago and they would say it was due to the fibro.
Describe your experience with doctors: Horrible I keep telling different doctors about my pain and some would say that it was because I was getting older one doctor said that I was tired because i was overweight.
What remedies or medications have you tried: Zolot, Sevella, Cybalta, Neuronton,tramadol, trazadone,ambein and other anti-depression meds.
What makes you feel better: Sleeping in on week-ends hot showers, stretching, eating healthy.
What makes you feel worse: After i have worked all day or in the morning if i don't get enough sleep
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: I just came across this site because I am tired of doctors wanting to push more meds and have started Vit. D, and will have to try some of these remedies
Have you tried any thyroid specific treatments: I take sythroid
Your theories or comments: I just want to say that i am happy to find this site and try some of these remedies
Are we missing any important questions:

06/10/2010
First Name: Raschelle
Age: 27
Male or Female: F
City: South Bend
State/Province: IN
Country: United States
How long have you lived there: 27 years
Where were you born: Michigan
Is this the first time you have taken our questionnaire: YES
If not, why are you returning:
Are you still working: Yes But Barely holding on
What is Your Line of Work: Customer service answering phones,
How has Fibro affected your ability to work: If I can get out of bed and get to work I cant concentrate, I am in a fog, My whole body hurts I have the worst headache and I just want to sleep
How has Fibro affected your life: Its hard to be motivated anymore. I have had this for years and after countless physical therapy attempts I have finally been diagnosed with Fibro, but I feel like my doctor doesnt think its physical only mental. To be in pain all the time, is not easy I feel like it affects my personality, and my ability to do anything.
What were your first symptoms: My very 1st symptoms were on the back and my head and neck then down my neck and trapezoid muscles, then my Jaw TMJ. lower back, knees, then elbows, pain tightness burning feeling.
Your age at onset of symptoms: 17
How fast was your rate of decline: Well it was pretty much the same pain daily until I had twins 4 years ago and now its all going down hill.
What are your current symptoms: Headache, neckstiffness burning in shoulders and upper back, RLS, Fog, lack of concentration, frequent urination, I have a sinus infection and between that a low thyroid and fibfro I just want to sleep and not move.
Number of years since you developed symptoms of fibromyalgia: 10
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 2 that I am aware of
Describe the extent of your brain fog: Everything has a grey cloud and is dim. Seems like I am using all my energy to complete simple tasks like getting a cup of coffee. I feel like I have a delayed response to everything.
Estimate number of doctors you have seen for Fibro related symptoms: 8-10
Do your doctors tend to focus on all your Fibro symptoms: no!
Do your doctors treat your symptoms individually or collectively: Not really at all they tell me to take Tai Chi pray meditate and prescribed me Cymbalta, which is not really working,.
Describe your experience with doctors: I dont know either they think I am crazy or that it cant be that bad since I am not screaming in pain all the time.
What remedies or medications have you tried: cymbalta, meditation, massages.
What makes you feel better: massages.
What makes you feel worse: medicines that make me groggy and more tired,.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: I quit drinking diet pop.
Have you tried any thyroid specific treatments: just 188mcg of levothyroxin and I am about 115lbs
Your theories or comments: I am assuming my fibro is linked to my hypothyroidism. my my hypo gets low I feel worse, the only problem is that its been a while since it has been up or close to normal, and I can no longer remember what it was like.
Are we missing any important questions:

06/10/2010
First Name: Peggy
Age: 59
Male or Female: female
City: Oakland
State/Province: ia
Country: usa
How long have you lived there: 1 year
Where were you born: Council Bluffs, IA
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: sales
How has Fibro affected your ability to work: yes
How has Fibro affected your life: It has rendered me unable to work or take part in activities I enjoy.
What were your first symptoms: Don't really know because I have arthritic problems also and have since about 40 yr. old.
Your age at onset of symptoms:
How fast was your rate of decline: Since 2005 its been declining rapidly.
What are your current symptoms: Pain, fatigue, insomnia, mind fog, severe migraines
Number of years since you developed symptoms of fibromyalgia: 20
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 4
Describe the extent of your brain fog: When I get it, its difficult to take part in anything, I feel as though I have a huge chunk of lead weighing down my head and body.
Estimate number of doctors you have seen for Fibro related symptoms: 10
Do your doctors tend to focus on all your Fibro symptoms: no, most say there is nothing I can do.
Do your doctors treat your symptoms individually or collectively: The only medicine they gave me to try other than pain killers, was lyrica and it helped with the pins and needles extreme pain I continually had in my back freezing it up but none of the other pains or symtoms. I took it for about 4 months but had alot of side effects.
Describe your experience with doctors: They really don't know what to do for it.
What remedies or medications have you tried: lyrica, pain killers, ibprofen
What makes you feel better: very little
What makes you feel worse: excercise (which if very difficult for me to do but I try to do some everyday even if it is just minor stretching.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: I try to avoid alot of starches and sweets
Have you tried any thyroid specific treatments: no, thyroid seems fine
Your theories or comments: This is a very dehibilatating disease and it makes it difficult to do the things I need or want to do.
Are we missing any important questions: I wondered if you could give any helpful ideals about how to qualify for disabiltiy which i have been denied for over a year because they say I should be able to do telemarketing however due to the chronic fatigue, pain and mind fog, I am unable to hold any job even part time. Is there any advise you can offer to myself as well as someone in my position to help in getting approved from SSI when they claim its not a disabling disease? Also, recently I have been having problems with my vision, is this one of the things fibro affects?

06/09/2010
First Name: Amy
Age: 25
Male or Female: female
City: radford
State/Province: va
Country: usa
How long have you lived there: in the area since childhood
Where were you born: beckley, wv
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Hairstylist
How has Fibro affected your ability to work: I feel as if I can not get through each day of work, every single day.
How has Fibro affected your life: I feel as though I can not accomplish things that people twice my age can. like simply keeping the laundry done
What were your first symptoms: headaches as a child, then constant neck and shoulder pain
Your age at onset of symptoms: 10
How fast was your rate of decline: at about the age of 20 it got pretty bad
What are your current symptoms: brain fog, whole body pain, sometimes my face even hurts, I forget EVERYTHING
Number of years since you developed symptoms of fibromyalgia: at least 6 since it was all over
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 6
Describe the extent of your brain fog: I forget something I need every day, I can not remember all the steps to getting ready in the morning
Estimate number of doctors you have seen for Fibro related symptoms: 5
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: I feel that Drs do not help..at all! I am currently not taking prescription meds and actually think i felt worse when i did.
What remedies or medications have you tried: I became a vegetarian, and am trying to avoid dairy.
What makes you feel better: Sunny weather
What makes you feel worse: rainy weather
Have you tried avoiding fluoride in your diet: yes
If so, which sources of fluoride: tap water, prescription drugs, toothpaste
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: I definitely think going without meat has helped, I went without dairy for about a month and think that also helped but have now fallen of that wagon
Are we missing any important questions:

06/08/2010
First Name: Chandra
Age: 41
Male or Female: Female
City: Alexandria
State/Province: LA
Country: USA
How long have you lived there: I grew up here but moved to TX for 7years
Where were you born: Alexandria, LA
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: Teacher
How has Fibro affected your ability to work: I can't think after a few hours. I was worn out by the time I got to my class. I couldn't do my job well. Easily aggrevated. Noise and lights bother me. Spent last summer in dark due to Migraines.
How has Fibro affected your life: I can't drive as much as I could. I can't get doc here to put me on Klonipin so I can sleep well and wake up without being stiff and sore.
What were your first symptoms: Unexplained and sudden onset of exhaustion and inability to concentrate.
Your age at onset of symptoms: 31
How fast was your rate of decline: a bit worse every year
What are your current symptoms: After move had to go to Charity Hospital and the doc is clueless so now I wake up sore and achy and it rarely goes away. Tired after doing too much. Dizziness and Nausea after activity (cleaning)
Number of years since you developed symptoms of fibromyalgia: In hindsight 10 years
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: at least 10 years
Describe the extent of your brain fog: Sudden, loose thoughts. If say or go get one thing, then another thought cames and the first thought gone. Dry mouth if talk much. Can remember years ago much better than 10 minutes ago. Have to write every I want to remember but loose list.
Estimate number of doctors you have seen for Fibro related symptoms: 8
Do your doctors tend to focus on all your Fibro symptoms: The TX doc did. Especially sleep, low thyroid, tingling, energy.
Do your doctors treat your symptoms individually or collectively: In tx somewhat collectively. Same doc treats most symtoms. Take multi vitamin, mineral, enzymes, and amino acids.
Describe your experience with doctors: Many of the early symptoms were not treated or treated form respiratory. One doc tried synthroid. Didn't help. Amour thyroid works on coldness. One doc put me on hormone cream and adrenal supplements. She didn't catch the other. None caught the fibro until I went to Fort Worth. Present doc won't give me pain meds or Klonipin for sleep and soreness. Also wouldn't fill Cortef. My liver enzymes were high.
What remedies or medications have you tried: Multiple sinus meds and allergy shots. Synthroid. Hormone cream. Adrenal supplements. Lyrica:swollen leg/foot. Imetrex, Meds for vertigo and nausea. Much more.
What makes you feel better: Multinutrient power. Power Cell and Release and Renew. Armour thyroid, Klonipin, Adderal,Cymbalta, Welbutrin,
What makes you feel worse: Not taking the above.
Have you tried avoiding fluoride in your diet: No
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: No
Have you tried any thyroid specific treatments: Yes, armour thyroid
Your theories or comments: Even with meds, if I get stressed and overworked: I get very exhausted. If off meds: easily depressed and/or aggrevated.
Are we missing any important questions: Nothing I can think of right now.

06/07/2010
First Name: Belinda
Age: 40
Male or Female: Female
City: Chattanooga
State/Province: TN
Country: USA
How long have you lived there: 8 years
Where were you born: UK
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no- laid off
What is Your Line of Work:
How has Fibro affected your ability to work: Extreme fatigue, leg pain, sleep issues make me very tired all day and it's hard to focus
How has Fibro affected your life: It has completely changed it. I used to be very physically active (played soccer, biked, walked everywhere). Now I am overweight and sedentary and my legs feel like lead. I can't sit all day or stand all day, and can sometimes stay in bed for 16 hours from having a hard time getting up or getting out of the fog to be alert enough to fully wake up.
What were your first symptoms: Arm fatigue, carpal tunnel symptoms. That heavy ache in the shoulder muscles as if I'd over-exerted myself when I hadn't done anything. I was dropping things, sleeping all the time, just tired.
Your age at onset of symptoms: 27
How fast was your rate of decline: Probably within about 4 months, hands got so bad I had to go to a hand clinic and was diagnosed with severe carpal tunnel syndrome in both hands (in a matter of months!). I then gained 30 pounds rapidly and looked bloated (as if I were on heavy steroids) and my physical activity declined from there.
What are your current symptoms: A lot of nerve pain, loss of muscle and strength. Any amount of exercise can trigger a flare which can take days for it to ease up. Having a lot of sleep issues, brain fog, lack of motivation, mild depression. Currently may be having hormone issues as well which make things worse, and also have high cholesterol.
Number of years since you developed symptoms of fibromyalgia: 13
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 13-14
Describe the extent of your brain fog: If I don't have coffee it is very hard to get going and get the motivation to do anything. I don't feel like I get much deep sleep or restorative sleep so I just want to stay in bed in that foggy/daydream state. I have a coffee addiction I am trying to address, but it is hard because without caffeine I just haven't found a way to get that alertness that I need to function well.
Estimate number of doctors you have seen for Fibro related symptoms: 5
Do your doctors tend to focus on all your Fibro symptoms: They ask about the depression, which probably makes me defensive, they don't seem to have an understanding of the pain but only the fatigue.
Do your doctors treat your symptoms individually or collectively: They brush off most of them, and just tell me to take Aleve and act like it's no big deal. I have never had a doctor take the time to really ask about everything.
Describe your experience with doctors: Not very good. The only one who seemed to listen a little more than the others was also a little too eager to prescribe medication- more for the depression than for the pain. The pain meds can't be taken long term, so they always only think about a short term quick fix and not a life-long program to address all the issues.
What remedies or medications have you tried: Aleve, prescription-strength Aleve, antidepressants, stretching, not overdoing it, had one surgery for the carpal tunnel but I still have symptoms.
What makes you feel better: Aleve only takes the edge off the pain, it doesn't help the fatigue or get rid of the pain. Stretching helps my legs a little. I'd like to exercise more but have to stop myself so I don't overdo it.
What makes you feel worse: Too much activity, not enough activity, stress, not enough sleep.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: I tried taking b vitamins for a while, tried going off of caffeine but still struggle with that. I don't like taking vitamins/pills every day so have slowly just been trying to change what I eat.
Have you tried any thyroid specific treatments: No, my thyroid tests have always come back fine.
Your theories or comments: I am still 99% sure taking Prozac triggered the onset of my symptoms. If it is all neurological/nerve related then that has to be considered.
Are we missing any important questions: Has anyone had specific nerve tests, tissue samples, or brain scans done that showed anything?

06/07/2010
First Name: Jessica
Age: 21
Male or Female: Female
City: Brentwood
State/Province: TN
Country: United States
How long have you lived there: 21 years
Where were you born: Nashville, TN
Is this the first time you have taken our questionnaire: Yes.
If not, why are you returning:
Are you still working: Yes
What is Your Line of Work: Bookseller at Borders (cashier, customer service, various other store needs)
How has Fibro affected your ability to work: I basically force myself to work, I need the money. After work I can barely move, I hurt constantly. I may have to lower my hours or quit.
How has Fibro affected your life: I'm always sad or angry. My husband and I's relationship has been strained. When I'm home I can't do much due to pain and being unable to move.
What were your first symptoms: fatigue, tired, pain
Your age at onset of symptoms: 16
How fast was your rate of decline: very fast
What are your current symptoms: fatigue, tired, severe pain, stiff
Number of years since you developed symptoms of fibromyalgia: 4
Do your symptoms include brain fog: Sometimes, yes.
Number of years since you developed the brain fog: 1
Describe the extent of your brain fog: I have trouble forming words, thoughts, I forget where things are, what I'm doing, what I'm saying.
Estimate number of doctors you have seen for Fibro related symptoms: 2
Do your doctors tend to focus on all your Fibro symptoms: Yes
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: One has been with me my whole life (neurosurgical nurse) so she's extremely attentive and tries her best to help. The other just gives me medicine and doesn't really talk to me about it.
What remedies or medications have you tried: Lyrica, Loretab, Neurotin, marijuana
What makes you feel better: marijuana helps everything but brain fog; neuotin helps take the edge off the pain
What makes you feel worse: I always feel awful... so I have no idea what "worse" could be.
Have you tried avoiding fluoride in your diet: I do not drink tap water-- I do not know what else fluoride is in.
If so, which sources of fluoride: tap water.
Have you made dietary changes to avoid any other neutrotoxins: Not really.
Have you tried any thyroid specific treatments: No
Your theories or comments:
Are we missing any important questions:

06/03/2010
First Name: Candy
Age: 45
Male or Female: female
City: Dollar Bay
State/Province: MI
Country: USA
How long have you lived there: 45 years
Where were you born: Michigan
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Nurses aide
How has Fibro affected your ability to work: Yes. It has slowed me down alot.
How has Fibro affected your life: Many ways. I can't walk my dog, bend down to the floor, ride a bike, etc.
What were your first symptoms: Tired legs, then the severe pain
Your age at onset of symptoms: 45
How fast was your rate of decline: Very fast
What are your current symptoms: Leg pain, fatigue, insomnia, memory fails, legs feel like I am alwys walking uphill.
Number of years since you developed symptoms of fibromyalgia: 6 months
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 1 year
Describe the extent of your brain fog: I forget things a minute after I think of them.
Estimate number of doctors you have seen for Fibro related symptoms: 3
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: Actually, I am very happy with my doctors. They work as a team and only have my health in mind.
What remedies or medications have you tried: Lyrica, cymbalta, many herbals.
What makes you feel better: Herbals
What makes you feel worse: sugars, lack of sleep, aspertame, pop
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: Don't know
Have you tried any thyroid specific treatments: no
Your theories or comments: Just wish I had the cure
Are we missing any important questions:

06/01/2010
First Name: Rebecca
Age: 59
Male or Female: Female
City: Houston
State/Province: TX
Country: USA
How long have you lived there: 59 years
Where were you born: Housotn
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: No
What is Your Line of Work: Homeowner Association Management
How has Fibro affected your ability to work: Memory problems, fatigue, pain
How has Fibro affected your life: Fatigue has curtailed my activities. Some of the things I used to like to do causes pain.
What were your first symptoms: Pain and Fatigue
Your age at onset of symptoms: 45
How fast was your rate of decline: Over about 10 years
What are your current symptoms: Memory loss, diffculty in concentration, problems sleeping, fatigue, pain, IBS, skin burns, restless leg
Number of years since you developed symptoms of fibromyalgia: 15
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 15
Describe the extent of your brain fog: Very bad. Can't remember how to spell or remember things very long
Estimate number of doctors you have seen for Fibro related symptoms: 10
Do your doctors tend to focus on all your Fibro symptoms: No
Do your doctors treat your symptoms individually or collectively: Individually
Describe your experience with doctors: I only have 2 doctors that seem to understand my symptoms.
What remedies or medications have you tried: Klonopin, Vicodin, Adderal, Ambien, Zanax
What makes you feel better: Klonopin, vicodin
What makes you feel worse: Ambien
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: I don't believe that doctors take this disease seriously and they think we are making this up.
Are we missing any important questions: no

06/01/2010
First Name: Patricia
Age: 42
Male or Female: female
City: Lakewood
State/Province: wa.
Country: pierce
How long have you lived there: 12-yrs.
Where were you born: Hartford,ct.
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Housekeeper for emergency room
How has Fibro affected your ability to work: After work im extrmely tired n in great pain. I get shocked at nite from my nerves. Im currently on lyrica at the lowest does helps me sleep better but i kick at nite n wake in the middle of nite in pain.
How has Fibro affected your life: I am anxious some of the time, low sex drive,low energy
What were your first symptoms: 2000
Your age at onset of symptoms: 32
How fast was your rate of decline: wasnt fast seemed to be a slow decline year by year.
What are your current symptoms: shocks from nerves, severe pain,low energy n low sex drive
Number of years since you developed symptoms of fibromyalgia: its been ten yrs.
Do your symptoms include brain fog: Yes lots
Number of years since you developed the brain fog: 10 yrs.
Describe the extent of your brain fog: I can see what im talking about say im talking about a pool. I can see it in my head but i cant think of the word for this object in my head. I get lost easily even though i have driven it 20 times before.
Estimate number of doctors you have seen for Fibro related symptoms: 5-6
Do your doctors tend to focus on all your Fibro symptoms: no.... alot drs dont know what it is nor seemed interested in knowing about it.
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: they were interested in treating the pain not the reason why i was having the pain, so i have gone through all kinds of diff. meds for pain.
What remedies or medications have you tried: im currently on lyrica, some stretching and walking when i get the chance, hot baths help alot
What makes you feel better: Hot baths
What makes you feel worse: sugar, alot of carbs
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes have lost alot weight learned about foods n portion control
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

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