Fibromyalgia Questionnaire & Results

Latest Update: 02/13/2012

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31 QUESTIONNAIRE COMPLETED DATA FORMS FOR February 2010

02/28/2010
First Name: Angela
Age: 44
Male or Female: Feamale
City: McKinney
State/Province: Texas
Country: USA
How long have you lived there: 32 Years
Where were you born: Oklahoma
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: No
What is Your Line of Work: None
How has Fibro affected your ability to work: I am in pain all the time, fibro fog to many reasons to list
How has Fibro affected your life: Very Badly, It has been hard on my marriage and my family.
What were your first symptoms: pain in my neck like a crick in my neck
Your age at onset of symptoms: 42
How fast was your rate of decline: withen 2 years I could no longer work
What are your current symptoms: constant pain in muscles, headache ibs,fatiuge, no concertation,
Number of years since you developed symptoms of fibromyalgia: 3
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 2
Describe the extent of your brain fog: sometimes I can not even figure out how to do things I do everyday
Estimate number of doctors you have seen for Fibro related symptoms: 1 many times
Do your doctors tend to focus on all your Fibro symptoms: No
Do your doctors treat your symptoms individually or collectively: collectivley
Describe your experience with doctors: Very tedious
What remedies or medications have you tried: herbs, vitamins,prescriptions,
What makes you feel better: Nothing
What makes you feel worse: Weather, stress lack of sleep
Have you tried avoiding fluoride in your diet: No
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: Yes
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

02/24/2010
First Name: Helen
Age: 38
Male or Female: F
City: northampton
State/Province: northamptonshire
Country: UK
How long have you lived there: 38
Where were you born: uk
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work:
How has Fibro affected your ability to work: yes
How has Fibro affected your life: yes
What were your first symptoms: painful knees and back
Your age at onset of symptoms: 27
How fast was your rate of decline: other symptoms followed within the first year
What are your current symptoms: Stiffness all over especially in morning or after rest. Constant aches. Sleeplessness. Severe faigue, IBS,food intollerance, headaches, upper and lower back pain, knee pain, ankle soreness, depression, dry eyes, bad concentration, brain fog
Number of years since you developed symptoms of fibromyalgia: 11
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 8
Describe the extent of your brain fog: poor concentration, forgetfull - poor memory, unable to remember simple words/spellings, feeling of stupidity!
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: NO
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: useless - cant so anything for me, not informed enough. My GP leaves me to ecplore alternative therapy as it works better or as well as convensional medicines
What remedies or medications have you tried: Anti infflamatories - now unable to take as stomach problems due to over use. Anti depressives,
What makes you feel better: Accupuncture, yoga, massage, reiki light exercise, homeopathy. 5HTP
What makes you feel worse: hard excercise, overdoing it, late nights, sleepless nights,
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: i have tried numerous alternative therapies. I personally think natural remerdies, gentle excercise and a healthy diet help.
Are we missing any important questions: Support groups What excersise taken?

02/24/2010
First Name: Melissa
Age: 24
Male or Female: Female
City: Bridgewater
State/Province: New Jersey
Country: USA
How long have you lived there: 7 months
Where were you born: Mt. Holly, NJ
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: I used to work at a daycare but I moved so now I am out of work. (6 months ago) but I still work there once in awhile, part time. Only a few days a month just while I am looking for a new job.
How has Fibro affected your ability to work: Medium-I still had to work but I was miserable and tired all the time and it is extremely hard.
How has Fibro affected your life: Alot-There are times where I feel I can't be myself because I don't have the energy. I am in pain almost all of the time. I need to get things accomplished on a day to day basis or persue things with my life but it is hard to find the motivation because of the pain and exhaustion.
What were your first symptoms: muscle pain, daytime tiredness
Your age at onset of symptoms: 18/19
How fast was your rate of decline: pretty quickly
What are your current symptoms: muscle pain/weekness, daytime tiredness, headaches, trouble getting a full nights sleep
Number of years since you developed symptoms of fibromyalgia: 6
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: ?
Describe the extent of your brain fog: There are times where it feels like I am 5 minutes behind reality and it almost feels like my body is awake and my brain is still sleeping.
Estimate number of doctors you have seen for Fibro related symptoms: 2
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: I am in the begining stages of treatment.
Describe your experience with doctors: I really like my doctor, he has alot of experience with fybro and he gives me options and tailors them for me.
What remedies or medications have you tried: Xyrem-but i stopped and now I, along with my doctor, am in the process of developing a diet and lifestyle to try and treat the fybro
What makes you feel better: not much right now
What makes you feel worse: cold weather, sugar and some other foods (still trying to figure out exactly which ones)
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: I just wanted to let you know. I don't take any medications. I only do natural/holistic treatments.
Are we missing any important questions: No!

02/24/2010
First Name: Barb
Age: 52
Male or Female: Female
City: Akron
State/Province: OH
Country: USA
How long have you lived there: 52 yrs
Where were you born: Wadsworth
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: teaching
How has Fibro affected your ability to work: I tire easly don't do as much hands on
How has Fibro affected your life: Less active more pain
What were your first symptoms: Pain in shoulders
Your age at onset of symptoms: 16
How fast was your rate of decline: very slow at 19 I was worse than now. Change in meds and learning to pace myself have improved my overall life.
What are your current symptoms: PAIN STIFFNESS
Number of years since you developed symptoms of fibromyalgia: 36 YRS
Do your symptoms include brain fog: YES
Number of years since you developed the brain fog: 36
Describe the extent of your brain fog: LOSE TRACK OF TIME. DON'T feel like I'm all here
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: indivually
Describe your experience with doctors: My Doctor is well rounded and willing to try anything I request.
What remedies or medications have you tried: elivil, celebreck, lycia, bextra,massage, chiropractor, eptsom salts, Diet, pain meds.
What makes you feel better: rest,warmth sunshine
What makes you feel worse: overdoing it
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes
Have you tried any thyroid specific treatments: yes
Your theories or comments: stressfree living could help alot
Are we missing any important questions: Family help is helpfull

02/24/2010
First Name: Connie
Age: 52
Male or Female: female
City: Ronceverte
State/Province: WVA
Country: USA
How long have you lived there: 30 years
Where were you born: Lewisburg WV
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work:
How has Fibro affected your ability to work: I don't have energy, I have muscles pain joint pain vision problems can't think straight , get confuse I am in fogland
How has Fibro affected your life: It has affected my life, im many ways can'do do think I once did , I cry I am depressed my body hurt
What were your first symptoms: muscles and joint pain
Your age at onset of symptoms: 48
How fast was your rate of decline: very fast
What are your current symptoms: no change, muscles aches joint pain very tired and depressed
Number of years since you developed symptoms of fibromyalgia: I have always had symptoms
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: 4
Describe the extent of your brain fog: every thing make you feel you are in fibrofog land, blurrie, fog in front of you
Estimate number of doctors you have seen for Fibro related symptoms: 6
Do your doctors tend to focus on all your Fibro symptoms: Now they do exspecially one
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: some don't understand fibromyalgia , some thought I was crazy, one even sent me to a phych.One knew what it was from the beginning, I felt I was made fun of , it was terrib
What remedies or medications have you tried: I tried everything can't get things to work, can't sleep
What makes you feel better: so far I haven't felt better I feel like crying, medicine for pain.
What makes you feel worse: no sleep , pain
Have you tried avoiding fluoride in your diet: no but do use tap water city
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: cut back on starchy food red meats
Have you tried any thyroid specific treatments: no, keep having thyroid checked but no problems
Your theories or comments: wish I was well, and drs knew more about fibromyalgia, we don't know enough, they should be disability for the illness. research for better medicines, need more education to patience. This is real pain and we as patience don't need to be made fun of
Are we missing any important questions: I say they is but my eyes is blurried and memory is fog.

02/24/2010
First Name: Candice
Age: 52
Male or Female: Female
City: Lancaster
State/Province: South Carolina
Country: USA
How long have you lived there: 52 yrs.
Where were you born: Lancaster, SC
Is this the first time you have taken our questionnaire: yes
If not, why are you returning: Slow, I had to stop working after this past school year was over. I worked with Special Education students and I could not concentrate, lift, or keep up myself with their needs. I also, forgot things a lot and started having visiual problems and sitting and standing for too long at once.
Are you still working: no
What is Your Line of Work: I was a Special Education Instructor and before that I taught pre-school.
How has Fibro affected your ability to work: I can't stand, or sit lond at once. I can't lift children. I am always tired. I drop things and loose things often.
How has Fibro affected your life: It's aggravating. I use to be a very active person in my church and with my friends. Now it's hard to even plan any thing. I wake up in pain and I go to bed in pain.
What were your first symptoms: Pain in the left shoulder and then in my back.
Your age at onset of symptoms: 48
How fast was your rate of decline: Fast enough. It started gradually getting worse and flare ups would be worse each time they occured.
What are your current symptoms: I am now blind in my left eye. I cannot sleep without taking something, I have tingling and burning in my legs, sometimes numbness in my face, mouth and hands. My elbows are starting to hurt and I get tired very easy.
Number of years since you developed symptoms of fibromyalgia: I truly believe that I have had the symptoms at least since 1992.
Do your symptoms include brain fog: YES
Number of years since you developed the brain fog: 3
Describe the extent of your brain fog: I go from one room to another and before I get there I can't remember why I was going there. I forget appoinments. Just today I forgot an appointment this morning. I have even found myself driving into my ex-husbands yard thinking that I was going home and I have been remarried now for 14 years.
Estimate number of doctors you have seen for Fibro related symptoms: 6
Do your doctors tend to focus on all your Fibro symptoms: Finally, I have found a doctor that listens.
Do your doctors treat your symptoms individually or collectively: One treats all. I have one for Osteoarthritis, One for vision, one now that is a nuerologist that is still running test.
Describe your experience with doctors: At first, terrible. I felt like they didn't believe me or care. I have now found a good Primary Physician that listens.
What remedies or medications have you tried: Cymbalta
What makes you feel better: I can tell if I do not take the Cymbalta.
What makes you feel worse: Trying not to take anything.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: I can not eat red meats any more. I also, get IBS easy. Especially if I try to eat much meat.
Have you tried any thyroid specific treatments: no
Your theories or comments: I do wish that Employers and Disability Advocates would take Fibromyalgia more seriously. If I were not married to a man that had a good job, the medicals bills alone would drown us in debt. I would have to either do without meds. or try to work reguardless.
Are we missing any important questions: What other problems go along with Fobromyalgia? I have had restless legs syndrome for years and have just found out recently that it could actually be one of the common symtoms.

02/22/2010
First Name: Rita
Age: 40
Male or Female: female
City: Hartfield
State/Province: VA
Country: USA
How long have you lived there: 18 years
Where were you born: Richmond, VA
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Computer work/supervise peers - desk job mostly
How has Fibro affected your ability to work: can't think. takes twice as long to accomplish most tasks, lots of sick days...keep painkillers, muscle relaxers and heating pad on-hand to get through the day.
How has Fibro affected your life: unable to stay active, miss out on a lot of family activities and my 3 girl's events. housework falls on my family which makes me feel pretty useless
What were your first symptoms: exhaustion, insomnia, stiff neck
Your age at onset of symptoms: 32
How fast was your rate of decline: hard to say...mono kind of ran into fibromyalgia
What are your current symptoms: panic attacks while sleeping, all over pain, stiff neck and back, numbness in hands and feet, nausea, headaches, odd shooting pains, groin tenderness, fatigue, lack of energy, insomnia, weakness
Number of years since you developed symptoms of fibromyalgia: 8
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 8
Describe the extent of your brain fog: comes and goes....mostly stays. forget what I'm saying right in the middle of the sentence. say words i've known for years incorrectly. mush-mouth
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: everything is a fibro symptom to the doctors since the diagnosis
Do your doctors treat your symptoms individually or collectively: a little of both
Describe your experience with doctors: they try to help but fibro is just frustrating
What remedies or medications have you tried: trazadone for sleeping, anti-depressants, muscle relaxers, pain meds, lyrica and now cymbalta...have tried herbal remedies as well
What makes you feel better: lyrica worked well but i packed on so much weight (40 lbs) that my legs and knees started to bother me. now I'm on cymbalta which does okay but not great
What makes you feel worse: not getting good sleep, too much activity--my husband would say housework, LOL-- being too sedentary, stress
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes...moved to organic diet and felt better...organics are too expensive and hard to come by in my area
Have you tried any thyroid specific treatments: no, thyroid tests came back negative
Your theories or comments: could this all be some kind of allergy? Benedryl seems to make me feel better except for the fatigue
Are we missing any important questions: maybe a section for things that don't fall under medical history

02/22/2010
First Name: Jessica
Age: 25
Male or Female: female
City: Akron
State/Province: Ohio
Country: United States
How long have you lived there: 23 years
Where were you born: Akron, OH
Is this the first time you have taken our questionnaire: yea
If not, why are you returning:
Are you still working: No
What is Your Line of Work: was a student and a server at a restaurant
How has Fibro affected your ability to work: I can't concentrate, have pain 90% of the time while fighting the urge to want to go to sleep. If I have a flair up during a test or at work its really hard to make it through. I've had problems especially taking tests, recalling things is especially hard due to lack of sleep/concentration
How has Fibro affected your life: Morning are the worst part of my day, getting out of bed is the hardest thing to do. I have had to scale back my activities a lot when I have a flair up. I find it harder to work and to make money and therefore harder to treat my disease since I have no healthcare or job.
What were your first symptoms: blurry vision and headaches when I was in 5th grade, intense knee pains, trouble sleeping, excessive urination during this time as well.
Your age at onset of symptoms: 11 or 12
How fast was your rate of decline: During college it got a lot worse, when my activity level went down and I started drinking alcohol. Also in college my diet changed a lot.
What are your current symptoms: Fibro-fog, point tenderness, sleepiness, nausea, frequent urination, pain during sex, loss of appetite, depression, blurry vision
Number of years since you developed symptoms of fibromyalgia: 13
Do your symptoms include brain fog: Yes
Number of years since you developed the brain fog: 10
Describe the extent of your brain fog: People catch me staring into space, have trouble being in large groups of people or noisy environments. I have been a straight A student my whole life and haven't been able to hold down a job for years.
Estimate number of doctors you have seen for Fibro related symptoms: 7
Do your doctors tend to focus on all your Fibro symptoms: No, I have been shuffled through by many Dr.'s even after telling my family history of fibro (my mom and grandmother both have it) they presrcibe my anti-acids, anti-depressants, muscle relaxers, for other problems, took me a long time to get the fibro diagnosis. I actually self diagnosed myself years ago and after doing a lot of research realized I had been suffering with fibro for almost 15 years without realizing!!!
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: All western dr's in my experience want to deny fibro and don't offer any sound advice. I felt like a number not a person, they took my money without helping me, only looking at lab results and not focusing on my symptoms. I have undergone unnecessary x-rays, ultrasounds, blood tests, etc.....Only to read my medical records and find that they didnt believe I was even sick, that I was perfectly healthy looking.
What remedies or medications have you tried: aleve, tumeric, coconut oil, daily multi vitamins, daily massage, yoga, heat pads, soak in tub or hot shower, epsom salt
What makes you feel better: I have medical marijuana now, I think that is the best remedy for pain but the best remedy is staying active I got a dog for this reason
What makes you feel worse: Changes is weather or temperature, travel especially on planes, missed sleep, MSG, Caffeine
Have you tried avoiding fluoride in your diet: Yes
If so, which sources of fluoride: Water
Have you made dietary changes to avoid any other neutrotoxins: MSG Caffeine
Have you tried any thyroid specific treatments: selenium
Your theories or comments: I believe that there are a lot of environmental factors that directly effect the development of certain diseases such as fibro. I believe that the pharmaceutical industry and the food industry and trying to keep people sick by putting fluoride in water, high fructose corn syrup in EVERYTHING and prescribing drugs that do more harm than good.
Are we missing any important questions: You should ask more questions about the environment where people lived before the onset of symptoms and early in developmental stages of life. Also family history questions.

02/17/2010
First Name: david
Age: 58
Male or Female: mail
City: haroggate
State/Province: yorkshire
Country: england
How long have you lived there: 12years
Where were you born: yorkshire
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work:
How has Fibro affected your ability to work:
How has Fibro affected your life:
What were your first symptoms: athritus type
Your age at onset of symptoms: late 40s
How fast was your rate of decline: slow
What are your current symptoms:
Number of years since you developed symptoms of fibromyalgia: 11
Do your symptoms include brain fog: no
Number of years since you developed the brain fog:
Describe the extent of your brain fog:
Estimate number of doctors you have seen for Fibro related symptoms: 2
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: both
Describe your experience with doctors: good
What remedies or medications have you tried:
What makes you feel better: green tea
What makes you feel worse: yeast food coulerings
Have you tried avoiding fluoride in your diet: yes
If so, which sources of fluoride: tap water
Have you made dietary changes to avoid any other neutrotoxins: cut out beer bread and cheese anything fermented viniger wine
Have you tried any thyroid specific treatments: no
Your theories or comments: it has a genetic conenction down the female line
Are we missing any important questions: more on dietary stuff

02/16/2010
First Name: christine
Age: 51
Male or Female: female
City: buckingham
State/Province: buckinghamshire
Country: england
How long have you lived there:
Where were you born:
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: Nurse
How has Fibro affected your ability to work: Fatigue mostly and cognitive problems, stiffness & pain 24 hours a day, I also have rheumatoid arthritis and sjogrens syndrome and peripheral neuropathy
How has Fibro affected your life: Lack of mobility, pain and fatigue make my life almost unbearable, I am not a couch potato by nature!
What were your first symptoms: pain all over my body and fatigue, its difficult to know what illness causes what symptom as they are all related.
Your age at onset of symptoms: 47
How fast was your rate of decline: not sure as the RA was quite unstable but I would say quite fast.
What are your current symptoms: Cognitive difficulties, peripheral pins & needles, fatigue, bowel problems, lots of others but cant remember! brain fog!!!
Number of years since you developed symptoms of fibromyalgia: 10
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 7
Describe the extent of your brain fog: very bad at times
Estimate number of doctors you have seen for Fibro related symptoms: 3
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: both
Describe your experience with doctors: Not altogether good as my usual GP doesn't believe it exists!
What remedies or medications have you tried: Acupuncture, amitriptyline, CBT, reiki, oromorph
What makes you feel better: cold crisp days and distraction/meditation, doing something enjoyable
What makes you feel worse: hot weather, stress,
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: tap water
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: Its difficult to know what illness is causing what, my answers are about me as a whole not disease specific
Are we missing any important questions: not that l can think of, brain fog!!!

02/16/2010
First Name: Robin
Age: 42
Male or Female: female
City: Winslow
State/Province: Maine
Country: USA
How long have you lived there: 32 years
Where were you born: Springfield Mass.
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: certified nursing assistant/homehealh aide
How has Fibro affected your ability to work: i don't work anymore
How has Fibro affected your life: i can't work, clean house cook garden, play with my granddaughter or be intimate with my husband
What were your first symptoms: i honestly just remember having pain in the bottom of my neck
Your age at onset of symptoms: 39
How fast was your rate of decline: rapidly after chemo and radiation treatments
What are your current symptoms: fatigue,every place in my body hurts, my left shoulder down into my neck hurt extremely bad. my right shoulder hurts as well when i sleep i wake in tears because my shoulders feel stuck my husband has to help me get out of bed,
Number of years since you developed symptoms of fibromyalgia: 4
Do your symptoms include brain fog: not sure
Number of years since you developed the brain fog:
Describe the extent of your brain fog:
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: i don't have a good repore with my dr. he does not listen to all my body pains he focuses on one thing at a time
What remedies or medications have you tried: lyrica,gabapentin,savella,cymbalta trazodone
What makes you feel better: nothing
What makes you feel worse: any kind of moving, i can't clean my house maybe one room at a time everyother day
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: i just want the pain to go away.so i can have my life back
Are we missing any important questions: not that i know of

02/15/2010
First Name: Annika
Age: 31
Male or Female: female
City: Gothenburg
State/Province: Sweden
Country: Sweden
How long have you lived there: 31 years
Where were you born: Gothenburg,Sweden
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: was working on the line with packing pharmaceuticals
How has Fibro affected your ability to work: had to quit, could no longer keep up the speed, had difficulties moving about and problems lifting even quite light things. The pain was sometimes so bad I had to run in to the bathroom and cry.
How has Fibro affected your life: everything has changed, my life feels over, before I have been trekking in Nepal, backpacking alone trough latinamerica etc, now I can barely walk in to town. I'm so tired and suffer from horrible migraine attacks several times a week. The FM pain is unbearable without strong painkillers and I feel my whole personalaty is different. I used to be a happy and kind person, now I'm just bitter and sad. I no longer see my friends because of this, I just want to cry.
What were your first symptoms: a weird, moving feeling in the body. It's difficult to explain but it felt like one could imagine a wind moving around in the body. when resting it felt like the inside of the body was not resting. I also had sleeping difficulties.
Your age at onset of symptoms: 30
How fast was your rate of decline: first came the pain and tiredness and sleeping problems, felt like a very bad flu, after about 6 moths came the loss of strenght,especially in my arms. Very stiff body. During the last 6 months it has just become worse and I can now no longer tolerate the pain without strong (codeine) painkillers. The last 2 months I have also felt very foggy in the head, dizzy, and very very weak.
What are your current symptoms: See above
Number of years since you developed symptoms of fibromyalgia: 1
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: about 2-3 MONTHS ago
Describe the extent of your brain fog: Feel slow and weak, difficult to concentrate. Dizzy, especially when walking.
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: no!
Do your doctors treat your symptoms individually or collectively: Here in Swden they prefer to not treat you at all, except maybe with some antidepressants. I had to fight to get painkillers that work.
Describe your experience with doctors: See above. I have developed a hatred for swedish doctors after how I have been treated. I can't describe how horrible it have been, the first 6 moths there were no one that believed me, they just said i was tired or depressed. They didn't listen whenI told about the pains, and one dr said openly that she didn't believe that FM existed. Finally after 7 months I came to the company dr who actually listened and took me seriously. She was the first one that actually looked at my body and checked the pressure points. She said it was FM and I then came to a special FM clinic. The dr there is not very understanding though, the general idea in this country is that FM developes because there is connection in the brain that has gone wrong and that one just has to learn to live with the pain.
What remedies or medications have you tried: diflofenac, arcoxia (strong anti-inflammatory)paraflex (muscle relaxant) cymbalta, lyrica, tramadol, citodon(paracetamol 500mg+ 30mg codeine)
What makes you feel better: the strong codeine painkillers are the only thing that have made any difference. Also I think I probably need the anti depressant to be able to stand this miserable life...
What makes you feel worse: Stress. physical work,even light gardening that I really enjoy can make me unable to use my arms the next day.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no (but I will now after having found this website!)
Have you tried any thyroid specific treatments: no
Your theories or comments: I'm absolutely sure that my FM started as a result of the very heavy stress I felt at my work, the noise and the stress of having to work on a line and keeping up the speed started this whole thing for me.
Are we missing any important questions: About stress! I'm absolutely sure that this can be a trigger. That it "eats" up important minerals or just disrupts the whole system in the body.

02/15/2010
First Name: Michelle
Age: 37
Male or Female: Female
City: Montgomery
State/Province: AL
Country:
How long have you lived there: 9 years
Where were you born: Hometown: Pensacola
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Editor/communications
How has Fibro affected your ability to work: Yes, but I just cope.
How has Fibro affected your life: Yes. I must ration activity and "save up" for periods of exertion, such as shopping, walking, long car trips, etc.
What were your first symptoms: Pain in my feet and hands.
Your age at onset of symptoms: Around age 28-30.
How fast was your rate of decline: About two years.
What are your current symptoms: Pain, fatigue, gastrointestinal problems,depression, ringing in my ears, difficulty sleeping, vitamin deficiencies.
Number of years since you developed symptoms of fibromyalgia: Almost 10.
Do your symptoms include brain fog: YES
Number of years since you developed the brain fog: Five.
Describe the extent of your brain fog: Confusion, disorientation, difficulty recalling names, matching names to faces, slowed mental processing.
Estimate number of doctors you have seen for Fibro related symptoms: Six to eight.
Do your doctors tend to focus on all your Fibro symptoms: Yes. I have a very patient primary physician who listens well and takes my symptions seriously.
Do your doctors treat your symptoms individually or collectively: Both.
Describe your experience with doctors: Generally positive.
What remedies or medications have you tried: B12 injections monthly; anti-depressants.
What makes you feel better: B12, antidepressants, exercise, SLEEP! and reduced stress.
What makes you feel worse: Lack of sleep, stress, low-protein foods, exertion.
Have you tried avoiding fluoride in your diet: I am just beginning to do this.
If so, which sources of fluoride: Tooth paste, will address water soon.
Have you made dietary changes to avoid any other neutrotoxins: No.
Have you tried any thyroid specific treatments: No.
Your theories or comments: I think my case is caused by fluoride toxicity. Montgomery uses 4 ppl of fluoride, four times the amount "needed" to fluoride water. I grew up and went to college in a city that did not fluoridate water and I was never sick. Never.
Are we missing any important questions:

02/14/2010
First Name: MML
Age: 46
Male or Female: Female
City: Saint Cloud
State/Province: Florida
Country: U.S.A
How long have you lived there: 7 years
Where were you born: Puerto Rico
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: Yes
What is Your Line of Work: Nurse
How has Fibro affected your ability to work: Almost completely
How has Fibro affected your life: Completely
What were your first symptoms: Right side of my back.
Your age at onset of symptoms: 36 years
How fast was your rate of decline: Not too fast.
What are your current symptoms: Pain in my back, neck, shoulder, mid back,low back, sometimes head, lots of depression, fingers numbness.
Number of years since you developed symptoms of fibromyalgia: 10 years.
Do your symptoms include brain fog: YES. Many times.
Number of years since you developed the brain fog: 2 years.
Describe the extent of your brain fog: In my job I do similar tasks every days for about 10 years;Now, Many times I forget how to do it.
Estimate number of doctors you have seen for Fibro related symptoms: 5 private, 6 in ER.
Do your doctors tend to focus on all your Fibro symptoms: No.
Do your doctors treat your symptoms individually or collectively: Collectively
Describe your experience with doctors: F. The last one B plus.
What remedies or medications have you tried: Skelaxin 800mg, Diazepan 2mg, Methocarbamol 500mg, Trazodone 50mg, Omeprazole 20mg, Zolpidem 10mg, Oxicodone HLC 15mg, Naproxen 500mg, Protonix 40mg, Cimbalta 20mg, Premarin .625mg.
What makes you feel better: Nothing. (Sometimes massages.)
What makes you feel worse: The stress of my job and when I carry machines.
Have you tried avoiding fluoride in your diet: No.
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: No
Have you tried any thyroid specific treatments: No
Your theories or comments: I thinks I have something princked, jam,
Are we missing any important questions: Nausea, constipated, diarrhea, to vomit, seasickness (dizzy)depression.

02/11/2010
First Name: sue
Age: 48
Male or Female: female
City: bethesda
State/Province: md
Country: usa
How long have you lived there:
Where were you born: uk
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: health, environmental
How has Fibro affected your ability to work: bed ridden
How has Fibro affected your life: extreme with limited social life
What were your first symptoms: hard to say- pain all over and increasing headaches?
Your age at onset of symptoms: unkonwn
How fast was your rate of decline: rapid after physical trauma
What are your current symptoms: cfs, chronic migraines, severe chronic pain, insomnia, stiffness,exhaustion, decline of cognitive function...
Number of years since you developed symptoms of fibromyalgia: can't remember
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: unknown
Describe the extent of your brain fog: dylexia worse, decision making impaired, concentration limited, memory challenged, etc
Estimate number of doctors you have seen for Fibro related symptoms: too many to count >15
Do your doctors tend to focus on all your Fibro symptoms: never
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: most wanted to help but were fighting their professional political battles within the system regarding the condition. others did not care and made that very clear b/c they do not believe it existed.
What remedies or medications have you tried: all that were and are recommended
What makes you feel better: nothing really. must pace myself to keep current symptoms at a minimum. warm sunny climates. good air quality.
What makes you feel worse: activity, ignorant people, most medications, cold damp winters, smog, allergens,
Have you tried avoiding fluoride in your diet: yes
If so, which sources of fluoride: toothpaste
Have you made dietary changes to avoid any other neutrotoxins: yes
Have you tried any thyroid specific treatments: thyroxine so far has helped the most of any medication for every thing but pain
Your theories or comments:
Are we missing any important questions:

02/10/2010
First Name: THOMAS
Age: 29
Male or Female: MALE
City: HAVELOCK
State/Province: NC
Country: USA
How long have you lived there: 1 YEAR
Where were you born: CINCINATTI
Is this the first time you have taken our questionnaire: YES
If not, why are you returning:
Are you still working: YES
What is Your Line of Work: MARINES
How has Fibro affected your ability to work: IT KEEPS ME FROM PERFORMING MY DAILY PHYSICAL ACTIVITIES AND PRECLUDES ME FROM DEPLOYMENT
How has Fibro affected your life: KEEPS ME FROM ENJOYING THE SIMPLE PLEASURES THAT I ENJOYED BEFORE I GOT THESE SYMPTOMS
What were your first symptoms: ABDOMINAL PAIN, BACK PAIN/SPASMS
Your age at onset of symptoms: 28
How fast was your rate of decline: 2 YEARS
What are your current symptoms: ABDOMINAL PAIN, BACK PAIN, HEADACHES,JOINT PAIN, CONFUSION
Number of years since you developed symptoms of fibromyalgia: 8
Do your symptoms include brain fog: YES
Number of years since you developed the brain fog: 4
Describe the extent of your brain fog: I ALWAYS FEEL AS IF I CANNOT REMEMBER THE SIMPLEST THINGS. I OFTEN FORGET WHAT I AM SAYING OR IF I AM TALKING ABOUT AN OBJECT I FORGET WHAT IT IS CALLED AND I OFTEN GET REALLY FUSTRATED WHEN I DO IT AND I JUST CALL IT A "THING"
Estimate number of doctors you have seen for Fibro related symptoms: 3
Do your doctors tend to focus on all your Fibro symptoms: NO
Do your doctors treat your symptoms individually or collectively: COLLECTIVELY
Describe your experience with doctors: I DONT REALLY KNOW WHAT TO THINK OF THEM. THEY HAVE TOLD ME THAT I HAVE SOME TYPE OF NERVE DAMAGE BUT THEY PRESCRIBED ME LYRICA FOR THE PAIN WHICH IS A MEDICATION FOR FIBROMYALGIA
What remedies or medications have you tried: LYRICA CURRENTLY ON 300MG A DAY
What makes you feel better: NOTHING
What makes you feel worse: PHYSICAL ACTIVITY
Have you tried avoiding fluoride in your diet: NO
If so, which sources of fluoride: N/A
Have you made dietary changes to avoid any other neutrotoxins: NO
Have you tried any thyroid specific treatments: NO BUT I HAVE BEEN TOLD I HAVE SUB-CLINICAL HYPOTHYROIDISM
Your theories or comments: I AM REALLY AT A LOSS AS TO WHAT IS WRONG WITH ME. IF IT IS FIBROMYALGIA OR WHATEVER I HAVE I AM JUST TIRED OF FEELING LIKE CRAP ALL THE TIME
Are we missing any important questions: NO

02/10/2010
First Name: Melinda
Age: 52
Male or Female: Female
City: Lexington
State/Province: SC
Country: USA
How long have you lived there: 6 years
Where were you born: USA
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: speech pathologist
How has Fibro affected your ability to work: yes
How has Fibro affected your life: I went from very active to barely getting through the day
What were your first symptoms: pain, exaustion
Your age at onset of symptoms: 38
How fast was your rate of decline: with in 6 months
What are your current symptoms: pain and fatigue
Number of years since you developed symptoms of fibromyalgia: 14
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: unsure
Describe the extent of your brain fog: forgetfulness
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: depends on the doctor
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: they usually said "take antidepressants and exercise"
What remedies or medications have you tried: herbal
What makes you feel better: not having to work a full time job
What makes you feel worse: stress
Have you tried avoiding fluoride in your diet: no but we are on well water now
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: caffeine
Have you tried any thyroid specific treatments: kelp powder
Your theories or comments: the pain does seem less now that we are on well water. My immune system is messed up but I don't know if that is related to the fibro.
Are we missing any important questions:

02/09/2010
First Name: Bryan
Age: 46
Male or Female: Male
City: Albuquerque
State/Province: New Mexico
Country: USA
How long have you lived there: 35 years
Where were you born: Albion. Michigan
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: No
What is Your Line of Work: I was a manufacturing technician
How has Fibro affected your ability to work: It has wiped me out 100%
How has Fibro affected your life: I have gone from being an outgoing, happy person to a homebound depressed broke person.
What were your first symptoms: I started to have an occasional flulike feeling on top of a sharp pain in my coccyx area.
Your age at onset of symptoms: 43
How fast was your rate of decline: From onset to full blown - 4 months
What are your current symptoms: Almost daily fatigue and bodyache. Mornings are really bad. Can't hardly get out of bed from pain and stiffness. Sometimes it wakes me up 3-4am. Bad fog and memory.
Number of years since you developed symptoms of fibromyalgia: 3
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 2
Describe the extent of your brain fog: My father says I "ahhh" a lot and stop in middle of sentences. Time keeps "skipping" on me. It's 8am, then noon with no memory of what happened. Cannot concentrate
Estimate number of doctors you have seen for Fibro related symptoms: 7
Do your doctors tend to focus on all your Fibro symptoms: Yes
Do your doctors treat your symptoms individually or collectively: Collectively
Describe your experience with doctors: At first the specialists were difficult and disbelieving but once I had a diagnosis they changed into very helpful.
What remedies or medications have you tried: probably in the range of 25 different ones before aI found some relief.
What makes you feel better: Low stress, fresh food diet, easy excercise, yoga
What makes you feel worse: Heavy food, stress, too much excercise, cold weather, weather changes
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes
Have you tried any thyroid specific treatments: no
Your theories or comments: I had gotten sick in Sept '07 with sinus and ear infections. Couldn't shake them for weeks. It seemed to have all started from then.
Are we missing any important questions:

02/07/2010
First Name: April
Age: 43
Male or Female: female
City: Bonney Lake
State/Province: WA
Country: United States
How long have you lived there: 7 years
Where were you born: Olalla
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: construction
How has Fibro affected your ability to work: I can no longer do physical work of any kind without great discomfort. Vacuuming the house will cost me 2 or 3 days in recovery. Even running general errands around town (stopping at a couple stores for brief shopping stints) will cause enough pain that I will not go for another two weeks.
How has Fibro affected your life: I no longer enjoy life at all - no social life per se, I've been unemployed for 11 months and have been battling increasing physical pain. Everything is planned based on the amount of pain I am currently dealing with. Mental exhaustion and sleep problems have kept me in a depressed state for quite some time. It's difficult to think and hold clarity of mind.
What were your first symptoms: muscle spasms Voodoo doll stabbing pains severe joint pain - hips, elbows, shoulders
Your age at onset of symptoms: 41 or earlier
How fast was your rate of decline: gradual until age 43, then quickly the last six months
What are your current symptoms: constant pain in muscles (roving pain, with a sprinkling of stabbing pains thrown in for variety) SEVERE joint pain muscle twitching/spasms extremely low/non-existent energy depression disturbed sleep continual food cravings (esp. chocolate & bread) mental fog short term memory problems heavy periods (?) an overall soreness that feels like I just participated in a triathalon.
Number of years since you developed symptoms of fibromyalgia: looking back, I'd have to say it was coming on five years ago AT LEAST. It's hard to say, considering there seem to be so many symptoms that are associated with the fibro.
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 3
Describe the extent of your brain fog: The ability to concentrate and remember details has become extremely difficult. My reading comprehension has slowed dramatically. Remembering the simplest things can be a chore. Mental exhaustion and sleep problems have kept me in a depressed state for quite some time. It's difficult to think and hold clarity of mind.
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: both
Describe your experience with doctors: I was diagnosed by my accupuncturist, who also specializes in Jaffe-Malor energetic healing. He was focusing on eliminating the mycoplasmas that he considered the cause of the fibro, but I ran out of money and can no longer see him. Since then, my symptoms have gotten worse (haven't seen him for a year).
What remedies or medications have you tried: prescription strength ibuprofen epsom salt soaks (baths) walking
What makes you feel better: ibuprofen
What makes you feel worse: too much activity - even mild walking
Have you tried avoiding fluoride in your diet: yes
If so, which sources of fluoride: pesticides, tap water, drugs, toothpaste
Have you made dietary changes to avoid any other neutrotoxins: extremely limited fast food and processed food (including soda)
Have you tried any thyroid specific treatments: no, am just learning about how to deal with this
Your theories or comments: I have also heard about MMS and the borax/sea salt approach. I will try one or both of those to see how they do. I thought the amount of symptoms I was feeling in the past couple of years was brought on by the massive stress and grief I was experiencing from my husband's illness and death and the loss of my job at the same time. Family doctor and counselor both told me that grief can manifest itself physically. Now that my grief is diminishing, you'd think my pain would as well, but it has only gotten extremely worse.
Are we missing any important questions:

02/07/2010
First Name: Lois
Age: 50
Male or Female: female
City: Bracknell
State/Province: Berkshire
Country: UK
How long have you lived there: Born here
Where were you born: Leicestershire
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work:
How has Fibro affected your ability to work: umable to work
How has Fibro affected your life: ruined it
What were your first symptoms: Chronically fatigued in teens - labelled as hypochondriac
Your age at onset of symptoms: 13+ ( that I am aware of)
How fast was your rate of decline: slow to start with, thyroid tumour at 24, kept working to 48, then unable to work
What are your current symptoms: severe - pain and stiffness all over, poor sleep, brain fog, headaches, ibs, nausea, bad balance (I fall over easily)
Number of years since you developed symptoms of fibromyalgia: undiagonised for years, 1 year ago new doctor spotted it straight away - probably over 30 years in milder form
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 10+
Describe the extent of your brain fog: unable to remember what doing, cannot carry out conversation, very tired feeling, brain won't work, but able to remember some events clearly from years ago
Estimate number of doctors you have seen for Fibro related symptoms: 10
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: most do not recognise the condition as a whole. Label you as hypocondriac
What remedies or medications have you tried: vitamins and mineral supplements especially B and magnesium, Coq10, omega 3, 6 + 9 oils, paracetamol and codiene for pain relief
What makes you feel better: dry, warm, sun, heat, subdued lighting
What makes you feel worse: cold, damp, rain, draughts, stress, fluoresecent and bright lighting
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: Many doctrs are not educated about this horrible life ruining condition, which seems to me to be related to metabolism at a very basic level. They just do not recognise it when they see it!
Are we missing any important questions: yes - what medications from your doctor do you take/or have been prescribed?

02/07/2010
First Name: James
Age: 48
Male or Female: male
City: Waterbury
State/Province: CT
Country: USA
How long have you lived there: 48
Where were you born: Waterbury, CT
Is this the first time you have taken our questionnaire: ys
If not, why are you returning:
Are you still working: no
What is Your Line of Work: teacher and business manager
How has Fibro affected your ability to work: yes
How has Fibro affected your life: The chronic pain, fatigue and fibrofog makes it almost impossible to work.
What were your first symptoms: Right hip, could hardly walk with crushing fatigue
Your age at onset of symptoms: 43
How fast was your rate of decline: almost in a wheelchair within a month
What are your current symptoms: minor pain but sleep disturbance, fibrofog
Number of years since you developed symptoms of fibromyalgia: 5
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 5
Describe the extent of your brain fog: can't remember names, invert the first letter of 2 words, at times I feel dull and don't retain info or people talking seem mumbled
Estimate number of doctors you have seen for Fibro related symptoms: 3
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: yes
Describe your experience with doctors: my internest diagnosed me and has been great, my psychologist is totally supportive, my chiropractor was less understanding
What remedies or medications have you tried: Ambien, Ultram, Wellbutrin,Lexapro, chiropractic
What makes you feel better: ultram was the miracle drug, I also tried Savella for some 3 weeks but had to stop due to side effects but I continue in a "remission" of pain
What makes you feel worse: stress, getting over tired, physical exertion, cold
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

02/06/2010
First Name: REBECCA
Age: 38
Male or Female: FEMALE
City: LAKESIDE
State/Province: AZ
Country: USA
How long have you lived there: 9 YRS
Where were you born: FLAGSTAFF AZ
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: YES
What is Your Line of Work: RN RADILOGY
How has Fibro affected your ability to work: DECREASED HRS OR MORE RECOVERY TIME AT HOME, MEANS LESS DONE AT HOME
How has Fibro affected your life: I FEEL LESS THAT WHOLE, LABELED, NO FUN IN LIFE ANYMORE, CONSTANT CONCERN FOR HEALTH WITH DIET AND ACTIVITY. REALLY NUTS
What were your first symptoms: ACHE MUCSLES, FATIQUE, JOINT PAIN, CLOUDY THINKING, DEPRESSION,
Your age at onset of symptoms: 36
How fast was your rate of decline: 1 YEAR TO 18 MONTHS
What are your current symptoms: FATIGUE, JOINT PAIN, MUSCLE PAIN, DIZZINESS, IRRIATABLE BLADDER, NOT MENTALLY AS SHARP AS BEFORE, HAIR LOSS, DEPRESSION, SENSE OF NOT BEING MYSELF. MOSTLY WIERD PAIN.
Number of years since you developed symptoms of fibromyalgia: 1
Do your symptoms include brain fog: YES
Number of years since you developed the brain fog: 2
Describe the extent of your brain fog: FORGETFUL, HARD TO CONCENTRATE WHILE READING, OUT THERE FEELING
Estimate number of doctors you have seen for Fibro related symptoms: 7
Do your doctors tend to focus on all your Fibro symptoms: NO
Do your doctors treat your symptoms individually or collectively: INDIVIDUALLY
Describe your experience with doctors: 1/2 PLEASENT AND HELPFUL (BEING A NURSE SEEMS TO CHANGE THEIR VIEWS) THE OTHER 1/2 CLUELESS NOR HELPFUL
What remedies or medications have you tried: DIET CHANGE, MMS, HERBEL REMEDEIES, INCREASE SUPPLEMENT, YOGA, JACUZZI, MEDICATIONS,,NARCOTICS HELP THE BEST, I DONT LIKE ANY SSRI'S. MELATONIN AND CLONIPIN TO SLEEP PRAYER, MEDIDATION, BRAIN RESTATE, AND MORE.
What makes you feel better: MEDICATIONS AND SLEEP.....BEING ALONE!!!!!!!!!
What makes you feel worse: PRESSURE...STRESS, WORKING LONG HOURS.
Have you tried avoiding fluoride in your diet: NOW I AM
If so, which sources of fluoride: CIPRO, ?EXPOSED TO AIR SPRAYED PESTICIDES AS CHILD. LIMITED TAP WATER FROM WELL SOURCE. TOOTHPASTE.
Have you made dietary changes to avoid any other neutrotoxins: ASPARTAME, MSGS MOST ANY FOODS WITH HIGH PERSV. OR NITRATES
Have you tried any thyroid specific treatments: ON T3 AND T4 NOW
Your theories or comments: THERE IS A CURE AND IT IS NOT BEING EXPOSED TO US. THERE ARE OTHER DIESASES THAT EXIST THAT ARE MAN MADE. I JUST DON'T GET IT!!
Are we missing any important questions: HOW WHERE YOU DIAGNOSES WITH FM?

02/04/2010
First Name: Amber
Age: 29
Male or Female: Female
City: Joplin
State/Province: MO
Country: United States
How long have you lived there: 4 years
Where were you born: Monett
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: Yes
What is Your Line of Work: Office Manager
How has Fibro affected your ability to work: Tired, forgetful, I try to keep going but the pain makes me slow.
How has Fibro affected your life: Same as above. Can't plan vacations or family trips. Even planning a BBQ for friends or having a sleepover for my daughter is hard. Doing dishes is so hard and deep cleaning is impossible.
What were your first symptoms: Aches throughout my body. Feels like I have the flu at all times.
Your age at onset of symptoms: 20 ish.
How fast was your rate of decline: Slow at first but seemed to speed up this past year.
What are your current symptoms: Tired, aches all over my body, sensitive to light, forgetful.
Number of years since you developed symptoms of fibromyalgia: 9
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 1
Describe the extent of your brain fog: Mild. Have trouble remembering facts and words when talking. Have to write everything down or I will forget it within seconds.
Estimate number of doctors you have seen for Fibro related symptoms: 1
Do your doctors tend to focus on all your Fibro symptoms: Haven't really talked extensively with a doctor. He just said that I have Fybro and kind of left it at that.
Do your doctors treat your symptoms individually or collectively:
Describe your experience with doctors: I have gone through all kinds of test resulting from my last car wreck and my back pain. I saw a rheumatologist and he diagnosed me with Fybro. I haven't really followed up on it yet due to insurance issues. I am now in the process of finding a doctor.
What remedies or medications have you tried: Variouse antidepressants and pain pills.
What makes you feel better: The pain pills help for an hour or so but they make me tired and feel "high". I take a generic of Hydrocodone.
What makes you feel worse: Everything.
Have you tried avoiding fluoride in your diet: No
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: No
Have you tried any thyroid specific treatments: No
Your theories or comments:
Are we missing any important questions:

02/04/2010
First Name: Richard
Age: 53
Male or Female: Male
City: Wyandotte
State/Province: Michigan
Country: USA
How long have you lived there: 3 years
Where were you born: Oceanside, Calif
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: telephone lineman
How has Fibro affected your ability to work: Hard on joints, pain makes it hard to climb poles
How has Fibro affected your life: messed up sex life hard to do chores
What were your first symptoms: painful to be touched
Your age at onset of symptoms: 52
How fast was your rate of decline: very fast
What are your current symptoms: cronic pain, numbness in hands, joint and skin pain, balance messed up
Number of years since you developed symptoms of fibromyalgia: 1
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 1
Describe the extent of your brain fog: forget simple things like how to wright the date
Estimate number of doctors you have seen for Fibro related symptoms: 4
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: last one helped me
What remedies or medications have you tried: gabapentin,vicodin
What makes you feel better:
What makes you feel worse: not moving
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: yes
Have you tried any thyroid specific treatments: no
Your theories or comments:
Are we missing any important questions:

02/03/2010
First Name: Danielle
Age: 24
Male or Female: Female
City: Brighton
State/Province: East Sussex
Country: United kingdom
How long have you lived there: All my life
Where were you born: Uk
Is this the first time you have taken our questionnaire: Yes
If not, why are you returning:
Are you still working: No
What is Your Line of Work:
How has Fibro affected your ability to work: Yes
How has Fibro affected your life: Yes
What were your first symptoms: Severe shoulder pain
Your age at onset of symptoms: 18
How fast was your rate of decline: Got worse and as bad as it is now by age of 20
What are your current symptoms: Severe anxiety depression I don't sleep severe shoulder pain bad back with pain running down backs of my legs constantly tired
Number of years since you developed symptoms of fibromyalgia: 6years
Do your symptoms include brain fog: What's that!!
Number of years since you developed the brain fog:
Describe the extent of your brain fog:
Estimate number of doctors you have seen for Fibro related symptoms: 3
Do your doctors tend to focus on all your Fibro symptoms: No
Do your doctors treat your symptoms individually or collectively: Collectivly
Describe your experience with doctors: In a word 'rubbish'
What remedies or medications have you tried: Antidepressents anti inflam drugs arcoxia pills for arthritis don't work
What makes you feel better: Nothing
What makes you feel worse: This
Have you tried avoiding fluoride in your diet: No
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: No
Have you tried any thyroid specific treatments: Had my thyroid tested it's fine
Your theories or comments: I hate my life living in constant pain
Are we missing any important questions:

02/02/2010
First Name: Michelle
Age: 43
Male or Female: female
City: winnipeg
State/Province: mb
Country: canada
How long have you lived there:
Where were you born:
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: np
What is Your Line of Work: Secratarial - sitting standing moving around alot - fast pace job
How has Fibro affected your ability to work: the pain and the fatigue are so bad - i have to take alot of meds for the pain so i am out of it
How has Fibro affected your life: I am very depressed rigth now - and feel what did I do to deserve this - everything was going good for me with life and work and now I cant even go grocery shopping
What were your first symptoms: pain - then my wrists got all puffy - I went to the doctor and said I think I am going to die
Your age at onset of symptoms: 42
How fast was your rate of decline: quick
What are your current symptoms: pain, burning shooting aches my feet I can hardley walk on - brain fog - depressed - tired all the time
Number of years since you developed symptoms of fibromyalgia: last march 2009
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: last two months
Describe the extent of your brain fog: what happens is I will be telling a story or just chatting with someone and I will go to take my turn to speak and I have forgot what I had to say it is very embarassing...
Estimate number of doctors you have seen for Fibro related symptoms: 6 at least
Do your doctors tend to focus on all your Fibro symptoms: Yes
Do your doctors treat your symptoms individually or collectively: individualy
Describe your experience with doctors: most of mine have been good - it took me a while to find that good family doctor that you need to support you...
What remedies or medications have you tried: amitriphline/tramacet and tridural for the pain.. t 3's did not like cymbalta
What makes you feel better: tridura and tramacet
What makes you feel worse: cymbalta
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: pres drugs
Have you made dietary changes to avoid any other neutrotoxins: yes
Have you tried any thyroid specific treatments: no
Your theories or comments: you have to watch how much meds are being pushed on you - some are really doing nothing...
Are we missing any important questions: no

02/02/2010
First Name: elizabeth
Age: 62
Male or Female: female
City: martinsville
State/Province: va
Country: usa
How long have you lived there: 62 yrs
Where were you born: martinsville
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work:
How has Fibro affected your ability to work: it did
How has Fibro affected your life: yes
What were your first symptoms: 8 years ago
Your age at onset of symptoms: 54
How fast was your rate of decline: very...but would go into remission
What are your current symptoms: aches, burning sensation, pressure points, can't sleep, irratable bowel, sentifity to lights, sounds, smells, weight gain, brain fog, depressed
Number of years since you developed symptoms of fibromyalgia: 9
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 5
Describe the extent of your brain fog: some days very bad
Estimate number of doctors you have seen for Fibro related symptoms: 5
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: once they diagnose you with one thing, they blame everything on that one diagnosed
What remedies or medications have you tried: wellebutrin, prozac, lexapro, cymbaltra, lyrica, gambe, nortripline, requip, others
What makes you feel better: requip for legs sometimes..nothing else works
What makes you feel worse: all above except requip
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: Synthroid
Your theories or comments:
Are we missing any important questions:

02/02/2010
First Name: Elizabeth
Age: 32
Male or Female: Female
City: Kissimmee
State/Province: FL
Country: USA
How long have you lived there: 20 yrs
Where were you born: Michigan
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: no
What is Your Line of Work: retail, banking
How has Fibro affected your ability to work: I cannot physically be consistant enough to keep up with work. Have worked on and off for years now due to this. When I would feel like I couldn't keep up I would leave work and become a homemaker (for fear of being fired if I stayed and continued to decline). It seems I could only handle one or the other. Was very difficult to take care of a household and work full time. Last year I went back to work againw/a bank and decided to ride it out while working w/my doctors. I Was fired 7 months in due to my innability to focus, memory loss, confusion. I made too many mistakes, even though I was present everyday and never tardy. I just couldn't mentally cut it. The brain fog is the one thing I can't push through. I just can't think my way out of a paper bag sometimes.
How has Fibro affected your life: It has been extrememly tramatic to go from being a highly intelligent, very energetic person to and extremely tired, sore, foggy headed person. Also have developed a rapid heart rate and hypoglocemia, as well as scoliosis and tmj, which just compounds issues of brain fog, fatigue, and pain. Have family history of autoimmune disease. I tested positive, however no actual autoimune disease has been diagnosed. Just the Fibro and others listed above
What were your first symptoms: fatigue, feeling as though my body "forgot how to relax", frequent headaches
Your age at onset of symptoms: betweeb 20-22 yrs of age
How fast was your rate of decline: fairly slow progression unitl about the age of 25, then seemed to take on a rapid decline
What are your current symptoms: muscle pain, weekness, stiff joints, fatigue, extreme bouts of insomnia
Number of years since you developed symptoms of fibromyalgia: 10-12 yrs
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 6-7 yrs
Describe the extent of your brain fog: Extreme. I feel as though I am mentally impaired. I probably shouldn't even be driving a vehicle during extreme flare ups.
Estimate number of doctors you have seen for Fibro related symptoms: 3-4
Do your doctors tend to focus on all your Fibro symptoms: No
Do your doctors treat your symptoms individually or collectively: Individually
Describe your experience with doctors: Not very informative, treatment is very minimal and not very helpfull. I have learned more on my own through online research.
What remedies or medications have you tried: lexapro, flexeril, metoprolol, lyrica (only took 3 pills and was taken off them due to a possible adverse reaction)
What makes you feel better: these medications used to help some, but has seemed to stopped working as good. Basically listening to my body and pacing myself is the best I can do.
What makes you feel worse: stress, weather changes ie: rain, cold, strenous physical activities
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: n/a
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: I believe much of this to be hereditary. Yet seemed to be triggered near the time of my first (and only) pregnancy. But, also near a very traumatic time in my life. The death of my spouse.
Are we missing any important questions:

02/01/2010
First Name: Becky
Age: 51
Male or Female: Female
City: Kingwood
State/Province: TX
Country: USA
How long have you lived there: 5 yrs
Where were you born: OK
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Computer/bookkeeping
How has Fibro affected your ability to work: I sit at my desk and can only handle 30 to 45 minutes. then I have a flareup that last up to 2 days. Trying to think while in suck pain is almost impossible.
How has Fibro affected your life: I spend way too much time in bed with a heating pad, I have a hard time sitting due pain, hips and ribs. I can stand or lay down. Its taking away the good times with my husband and daughter, makiing our lives in a box.
What were your first symptoms: IBS and then pain
Your age at onset of symptoms: 5 yrs
How fast was your rate of decline: I pushed thru the pain and took lots of over counter pains After IKE I went done fast and ended up in bed, looks of stress
What are your current symptoms: pain, numbness, feeling like I want to sleep or just be done with all of this not being able to think headaches hands hurt where the hand center did major surgery back hurts
Number of years since you developed symptoms of fibromyalgia: over 40 yrs
Do your symptoms include brain fog: YES
Number of years since you developed the brain fog: 2
Describe the extent of your brain fog: lost of thought, words, making it so bad I am not comfortable with people or answering phone
Estimate number of doctors you have seen for Fibro related symptoms: 5
Do your doctors tend to focus on all your Fibro symptoms: My last one does
Do your doctors treat your symptoms individually or collectively: individually
Describe your experience with doctors: at first I am made to fill silly but as the years have gone by they are listeningp
What remedies or medications have you tried: pain meds, Fibro meds
What makes you feel better: Pain meds
What makes you feel worse: worse, I don't have any good days and too tired to think this one thru
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: water and toothpaste
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: I am on Synthrod
Your theories or comments: Im good
Are we missing any important questions: What is this Fibro shit and where did it come from, I just want it out of here!!

02/01/2010
First Name: Debra
Age: 54
Male or Female: female
City: Newaygo
State/Province: MI
Country: USA
How long have you lived there: 54 years
Where were you born: Grand Rapdis, MI
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Own my business. I make my own jerky. I will have to close my store at the end of February, because of my Fibromyalgia.
How has Fibro affected your ability to work: I can't stand for very long. When I do the same motion for more than fifteen minutes my arms, hands and shoulds stiffen up.
How has Fibro affected your life: I can't do the things I want to do. Garden, paint, walk very far.
What were your first symptoms: stiff muscles, joints aching, brain fog, memory loss.
Your age at onset of symptoms: 28 years old
How fast was your rate of decline: a couple of months
What are your current symptoms: can't stand for more than 1 hour. Repeat motion causes arms, hands, shoulders, and back to get very stiff. My joints in my whole body hurts. I drop things all the time, because my strength is gone. My memory is very bad also.
Number of years since you developed symptoms of fibromyalgia: 26 years
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 28 years ago
Describe the extent of your brain fog: I forget how to get some places. I can't remember words to describe things. I know that there is a word for something, but I can't think of it.
Estimate number of doctors you have seen for Fibro related symptoms: 10
Do your doctors tend to focus on all your Fibro symptoms: no
Do your doctors treat your symptoms individually or collectively: some
Describe your experience with doctors: Not one of them is up on the treatment for Fibro. When you suggest somethings that you have read in the medical journals on line. They think you are insulting their intelligence.
What remedies or medications have you tried: Wellbutrin XL, Sythroid, Premarin, and Lyrica
What makes you feel better: Lyrica but too much makes me feel high.
What makes you feel worse: nothing really takes the pain away. Even Lyrica just dulls the pain.
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride: tap water along time ago. I haven't had fluoride since 1998.
Have you made dietary changes to avoid any other neutrotoxins: no, I don't know what that is
Have you tried any thyroid specific treatments: yes
Your theories or comments: I just wish that I could be normal, whatever that is. I get sick of feeling like crap every day.
Are we missing any important questions: I will have to close my store that I have owned for 5 years, because I don't have the strength to do the things anymore.

02/01/2010
First Name: Vickie
Age: 35
Male or Female: female
City: Oxford
State/Province: ct
Country: usa
How long have you lived there: 33
Where were you born: Texas
Is this the first time you have taken our questionnaire: yes
If not, why are you returning:
Are you still working: yes
What is Your Line of Work: Nurse
How has Fibro affected your ability to work: Ambulatory status. Pain in feet and legs
How has Fibro affected your life: Yes
What were your first symptoms: Pain in feet
Your age at onset of symptoms: 32
How fast was your rate of decline: 1 year
What are your current symptoms: feet hips neck, Dreams at night.Gastronintestinal, Gas,,Brain fog, Word searching, Using wrong words,
Number of years since you developed symptoms of fibromyalgia: 3
Do your symptoms include brain fog: yes
Number of years since you developed the brain fog: 2
Describe the extent of your brain fog: memory loss, word searching, using wrong words. Lack of words
Estimate number of doctors you have seen for Fibro related symptoms: 5
Do your doctors tend to focus on all your Fibro symptoms: yes
Do your doctors treat your symptoms individually or collectively: collectively
Describe your experience with doctors: sad, one dr. Mean
What remedies or medications have you tried: Lyrica, prozac, amitryptiline
What makes you feel better: staying off my feet, rest
What makes you feel worse: work
Have you tried avoiding fluoride in your diet: no
If so, which sources of fluoride:
Have you made dietary changes to avoid any other neutrotoxins: no
Have you tried any thyroid specific treatments: no
Your theories or comments: I wish there was a cure
Are we missing any important questions: ??

Archived Case Studies...
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