Cure Bourneville's Disease

Updated: 08/19/2011

Tuberous sclerosis or tuberous sclerosis complex (TSC) is a rare, multi-system genetic disease that causes benign tumours to grow in the brain and on other vital organs such as the kidneys, heart, eyes, lungs, and skin. A combination of symptoms may include seizures, developmental delay, behavioural problems, skin abnormalities, lung and kidney disease. TSC is caused by mutations on either of two genes, TSC1 and TSC2, which encode for the proteins hamartin and tuberin respectively. These proteins act as tumour growth suppressors, agents that regulate cell proliferation and differentiation. The name, composed of the Latin tuber (swelling) and the Greek skleros (hard), refers to the pathological finding of thick, firm and pale gyri, called "tubers", in the brains of patients postmortem. These tubers were first described by Desire-Magloire Bourneville in 1880; the cortical manifestations may sometimes still be known by the eponym Bourneville's disease. The physical manifestations of tuberous sclerosis are due to the formation of hamartia (malformed tissue such as the cortical tubers), hamartomas (benign growths such as facial angiofibroma and subependymal nodules) and, very rarely, cancerous hamartoblastomas. The effect of these on the brain leads to neurological symptoms such as seizures, developmental delay and behavioral problems. (Wikipedia)

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TED'S REMEDIES

08/17/2011: Jeff from Holywell, United Kingdom: "Hi there, while fighting candida albicans myself and enjoying earth clinics wonderful site, I was wondering if there is anything that can be done to help my work colleague's 8 yr old daughter.

She has very severe tubular sclerosis and is handicapped also she has just come thru an eight hour operation to remove a tumour (one of many) the size of a golf ball from her brain.

After initial success she seems to have gone backwards and the severe fitting and seizures have returned along with the not sleeping and screaming.

Is there anything that can be done to reduce the symptoms remembering that she is only 8 yrs old and cannot talk.

Any clear concise help would be greatly appreciated as the parents (close friend) are at there wits end. thank you, jeff"

Replies

08/19/2011: Ted from Bangkok, Thailand replies: "Borneville's disease is helped mostly I think with Ubiquinol CoQ10, not ubiquinone at this stage. Roughly for a 50 pound person I calculated to be 400 to 600 mg, and Quercetin 1000 mg. The doctors are likely to use rapamycin, but this is immunosuppressive. I prefer natural supplements that have anti proliferative nature, such as resveratrol 500 mg (which is rather large), chopped garlic, cats claw extract, mimosine, lycopene, citrus pectin, vitamin C, CLA (Conjugated Linoleic acid), vitamin E tocotrienols are the most well known. If it requires more radical supplement and get some energy to get out of coma for instance, it would have to be clove oil, methylene blue 0.1% drops, and Alpha Lipoic Acid with Acetyl L Carnitine are what I would look for. Since I don't have any cases here in Thailand I cannot tell you more details. But these are short term treatments for people who is unconscious and had tumor removed, so I could not recommend other supplements at the moment.

Ted"

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Cure Bourneville's Disease